Little Advise

[Geeandi]

Hey all, my first post! I have finally decided to seek advise elsewhere because quite frankly I feel i am getting nowhere with my gynae consultant. I was diagnosed with endometriosis and adenomyosis in 2021 - it was stage 2 and i underwent a laparoscopy which was successful at the time. However, fast forward 2 years - my pains are back, i am in constant pain with my lower back on the left side, i have had an Xray which found nothing. I also have an extremely irritable bowel, where before my period i can go to the toilet around 10 times a day (urinating) - i become bloated, bleed extremely heavy and have horrendous cramps.

I have just had my pelvic MRI results back which has ruled out any new growth of endo - so i am confused, I want to know why i am still having these symptoms if there is no found endo, and i am aware an MRI shows more deep tissue then anything, so it may be that its not deep enough to find?

I am extremely anxious about having sex and haven't in 2 and half years as its so painful - i am at my witsend, it took me around 10 years to be diagnosed with endo the first time and i feel i will need to continue being in pain forever? i have so many questions about endometriosis that my gynae is incapable of answering correctly.

Does anyone have any advise?

[My_Username]

Hi

MRI's aren't sensitive enough to detect superficial endometriosis, so it could be that.

radiologyassistant.nl/abdom...

Also the adenomyosis will still be there (unless you had a hysterectomy) so that would probably be causing pain too.

Were you put on any hormone treatment after the surgery?

[Geeandi in reply to My_Username]

I thought as much, thank you.

And no, nothing .. I have only just recently started to take the contraceptive pill alongside being in the implant. To reduce the heavy periods I have. I have periods every 2 weeks so 50% of the time I have these symptoms.