Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

71,850 members • 52,603 posts

All posts for June 2023

Ultrasounds/MRIs - My experience and why you need to advocate for yourself if they don’t show Endo!

Controversial take here on ultrasounds and MRIs, but I responded to another users query with the below info, and wanted to share it more widely as I think more...

Controversial take here on ultrasounds and MRIs, but I responded to another user...

dot7

•1 year ago

12 Replies

Periods returning?

Hi. I have been on 2 different GNRH analogues for 2.5 years ish. I have decided to come off the injections as I can no longer tolerate the side effects....

Hi. I have been on 2 different GNRH analogues for 2.5 years ish. I have decided...

Awwy

•1 year ago

2 Replies

Started my period!!!?

Hey Ladies! So I’ve been on the progesterone only pill a little over a month ago, and I take it without breaks. I’ve mapped out my cycles in the past, and...

Hey Ladies! So I’ve been on the progesterone only pill a little over a month ag...

Hooplove00

•1 year ago

18 Replies

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First laparoscopy

Hi all, i am having my First laparoscopy and i am so scared. Not sure what to expect. Would they just check and confirm, also how much does it hurt. I do not...

Hi all, i am having my First laparoscopy and i am so scared. Not sure what to ex...

Jay_jay19

•1 year ago

4 Replies

Anyone else prostap injection every 4 weeks and coming out in bruising for no reason all over??

Never bruised like this b4 .

Sjxxx

•1 year ago

14 Replies

Cerelle and bleeding

I asked if I could double dose the cerelle pill due to heavy bleeding and the dr said it won’t do anything and to either 1 continue taking it for 3 months or 2...

I asked if I could double dose the cerelle pill due to heavy bleeding and the dr...

michkath121

•1 year ago

4 Replies

Prostap3 and periods

At the moment I'm on my 3rd injection of Prostap3. So I'm in my 7 month and I'm so sick of bleeding....at first it was just light pink discharge...

At the moment I'm on my 3rd injection of Prostap3. So I'm in my 7 month and I'm...

Smm445

•1 year ago

3 Replies

Monthly bleed post oophorectomy

Following both ovaries being removed in April, I'm still having the monthly cramps and some light bleeding. Anyone else had this? I'm now concerned that there...

Following both ovaries being removed in April, I'm still having the monthly cram...

Theodora2016

•1 year ago

2 Replies

Confused after ultrasound scan

I am 48 and I have had crohnic pelvic pain for 18 months but have had painful periods and left hand side pain for 20 years. Every uss I have had has come back...

I am 48 and I have had crohnic pelvic pain for 18 months but have had painful pe...

Mindfullness4791

•1 year ago

5 Replies

Pain every day

Had my surgery in last year but from the first day after surgery I am in constant pain every single minute,I am gaining weight,and this pain and fatigue is...

Had my surgery in last year but from the first day after surgery I am in constan...

Kamna1

•1 year ago

5 Replies

Advice!

Honestly I cannot stop crying! Just for context I’ve been referred to gynaecology for endometriosis and it’s going to be around 9 months before I get an...

Honestly I cannot stop crying! Just for context I’ve been referred to gynaecolog...

ejc4

•1 year ago

4 Replies

got my hysterectomy date today

absolutely shitting myself. I feel so anxious sick like I’m gonna pass out. I’m so frightened this is all Iv wanted for so long. But what if it doesn’t help 😞...

absolutely shitting myself. I feel so anxious sick like I’m gonna pass out. I’m ...

Littleone88

•1 year ago

24 Replies

post-op bloating

hi, I have endometriosis and Adenomyosis and had a total hysterectomy about 8 weeks ago. The surgery was quite complicated and took a long time due to the...

hi, I have endometriosis and Adenomyosis and had a total hysterectomy about 8 w...

Pizzaaddict

•1 year ago

3 Replies

Can an endo doctor alone handle the complexities of my symptoms?

I have found that I can control pains during my period. But the pains that start 2 days after my period are unbearable and present with severe gastrointestinal...

I have found that I can control pains during my period. But the pains that start...

AnnaMae

•1 year ago

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post op care

Hi all! I have had my endometriosis surgery 6 days ago now, and have been told I can remove dressing as soon as the wound does not longer leak and is dry. I...

Hi all! I have had my endometriosis surgery 6 days ago now, and have been told...

Pizzapasta22

•1 year ago

24 Replies

Help to understand laparoscopy findings

Hello, It's my first time posting on here. I had my endometriosis diagnosis this week through a laparoscopy. It's been a long fight to get to this point so I...

Hello, It's my first time posting on here. I had my endometriosis diagnosis this...

Camodo_Cat

•1 year ago

3 Replies

hysteroscopy experiences?

I have been booked a hysteroscopy. I have looked at nhs and found all the usual stuff, please could anyone share what is it actually like and could you go to...

I have been booked a hysteroscopy. I have looked at nhs and found all the usual...

rb55

•1 year ago

4 Replies

Prostap and Tibolone HRT. Any advice please?

