Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

70,734 members • 52,159 posts

All posts for May 2023

Being Ignored and feeling crazy!

Hi all women suffering with period issues, I'm 18 and have been having issues since my first period, I was so ashamed of what was happening to me because I...

Hi all women suffering with period issues, I'm 18 and have been having issues si...

Lovebunnies123

•11 months ago

1 Reply

Experiences of coming off zoladex or other long term hormonal treatments to conceive? Please help.

Hi there I am 31 and was diagnosed with severe stage 4 endometriosis at 17. I've been on zoladex for nearly the whole time since diagnosis add back HRT and...

Hi there I am 31 and was diagnosed with severe stage 4 endometriosis at 17. I've...

hcromps92

•11 months ago

2 Replies

Applying for PIP

hey guys , I applied for PIP yesterday, and as far as I’m aware I’m entitled to it - however I have seen that others have struggled to get accepted. I included...

hey guys , I applied for PIP yesterday, and as far as I’m aware I’m entitled to ...

Adnalim

•11 months ago

3 Replies

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Private or nhs advanced lap?

Is it really worth the nhs wait? Pros and cons? Everyone's experiences? If I go private will I lose my referral at specialist endo clinic I've fought for so...

Is it really worth the nhs wait? Pros and cons? Everyone's experiences? If I go ...

Annabelannabel

•11 months ago

19 Replies

Over the counter painkillers

Hi, I’m waiting on scan & further steps to manage my endo & adenomyosis. The pain is getting harder to manage & I’d be grateful for suggestions of pain relief...

Hi, I’m waiting on scan & further steps to manage my endo & adenomyosis. The pa...

Rose244

•11 months ago

4 Replies

bleeding on Cerelle

Hi everyone, I’ve been taking Cerelle for month, I had about a week of no bleeding and I’ve been bleeding very heavily since. I’ve been diagnosed with...

Hi everyone, I’ve been taking Cerelle for month, I had about a week of no blee...

Rainarosemary

•11 months ago

4 Replies

no GP kidney infection

I’ve just signed up for new GP and receptionist told me it would be a 2 week turn around. I had bad uti symptoms and went to pharmacist they suspects it’s a...

I’ve just signed up for new GP and receptionist told me it would be a 2 week tur...

Littlebug77

•11 months ago

4 Replies

Return of my period?

September 2022 I stopped having Prostap injections. I had my first period in over 3 years on 20th March 2023. I then had my right ovary & more Endo removed on...

September 2022 I stopped having Prostap injections. I had my first period in ove...

Rae253

•11 months ago

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After effects from scan and exam

Panicking a bit - I had an internal ultrasound (much poking with the wand which was painful) followed by an examination including a speculum. This happened on...

Panicking a bit - I had an internal ultrasound (much poking with the wand which ...

Pug_mum_with_endo

•11 months ago

3 Replies

booked in for full hysterectomy

hey I had a lap back in October and it looks like the endo has returned so I’m booked in for a total hysterectomy! I’m really scared about it all. How are you...

hey I had a lap back in October and it looks like the endo has returned so I’m b...

AmyPeeps

•11 months ago

18 Replies

Little Advise

Hey all, my first post! I have finally decided to seek advise elsewhere because quite frankly I feel i am getting nowhere with my gynae consultant. I was...

Hey all, my first post! I have finally decided to seek advise elsewhere because ...

Geeandi

•11 months ago

2 Replies

🔥 Hot Topic – Endometriosis and Menopause

Endometriosis UK Specialist Advisor Joanne Hanley is producing a series of short articles on topics that may be of interest to anyone with endometriosis. This...

Endometriosis UK Specialist Advisor Joanne Hanley is producing a series of short...

Lynne_support

Partner•1 year ago

4 Replies

WPA Claim refused

Hi all - was wondering if anyone had had experience with WPA Healthcare refusing treatment due to having seen the doctor about period pains in the past? Given...

Hi all - was wondering if anyone had had experience with WPA Healthcare refusing...

BertieWoofster

•1 year ago

2 Replies

natural cycles for endometriosis

hi everyone. I’ve recently been diagnosed with endometriosis and was put on the pill after the Mirena coil wasn’t working for me. I’m absolutely hating being...

hi everyone. I’ve recently been diagnosed with endometriosis and was put on the...

lottiehatherell

•1 year ago

4 Replies

laparoscopy pain

hi I’m 2 days post, I’m in a lot of pain with my belly button incision it stings and is very painful since I come out of surgery the others are not as bad is...

hi I’m 2 days post, I’m in a lot of pain with my belly button incision it sting...

Jsrzb

•1 year ago

12 Replies

When will my period come after lap

Hi just had my first lap for stage 4 endo. Will my period come as planned or will it be delayed. Read conflicting info. Also will it be less or worse pain?...

Hi just had my first lap for stage 4 endo. Will my period come as planned or wil...

Apricottree

•1 year ago

2 Replies

laparoscopy wait times ?

Hi guys, I’m waiting for laparoscopy at the CEMIG gynae centre at Ashford, P3 wait list. I’ve been given an appointment for pre-op assessment in a month but...

