Pelvic inflammatory disease (PID) & endometriosis help

[Booknerd1598]

Hi All,

Hope your all doing the best you can.

Has anyone suffered or gone through PID (pelvic inflammatory disease).

I was just admitted to a gynae ward with this suspected and on antibiotics for it for the next 2 weeks. And im on my period at the same time so im bot doing the best. (I was told it was likely me being on that led to the infection/ inflammatory, even tho i have been in more severe pain for months and was dismissed)

My question is has anyone suffered with this? Is it or can it be a recurring thing with endometriosis ? How do you manage? Or just any helpful tips. I dont know much on this topic and researching it online is hit and miss and my doctors on the ward arent saying anything more than what ive shared.

Just an edit: i've read up on a bit more of this and just want to say it was NOT due to an STD which is all i can see on these sites (i've only had 1 partner and we have a child together, whose 8 mnths and ik he isn't cheating) i was on my period at the the time of being admitted and have no ideas what caused it and only see that endo( i have stage 3 and ovarian cysts) has an increased risk for this type of infection??.

sorry just trying to piece information together!

Thank you,

Best wishes to everyone,

Amy x

[Neenz1]

Hi. I’m sorry you are going through this. I’m not sure I am going to be much help but I was taken into hospital in 1998, when I was 20, for what the doctors eventually put down to PID. However, it was this episode that eventually lead to me being diagnosed with endometriosis. My journey through it all has not been easy and now, 26 years later, after much conflicting information and different treatments, I am 12 days away from endo surgery and a hysterectomy.

I am not a health professional but from my own experience, I would suggest it is linked to endometriosis. You don’t say it you’ve been properly diagnosed with it but keep pushing for support from your gp and hospital x

[Booknerd1598 in reply to Neenz1]

Thank you for your help and replying, even just talking to someone who has had some experience is helpful!

Sorry i forgot to say. I was diagnosed in 2022 with stage 3 endo and ovarian cysts which were removed.

I am glad your finally have the surgery, really hope your symptoms improve and you recover well.

[Neenz1 in reply to Booknerd1598]

Thank you. I hope you get some answers soon x

[dljtk in reply to Neenz1]

did you have your surgery?

[hannahb05 in reply to Neenz1]

Hi. Did you end up having your hysterectomy? I hope you are doing much better now

[Menopausal7]

hi x

Annoyingly they always do the STD route as a first port of call with this. I got quite upset about this bit as I’ve been with my husband for 20years.

I was hospitalised for 4 days with severe PID infection, and it took 6 weeks to get over in total. I have deep infiltrating endo in my uterus, attached to fallopian tubes, ovaries and bowel, my consultant said PID is likely to return as it’s become a chronic condition now rather than acute as I still get Lower right side pain where the tube is. They also said it’s linked to having endo.

I’ve been referred to see an endo specialist but it’s likely I’ll be having a total hysterectomy and bowel excision at the same time. I seem to get on off flares of pain and have recently started on tumeric & black pepper in an attempt to manage inflammation in my body.

hope you get sorted xx

[Booknerd1598 in reply to Menopausal7]

Its a shame that we have to basically do our own research and get to the point where you have to try anything for some help. I've just bought a book about nutrition advice as well to start cutting stuff out.

I hope the tumeric & black pepper route helps you!.

I found it annoying too when they ask, i got asked few times, how many people id been with etc when its always been only my fiance!!

I was discharged a few days after and just holed up in bed at the moment. I'm waiting for an ultrasound (which no doubt wont show anything) and im on the gynae wait list but i've had sever pain for months and was ignored. I wonder if it was this all along! I have had no advice about it at all so im trying to find out how to prevent it but like you said its all STD route and i cant find much on the endo cause.

I really hope you get all the help you need and if you need surgery / hysterectomy that it helps you.

[dljtk]

how are you doing now? also suffering here in Canada. Did you get any further?

[Booknerd1598 in reply to dljtk]

Sadly, i just had to just recover from it. No follow up from drs, just a scan that showed other things (told in a letter that i had an enlarged spleen not even on the phone but by a letter and told they would refer my to gastroenteritis team where ive heard nothing from).

Wish i could be more help, im sorry your going through it. It took me a good few weeks to recover from it and then last week i got a bad kidney infection so something is happening but i keep getting kicked to the curb every time i get one step forward with the nhs.

If i do hear anything i'll edit/ update.

Rest as much as you can and push for follow up if you can xxx