Bowel and endo symptoms

[Earthling22]

Hi, does anyone have these symptoms caused by bowel endo? Breathlessness, nausea , feeling faint and very sensitive to noises ?

[Moon_maiden]

HiHave you been diagnosed with bowel Endo? I’ve had it diagnosed, ignored at hysterectomy and waiting for op, hopefully very soon.

I’ve had nausea since knowing, had breathless in the past, before any Endo diagnosis.

[Earthling22 in reply to Moon_maiden]

Hi, Thankyou for replying. No diagnosis yet but was diagnosed with colitis. Since going back on the pill the bowel symptoms are calming more so I think colitis may be wrong diagnosis. I only used to have bowel symptoms with periods . I can’t seem to find out what’s causing the breathing problems and even more worrying when doctors don’t know either. Are you still having symptoms after the hysterectomy? Do you have anti sickness tablets for the nausea ? Did you find out what caused your breathlessness?

[Moon_maiden in reply to Earthling22]

I’d think you are right about the colitis. Has GP referred you to Gynae? Have a look at the Endo UK YouTube site, there’s a really good webinar on thoracic Endo, as well as others. A recent addition is one on bowel Endo.

The thing to remember is try not to self diagnose too much, although we know our own bodies, it’s being confident in keeping a proper track of symptoms and relaying this to drs. That’s where it’s the most difficult and why we lose confidence at times.

Back in 2019 I had a stool fit test come back positive but nothing showed on CT colonoscopy for cancer. So this has been ignored. I’ve occasionally had blood show on tissue (sorry if TMI) today it’s worse so tomorrow I’m sending yet another econsult with a photo, I’m only going to tell them so it’s recorded in case anything else down the line, I’m also going to tell them not to contact me as I’m due op soon anyway. I’ll also send colorectal surgeon an email with update that it’s getting worse. He said when I first saw him that any info is useful.

I get pain everyday, the only thing the hysterectomy changed was a pressure pain in the middle of the pelvis.

I don’t eat much so nausea isn’t a daily issue.

At one time they tested for Asthma, years ago, lung capacity was fine. I used to get out of breath after a short run. Used to do larp as a hobby, (live dungeons and dragons) trying to run from the enemy was exhausting 🤣 used to get eczema on face/neck around period time as well.

Sorry wittering on