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13 Bite-Size Thoughts for Autoimmuners -- Newly Diagnosed (or Not)

13 Bite-Size Thoughts for Autoimmuners -- Newly Diagnosed (or Not)

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13 Bite-Size Thoughts for Autoimmuners -- Newly Diagnosed (or Not)

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Originally under heading: First piece of advice to anyone newly diagnosed with RA --broken into 13 bite-size bits 😉, which was originally under 'American RA Warriors' post "What would be your first piece of advice to someone newly diagnosed with RA?" ( healthunlocked.com/ra-warri... ).

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Here's a revival of an old post/ reply that got deleted throughout my HU account (long story, see below if interested*):

Hope this posts is useful to any newbie (or old-bie) seeking a boost, a spirit lift 👻, spark of hope 💥 , or just a few shared thoughts 🤔.

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Use whatever works for you & chuck out the rest 🗑. 👍

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🙏 ☺️ 🍀 🌺

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All in good time, dear lady. All in good time . . . 🙏 👍

I know. It's all overwhelming . . . especially when we're feeling our very worst . . . rock bottom. 😩 😖

All we can do is hunker-down in 'survival mode' to 'get through.' ğŸ˜ž Totally understandable. 👍

In due time, when we begin feeling a bit better 😐 -- seeing glimmers of hope ☺️ -- we can incrementally begin. Take all the time you need . . . at your own pace . . .

In meantime, soak in all the love 💗 & support 👐 of your beloveds (especially the 4-leggeds 🐶 🐱 🐰 🐹 🦄 , who seem to understand best). 😉 They (all) help sustain us through low times. 👍 🙏

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Supplementally, maybe some of the following will resonate with you, ----- :

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First piece of advice to anyone newly diagnosed with RA --broken into 13 bite-size bits 😉

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✅ Grasp the significance of appropriate foods (diet 🍃 ) & lifestyle (exercise/ movement 💃🏻🏃 ) to help influence the course of disease progression (by reducing inflammation 🌡) & increasing bodily healing -- for some (many?) of us.

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✅ Meds 💊 💉 aren't the 'be-all & end-all ' -- for each & every one of us -- especially if we've ridden the 'med-merry-go-round' ğŸŽ , 'Ferris wheel' ğŸŽ¡, and 'rollercoaster' ğŸŽ¢ . . .

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✅ It's not an either/ or 'false dichotomy' of 'approaches' (meds 💊 vs. dietary 🍃 ). The 2 aren't 'mutually exclusive'. As individuals, we can successfully use both a dietary/ lifestyle approach (techniques) and meds 'as needed' -- judiciously.

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✅ Both med & dietary/ lifestyle approaches are 'trial & error', 'hit & miss' processes. Currently, there's no other way -- as each of us reacts uniquely/ individually to each 'introduced' element. There's no "1-size-fits-all" 'certainty' or 'definitives'. It's the 'land of ambiguities' -- probabilities, likelihood's -- if's, and's, & but's . . . 😉

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✅ Be proactive 🗣💬 & fully immersed/ involved in understanding how to manage your life-long autoimmune disease. Once you get over the initial 'shock/ trauma' 😧 of the diagnosis & begin the on-going 'grieving process' 😩 , you can 'get your bearings' in due time. Be active 🤓, not passive 🙄 in learning & understanding 🤔 how your unique body works.

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✅ Seek 'realistic hope'. 🙏 Follow autoimmuners/ 👥 physicians 👤👤 who are improving/ healing. 🤗 [Avoid negative nellies 😠, naysayers 😏 , & pooh pooh-ers 😒 like the plague! They'll only spiral you downward 🌀 in wallowing & drowning misery!! 😫 😩 😥 😔 ğŸ˜ž] An occasional 'pity party' 😩 😭 is perfectly understandable -- but you needn't attend every 'open invitation'. 😉 (Don't get 'stuck' in 'O woe is me'. 😓)

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✅ Surround yourself with loving support of trusted family, friends, co-workers 💑 who understand & support you on your journey -- whether to help you when you need a hand or attend appointments with you. 😊 (And if no one can attend appointments with you, request physician's permission to audio tape meeting, so you can catch all the details you may missed during your note-taking. 📝 Also, your loved ones may want to listen to the meeting, as well, to pick up on points you overlook.)

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✅ Understand -- at times (by default) -- your having to simply, gently, kindly educate those around you who have little (to no) understanding of autoimmune illness: healthunlocked.com/nras/pos... ♿️ You'll get further being patient & kind 🙂 with well-meaning, yet ill-informed individuals -- than getting flustered 😤 , peevish 😠, or defensive 😕 about their perceived 'rudeness' or 'meanness'. Often they're, merely un-informed. 😐 And, what they may say in a kind-intentioned spirit -- may be misperceived by you.

