13 Bite-Size Thoughts for Autoimmuners -- Newly Diagnosed (or Not)

13 Bite-Size Thoughts for Autoimmuners -- Newly Diagnosed (or Not)

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13 Bite-Size Thoughts for Autoimmuners -- Newly Diagnosed (or Not)

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Originally under heading: First piece of advice to anyone newly diagnosed with RA --broken into 13 bite-size bits πŸ˜‰, which was originally under 'American RA Warriors' post "What would be your first piece of advice to someone newly diagnosed with RA?" ( healthunlocked.com/ra-warri... ).

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Here's a revival of an old post/ reply that got deleted throughout my HU account (long story, see below if interested*):

Hope this posts is useful to any newbie (or old-bie) seeking a boost, a spirit lift πŸ‘», spark of hope πŸ’₯ , or just a few shared thoughts πŸ€”.

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Use whatever works for you & chuck out the rest πŸ—‘. πŸ‘

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πŸ™ ☺️ πŸ€ 🌺

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All in good time, dear lady. All in good time . . . πŸ™ πŸ‘

I know. It's all overwhelming . . . especially when we're feeling our very worst . . . rock bottom. 😩 πŸ˜–

All we can do is hunker-down in 'survival mode' to 'get through.' 😞 Totally understandable. πŸ‘

In due time, when we begin feeling a bit better 😐 -- seeing glimmers of hope ☺️ -- we can incrementally begin. Take all the time you need . . . at your own pace . . .

In meantime, soak in all the love πŸ’— & support πŸ‘ of your beloveds (especially the 4-leggeds 🐢 🐱 🐰 🐹 πŸ¦„ , who seem to understand best). πŸ˜‰ They (all) help sustain us through low times. πŸ‘ πŸ™

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Supplementally, maybe some of the following will resonate with you, ----- :

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First piece of advice to anyone newly diagnosed with RA --broken into 13 bite-size bits πŸ˜‰

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βœ… Grasp the significance of appropriate foods (diet πŸƒ ) & lifestyle (exercise/ movement πŸ’ƒπŸ»πŸƒ ) to help influence the course of disease progression (by reducing inflammation 🌑) & increasing bodily healing -- for some (many?) of us.

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βœ… Meds πŸ’Š πŸ’‰ aren't the 'be-all & end-all ' -- for each & every one of us -- especially if we've ridden the 'med-merry-go-round' 🎠, 'Ferris wheel' 🎑, and 'rollercoaster' 🎒 . . .

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βœ… It's not an either/ or 'false dichotomy' of 'approaches' (meds πŸ’Š vs. dietary πŸƒ ). The 2 aren't 'mutually exclusive'. As individuals, we can successfully use both a dietary/ lifestyle approach (techniques) and meds 'as needed' -- judiciously.

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βœ… Both med & dietary/ lifestyle approaches are 'trial & error', 'hit & miss' processes. Currently, there's no other way -- as each of us reacts uniquely/ individually to each 'introduced' element. There's no "1-size-fits-all" 'certainty' or 'definitives'. It's the 'land of ambiguities' -- probabilities, likelihood's -- if's, and's, & but's . . . πŸ˜‰

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βœ… Be proactive πŸ—£πŸ’¬ & fully immersed/ involved in understanding how to manage your life-long autoimmune disease. Once you get over the initial 'shock/ trauma' 😧 of the diagnosis & begin the on-going 'grieving process' 😩 , you can 'get your bearings' in due time. Be active πŸ€“, not passive πŸ™„ in learning & understanding πŸ€” how your unique body works.

