Posts - Fibromyalgia Action UK | HealthUnlocked

Fibromyalgia Action UK

59,443 members • 66,489 posts

All posts for June 2022

Pip shameful practices

My husband just came in from work very upset as his work college was off work due to a massive heart attack and vascular disease he applied for pip was...

My husband just came in from work very upset as his work college was off work du...

Raddi1

•2 years ago

15 Replies

long covid / fibromyalgia drug trial

Tonix Pharmaceuticals will target long Covid-19 in a Phase II trial set to start in the first half of this year, CEO Seth Lederman says. The trial will...

Tonix Pharmaceuticals will target long Covid-19 in a Phase II trial set to start...

JoseT

•2 years ago

20 Replies

Question

Why is deciding between 2 things so hard!? Feeling rubbish today I'm afraid legs feel horrid.

Why is deciding between 2 things so hard!? Feeling rubbish today I'm afraid leg...

Fibrofog

•2 years ago

16 Replies

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Daughter

Background: So having been diagnosed with Fibromyalgia last week at Pain Clinic, also struggling with Osteoarthritis for many many years having meant I’ve had...

Background: So having been diagnosed with Fibromyalgia last week at Pain Clinic...

HarleyBabe

•2 years ago

8 Replies

I'm new to my diagnosis - but not the condition

I have been in increasing amounts of pain since about 1990, but after being fobbed off for years by various GPs, I now have been diagnosed with fibromyalgia....

I have been in increasing amounts of pain since about 1990, but after being fobb...

JamesPDeans

•2 years ago

6 Replies

Join the Fibromyalgia Action UK mailing list

Join the Fibromyalgia Action UK mailing list and receive regular fibro and charity updates. 1st newsletter will be going out end of this week....

Join the Fibromyalgia Action UK mailing list and receive regular fibro and chari...

desquinn

Partner•2 years ago

3 Replies

My fibromyalgia journey

Was diagnosed with fibromyalgia in October 2021 then a neurologist diagnosed me with FND at around the same time anyone have this double diagnosis.I was very...

Was diagnosed with fibromyalgia in October 2021 then a neurologist diagnosed me ...

Raddi1

•2 years ago

20 Replies

Opps!

Went in my top oven today to get my baking tray. And not there! So I thought where is that then. So I had a look in the main oven. And there it was, with moldy...

Went in my top oven today to get my baking tray. And not there! So I thought whe...

Fibrofog

•2 years ago

48 Replies

Thank you ♥️

Thanks for all the great replies, they most definitely help. Great information, good to hear others experiences and how I can start moving forward with Fibro....

Thanks for all the great replies, they most definitely help. Great information,...

HarleyBabe

•2 years ago

1 Reply

Aches around ribs

Does everyone ache all around their ribs when in bed. Have had fibromyalgia many years now. Just curious. Feel so tired all the time but the moment I wake I...

Does everyone ache all around their ribs when in bed. Have had fibromyalgia many...

Cakeygirl

•2 years ago

19 Replies

Hi, sorry to ask this as it might be a silly question, does anybody take vitamins D3 and K2 together and in liposomal form?

I’ve been taking these in this form, and a multi-vitamin also in liposomal form for just over a month now, and I feel so much better able to cope as my pain is...

I’ve been taking these in this form, and a multi-vitamin also in liposomal form ...

mrspippy

•2 years ago

36 Replies

Flare ??

Hi everyone, I haven’t been on here for a long time, but I now think that I am having a flare ? I have Fibro.,Rheumatoid Arthritis, degenerative disc disease...

Hi everyone, I haven’t been on here for a long time, but I now think that I am ...

Smiler69

•2 years ago

8 Replies

Sucks atm

Hi I'm nicci x Was diagnosed 3 yrs ago x was medically retired as a staff nurse worked for the NHS for 18 yrs! x can't get appointments with my gp my pain is...

Hi I'm nicci x Was diagnosed 3 yrs ago x was medically retired as a staff nurse ...

Nicci81

•2 years ago

4 Replies

Struggling again

Had a lovely weekend, but now thinking not good to go out 2 days on the trot. As legs really bad and fatigued. And it hasn't helped that I forgot to take my...

Had a lovely weekend, but now thinking not good to go out 2 days on the trot. A...

Fibrofog

•2 years ago

18 Replies

Any mid 20s fibro people?

Hi , looking for some support and that I’m not alone I am 26 on the outside i look healthy i am a size 8/10 sporty when able and i study at uni and have a part...

Hi , looking for some support and that I’m not alone I am 26 on the outside i lo...

LJGTJH

•2 years ago

12 Replies

Fibro itch

Hi I have fibromyalgia and PMR and have been able over 4 yrs to reduce the Prednisolone for PMR to 3 mgs/day. But 5 weeks ago I started itching, there’s no...

