Anyone else feel they suffer horrendous PMS which feels like it’s for a prolonged period of time? I have been having my natural cycle back for around 4-5 months since stopping dienogest due to the side affects. I have noticed that I feel I have only one good week out of a whole month where I feel ‘normal’ the other 3 weeks I am full of anxiety, low mood, easily cry as well as all the other physical symptoms like swollen/ painful breasts, some cramps leading up to period and extreme tiredness. My question is, do endo sufferers get worse symptoms all round? Like when it comes to PMS? I just don’t feel like I should be spending over 50% of my time feeling this rubbish… to a point where it’s starting to affect all aspects of my life. Endo symptoms are enough to deal with!
PMS worse because of endometriosis? - Endometriosis UK
PMS worse because of endometriosis?
Have you researched PMDD? Your post resonates with me as I felt like this for many years. There's a good book called Wild Power which is incredible and really helped me understand my period more. I've suffered terribly with peri menopause and ended up on zoladex and suddenly my mental state is 100% better. I am calmer and less emotional and although I don't have those few days of extreme happiness that I used to get, I love feeling balanced. When I asked my consultant she said it's interesting as zoladex makes many women depressed but those of us who have PMDD feel much better on it. I did my own research and found many women said the same thing and after having a hysterectomy they were much happier because the fluctuating hormones had gone. It makes sense as estrogen drives endo and we have too much estrogen so at certain parts of the month it's really high or really low and in peri it fluctuates daily. Taking natural progesterone (not progestin) to balance you may also help as i find it has with me. Exercise like running also helps me and I suffer without exercise. Sleep is also crucial to keep me balanced. I hope that's helpful x you are not alone. Many, many women suffer with this in silence x
Also synthetic progestin makes it much much worse x
Thank you, it’s nice to know there’s other people out there that feel my pain. Sometimes I feel like I’m crazy! I accept and manage all the pain and symptoms that come with endo but to feel so sad and anxious most of the time is getting me down. I’m waiting for an appointment with the doctors to hopefully get something to help me x
Yes!! This is literally me. I came off POP too because of side effects. Since my period has come back I feel horrible all the time. Constant fatigue and feeling like I'm getting the flu. Stomach pain. Awful pelvic and lower back pain. Skin rashes, acne, painful boobs, dry eyes. And awful mood swings and anxiety for no reason. Also my period is every 3 weeks which is annoying. I haven't been diagnosed with endo yet but been on the waiting list for laparoscopy for 11 months so far. I also think I could have PMDD. They want me to have the mirena coil but I don't know what to do. So I feel your pain! It's awful
It is horrible, it’s always nice to know you’re not alone though. I got diagnosed last year with endo and think that’s also had a knock on effect. Hope you get some answers soon x
Please read up on synthetic progestin before going for the coil x
I don’t think I will ever go on the coil heard to many horror stories I’m afraid! X
Definitely nice to know your not alone. But it angers me that we're all left to feel like it. My GP is useless and so is my gynaecologist. He dismissed both PMDD and perimenopause because I'm not over 40. But I know women in late 30s that have been diagnosed with peri. Makes no sense. Just got to keep fighting haven't we.
Hi
Yes this was me for as long as I can remember. I have now been diagnosed with PMDD. My symptoms have been so much better since I was put on the prostap injection, and am no longer having periods.
I hope you find something that can ease your symptoms. Xx
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