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✅ Understand you needn't 'wait for' a formal autoimmune 'diagnosis' before implementing a 'dietary/ lifestyle' approach to help bring down inflammation, slow down/ avert disease progression. (You don't need to 'await' the 'pope's blessing' before doing the 'right' thing. 😉 )

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✅ Don't be dissuaded or waylaid by naysayers 😏 , & pooh pooh-ers 😒. Remember, if/ when stone throwers 😡 start pelting their little barbs at you ( vimeo.com/5453316 ):

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✅ Learn to laugh at yourself 😄 & life's 'little cruelties'! The disease is ridiculous/ outrageous in what it does to our body 🙃 & mind 😜 ! And we'd better learn to laugh at & accept these lapses. If we didn't laugh 😂, we'd cry 😥.

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✅ Initially, this may seem unfair, brutal, unspeakably cruel ('why me⁉️ oh gawd, why me⁉️' 😭 ) -- but in deep, profound moments 😌, you may come to see the journey as 'a blessed curse.' 🙏 You'll learn more 🤓, see more 😳, come to feel & understand 😌 more than you ever imagined. It will change you to your core. 🤗 👍

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✅ Oh, and whenever anyone -- especially a medical professional says to you "try not to worry" or "let's just wait & see" that is your red flag signal 🚩 🚩 to get your ' 🌙🌙 in gear'!!! 😳 Do your research, learn as much as you reasonably can. Because it is your long-term life on the line -- not any well-meaning, kind-hearted, trusted, respected, authoritative, good-natured physician. You are the only one fully vested in your well-being & have to 'live with' each & every decision made. You must take full ownership/ responsibility of working with your medical team toward finding workable solutions. [In rear-view mirror hindsight/ afterthoughts, blaming medical professionals for their shortcomings, shortsightedness, blind spots, ignorance, heel-dragging, missteps, etc. does you no good. It wastes your precious energy.] Anything that side-tracks you is mere 'noise' -- a waste of time. Keep laser focus on goal of improving/ healing.

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Keep your eyes on the prize of getting well.

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( 🔩 everything else.) 😉

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Be well! 🙏

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Kind regards,

Kai

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Hang in there, luv. 👍 Hang in there . . . 🙏 🍀 🌺

We're right by your side. 👫 👭 👯 👍 🤗

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In process of restoring 15-months worth of obliterated information/ research:

7️⃣5️⃣ Chiropractic, Massage, Physical Therapy to Help Manage Pain: Matthew Redman: healthunlocked.com/cure-art...

7️⃣4️⃣ JIA-er Katy Shares Her Progress: From 10 Months Old to 26 Years Old: healthunlocked.com/jia/post...

7️⃣3️⃣ Quality Deep Sleep: Physical/ Mental Restoration & Improving Health: healthunlocked.com/cure-art...

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7️⃣1️⃣ DMARD Infographic: Methotrexate (MTX), Leflunomide (LEF), Sulphasalazine (SSP), Hydroxychloroquine (HCQ): healthunlocked.com/cure-art...

7️⃣0️⃣ Paddison Program (PP): Clinical Trial, Rheumatologist Contacting Clint Paddison, 'Guide for Rheumatologists', TEDtalk, etc.: healthunlocked.com/cure-art...

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6️⃣9️⃣ Journey To 100: Evolution of Medicine (Functional Medicine & Importance of 'Community'): healthunlocked.com/cure-art...

6️⃣8️⃣ Dr. Michael Greger ('Sense & Sensibility') Shares "How Not to Die": healthunlocked.com/cure-art...

6️⃣7️⃣ Journalist Sumit Bose, Another RA-er Who's Documenting His RA Journey: healthunlocked.com/cure-art...

6️⃣6️⃣ 'Microbiome/ Gut Health Book List' from AARA: healthunlocked.com/cure-art...

6️⃣5️⃣ Practical, Brief Video Tips for RAers/ Autoimmuners: healthunlocked.com/cure-art...

6️⃣4️⃣ Supplements/ Nutrients (B12, Vit. D, Potassium, Protein . . . ) for RAers/ Autoimmuners & Plant-Based Dieters (Vegans, Vegetarians, . . . ): healthunlocked.com/cure-art...

6️⃣3️⃣ Sally, 'The Galloping Grandma': healthunlocked.com/cure-art...

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5️⃣6️⃣ Osteoarthritis: Prevented with Diet & Exercise? University of Surrey (U.K.) study in 'Nature Reviews Rheumatology': healthunlocked.com/ra-warri...

5️⃣5️⃣ "Guide for Rheumatologists" V 1.5.6 (for 'Paddison Program'-ers): healthunlocked.com/ra-warri...