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βœ… Seek 'realistic hope'. πŸ™ Follow autoimmuners/ πŸ‘₯ physicians πŸ‘€πŸ‘€ who are improving/ healing. πŸ€— [Avoid negative nellies 😠, naysayers 😏 , & pooh pooh-ers πŸ˜’ like the plague! They'll only spiral you downward πŸŒ€ in wallowing & drowning misery!! 😫 😩 πŸ˜₯ πŸ˜” 😞] An occasional 'pity party' 😩 😭 is perfectly understandable -- but you needn't attend every 'open invitation'. πŸ˜‰ (Don't get 'stuck' in 'O woe is me'. πŸ˜“)

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βœ… Surround yourself with loving support of trusted family, friends, co-workers πŸ’‘ who understand & support you on your journey -- whether to help you when you need a hand or attend appointments with you. 😊 (And if no one can attend appointments with you, request physician's permission to audio tape meeting, so you can catch all the details you may missed during your note-taking. πŸ“ Also, your loved ones may want to listen to the meeting, as well, to pick up on points you overlook.)

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βœ… Understand -- at times (by default) -- your having to simply, gently, kindly educate those around you who have little (to no) understanding of autoimmune illness: healthunlocked.com/nras/pos... ♿️ You'll get further being patient & kind πŸ™‚ with well-meaning, yet ill-informed individuals -- than getting flustered 😀 , peevish 😠, or defensive πŸ˜• about their perceived 'rudeness' or 'meanness'. Often they're, merely un-informed. 😐 And, what they may say in a kind-intentioned spirit -- may be misperceived by you.

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βœ… Understand you needn't 'wait for' a formal autoimmune 'diagnosis' before implementing a 'dietary/ lifestyle' approach to help bring down inflammation, slow down/ avert disease progression. (You don't need to 'await' the 'pope's blessing' before doing the 'right' thing. πŸ˜‰ )

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βœ… Don't be dissuaded or waylaid by naysayers 😏 , & pooh pooh-ers πŸ˜’. Remember, if/ when stone throwers 😑 start pelting their little barbs at you ( vimeo.com/5453316 ):

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βœ… Learn to laugh at yourself πŸ˜„ & life's 'little cruelties'! The disease is ridiculous/ outrageous in what it does to our body πŸ™ƒ & mind 😜 ! And we'd better learn to laugh at & accept these lapses. If we didn't laugh πŸ˜‚, we'd cry πŸ˜₯.

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βœ… Initially, this may seem unfair, brutal, unspeakably cruel ('why me⁉️ oh gawd, why me⁉️' 😭 ) -- but in deep, profound moments 😌, you may come to see the journey as 'a blessed curse.' πŸ™ You'll learn more πŸ€“, see more 😳, come to feel & understand 😌 more than you ever imagined. It will change you to your core. πŸ€— πŸ‘

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βœ… Oh, and whenever anyone -- especially a medical professional says to you "try not to worry" or "let's just wait & see" that is your red flag signal 🚩 🚩 to get your ' πŸŒ™πŸŒ™ in gear'!!! 😳 Do your research, learn as much as you reasonably can. Because it is your long-term life on the line -- not any well-meaning, kind-hearted, trusted, respected, authoritative, good-natured physician. You are the only one fully vested in your well-being & have to 'live with' each & every decision made. You must take full ownership/ responsibility of working with your medical team toward finding workable solutions. [In rear-view mirror hindsight/ afterthoughts, blaming medical professionals for their shortcomings, shortsightedness, blind spots, ignorance, heel-dragging, missteps, etc. does you no good. It wastes your precious energy.] Anything that side-tracks you is mere 'noise' -- a waste of time. Keep laser focus on goal of improving/ healing.

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Keep your eyes on the prize of getting well.

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( πŸ”© everything else.) πŸ˜‰

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Be well! πŸ™

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Kind regards,

Kai

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Hang in there, luv. πŸ‘ Hang in there . . . πŸ™ πŸ€ 🌺

We're right by your side. πŸ‘« πŸ‘­ πŸ‘― πŸ‘ πŸ€—

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  • In process of restoring 15-months worth of obliterated information/ research:

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    5️⃣6️⃣ Osteoarthritis: Prevented with Diet & Exercise? University of Surrey (U.K.) study in 'Nature Reviews Rheumatology': healthunlocked.com/ra-warri...