Hi guys, I’m waiting for laparoscopy at the CEMIG gynae centre at Ashford, P3 ...

WhaleFairy

•1 year ago

6 Replies

Private hysterectomy

Anyone had success of getting a hysterectomy privately at aged 30? Just asked an NHS consultant for a hysterectomy as its been a 3 yr wait for laproscopy...

Anyone had success of getting a hysterectomy privately at aged 30? Just aske...

Hidden

•1 year ago

5 Replies

Occupational Health assessments for Endometriosis feel useless

Hi, I have ongoing endometriosis (have a coil and have had 2 laporoscopies but the endo keeps returning). The pain I experience isn't dependent on my cycle, it...

Hi, I have ongoing endometriosis (have a coil and have had 2 laporoscopies but t...

CheckeredFuture

•1 year ago

4 Replies

Post lap update.

I had my laparoscopic bilateral ovarian cyst removal plus endometrial ablation and mirena fitting 😅 on the 18th April. Today is the 22nd May and no sign of a...

I had my laparoscopic bilateral ovarian cyst removal plus endometrial ablation a...

NikkiJR

•1 year ago

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Drinking before laparoscopy

Hi everyone, just wondered what you were advised (if at all) prior to your surgery regarding alcohol consumption? I have my surgery on 30th May but I’m at an...

Hi everyone, just wondered what you were advised (if at all) prior to your surge...

Booda21

•1 year ago

8 Replies

Hi there progesterone only pill

Hi there I've had a disappointing doctors appointment, they won't let me have anymore norethisterone. They want me in for two more appointment's, one for a...

Hi there I've had a disappointing doctors appointment, they won't let me have an...

Rainbow2468

•1 year ago

23 Replies

endometriosis

hi everyone , I was diagnosed 1 week ago with a large endometriosis 7cmx5 cm on my right ovary . I never heard about this before , and never had any of the...

hi everyone , I was diagnosed 1 week ago with a large endometriosis 7cmx5 cm o...

micky12

•1 year ago

14 Replies

Endo on lungs?

Hi If anyone has thoracic endo, can I ask how it was diagnosed please? I was diagnosed with stage 4 endo following laparoscopy 2 years ago. It was found on...

Hi If anyone has thoracic endo, can I ask how it was diagnosed please? I was d...

Sloany

•1 year ago

6 Replies

Good reads for endometriosis? IVF?

Anyone found any comfort in any books regarding endometriosis or coming to terms with fertility issues? I feel like my biggest frustrations come from not...

Anyone found any comfort in any books regarding endometriosis or coming to terms...

Adnalim

•1 year ago

2 Replies

CT contrast scan

OKSo I had a CT contrast scan today, the consultant said it was needed to see what else is going on around the Endometrioma cyst on my right ovary. I'm now...

OKSo I had a CT contrast scan today, the consultant said it was needed to see wh...

Booty42

•1 year ago

13 Replies

2nd Lap on Friday, looking for reassurance

Hi all, I have been called with a cancellation date for surgery after waiting 72 weeks. It's this Friday and I'm getting super anxious and nervous cause I...

Hi all, I have been called with a cancellation date for surgery after waiting 72...

Jademillhouse

•1 year ago

9 Replies

Feeling lost

Had my second laparoscopy in a year a couple of days ago and things aren’t making sense to me. My first surgery I was told I had little endometriosis and that...

Had my second laparoscopy in a year a couple of days ago and things aren’t makin...

victoriaat1611

•1 year ago

1 Reply

3 months after op

Its been three months since I’ve had my diagnostic laparoscopy and was finally diagnosed with endo which they removed but ever since then I haven’t really felt...

Its been three months since I’ve had my diagnostic laparoscopy and was finally d...

Churchie93

•1 year ago

5 Replies

Canker Sores & Endo - Help!

Hi Everyone, I'm using this as a last resort because I wanted to know if anyone else deals with the same problem. I've had endometriosis for years, but in...

Hi Everyone, I'm using this as a last resort because I wanted to know if any...

hannonll

•1 year ago

5 Replies

Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

All posts for May 2023

Being Ignored and feeling crazy!

Experiences of coming off zoladex or other long term hormonal treatments to conceive? Please help.

Applying for PIP

Private or nhs advanced lap?

Over the counter painkillers

bleeding on Cerelle

no GP kidney infection

Return of my period?

After effects from scan and exam

booked in for full hysterectomy

Little Advise

🔥 Hot Topic – Endometriosis and Menopause

WPA Claim refused

natural cycles for endometriosis

laparoscopy pain

When will my period come after lap

laparoscopy wait times ?

Private hysterectomy

Occupational Health assessments for Endometriosis feel useless

Post lap update.

Drinking before laparoscopy

Hi there progesterone only pill

endometriosis

Endo on lungs?

Good reads for endometriosis? IVF?

CT contrast scan

2nd Lap on Friday, looking for reassurance

Feeling lost

3 months after op

Canker Sores & Endo - Help!

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