Holiday worries

[Paige1999]

Hi lovely people, I am newly diagnosed with fibro. This is a amazing group and everybody seems very helpful. In just looking for some advice. In a few weeks time we are off on holiday with the family. We are staying on a holiday camp in devon. My problem is we have been there before and it is a very hilly camp. My problem is the walking around when the family want to do activities. My fibr o has progressed very quickly and I have to use a walking stick. My family are great but I really feel at times that I am a burden to them. U don't want to ruin anyone's holiday but I know my daughters will try to accommodate everything they want to do around me. We also have 3 under 10 years olds coming with us. Just wanted to ask advice as this disease is still very new to me.

[M0AL61 Moderator Volunteer]

Hi Paige, and a very warm welcome to the forum. You will get some good advice and tips here, and meet some lovely people.

Personally, I would sit down with all the adults who will be on holiday with you - and any older children who will understand. Just explain honestly to them what your limitations are, and that there may be days and times when you won't be able to keep up with them, and may even need to go and lie down for a while.

Make sure when you go that you take all the pain medication that you will need for the duration of your stay. If you have favourite pillows.cushions etc which are comfy take them with you. Also a heat pack in case you need it and a TENS machine if you use one.

Perhaps plan activities that you can have a rest in the middle of the day if needed etc.

I'm sure others here will have more ideas.

The main thing is - enjoy your holiday! xx

[Paige1999 in reply to M0AL61]

Thank you so much for your reply. I will do as you have suggested. We are all meeting up in the next couple of weeks so I will have this conversation with them.

[Springerpup]

As already suggested, talk through the plans and your limitations so you can all be prepared.

My last holiday involved a lot of walking around sightseeing and we managed it by making sure we had regular rests along the way so I could sit and recover a bit then each afternoon I had an hour where I could go back to bed to rest and sleep before dinner. There were also times when I just sat while they walked around. It really helped me enjoy it without pushing too far.

After the holiday I spent a week doing as little as possible to help me recover.

I hope you have a lovely holiday.

[Hazel_Angelstar Administrator FMA UK Staff]

Planning ahead definitely helps.... Let the other adults know your limitations.... But also let them know that you may need to cancel our change plans at last minute. Arrange a day or two where you maybe just rest, while others go off on activities. Plan regular rest periods .

When I go on holiday with family,... They know that I take part in as much as o can but they also respect that when I say I need to rest it can't do something.... That I'm not just being awkward.

Have a great holiday xxx