    5️⃣5️⃣ "Guide for Rheumatologists" V 1.5.6 (for 'Paddison Program'-ers): healthunlocked.com/ra-warri...

    5️⃣4️⃣ Life is all about how we see things. Context is everything. Perspective is everything.: healthunlocked.com/nras/pos...

    5️⃣3️⃣ 2017 Food Revolution Summit: April 29 (Sat.) to May 7 (Sun.) Now Underway: healthunlocked.com/ra-warri...

    5️⃣2️⃣ Reg, Coordinator of 'Redcar Arthritis Care Group', Shares His Thoughts about Movement/ Exercise & Arthritis: healthunlocked.com/nras/pos...

    5️⃣1️⃣ Cornetto Trio? From Maya Angelou to Confucius to 'Oprah'!?: healthunlocked.com/nras/pos...

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    5️⃣0️⃣ "What Doctors Don't Know About the Drugs They Prescribe" by Ben Goldacre: healthunlocked.com/nras/pos...

    4️⃣9️⃣ 2017 Food Revolution Summit: April 29 (Sat.) to May 7 (Sun.): healthunlocked.com/nras/pos...

    4️⃣8️⃣ "People who say it cannot be done should not interrupt those who are doing it.": healthunlocked.com/fibromya...

    4️⃣7️⃣ "When someone shows you who they are, believe them.": healthunlocked.com/fibromya...

    4️⃣6️⃣ Ankylosing Spondylitis (AS): healthunlocked.com/nras/pos...

    4️⃣5️⃣ Have you been on the "Paddison Program Forum"?: healthunlocked.com/ra-warri...

    4️⃣4️⃣ Anyone on the "Paddison Program Forum"?: healthunlocked.com/nras/pos...

    4️⃣3️⃣ "How U.S. Health Care Became Big Business": Medical Journalist, Dr. Elisabeth Rosenthal talks with NPR's Terry Gross: healthunlocked.com/ra-warri...

    4️⃣2️⃣ Quinoa, Buckwheat, Sweet Potatoes, Leafy Greens, . . . 'Baseline Phase' of PP Diet Fulfills Nutritional Requirements (Diverse & Complete): healthunlocked.com/nras/pos...

    4️⃣1️⃣ Healing Power of Resilience, Optimism, & Hope: Moving Forward from Trauma, PTSD, Physical & Psychological Abuse & Illness β€” Dave Pelzer: healthunlocked.com/nras/pos...β€”-dave-pelzer

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    4️⃣0️⃣ Warm welcome, Hopeyj19!: healthunlocked.com/nras/pos...

    3️⃣9️⃣ From Wheelchair to Bikram Yoga (in 10 Months): healthunlocked.com/nras/pos...

    3️⃣8️⃣ "A Kitchen Fairy Tale" by Iida, How She Healed Herself with a Plant-Based Diet (according to 'Tribe Magazine'): healthunlocked.com/nras/pos...

    3️⃣7️⃣ Can I Avoid RA Drugs or Should I Go On Drugs? 'Paddison Program' FAQ Opinion; Also: Methotrexate Explanation & References: healthunlocked.com/nras/pos...

    3️⃣6️⃣ EarthToLor: Psoriasis, RA, Depression, Weight Gain; Triple Therapy & More; Potatoes & Rice: healthunlocked.com/nras/pos...

    3️⃣5️⃣ New Arthritis Podcast: "Can Arthritis Potentially End a Musical Career?": healthunlocked.com/nras/pos...

    3️⃣4️⃣ Cardiologist, Dr. Monica Aggarwal, Reduces Her RA Inflammation via Plant-Based Nutrition, Diet, Lifestyle: healthunlocked.com/nras/pos...

