I was diagnosed with endo August 2022 during my laparoscopy where they also found multiple small fibroids, adhesions on my uterus, bowel, ovaries and POD.
Since the surgery my left hip/leg has developed a lot of pain which resulted in a diagnosis of chronic pelvic pain. I did not have this problem before my surgery.
I feel like I should be using a walking stick for balance and support during flare ups and high pain days. Which tbh is most days now. But I’m also having a lot of issues with my right elbow which is the arm I am supposed to use a walking stick in.
Firstly, did anyone else experience embarrassment or shame due to needing a mobility aid? Because of my age and the fact that endo is invisible I have a lot of anxiety around using a mobility aid for fear of looking like an imposter and also drawing unwanted attention to myself.
I currently can’t work and have had to move in with parents due to the frequency of my flare ups. I’m feeling really lonely and tbh I feel like I’m disabled but no one will help me because I ‘look normal’.
Thanks
Written by
GreenQueen92
To view profiles and participate in discussions please or .
my diagnostic lap left me in constant pain and bleeding. I can normally walk for hours, however, after it, on bad days, difficult walk and I’d have to sit down a rest!
At this point I started to send emails to the consultant’s secretary highlighting the pain I was in a the negative impact it was having on my life. My initial lap was in May and I had a total hysterectomy September. Fortunately, the second op appears to have gone well - though it is still early days.
I’m hoping, that once I am fully mobile, I’ll regain my confidence in walking again.
My work place has been amazing and did work with the wider staff about invisible conditions. I believe you can buy lanyards to such effect on Etsy.
My advice to you is use what you need to live you best life, but also to be a squeaky cog’ make your voice heard as much as you can as I do think it helps you move towards the front of the queue.
I’m shocked at how many people experience more pain after their lap?! I’m always reading that a hysterectomy isn’t the answer and yet it seems like a very standard form of treatment.
I can’t be the only one that’s confused by the lack of consistency in treatment and obviously the lack of research into women’s health.
Hello. I was in so much pain and so exhausted as a young adult with this condition I used to sit on the floor in the supermarket while doing the shopping. I gave up my seat on the bus for somebody and sat on the floor and was berated for being a trip hazard.
I was bullied mercilessly for needing a cushion with a hole in it for my exams at 16. I had special permission to stand up and walk about in the exam hall too.
I used to crawl around the house and pass out in the kitchen.
Since treatment I am not as bad. Nobody ever offered me a walking stick. It was during lockdown as a carer one of my clients gave me one of their old ones as they were getting new ones. It has helped me so much. I've been using it when I need it for stability with both legs. I switch sides as needed. Now I have a stick, men get out my way when they see me coming.
I also ride my bike instead of walking alot. I don't have the correct frame for my height. I have a medium instead of a large due to mobility issues. I can't lift my legs over the taller frame. But I have a higher seat.
I'm 33.
I've had some very nice open conversations with elderly people and young people with fibro about my stick. In my job I meet depressed people who have lost confidence and who think they are out of options, then I tell them about my stick lol. And if I can walk better with a stick and make it look cool so can anybody else.
With the rise in popularity of nordic walking poles, people assume you are making a statement. It makes you distinguished. Own it. Lots of love
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
Oxynorm
surgery tips
Zoladex without HRT what are your goes to supplements and natural approach to help with the initial flare up and the menopause symptoms?
BLOATING
Bowel endometriosis positive stories please
