How quickly does Endo grow back?

[Dance365]

Hi all,

I had surgery and was diagnosed last august, I’ve started to suffer horrific bladder pain again, how quickly can endometriosis tissue regrow?

TIA

[Greenblue55]

Hi Dance365 - sorry to hear you're suffering again. My understanding is there are no hard and fast rules on this and estimates vary in likelihood of endo returning after surgery. Most frequently, and on the Endo UK website you see reference to 20-40% recurrence within 5 years. It will depend on where and how severe the endo is, the quality of the surgeon and probably lots of other things. I'd really suggest you raise this direct with your consultant or GP as it could be the return of endo, scar tissue (which can cause adhesions), or something else entirely. Your recovery can go through lots of stages and major surgery can take a year to fully recover from, but similarly no one knows your body better than you. Being really specific on your symptoms and keeping a symptom diary may help in diagnosing the most likely cause of your pain. Sending lots of luck your way!

[Cockapoo-2016]

Hi There.I had my surgery back in November 2021. My endometrioma was adherent in my plevis to side wall, rectum and left ovary. The surgeon drained my 8cm cyst by having a laparscorpy.

Now question to your answer is that the

endometriosis tissue can re grow from 7months to 5 years depending if the surgeon drained and if he or she completely removed all your endometrioma tissue but even if the sugeron has completely removed the endo tissue no guarantee it will not return.

I don't know if you are on hormone treatment ie birth control which can control the endo tissue to grow, endometriosis diet can help control the endo tissue to grow fast, take omega 3 fish oilwhich helps with pain and inflammatory also trummic.

I hope I helped abit and I am still learning about endo so this is all new to me. All the best xxx

[Baobun17]

Hi Dance365,

Sorry to hear about your pain. My experience is not good but I want to share it with you. I was diagnosed feb 2021 with stage 4, it was treated then I had kissing ovaries stuck to rectum uterus and pelvic walls. Endo on bladder and multiple endometiomas and both ovaries plus hydrosalpinges.

I had an ultrasound in April 2021 just after 2 months which showed everything had stuck back together, pain started and was even worse. By Oct 2022 I had MRI because of the pain which showed endo returned much severe then before plus Adenomyosis and destroyed tubes. That was all within within 8 months. I've just had my second surgery, who knows how long it will last this time BUT I had two IVFs (failed) In between which may have accelerated it.

I believe it is different for everyone, I was not so lucky. I did everything endo diet endless supplements omega tumeric, exercise everything but nothing helped. I would suggest speaking to your clinic and having an MRI, don't leave it long, even waiting 8 months for me was enough for me to loose my organs. X

[Leenie0811]

Sorry to hear you’re in pain so soon, I had surgery in July 2017 and in September 2020 I was rushed to hospital with endo complications. All my symptoms are back but with more bladder and bowel issues, it’s been over a year and still no surgery. I really hope you don’t have regrowth so soon because it’s hard to get in with the good gynaes, mines in Manchester and it’s taking so long.