    3️⃣3️⃣ AndySwarbs Shares His RA Hero's Journey β€” Joe Campbell Style: healthunlocked.com/ra-warri...β€”-joe-campbell-style

    3️⃣2️⃣ Olive Oil β€” not Popeye's 'Olive Oyl': healthunlocked.com/ra-warri...β€”-not-popeyes-olive-oyl

    3️⃣1️⃣ Our Beloved AndySwarbs, a Hero's Journey: healthunlocked.com/nras/pos...

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    3️⃣0️⃣ Erika's Rheumatologist Confirms Erika's CCP Reduced (from 144.3 to 27) via Diet β€” turning_pain_n2_purpose: healthunlocked.com/nras/pos...β€”-turning_pain_n2_purpose

    2️⃣9️⃣ "Super Juice Me!" Documentary by Jason Vale: healthunlocked.com/nras/pos...

    2️⃣8️⃣ "Fat, Sick & Nearly Dead" Documentary by Joe Cross: healthunlocked.com/ra-warri...

    2️⃣7️⃣ Juvenile Idiopathic Arthritis (JIA): Jenn, Cole, & Joseph Share Hope & Practical Experience: healthunlocked.com/nras/pos...

    2️⃣6️⃣ Jenn, Cole, & Joseph: JIA-ers Who Share Hope & Practical Experience: healthunlocked.com/jia/post...

    2️⃣5️⃣ Empathetic 'Knee Photo' for Deejojo: healthunlocked.com/nras/pos...

    2️⃣4️⃣ "Tis but a scratch . . .": healthunlocked.com/ra-warri...

    2️⃣3️⃣ Placing Dietary & Lifestyle Approaches 'In Context'/ 'In Perspective': healthunlocked.com/nras/pos...

    2️⃣2️⃣ Roxana, 'The Sofia Vergara of Peru' (& now 'The States'), Improves Her Hashimoto's (Hypothyroid) & Rheumatoid Arthritis (RA): healthunlocked.com/thyroidu...

    2️⃣1️⃣ Any 'Ankylosing Spondylitis'-ers (AS)?: healthunlocked.com/ra-warri...

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    2️⃣0️⃣ Catching Up with 'Healing Josefine' -- Over 2 Years & 80+ Vlogs: healthunlocked.com/nras/pos...

    1️⃣9️⃣ Dr. Pam Popper on: Hypothyroidism; Iodine, Thyroid Function & Thyroid Disease: healthunlocked.com/thyroidu...

    1️⃣8️⃣ Self-Management Event in Southampton on Feb. 14 & 15 from 'Arthritis Action': healthunlocked.com/nras/pos...

    1️⃣7️⃣ X-Ray Yoga: healthunlocked.com/ra-warri...

    1️⃣6️⃣ Gentle Chair Yoga for RA, X-Ray Yoga for Wonderment: healthunlocked.com/nras/pos...

    1️⃣5️⃣ Suicide -- Career & Otherwise: healthunlocked.com/nras/pos...

    1️⃣4️⃣ Meditation, Mindfulness, Movement, Breathing, Relaxation, Stress Reduction . . .: healthunlocked.com/nras/pos...

    1️⃣3️⃣ 13 Bite-Size Thoughts for Autoimmuners -- Newly Diagnosed (or Not): healthunlocked.com/ra-warri...

    1️⃣2️⃣ "When You Know Better, You Do Better!": healthunlocked.com/fibromya...

    1️⃣1️⃣ Dietary/ Lifestyle Considerations for Rheumatologists to 'Ruminate On': healthunlocked.com/nras/pos...

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    πŸ”Ÿ Spoon Theory, Spoonie, Spooning: healthunlocked.com/nras/pos...

    9️⃣ Douglas Lisle: 'The Pleasure Trap': healthunlocked.com/nras/pos...

    8️⃣ Dean Ornish, Neal Barnard, T. Colin Campbell, Caldwell Esselstyn, John McDougall, Michael Klaper, Michael Greger: healthunlocked.com/nras/pos...

