Pain every day

[Kamna1]

Had my surgery in last year but from the first day after surgery I am in constant pain every single minute,I am gaining weight,and this pain and fatigue is making my life miserable,I wish I had my surgery in Slough but unfortunately I had my surgery in John Radcliffe hospital and they don't have emergency there every time I go to wexham hospital Slough I have been told to be seen by the doctor's I had surgery with but I don't know where to move and go only waiting on bed and doing my daily duties with difficulty every single day,Oh God please someone help me, I have to chase all my appointments and gp's every day in the hope to be listened one day but now I feel I am just doing nothing good to myself and the universe,My body is in pain, swelling on my feets when I walk,if I don't walk I am gaining weight every day,got thyroid, breathing difficulty,asthma , swelling on feets and legs,lower back pain ,I don't know in which world I am living in pls help me reach to my treatment I am begging for it,had my scan last month had been told I have cyst but I am telling this from four years now I don't know what had been done in my surgery as my symptoms got worse after surgery,no one touch me ,pls someone listen to me and help me how to treat my painful cyst deep inside my vagina ,can I do something at home to remove my cyst, thousands of doctors and nurses in the world but all seems useless to me.i hate this pain which is in my body from last four years now.to be honest I don't have anything in my mind and are taking antidepressants instead I have to take cyst removal medicine or just a cut to remove it, shouting if anyone calls me and cut and remove my cyst pls listen to me I will not ask anything from my life.I called John Radcliffe hospital for appointment and I have been booked in November and I believe that too will be cancelled for sure.I wished I had cyst on my outside body so that I can show and have ideas to cure it,but unfortunately I have it inside me , nobody can see, only scan shows but my GP doesn't have copy of it ,I am shocked and afraid that had scan last month and till today they can't see my report, please if anyone can come to me and help me remove my cyst I sware I will bare the pain and cut it myself.please someone see my message and believe me what I am asking.

[Kazh1209]

so sorry to hear you’re in pain. I would say you ask for a referral to a BSGE centre who are the endo experts if you aren’t happy with how it’s going so far. Log all your symptoms and take that with you too. X

[Kamna1 in reply to Kazh1209]

What is BSGE?Yes I am in pain every time, please help me

[Kazh1209 in reply to Kamna1]

bsge.org.uk/endometriosis-c...

[Endosufferer1]

Have you tried taking noni juice for three months? It helps a lot.

[Marcia71]

I'd apply for all your notes so you can see what is going on and what was done at surgery. It's called a subject access request and is free to do. Each hospital must have details on how to apply on their website, and if not there, contact PALS at the hospital to ask how you can do a subject access request to get all your notes.