Hi there progesterone only pill - Endometriosis UK

Endometriosis UK

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Hi there progesterone only pill

Rainbow2468 profile image
23 Replies

Hi there I've had a disappointing doctors appointment, they won't let me have anymore norethisterone. They want me in for two more appointment's, one for a blood test to check my liver function. Then one with the nurse to discuss the progesterone only pill, as an alternative. They have said it's dangerous for someone of my age 49 to be on it for too long. Has anyone here any experience of this medication. As I'm very nervous of new medication to be honest. Many thanks x

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Rainbow2468
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23 Replies
Endosufferer1 profile image
Endosufferer1

Well, to stay on any hormonal pill for too long has its side effects. It varies from one to one but heart defects, osteoporosis, etc. may occur after a long time. Yeah, that's gonna be crazy, I don't want to think about it, it's only my first year of taking the pill to stop my periods (and the specialist was like it's forever). 😅😅😅😅 But I don't intend to take it forever (they're creating antibodies for endometriosis in the UK, let's hope it works).

Endowarrior1807 profile image
Endowarrior1807 in reply toEndosufferer1

hey

Could I ask please where you heard/saw about the antibodies. It’s something which id like to keep an eye on

Thanks

Endosufferer1 profile image
Endosufferer1 in reply toEndowarrior1807

newscientist.com/article/23...

Rainbow2468 profile image
Rainbow2468 in reply toEndosufferer1

Which brand have you been put on and many thanks for your reply x

Endowarrior1807 profile image
Endowarrior1807 in reply toRainbow2468

I have Provera

Endosufferer1 profile image
Endosufferer1 in reply toRainbow2468

Desorelle 20

Endowarrior1807 profile image
Endowarrior1807

I have Provera which is a progesterone only pill.

Honestly I’m not a fan at all due to various side effects but my consultant thinks this is the best for me to manage endometriosis

Rainbow2468 profile image
Rainbow2468 in reply toEndowarrior1807

Hi i didn't know it could manage endemetriosis. I too worry about side effects. Many thanks for your reply x

JoBTW74 profile image
JoBTW74

Hi Just to let you know, i have used desogestrel since 2018, using a double does it has successfully stopped my periods (occasional spotting from time to time).

I have found this has made my stage 4 ends now manageable and mostly pain free, i am also nearly 49 and not been informed it is unsafe to stay on. I intend to take until i go through menopause unless i am told any differently.

Hope that's helps a little :-)

Rainbow2468 profile image
Rainbow2468 in reply toJoBTW74

Thank you it most certainly does, it's just I can't cope if i don't know what to expect, so hearing about other people's experience helps me so much thank you xx

Avourneen profile image
Avourneen

I'm on a double dose of the POP (cerazette) it has helped meenorously by stopping my bleeding completely. I now how so much less pain and my life is close to normal. I'm hoping I can keep going with it until I hit menopause. I started on one pill per day for about a year but then got bad breakthrough bleeding so my gynae said double the dose. It's been a huge help.

Rainbow2468 profile image
Rainbow2468 in reply toAvourneen

Oh thank you this really puts my mind at ease. I have a phobia of medication, so knowing what to expect really helps me thank you xx

Avourneen profile image
Avourneen in reply toRainbow2468

No problem, I can understand why you are scared.GPs often hand out medicine like sweets without checking whether they interact with anything else or if you have any conditions that cause contraindications. I guess because they are all very stressed and don’t have time to check. It really helped me but others have said it caused problems with their mood, I guess the best thing is give it a try . You can always stop if it doesn’t suit you. I decided it was better for me than taking loads of painkillers. Ideally I wouldn’t take anything but the pain was really disrupting my life. Good luck xxx

Starry1977 profile image
Starry1977

as far as I understand norethistone is a much higher dose than the mini pill. It’s usually taken as a one off to stop a period for a holiday. But it’s often prescribed by gyneas for endo but not long term. Noriday is the mini pil version with a lower dose or you could try desogestral or the coil. I’ve tried noriday, I was still bleeding every 21 days and for 8 days unfortunately. Luckily not as heavy as it had been. I’ve just switched to desogestral which I’ve heard is better for stopping ovulation and therefore periods, so seeing how that goes.

Rainbow2468 profile image
Rainbow2468 in reply toStarry1977

Thank you so much, I can't have the coil due to fibroids. This has helped put my mind at ease thank you again xx

Livingdeadgirl profile image
Livingdeadgirl

Have you tried the hormonal coil? That's localised progesterone. I recently switched from the combined pill to Mirena coil and it's helped me way more than I thought it would.

Rainbow2468 profile image
Rainbow2468 in reply toLivingdeadgirl

Hi I'm not allowed due to my fibroids, but thank you for your advice, most kind x

Tomims profile image
Tomims

Don't take it please

Rainbow2468 profile image
Rainbow2468 in reply toTomims

Don't take what the progesterone only pill or the noritersterone 🤔

Tomims profile image
Tomims

progesterone, and avoid all hormones

Rainbow2468 profile image
Rainbow2468 in reply toTomims

Why is there a problem with it in particular 😊

Tomims profile image
Tomims in reply toRainbow2468

The chemical hormones make body disorders, and that can make cells be crazy which leads to cancer, and the progesterone is suspected according to the literatures and real cases, may God bless you

Endosufferer1 profile image
Endosufferer1 in reply toTomims

Please, do you have the link talking about that? Thank you!!!!🙏💞

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