    7️⃣ "Poofed" Info, References, Links, Your Replies, etc. (at ALL 'Kai-- Posts'): healthunlocked.com/nras/pos...

    6️⃣ FREE Whole Foods Plant-Based Diet/ Lifestyle (WFP-BD/L) Info for Interested Autoimmuners/ RAers: healthunlocked.com/nras/pos...

    5️⃣ Vogons, Vulcans, Vegans: healthunlocked.com/nras/pos...

    4️⃣ Microbiome, Pooing, Toilet Humour: healthunlocked.com/nras/pos...

    3️⃣ For All Autoimmuner's: FREE 7-Part Documentary with Tom O'Bryan: healthunlocked.com/nras/pos...

    2️⃣ FREE 3-Part 'Serology (RF, ACPA, Anti-CCP, ANAs, ANCA) in Rheumatology' Series from Dr. Robert Coughlan's 'Rheumatology Toolbox': healthunlocked.com/nras/pos...

    1️⃣ "Live Your Life. . . ": healthunlocked.com/nras/pos...

    ⏺ Kai-- Profile: healthunlocked.com/user/kai... [Click on blue "Read more" text (at top of page) to read full profile.]

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  • * HU's 'over-sensitive' spam filter deleted my (Kai--) account not only once -- but twice! 😳

    πŸ‘‰ healthunlocked.com/nras/pos...

    πŸ‘‰ healthunlocked.com/nras/pos...😞

    πŸ‘‰ healthunlocked.com/nras/pos...

  • Best wishes for a Happy Healthy 2017 to all RA Warriors everywhere‼️

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    πŸŽ‰ 🎈 πŸŽ‡ 🌚 🌝 πŸ€—

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    πŸ”” πŸ‘ΌπŸ» πŸ˜‰

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  • Well thank you for doing this! It certainly does help to see that we are not alone :-)

    Happy Healthy New Year & God Bless!

  • Very welcome, TerryV! πŸ™

    Additional insights/ perspectives from folks here as well: healthunlocked.com/ra-warri... πŸ‘

    Fortunately (& unfortunately) we aren't alone; there's an awful lot of us autoimmuners out here. 😳 'Nice' in that we have each other to share experiences with πŸ‘ -- not so nice in that there's too too many of us suffering . . . πŸ™ƒ

    Thank you kindly for the New Year well wishes, TerryV. πŸ™

    Right back at you! πŸ‘ πŸ€— πŸ€ 🌺

  • Awesome Post Kai! And I love Douglas Adams... 42, 42, 42 (ha ha) (The true answer to life, the universe and everything)

  • πŸ‘ πŸ‘ --> 4️⃣2️⃣ . . 🐭 🐭 . . πŸ˜‚ πŸ˜‚

  • For (hindsight) perspectives from 2 different young women, consider viewing their inspirational stories:

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    πŸ‘©πŸΌ Healing Josefine:

    UPDATE: My Daily Routine To Handle Rheumatoid Arthritis:

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    πŸ‘©πŸ» Jenn:

    Living with Rheumatoid Arthritis for 21+ Years [Personal Story]:

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    [For additional details, consider viewing: Catching Up with 'Healing Josefine' -- Over 2 Years & 80+ Vlogs: healthunlocked.com/nras/pos... ]

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  • This is really nice!

  • Good to hear, nakkita! πŸ€—

    There's additional 'pieces of advice' from fellow forum members at post: "What would be your first piece of advice to someone newly diagnosed with RA?" healthunlocked.com/ra-warri...

    Lots of excellent points shared by RAers/ autoimmuners with variety of experiences! (Good stuff. πŸ‘ )

  • One of our fellow American RA Warriors forum members (as well as NRAS forum members) β€” andyswarbs β€” has some profound insights into dietary/ lifestyle (d/l) approaches β€” alongside med(ication) approaches:

    Our Beloved AndySwarbs, a Hero's Journey: healthunlocked.com/nras/pos...