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3️⃣9️⃣ From Wheelchair to Bikram Yoga (in 10 Months): healthunlocked.com/nras/pos...

3️⃣8️⃣ "A Kitchen Fairy Tale" by Iida, How She Healed Herself with a Plant-Based Diet (according to 'Tribe Magazine'): healthunlocked.com/nras/pos...

3️⃣7️⃣ Can I Avoid RA Drugs or Should I Go On Drugs? 'Paddison Program' FAQ Opinion; Also: Methotrexate Explanation & References: healthunlocked.com/nras/pos...

3️⃣6️⃣ EarthToLor: Psoriasis, RA, Depression, Weight Gain; Triple Therapy & More; Potatoes & Rice: healthunlocked.com/nras/pos...

3️⃣5️⃣ New Arthritis Podcast: "Can Arthritis Potentially End a Musical Career?": healthunlocked.com/nras/pos...

3️⃣4️⃣ Cardiologist, Dr. Monica Aggarwal, Reduces Her RA Inflammation via Plant-Based Nutrition, Diet, Lifestyle: healthunlocked.com/nras/pos...

3️⃣3️⃣ AndySwarbs Shares His RA Hero's Journey — Joe Campbell Style: healthunlocked.com/ra-warri...—-joe-campbell-style

3️⃣2️⃣ Olive Oil — not Popeye's 'Olive Oyl': healthunlocked.com/ra-warri...—-not-popeyes-olive-oyl

3️⃣1️⃣ Our Beloved AndySwarbs, a Hero's Journey: healthunlocked.com/nras/pos...

3️⃣0️⃣ Erika's Rheumatologist Confirms Erika's CCP Reduced (from 144.3 to 27) via Diet — turning_pain_n2_purpose: healthunlocked.com/nras/pos...—-turning_pain_n2_purpose

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1️⃣9️⃣ Dr. Pam Popper on: Hypothyroidism; Iodine, Thyroid Function & Thyroid Disease: healthunlocked.com/thyroidu...

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1️⃣2️⃣ "When You Know Better, You Do Better!": healthunlocked.com/fibromya...

1️⃣1️⃣ Dietary/ Lifestyle Considerations for Rheumatologists to 'Ruminate On': healthunlocked.com/nras/pos...

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1️⃣ "Live Your Life. . . ": healthunlocked.com/nras/pos...

⏺ Kai-- Profile: healthunlocked.com/user/kai... [Click on blue "Read more" text (at top of page) to read full profile.]

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* HU's 'over-sensitive' spam filter deleted my (Kai--) account not only once -- but twice! 😳

👉 healthunlocked.com/nras/pos...

👉 healthunlocked.com/nras/pos...ğŸ˜ž

👉 healthunlocked.com/nras/pos...

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Best wishes for a Happy Healthy 2017 to all RA Warriors everywhere‼️

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ğŸŽ‰ ğŸŽˆ ğŸŽ‡ 🌚 🌝 🤗

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🔔 👼🏻 😉

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Well thank you for doing this! It certainly does help to see that we are not alone :-)

Happy Healthy New Year & God Bless!

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Very welcome, TerryV! 🙏

Additional insights/ perspectives from folks here as well: healthunlocked.com/ra-warri... 👍

Fortunately (& unfortunately) we aren't alone; there's an awful lot of us autoimmuners out here. 😳 'Nice' in that we have each other to share experiences with 👍 -- not so nice in that there's too too many of us suffering . . . 🙃

Thank you kindly for the New Year well wishes, TerryV. 🙏

Right back at you! 👍 🤗 🍀 🌺

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Awesome Post Kai! And I love Douglas Adams... 42, 42, 42 (ha ha) (The true answer to life, the universe and everything)

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👍 👍 --> 4️⃣2️⃣ . . 🐭 🐭 . . 😂 😂

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For (hindsight) perspectives from 2 different young women, consider viewing their inspirational stories:

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👩🏼 Healing Josefine:

UPDATE: My Daily Routine To Handle Rheumatoid Arthritis:

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👩🏻 Jenn:

Living with Rheumatoid Arthritis for 21+ Years [Personal Story]:

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[For additional details, consider viewing: Catching Up with 'Healing Josefine' -- Over 2 Years & 80+ Vlogs: healthunlocked.com/nras/pos... ]

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How Maya, another young mother of 2 little ones, manages her RA:

• Maya was diagnosed with RA 6 years ago

• She started Methotrexate & went off it to conceive

• After 3 months she got pregnant & was able to breastfeed with few symptoms

• During her 2nd pregnancy she had to take prednisone because the symptoms returned heavily

• She found PP & started it after pregnancy

• She charts her progress to keep track

• Once on PP, flares went from every 7 to 10 days, to every 20 days & finally to no flares at all

• Bikram yoga played a major part in her recovery

• She takes probiotic supplements, which help a lot

• She’s no longer on any medications & is back in control of her situation

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'Maya is overcoming Rheumatoid Arthritis while raising kids':

Transcript: paddisonprogram.com/maya-is...

