Recent endo diagnosis - how can I manage ... - Endometriosis UK

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Recent endo diagnosis - how can I manage my endo symptoms before I go on a huge trip away?

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hi everyone, I am so sorry that this is a long one but it’s my first post on here so I have a lot to say. I would be so appreciative of anyone’s advice if possible :

A couple of weeks ago I visited a private gynae consultant who basically said he is 99% sure I have endometriosis- just cannot be 100% without the laparoscopy. He is also confident that it is deep infiltrating and attacking my bowl and pelvis. I have struggled with endo symptoms since I was 14 aged 20 now).

back in Oct 24 I had the Kyleena coil inserted to ease my agonising periods… this did not agree with me one bit. To cut a long story short - found out it was dislodged and stuck in my cervix so experienced the absolute worst symptoms in my whole entire life. Sciatic pelvic pain, vomitting, diarrhoea & constipation, fatigue, blood in my number 2, changing big pads every half hour to an hour and the worst abdominal cramps of my life - the list goes on.

1 month later (Dec 24) I got the first kyleena coil removed and another fitted… this did not prove beneficial for me at all. Although I wasn’t feeling as bad, my condition was bad enough still where I couldn’t leave the house and work. My sciatica pain was at its absolute worst leaving me feeling paralysed at times. As my consultant said I had to be on some form of contraception to break my cycles and slow the growth of the endo, I was nervous to have the coil removed. 3 days ago I bit the bullet and did it. I am bleeding so so much and feeling even worse. I know this could potentially die down soon but with my luck I don’t expect it to.

To get to the main point of my post, I have been invited to go to Thailand very very soon to do photography for a business. This literally is an opportunity of a life time and I just cannot miss it. My mother is seriously thinking I should cancel it but it just isn’t an option for me as I would regret it for the rest of my life if I wasn’t to go.

Does anyone at all any advice on how I can actually somewhat get back to my normal self even if it’s temporary? Even if it alleviates symptoms slightly. I have been prescribed tranexamic acid and Norethisterone to ease blood flow. I have no idea which one to take. I’m also taking strong cocodomol when I’m experiencing bad pain.

I appreciate it so so much if you read this far - the world of endo is so new to me and I’ve just been trying to come to terms with it and navigate it all which has been extremely hard as I’m sure you all know :(

thank you so so much! 🥰

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