Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

75,014 members•54,130 posts

All posts for April 2025

Any advice.

Hi, I'm looking for some tips/advice of ways to get through this illness without using contraceptions. I'm currently being treated for brain cancer and the...

Hi, I'm looking for some tips/advice of ways to get through this illness without...

Purplestar86

•8 hours ago

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No endometrioma

I had an endometrioma diagnosed in 2021 and drained in laproscopy in 2022. Diagnosed with endometriosis only during the lap - on bowel, bladder and pouch of...

I had an endometrioma diagnosed in 2021 and drained in laproscopy in 2022. Diag...

Kittymama95

•12 hours ago

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pain management

this isn’t fully effective for me but thought I’d share incase. RE back pain more than anything. Since my gynaecologist released me to pain management...

this isn’t fully effective for me but thought I’d share incase. RE back pain mo...

Pinkhedgehog24

•12 hours ago

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parliament petition for better Endo care

Hi all I hope it’s ok to post this here. I just found this petition which aims at getting this debated by parliament:...

Hi all I hope it’s ok to post this here. I just found this petition which aims...

IvyMayM

•13 hours ago

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Dienogest - contraceptive??

Hi all, i have stage 4 endo. I have had some surgery and am scheduled for more extensive surgery on deep infiltrating endo, rectal endo and adenomyosis. I have...

Hi all, i have stage 4 endo. I have had some surgery and am scheduled for more e...

Rosey1235

•1 day ago

1 Reply

severe excruciating constant pain

Hi everyone, I am in the process of being diagnosed with endometriosis, have had an appointment with the endo specialist in my area who has said that he...

Hi everyone, I am in the process of being diagnosed with endometriosis, have h...

Cosmo21

•1 day ago

2 Replies

Hip and back pain

I had my appointment at hospital yesterday and they explained my endometriosis is at the back of my uterus and near my bowel. When I said to him how I can...

I had my appointment at hospital yesterday and they explained my endometriosis i...

Fk1982

•2 days ago

12 Replies

provera

has anyone tried provera 10mg for bleeding? i’ve been told to come off the mini pill and nori day as i was on double dose of both and was still bleeding and in...

has anyone tried provera 10mg for bleeding? i’ve been told to come off the mini ...

booksmoscato123

•2 days ago

2 Replies

bowel and ovary adhered, new endometrioma - how long should I wait for surgery and full hysterectomy?

Hi there. I’m 44 and was diagnosed with endo at 36 - 7 years after pain began. I’ve since had 3 laparoscopies, inc removal of one ovary. I now have stage 4...

Hi there. I’m 44 and was diagnosed with endo at 36 - 7 years after pain began. I...

Liverpool53

•2 days ago

4 Replies

desogestrel for suspected endo

been told that the desogestrel should help my period related issues… i bleed tons and its painful… apparently if i switch from my combined pill to the mini...

been told that the desogestrel should help my period related issues… i bleed ton...

Bamboopanda

•3 days ago

12 Replies

Severe Hip Pain during Menstruation

Please please help! I had excision surgery in January where the specialist said he had removed a large amount of endometriosis on my right side. Before the...

Please please help! I had excision surgery in January where the specialist said ...

Beckyhicks2594

•3 days ago

1 Reply

Dienogest

I have been prescribed Dienogest.I am seriously struggling to get hold of it at any pharmacy? The hospital said, they don't have any in and won't order any?...

I have been prescribed Dienogest.I am seriously struggling to get hold of it at ...

Endo8701

•3 days ago

5 Replies

Newly diagnosed

Recent referral for laparoscopy. Laparoscopy was completed yesterday in hospital, now been diagnosed with endometriosis with no follow up. Feel like I need...

Recent referral for laparoscopy. Laparoscopy was completed yesterday in hospital...

Blackitty

•4 days ago

3 Replies

Is Hormonal Contracpetion my only option?

Hi All, would really appreciate some advice about this as i feel very lost right now! I was diagnosed with Endo back in August 2024 - but was gaslit and the...

Hi All, would really appreciate some advice about this as i feel very lost righ...

bagelgal

•4 days ago

3 Replies

Trust yourself and keep pushing

Hi all, I apologise in advance for the long post but I feel I have something to share that could help other people and I want to return the favour to all...

Hi all, I apologise in advance for the long post but I feel I have something...

Bektimhaz

•4 days ago

5 Replies

Ryeqo and The Never Ending Period! (Mounjaro?)

Hi all, I am in week 6 of taking Ryeqo and so far have had a 21 day period, followed by 6 blissful days of no bleeding… and then my period started again! 😩 I...

Hi all, I am in week 6 of taking Ryeqo and so far have had a 21 day period, fol...

JLB_

•4 days ago

3 Replies

bleeding doesn’t stop

hi all, I’ve been dx with endo years ago and had it confirmed (and also some tissue removed) during my c-section. I’m now on my first period since giving birth...

hi all, I’ve been dx with endo years ago and had it confirmed (and also some tis...

