Financial Supports & Decapeptyl troubles - Endometriosis UK

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Financial Supports & Decapeptyl troubles

Quackers9 profile image
2 Replies

Hi all,

This is my first time writing here but I’m at a loss right now and don’t know what to do.

I had my diagnostic laparoscopy in October where I got diagnosed with Endometriosis, Adenomyosis and PCOS. This comes after 12 years of pursuing answers to why I was always in pain and had a mix of symptoms.

Following the surgery I was put on Decapetyl and livial. The first round of HRT was a week after my surgery and I’ve not been the same since. I am due my next shot on Monday and really don’t want it as I feel like it has completely ruined me mentally. Physically I’m also in a lot more pain daily than I was prior to the injection and surgery.

I’ve been off work here and there since the surgery and HRT because I’ve been struggling. I have now been signed off by my GP starting at 4 weeks, due to my mental health plummeting. She said based on what’s going on it’s an expected outcome.

I just don’t know what to do regarding financial support. I’ve no more sick leave to use at work and I’m feeling so much pressure to get back to work due to the financial strain but my body and mind aren’t cooperating.

I am originally from Ireland but based in Scotland right now so I’m not sure how anything works over here regarding the supports.

Although given everything that’s happening right now I’m more than likely going to leave and move home to Ireland as I need my family and friends right now but I still need to support myself some how until I can make that move again.

I’m booked in for an appointment at the end of January to dicusss benefits support but I’m worried about this also as by the time the appointment comes around I’ll be a month without pay.

Does anyone have any advice or experience with Decapeptyl, and if so what do you make of it all ?

And if anyone had any idea of supports for people in this situation to try and cope with the financial strain these conditions bring ?

Thank you ❤️

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Quackers9 profile image
Quackers9
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2 Replies
Quackers9 profile image
Quackers9

Thanks so much, I’ll look into this and I’m so sorry you ever had to go through this. I’ll sign your petition ❤️

JulesUK profile image
JulesUK

Signed. x

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