Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

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All posts for January 2022

Is it normal to keep having to change your dressing after laparoscopy?

Yesterday I had my laparoscopy and as I was about to leave I showed them my dressing which was very bloody. They changed it and gave me an extra dressing...

Yesterday I had my laparoscopy and as I was about to leave I showed them my dres...

La23

•3 years ago

10 Replies

What are the best pads?

Hi all, so in about 5wks I'm have a total hysterectomy, I know I will need pads but which are the best ones to use/take in with me? Any advice would be great,...

Hi all, so in about 5wks I'm have a total hysterectomy, I know I will need pads ...

Pureunicorn

•3 years ago

13 Replies

Short notice Gynae appt! Help!

I was called yesterday to offer a gynae appt on Monday, so 3 days after the call! What do I say to make them actually do a lap? How do I respond to “We’d...

I was called yesterday to offer a gynae appt on Monday, so 3 days after the call...

betty31

•3 years ago

5 Replies

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Decapeptyl and long term use ?

I am stage 3/4 endometriosis and adenmyosis I am current awaiting extensive surgery to treat the endo and have a mirena coil fitted However until then I am...

I am stage 3/4 endometriosis and adenmyosis I am current awaiting extensive sur...

klc93

•3 years ago

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Blocked fallopian tube

Hi , I have stage 4 endo and pcos, also just found out I have a blocked fallopian tube . This has been giving me lots of pain, I was just wondering if anyone...

Hi , I have stage 4 endo and pcos, also just found out I have a blocked fallopia...

Ronsk

•3 years ago

5 Replies

Hysterectomy in 3 days

Hi Just thought I’d post to see if anyone else is in the same position. I finally got a date for my total hysterectomy on Monday 24th Jan (providing I pass...

Hi Just thought I’d post to see if anyone else is in the same position. I final...

Username12345678

•3 years ago

56 Replies

Bowel and endo symptoms

Hi, does anyone have these symptoms caused by bowel endo? Breathlessness, nausea , feeling faint and very sensitive to noises ?

Hi, does anyone have these symptoms caused by bowel endo? Breathlessness, nausea...

Earthling22

•3 years ago

3 Replies

Contraceptive whilst on Decapeptyl - do I really need one?

Has anyone else been in this situation and what were you advised about contraception? I’ve been on Decapeptyl injections for 8 years and these have...

Has anyone else been in this situation and what were you advised about contracep...

Endo1973

•3 years ago

3 Replies

Exercise …

Is it just me .: or does anyone else with endo. When exercising end up swollen?? No matter what exercise or how well I eat I end up just swollen and bloated....

Is it just me .: or does anyone else with endo. When exercising end up swollen??...

Littleone88

•3 years ago

3 Replies

Dissertation on improving chronic pain for endometriosis

Hi! I'm currently in my third year doing Biomedical Science and require people to complete a short anonymous survey on how treatments & how they manage their...

Hi! I'm currently in my third year doing Biomedical Science and require people t...

BiomedStudent

•3 years ago

6 Replies

Got a date for a lap!

Yayyy so happy to finally have a date for a diagnostic laporoscopy, less than 2 weeks Any tips or advice? I have a pre op assessment as well, anything I...

Yayyy so happy to finally have a date for a diagnostic laporoscopy, less than 2 ...

Elephy

•3 years ago

3 Replies

Fertility/ pregnancy advice wanted!!!

I was diagnosed with endo in Feb 2020 and since then my husband and I have been trying to conceive to no success. With insane waiting times for fertility/...

I was diagnosed with endo in Feb 2020 and since then my husband and I have been ...

Snarf03

•3 years ago

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Anterior prolapse and bowel endometriosis

Hello, I just wondered if anyone else has been diagnosed with an anterior prolapse. I’m really really struggling and have been for two years with constant...

Hello, I just wondered if anyone else has been diagnosed with an anterior prola...

Ecclesiastical

•3 years ago

10 Replies

Cervical stump? Vaginal cuff? Where’s my ovary and vagina cancer??

👋 I’m a little confused. I have had a hysterectomy 2 years ago and was told I had my uterus, cervix, and tubes removed, but ovaries left. This was because...

👋 I’m a little confused. I have had a hysterectomy 2 years ago and was told I ...

Maviscat01

•3 years ago

7 Replies

Been took of zoladex

Hi I wrote about I was struggling with zoladex my specialist took me of them yesterday but I'm worried about what will happen next does anyone no if I'd end up...

Hi I wrote about I was struggling with zoladex my specialist took me of them yes...

Lilly2010

•3 years ago

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Zoladex and HRT for Endometriosis

I'm new here and looking for advice/stories about what other ladies have experienced. I've suffered with painful periods for a long time and after years of...

I'm new here and looking for advice/stories about what other ladies have experie...

Sasparella90

•3 years ago

2 Replies

Gastroenterologist

Hello How are you? Please don't name consultants below as it is against Endometriosis UK's rules. Will need to send via private message. I am looking for a...

Hello How are you? Please don't name consultants below as it is against Endometr...

