Posts - Fibromyalgia Action UK | HealthUnlocked

Fibromyalgia Action UK

59,449 members • 66,495 posts

All posts for May 2013

OMG did you really look at me like that !!!!!!???????????

Went to asda today and pulled into a Disability space and put my badge on the dash, started sorting my bag out when ................ the old man in a car next...

Went to asda today and pulled into a Disability space and put my badge on the da...

larissa

•11 years ago

26 Replies

FIGHTBACK - FB page

Somebody else put this on here a few days ago I wanted to implore those who are struggling with Bedroom Tax ESA/DWP/DLA problems then please have a look on...

Somebody else put this on here a few days ago I wanted to implore those who are ...

mooo1967

•11 years ago

8 Replies

Optical tests

Hey, when I was on In Cap I had to pay for eye tests and for glasses - now I'm in the support group on ESA I was just wondering if I still have to pay. X any...

Hey, when I was on In Cap I had to pay for eye tests and for glasses - now I'm i...

mooo1967

•11 years ago

5 Replies

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Hello all, does anyone else suffer from very bad fatigue? If anyone could suggest things that have helped, that'd be great!

notofibro

•11 years ago

11 Replies

Still got laryngitis

Hi all still got this laryngitis, I ended up in hospital last Wednesday as I couldn't stop coughing, they kept me in over night as they said I had a raised...

Hi all still got this laryngitis, I ended up in hospital last Wednesday as I cou...

Hidden

•11 years ago

2 Replies

There are decent doctors out there...:)

My gp came up this afternoon. She's been on leave, and before she went she wrote to the rhuemy consultant I've seen before, to explain how bad my hands are...

My gp came up this afternoon. She's been on leave, and before she went she wrot...

tulips123

•11 years ago

18 Replies

Doctors opinion

I went to the docs this morning. I told him how poorly I've been feeling and showed him the lesions all over my body and be looked in myopathy and scalp and...

I went to the docs this morning. I told him how poorly I've been feeling and sho...

charlii

•11 years ago

5 Replies

Foggy or what!

How's this for fibro fog? For several days I have been aware of a faint, but rather unpleasant smell in my flat. I did all the usual things, cleaned...

How's this for fibro fog? For several days I have been aware of a faint, bu...

ladymoth

•11 years ago

26 Replies

Linda Wootton: Double heart and lung transplant dies nine days after she has benefits stopped.

A double heart and lung transplant patient died just NINE DAYS after the Government stopped her benefits and ordered her to go back to work. Linda Wootton,...

A double heart and lung transplant patient died just NINE DAYS after the Governm...

esagestapo

•11 years ago

24 Replies

Ok not been on a while so much going on. Anyone else with facial Tm that's intense then goes then comes back also planter fasciitis

2011 is really when it started sharp stabbing seconds that seemed forever blocking out the world for moments, then 2012 was more intense dull then this year it...

2011 is really when it started sharp stabbing seconds that seemed forever blocki...

fairycazzie

•11 years ago

3 Replies

The appeal and tribunal process...soul destroying!!

Received a letter at the end of last week saying that the appeal had been upheld and it was now going to a tribunal and I would receive a letter from them...

Received a letter at the end of last week saying that the appeal had been upheld...

kiera2002

•11 years ago

3 Replies

embarrassed to admit this

Hi, This is so hard for me to admit but i think i might be developing a problem with drink as i find with my pain killers it helps the pain. So every afternoon...

Hi, This is so hard for me to admit but i think i might be developing a problem ...

mariamay

•11 years ago

11 Replies

Just a short post to let you all know how I am x ;-)

Well I went to the Dr and my xray and blood test and heart monitoring have all come back OK ;-) The Dr has called the hospital and its all systems go for...

Well I went to the Dr and my xray and blood test and heart monitoring have all c...

rainbowdancer

•11 years ago

6 Replies

In contrast to my previous question -- what things in life do you like/enjoy the most?

My own personal favourite s are --- walking the dog (short walks of course!) --- baking --- eating dark chocolate --- watching detective programs ---- yoga ---...

My own personal favourite s are --- walking the dog (short walks of course!) ---...

phlebo123

•11 years ago

7 Replies

Apart from fibromyalgia (of course!!) what do you dislike the most?

My own personal list of dislikes would include (in no particular order) ---- going to dentist (although my dentist is lovely!) --- selfish/rude/inconsiderate...

My own personal list of dislikes would include (in no particular order) ---- goi...

phlebo123

•11 years ago

13 Replies

We are the famous five ...... ( volunteers)

Think Enid Blyton .. Think 1970s when TV immortalised the Famous Five and join in with the unforgettable theme song... We are the Famous Five.. Tulips ,...

Think Enid Blyton .. Think 1970s when TV immortalised the Famous Five and join i...

Hidden

•11 years ago

14 Replies

Struggling

Hi im struggling hardly any sleep fed up snd very bouncy and my oth hslf is really un supportive diag with fibTo 10 weeks ago oh is being a nightmare kids...