Hi I have fibromyalgia and PMR and have been able over 4 yrs to reduce the Predn...

Wraysbury

•2 years ago

5 Replies

Frustrated and in pain

Hello everyone, I was recently diagnosed with Fibromyalgia..I tried my times to explain to my boss but he simply doesn't understand and keep assigning to...

Hello everyone, I was recently diagnosed with Fibromyalgia..I tried my times to...

YMEPLEASE

•2 years ago

9 Replies

Bruising

Hello everyone, hope you are having one of your better days and able to enjoy the day. I’m newly diagnosed with fibromyalgia and this is my first post although...

Hello everyone, hope you are having one of your better days and able to enjoy th...

CWillo

•2 years ago

7 Replies

Dr unsure

Been suffering since january with joint and muscle stiffness/ pain everywhere. Confussion at times depression and anxiety. Dr first thought it was polymyalgia...

Been suffering since january with joint and muscle stiffness/ pain everywhere. C...

Slimjohn

•2 years ago

7 Replies

Fibro and rotator cuff condition

Fibro I’m so use to it after 20 years but the rotator cuff thing is awful. Right shoulder repaired twice due to huge tears then I went and fell off my bike...

Fibro I’m so use to it after 20 years but the rotator cuff thing is awful. Right...

Hellbell59

•2 years ago

5 Replies

Olive Leaf Extract?

Just heard about this extract and the benefits to FM sufferers. I take high blood pressure tablets plus 10mg Amitriptyline per day. Most of my issues relate to...

Just heard about this extract and the benefits to FM sufferers. I take high bloo...

Devon5

•2 years ago

8 Replies

On my own with Fibromyalgia

I’ve been diagnosed with Fibromyalgia through my specialist at the pain clinic. Since then I received a letter saying I’ve been released from his care and...

I’ve been diagnosed with Fibromyalgia through my specialist at the pain clinic. ...

HarleyBabe

•2 years ago

8 Replies

Had my first Hydrotherapy session yesterday.

How did it go for you?

JessFM

•2 years ago

1 Reply

Change name

Hi all, I had to get rid of HONEYDEBRA as seeing it in capitals was affecting my old! Lol 😆 Thats the only reason why I did it, plus something to do. Last...

Hi all, I had to get rid of HONEYDEBRA as seeing it in capitals was affecting my...

Fibrofog

•2 years ago

15 Replies

Question

I have of course fibro and ibs (and other various conditions) My question is, I don't know what to eat most of the time. As I don't have the energy to cook a...

I have of course fibro and ibs (and other various conditions) My question is, I ...

Fibrofog

•2 years ago

11 Replies

Nap

Had a nap and now feel worse than what I did!!

Fibrofog

•2 years ago

1 Reply

Could we all be diagnosed with this?

https://www.medicalnewstoday.com/articles/76785 Just wondering wat all yer thoughts are on this.

https://www.medicalnewstoday.com/articles/76785 Just wondering wat all yer thoug...

trip77

•2 years ago

9 Replies

Pain Clinic Group

HI everyone. i have been invited to attend a group to talk about handling pain and do some exercises, i is in sevre agony from my heasd to toe not day rest,...

HI everyone. i have been invited to attend a group to talk about handling pain a...

anno1

•2 years ago

7 Replies

What is your experience of TENS or Ultrasound Therapy ?

Hope everyone is having a good Fibro day , despite the heat. I am considering trying TENS or Ultrasound Therapy to help improve my Fibro pain. I am hoping that...

Hope everyone is having a good Fibro day , despite the heat. I am considering tr...

Blearyeyed

•2 years ago

34 Replies

Flare....how long will this last

I am currently having one of the worst flares of fibromyalgia I have ever had. The pain and fatigue are unbearable. My GP has suggested that I try taking...

I am currently having one of the worst flares of fibromyalgia I have ever had. T...

nellie_deany

•2 years ago

6 Replies

Posts - Fibromyalgia Action UK | HealthUnlocked

Fibromyalgia Action UK

All posts for June 2022

Pip shameful practices

long covid / fibromyalgia drug trial

Question

Daughter

I'm new to my diagnosis - but not the condition

Join the Fibromyalgia Action UK mailing list

My fibromyalgia journey

Opps!

Thank you ♥️

Aches around ribs

Hi, sorry to ask this as it might be a silly question, does anybody take vitamins D3 and K2 together and in liposomal form?

Flare ??

Sucks atm

Struggling again

Any mid 20s fibro people?

Fibro itch

Frustrated and in pain

Bruising

Dr unsure

Fibro and rotator cuff condition

Olive Leaf Extract?

On my own with Fibromyalgia

Had my first Hydrotherapy session yesterday.

Change name

Question

Nap

Could we all be diagnosed with this?

Pain Clinic Group

What is your experience of TENS or Ultrasound Therapy ?

Flare....how long will this last

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