I have recently started the Prostap injection whilst I am waiting for my second endo surgery. I have have two injections and I am on tibolone to help with...

I have recently started the Prostap injection whilst I am waiting for my second ...

Em_wilkinson96

•1 year ago

3 Replies

Prostap and Hrt

Good morning all. I was on prostap for over 2 years and have been on that combined with hrt for about 18 months while i await a lap which I have booked on...

Good morning all. I was on prostap for over 2 years and have been on that comb...

Mustang2598

•1 year ago

3 Replies

Feeling abandoned by Hospital - Advice?

Hey all, I am at a loss at the moment. I have Endo, adenomyosis and colitis. I have had 3 laps and on various medication. January 2022, my treatment has...

Hey all, I am at a loss at the moment. I have Endo, adenomyosis and colitis....

_Noo_

•1 year ago

3 Replies

Joint pain and aches

Hi all, I had a laparoscopy last year and was diagnosed with endo. I've always had terrible period pains and in last 5 years or so I've started to have...

Hi all, I had a laparoscopy last year and was diagnosed with endo. I've always...

Potts22

•1 year ago

14 Replies

My Endo Journey

Hi Fellow Endo Warriors, Admins please delete if not allowed 💜💜 📚 Exciting Announcement for the Endometriosis Community! 🌸💪 I am thrilled to...

Hi Fellow Endo Warriors, Admins please delete if not allowed 💜💜 📚 Exci...

Nessie86

•1 year ago

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Pelvic ultrasound

hello all, I had a pelvic ultrasound last week due to suspected endo on a previous scan. I have just had a telephone call to book me in for the next 3 weeks...

hello all, I had a pelvic ultrasound last week due to suspected endo on a prev...

Rosiehannah1

•1 year ago

2 Replies

Hysterectomy

Hi I have endometriosis and Adenomyosis I have been on waiting list for hysterectomy for about 15 months. I am 37 and I am feeling nervous about having the...

Hi I have endometriosis and Adenomyosis I have been on waiting list for hysterec...

Shell-C-H

•1 year ago

12 Replies

prostap and osteopenia

Morning. So, I have been on prostap about 2 years now with hrt while awaiting a lap which is luckily booked for the 6th July. I had a dexa scan in January and...

Morning. So, I have been on prostap about 2 years now with hrt while awaiting a ...

Mustang2598

•1 year ago

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can I ask consultant for MRI scan

I've not spoke to my consultant in over a year my symptoms have monotony improved but stil waiting to hear if I'm eligible for laparoscopic procedure. because...

I've not spoke to my consultant in over a year my symptoms have monotony improve...

Littlebug77

•1 year ago

17 Replies

hrt complications

hiya i have tried hrt patches and then moved onto elleste duet and have all.the side effects and tios on what works wi5 with stage 4 endo main thing is low...

hiya i have tried hrt patches and then moved onto elleste duet and have all.the ...

ocke2030

•1 year ago

1 Reply

infection month after laparoscopy

Hi, I had my surgery done a month yesterday and I’m getting worried as I had noticed my belly button was infected last week and was giving antibiotics, I’ve...

Hi, I had my surgery done a month yesterday and I’m getting worried as I had not...

Jsrzb

•1 year ago

5 Replies

Complaining about care from Gynaecologist in Surrey

Hi everyone, I had an MRI at the beginning of this year (finally lol!). I had to make several complaints to PALs just to get a telephone appointment to...

Hi everyone, I had an MRI at the beginning of this year (finally lol!). I ha...

MoominBabe92

•1 year ago

7 Replies

Increased pain and dr un helpful

hi! I had a laparoscopy and since then the pain has got 100 times worse. I had an ultra sound which suggested pelvic congestion. I saw the doctor yesterday who...

hi! I had a laparoscopy and since then the pain has got 100 times worse. I had a...

Sestelle

•1 year ago

4 Replies

Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

All posts for June 2023

Ultrasounds/MRIs - My experience and why you need to advocate for yourself if they don’t show Endo!

Periods returning?

Started my period!!!?

First laparoscopy

Anyone else prostap injection every 4 weeks and coming out in bruising for no reason all over??

Cerelle and bleeding

Prostap3 and periods

Monthly bleed post oophorectomy

Confused after ultrasound scan

Pain every day

Advice!

got my hysterectomy date today

post-op bloating

Can an endo doctor alone handle the complexities of my symptoms?

post op care

Help to understand laparoscopy findings

hysteroscopy experiences?

Prostap and Tibolone HRT. Any advice please?

Prostap and Hrt

Feeling abandoned by Hospital - Advice?

Joint pain and aches

My Endo Journey

Pelvic ultrasound

Hysterectomy

prostap and osteopenia

can I ask consultant for MRI scan

hrt complications

infection month after laparoscopy

Complaining about care from Gynaecologist in Surrey

Increased pain and dr un helpful

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