SamsonRocks

•4 days ago

1 Reply

Heart palpertations or low iron

Ive been diagnosed with endo and adeo last jan. Been on zoledex 14 months and had 9 months on tiberlone before i got gastrisitis so 3 weeks ago i started half...

Ive been diagnosed with endo and adeo last jan. Been on zoledex 14 months and ha...

Chartolfrey

•4 days ago

3 Replies

Ryeqo

Hi everyone! I have just had an appointment with the consultant which completed my excision surgery July last year, due to having on going pain in one area...

Hi everyone! I have just had an appointment with the consultant which completed ...

Bagel96

•4 days ago

4 Replies

Mirena or Hysterectomy?

Hello, this is my first time ever posting so this is probably going to be too long. I’m 45 I’ve had endo since I was 24, though only diagnosed in 2018. I...

Hello, this is my first time ever posting so this is probably going to be too lo...

AJenn

•5 days ago

8 Replies

Advice for newby

Hiya, I had my MRI results back after a week where they said my bowel is attached to my right ovary/ posterior wall and I got free fluid in my right tube and...

Hiya, I had my MRI results back after a week where they said my bowel is attache...

Chelsea012

•5 days ago

1 Reply

Recovery after exercise

Hi everyone, Ever since I started suffering with endo (both pre and post surgery/diagnosis), I have found that after exercise my body feels like it really...

Hi everyone, Ever since I started suffering with endo (both pre and post surger...

UpandUp

•5 days ago

5 Replies

Upper abdominal pain

Hi everyone, I’m currently suffering with severe upper abdominal pain. It’s making me feel so so nauseous that even just walking to the kitchen makes me...

Hi everyone, I’m currently suffering with severe upper abdominal pain. It’s m...

Rainbow987

•5 days ago

21 Replies

Advice please for upcoming appt!

Hi everyone! I've recently joined this forum after years of struggling with (suspected) endometriosis and would love some advice for an upcoming Gynaecology...

Hi everyone! I've recently joined this forum after years of struggling with (...

EndoEllis

•6 days ago

2 Replies

Open MRI scanner

I’ve recently been diagnosed with two endometriomas (so suspected endometriosis) and adenomyosis at my local hospital. I wanted to be referred to a BSGE centre...

I’ve recently been diagnosed with two endometriomas (so suspected endometriosis)...

robinhoodsbay

•6 days ago

4 Replies

To keep my ovaries or not?!

Hi everyone Thanks in advance for any help you may have. I have endometriosis and adenomyosis and have recently found out (following a laparoscopy and mri)...

Hi everyone Thanks in advance for any help you may have. I have endometriosis ...

LauraSW

•6 days ago

12 Replies

Prolonged heavy menstrual bleeding

Hie ,I have been prescribed Norestitherone and tranexamic acid to stop prolonged having bleeding ,but I've noticed two days after not taking those pills ,the...

Hie ,I have been prescribed Norestitherone and tranexamic acid to stop prolonged...

StellaCathrine

•7 days ago

3 Replies

Exercise

I have adenomyosis & endometriosis and It's recommended to do pelvic exercises for few reasons but I'm finding that most exercise I try will make my symptoms...

I have adenomyosis & endometriosis and It's recommended to do pelvic exercises f...

Plants4eva

•7 days ago

8 Replies

Hysterectomy, BSO and severe insomnia

Hi Does anyone have any tips for helping with insomnia? I haven’t slept well since my surgery 9 years ago and it became even worse after I tried HRT...

Hi Does anyone have any tips for helping with insomnia? I haven’t slept well s...

Elaine91

•7 days ago

9 Replies

Surgery preparation

Hello, I have my wide excision surgery and removal of cysts in 8 weeks time. Does anyone have any tips on how best to prepare my body for it in advance?...

Hello, I have my wide excision surgery and removal of cysts in 8 weeks time. ...

Bolt2018

•8 days ago

10 Replies

Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

All posts for April 2025

Any advice.

No endometrioma

pain management

parliament petition for better Endo care

Dienogest - contraceptive??

severe excruciating constant pain

Hip and back pain

provera

bowel and ovary adhered, new endometrioma - how long should I wait for surgery and full hysterectomy?

desogestrel for suspected endo

Severe Hip Pain during Menstruation

Dienogest

Newly diagnosed

Is Hormonal Contracpetion my only option?

Trust yourself and keep pushing

Ryeqo and The Never Ending Period! (Mounjaro?)

bleeding doesn’t stop

Heart palpertations or low iron

Ryeqo

Mirena or Hysterectomy?

Advice for newby

Recovery after exercise

Upper abdominal pain

Advice please for upcoming appt!

Open MRI scanner

To keep my ovaries or not?!

Prolonged heavy menstrual bleeding

Exercise

Hysterectomy, BSO and severe insomnia

Surgery preparation

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