    What Andy shares with all of us may be of particular interest to those of us seriously interested in researching & pursuing d/l in conjunction with our meds. πŸ‘ πŸ™

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  • Andy vs Rheumatoid Arthritis and Andy is winning:

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  • For dietary/ lifestyle (d/l) discussions from a variety of perspectives, these posts may be of interest:

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    β€’ Talking to NRAS about diet: healthunlocked.com/nras/pos... [Highly recommend taking time to read through the 70 + comments for anyone seriously considering implementing a d/l approach (along with their meds). πŸ‘ Found andyswarbs last comment (at bottom of page) insightful/ profound. πŸ€” 😌 ]

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    β€’ For All Autoimmuner's: FREE 7-Part Documentary with Tom O'Bryan: healthunlocked.com/nras/pos... [See 'replies' for clarifications about d/l approaches in relation to 'leaky gut theory', etc.]

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    β€’ Feeling sorry for people here: healthunlocked.com/nras/pos... [Again, highly recommend taking time to read through 120+ comments for anyone seriously considering implementing a d/l approach (along with their meds). πŸ‘ πŸ€” 😌 ]

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    β€’ A new day, let's see what we have learnt: healthunlocked.com/nras/pos... [This 'follow-up' post (& its 50+ replies) are equally as interesting/ insightful.]

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    Placing Dietary & Lifestyle Approaches 'In Context'/ 'In Perspective': healthunlocked.com/nras/pos... [George Bernard Shaw's 'communication', Monty Python's "Life of Brian", & John G. Saxe's "Blind Men & the Elephant" may shed some light . . . πŸ•― πŸ”¦ πŸ’‘ β˜€οΈ ]

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    For additional thoughts, opinions, perspectives on d/ l techniques, explore "Diet" search results at:

    πŸ—£ πŸ‘₯ American RA Warriors: healthunlocked.com/search/d...

    πŸ—£ πŸ‘₯ NRAS: healthunlocked.com/search/d...

    πŸ—£ πŸ‘₯ Arthritis Action: healthunlocked.com/search/d...

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  • Can I Avoid RA Drugs or Should I Go On Drugs? 'Paddison Program' FAQ Opinion; Also: Methotrexate Explanation & References.

    A perspective on taking RA meds that may be of interest.

    [Originally posted at: healthunlocked.com/nras/pos... ]

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    Hopefully, the 8-minute synopsis will clarify the 'Paddison Program' (PP) approach to medications & dispel misunderstandings, misperceptions, miscommunications, misimpressions, misreadings . . . of the approach. πŸ™

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    If you're seeking clarification on Clint Paddison's OPINION on medications β€” in the context of a dietary/ lifestyle approach β€” kindly consider viewing the full 8 minutes.

    Do You Need To Take RA Medications?

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    πŸ™ πŸ€ 🌺 🌞

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  • Pareto principle β€” 80/20 rule ( en.m.wikipedia.org/wiki/Par... ):

    The Pareto principle (also known as the 80/20 rule, the law of the vital few, or the principle of factor sparsity) states that, for many events, roughly 80% of the effects come from 20% of the causes.

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    5-Ways to Lower Pain:

    1️⃣ Meds ⭐️

    2️⃣ Diet ⭐️

    3️⃣ Exercise ⭐️

    4️⃣ Supplements

    5️⃣ Stress Reduction

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    Baseline Phase of PP: FREE Whole Foods Plant-Based Diet/ Lifestyle (WFP-BD/L) Info for Interested Autoimmuners/ RAers: healthunlocked.com/nras/pos...

    Under Dr. Michael Klaper, Q&A: Diet, Arthritis, & Autoimmune Diseases, β€œThe Baseline Safety Diet”: doctorklaper.com/answers/an...

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