TennisAM

•3 years ago

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Life after laparoscopy

6 months after having my laparoscopy, I’m now in a lot of pain again - has anyone else had this? Anything you’d recommend for managing it?

6 months after having my laparoscopy, I’m now in a lot of pain again - has anyon...

Orange11

•3 years ago

3 Replies

UAE for adenomyosis- pros and cons

Anyone had UAE for adenomyosis? If so- what’s your experience? TIA X

Zo95

•3 years ago

1 Reply

How can I deal with severe menstrual cramps?

I have had severe menstrual cramps for 7 years now and I'm sick 4 days in my 5 day cycle.I'm literally bedridden during the pain as it will be too painful to...

I have had severe menstrual cramps for 7 years now and I'm sick 4 days in my 5 d...

Pink1204

•3 years ago

1 Reply

Operation and covid

I have covid My operation is in 4 weeks for bowel endemetrosis will I still be able to have it? Thanks

I have covid My operation is in 4 weeks for bowel endemetrosis will I still be ...

willywalk

•3 years ago

6 Replies

OMG 😁

Hi all, hope everyone is doing well 🤞 So I've finally got a date for my hysterectomy after 2years of waiting 🥳 now crapping myself 😬 any advice for the big...

Hi all, hope everyone is doing well 🤞 So I've finally got a date for my hystere...

Pureunicorn

•3 years ago

10 Replies

Private laparoscopy

Hey there. I’m a 32 year old female, I had horrendous hyperemesis gravidarium while pregnant and since then my health hasn’t been the same. I’ve developed...

Hey there. I’m a 32 year old female, I had horrendous hyperemesis gravidarium wh...

LS07

•3 years ago

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Stupid question but...

Why don't all endo sufferers who aren't TTC on the pill to stop the monthly bleeding? Surely bleeding each month just creates more endo, so the first thing to...

Why don't all endo sufferers who aren't TTC on the pill to stop the monthly blee...

Jenn2022

•3 years ago

10 Replies

I am scared

Hi Lovely ladies, I am very nervous with everything. First I was told I have 3 endometriomas ( 2 on left ovary 7cm each and 1 on right ovary 13 cm) I was...

Hi Lovely ladies, I am very nervous with everything. First I was told I have 3 e...

Sham_R

•3 years ago

5 Replies

Anybody opted for a hysterectomy, but had to choose between a good quality life, over having children?

As my title pretty much says. I'm finding it hard to decide. The desire to be a mum, or choose to have a life pain free. I'm still holding on to that hope, but...

As my title pretty much says. I'm finding it hard to decide. The desire to be a ...

Jasmin24

•3 years ago

17 Replies

Endo pain or not?

I had my lap in July 2021 and I was diagnosed with stage three endo. They removed my lesions with ablation and some excisions. I still suffer regular pelvic...

I had my lap in July 2021 and I was diagnosed with stage three endo. They remove...

Yellow17

•3 years ago

1 Reply

Help!

Has anyone experienced gynaecologist’s misdiagnosing Endo as IBS?? I got diagnosed with Endo in 2019 by laparoscopy but in the last year my symptoms have got...

Has anyone experienced gynaecologist’s misdiagnosing Endo as IBS?? I got diagnos...

Hollyt1993

•3 years ago

4 Replies

How quickly does Endo grow back?

Hi all, I had surgery and was diagnosed last august, I’ve started to suffer horrific bladder pain again, how quickly can endometriosis tissue regrow? TIA

Hi all, I had surgery and was diagnosed last august, I’ve started to suffer ho...

Dance365

•3 years ago

4 Replies

Neuropathic symptoms? In excruciating pain and not being taken seriously

Hello everyone, A bit of background: I have been on a very long waiting list with the NHS to see gynacology, I finally got seen in November and I was told my...

Hello everyone, A bit of background: I have been on a very long waiting list wit...

Jaa64678

•3 years ago

8 Replies

Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

All posts for January 2022

Is it normal to keep having to change your dressing after laparoscopy?

What are the best pads?

Short notice Gynae appt! Help!

Decapeptyl and long term use ?

Blocked fallopian tube

Hysterectomy in 3 days

Bowel and endo symptoms

Contraceptive whilst on Decapeptyl - do I really need one?

Exercise …

Dissertation on improving chronic pain for endometriosis

Got a date for a lap!

Fertility/ pregnancy advice wanted!!!

Anterior prolapse and bowel endometriosis

Cervical stump? Vaginal cuff? Where’s my ovary and vagina cancer??

Been took of zoladex

Zoladex and HRT for Endometriosis

Gastroenterologist

Life after laparoscopy

UAE for adenomyosis- pros and cons

How can I deal with severe menstrual cramps?

Operation and covid

OMG 😁

Private laparoscopy

Stupid question but...

I am scared

Anybody opted for a hysterectomy, but had to choose between a good quality life, over having children?

Endo pain or not?

Help!

How quickly does Endo grow back?

Neuropathic symptoms? In excruciating pain and not being taken seriously

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