Hi im struggling hardly any sleep fed up snd very bouncy and my oth hslf is rea...

mummyshell

•11 years ago

10 Replies

Docs at last

Morning all. Today I've got my long awaited appointment with my lovely GP. Have still been really rough and poorly since I last posted on here. The lesions on...

Morning all. Today I've got my long awaited appointment with my lovely GP. Have ...

charlii

•11 years ago

4 Replies

throat

hi does anyone have a tightness in their neck.i have.mine is from the top of my collar bone up to top of neck.it feels very sore(on ends of collarbone)and...

hi does anyone have a tightness in their neck.i have.mine is from the top of my ...

anbuma

•11 years ago

25 Replies

Could you help Pain Concern improve pain management in primary care?

Copied from the Pain Concern community Posted by PainConcern321 5 days ago "Have you had difficulties communicating with healthcare...

Copied from the Pain Concern community Posted by PainConcern321 5 days ago ...

LindseyMid

•11 years ago

2 Replies

Magnesium - does it help fatigue?

Hi, a friend of mine told me that her fatigue was helped by magnesium injections. I've only tried magnesium supplements but gave up because the taste was vile...

Hi, a friend of mine told me that her fatigue was helped by magnesium injections...

Kirby

•11 years ago

11 Replies

BBC program on pain

BBC1 Wales is showing a program on pain tonight at 10,35pm. Here is a link to the program if you dont live in wales. I am the lady in the pink top, in the...

BBC1 Wales is showing a program on pain tonight at 10,35pm. Here is a link to...

neurosupport

•11 years ago

4 Replies

Anyone had leg spasms?

I was swimming with my granddaughter today and my right leg went into spasm. It wasn't cramp, it was the whole leg and it still feels tight and distinctly...

I was swimming with my granddaughter today and my right leg went into spasm. It ...

jillylin

•11 years ago

8 Replies

Meds

Has anyone tried fentynl patches x

crissy

•11 years ago

9 Replies

Seen my GP today and has referred me to a specialist ,what should i expect from him ??

telbuts

•11 years ago

1 Reply

Up to speed on my last blog,, been on a rollercoacster

Hi my fibro fiends, After my last post, thought I'd let you know how I've been doing. Heartbroken and bemused about everything my relationship break up, and...

Hi my fibro fiends, After my last post, thought I'd let you know how I've been ...

jjojay

•11 years ago

11 Replies

Time Off for good behaviour [taking meds and not overdoing things] - I know I am extremely lucky. Not bragging, just saying its possible.

I have had troubles since February 2011 when my hips suddenly felt like bone was rubbing on bone. Took a few months to diagnose and since then I have had good...

I have had troubles since February 2011 when my hips suddenly felt like bone was...

Sarah-Jane

•11 years ago

5 Replies

Made a descision

After a week of the most awful anxiety I've decided to cancel my motability car which I was picking up tomorrow. I've had one for the past 3 years but I'm...

After a week of the most awful anxiety I've decided to cancel my motability car ...

Teddysmum43

•11 years ago

10 Replies

ON A ROLLERCOASTER AND CAN'T GET OFF!

Hi everyone. Haven't been on for a while. Having a pretty awful time at the moment. As well as the fibro and RA I suffer from depression and anxiety. I though...

Hi everyone. Haven't been on for a while. Having a pretty awful time at the mom...

gardaqueen

•11 years ago

11 Replies

This last few weeks have been hell

These last few weeks i have no end of pain, tiredness and feeling generally low, Then on Saturday morning i woke with a water infection :( yet again, only a...

These last few weeks i have no end of pain, tiredness and feeling generally low,...

lindamorgan

•11 years ago

3 Replies

Posts - Fibromyalgia Action UK | HealthUnlocked

Fibromyalgia Action UK

All posts for May 2013

OMG did you really look at me like that !!!!!!???????????

FIGHTBACK - FB page

Optical tests

Hello all, does anyone else suffer from very bad fatigue? If anyone could suggest things that have helped, that'd be great!

Still got laryngitis

There are decent doctors out there...:)

Doctors opinion

Foggy or what!

Linda Wootton: Double heart and lung transplant dies nine days after she has benefits stopped.

Ok not been on a while so much going on. Anyone else with facial Tm that's intense then goes then comes back also planter fasciitis

The appeal and tribunal process...soul destroying!!

embarrassed to admit this

Just a short post to let you all know how I am x ;-)

In contrast to my previous question -- what things in life do you like/enjoy the most?

Apart from fibromyalgia (of course!!) what do you dislike the most?

We are the famous five ...... ( volunteers)

Struggling

Docs at last

throat

Could you help Pain Concern improve pain management in primary care?

Magnesium - does it help fatigue?

BBC program on pain

Anyone had leg spasms?

Meds

Seen my GP today and has referred me to a specialist ,what should i expect from him ??

Up to speed on my last blog,, been on a rollercoacster

Time Off for good behaviour [taking meds and not overdoing things] - I know I am extremely lucky. Not bragging, just saying its possible.

Made a descision

ON A ROLLERCOASTER AND CAN'T GET OFF!

This last few weeks have been hell

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