Hysterectomy : Hi I have endometriosis and... - Endometriosis UK

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Hysterectomy

Shell-C-H profile image
12 Replies

Hi I have endometriosis and Adenomyosis

I have been on waiting list for hysterectomy for about 15 months. I am 37 and I am feeling nervous about having the operation done. I don't have a date for op yet but I have my pre op tomorrow. Can anyone tell me their experiences if they have had a hysterectomy. They are going to remove both my ovaries because I get a lot of pain in them.

Thank you in advance

Michelle

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Shell-C-H
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12 Replies
Outlander27 profile image
Outlander27

Hi lovely. I had my hysterectomy a year ago, complete, took everything, including cervix and some vagina. I also had bowel shave and temporary illeostomy at the same time. The operation was fine, long, but ok. I had plenty of pain relief and a spinal block too, not sure if they do that as standard for hysterectomy? Main thing is to take your time, don't push yourself and listen to your body. Its a big operation. Don't go home until your pain is under control. Remember a cushion for under your seatbelt, big knickers that don't rest on the scaf and nighties are easier than pyjamas i found! Good luck. X

Shell-C-H profile image
Shell-C-H in reply toOutlander27

Hi, thank you for your message. The nurse mentioned bringing sanitary towels. Do you bleed after the operation. She said i will be having laparoscopic hysterectomy is that what you had x

Outlander27 profile image
Outlander27 in reply toShell-C-H

Mine was open surgery. I took sanitary towels but didn't bleed at all. Maybe that was because I had nothing left!!? Best to take some.

Shell-C-H profile image
Shell-C-H in reply toOutlander27

OK thank you.

Littleone88 profile image
Littleone88

following, mine is booked for 12th July; and I’m absolutely petrified, had the Call this morning: may I ask if ur in the UK?

Shell-C-H profile image
Shell-C-H in reply toLittleone88

Hi yes I'm in the UK. I'm shared and I haven't got my date yet. I hope it all goes well for you. Are you having everything removed

Littleone88 profile image
Littleone88 in reply toShell-C-H

there removing everything except one ovary, I’m underweight and their worried about my bones and don’t want me to menopause. So trying to keep 1, if possible of course. It’s all keyhole too. Is yours keyhole ? The scariest part was signing saying it was ok to remove endo of my bowels and bladder if needed as theirs a risk for needing a colonoscopy bag, 😔 such scary risks. With no other options.

Shell-C-H profile image
Shell-C-H in reply toLittleone88

It is scary and like you say there aren't any other options. Hopefully in the future they can find different ways of helping women with endo. Mine is going to be keyhole

Littleone88 profile image
Littleone88 in reply toShell-C-H

Yes I’ll be having keyhole as well. Fingers crossed for you I hope it goes well: and your pain free after

Shell-C-H profile image
Shell-C-H in reply toLittleone88

I hope it all goes well for you too. Do you mind if I check in to see how you are after your op

Kazh1209 profile image
Kazh1209

hi lovely I had a hysterectomy almost two years ago now, they took everything except my ovaries (which they are taking on the next surgery). I would agree with others, rest and take it very easy at first. Drink sooo much water before and after op as it keeps everything moving too x

Shell-C-H profile image
Shell-C-H in reply toKazh1209

Thank you. They are removing my ovaries because I get a lot of pain in them.

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