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[Also posted at: healthunlocked.com/nras/pos... ]

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This is really nice!

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Good to hear, nakkita! 🤗

There's additional 'pieces of advice' from fellow forum members at post: "What would be your first piece of advice to someone newly diagnosed with RA?" healthunlocked.com/ra-warri...

Lots of excellent points shared by RAers/ autoimmuners with variety of experiences! (Good stuff. 👍 )

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One of our fellow American RA Warriors forum members (as well as NRAS forum members) — andyswarbs — has some profound insights into dietary/ lifestyle (d/l) approaches — alongside med(ication) approaches:

Our Beloved AndySwarbs, a Hero's Journey: healthunlocked.com/nras/pos...

What Andy shares with all of us may be of particular interest to those of us seriously interested in researching & pursuing d/l in conjunction with our meds. 👍 🙏

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Andy vs Rheumatoid Arthritis and Andy is winning:

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For dietary/ lifestyle (d/l) discussions from a variety of perspectives, these posts may be of interest:

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• Talking to NRAS about diet: healthunlocked.com/nras/pos... [Highly recommend taking time to read through the 70 + comments for anyone seriously considering implementing a d/l approach (along with their meds). 👍 Found andyswarbs last comment (at bottom of page) insightful/ profound. 🤔 😌 ]

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• For All Autoimmuner's: FREE 7-Part Documentary with Tom O'Bryan: healthunlocked.com/nras/pos... [See 'replies' for clarifications about d/l approaches in relation to 'leaky gut theory', etc.]

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• Feeling sorry for people here: healthunlocked.com/nras/pos... [Again, highly recommend taking time to read through 120+ comments for anyone seriously considering implementing a d/l approach (along with their meds). 👍 🤔 😌 ]

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• A new day, let's see what we have learnt: healthunlocked.com/nras/pos... [This 'follow-up' post (& its 50+ replies) are equally as interesting/ insightful.]

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Placing Dietary & Lifestyle Approaches 'In Context'/ 'In Perspective': healthunlocked.com/nras/pos... [George Bernard Shaw's 'communication', Monty Python's "Life of Brian", & John G. Saxe's "Blind Men & the Elephant" may shed some light . . . 🕯 🔦 💡 ☀️ ]

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For additional thoughts, opinions, perspectives on d/ l techniques, explore "Diet" search results at:

🗣 👥 American RA Warriors: healthunlocked.com/search/d...

🗣 👥 NRAS: healthunlocked.com/search/d...

🗣 👥 Arthritis Action: healthunlocked.com/search/d...

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Can I Avoid RA Drugs or Should I Go On Drugs? 'Paddison Program' FAQ Opinion; Also: Methotrexate Explanation & References.

A perspective on taking RA meds that may be of interest.

[Originally posted at: healthunlocked.com/nras/pos... ]

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Hopefully, the 8-minute synopsis will clarify the 'Paddison Program' (PP) approach to medications & dispel misunderstandings, misperceptions, miscommunications, misimpressions, misreadings . . . of the approach. 🙏

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If you're seeking clarification on Clint Paddison's OPINION on medications — in the context of a dietary/ lifestyle approach — kindly consider viewing the full 8 minutes.

Do You Need To Take RA Medications?

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🙏 🍀 🌺 ğŸŒž

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Pareto principle — 80/20 rule ( en.m.wikipedia.org/wiki/Par... ):

The Pareto principle (also known as the 80/20 rule, the law of the vital few, or the principle of factor sparsity) states that, for many events, roughly 80% of the effects come from 20% of the causes.

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5-Ways to Lower Pain:

1️⃣ Meds ⭐️

2️⃣ Diet ⭐️

3️⃣ Exercise ⭐️

4️⃣ Supplements

5️⃣ Stress Reduction

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Baseline Phase of PP: FREE Whole Foods Plant-Based Diet/ Lifestyle (WFP-BD/L) Info for Interested Autoimmuners/ RAers: healthunlocked.com/nras/pos...

Under Dr. Michael Klaper, Q&A: Diet, Arthritis, & Autoimmune Diseases, “The Baseline Safety Diet”: doctorklaper.com/answers/an...

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Additional drug/ med info:

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Managing Patients Taking DMARDs

(Disease Modifying Anti-Rheumatic Drugs)

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🛅 INFOGRAPHIC (pdf): bmj.com/content/bmj/suppl/2...

A visual summary of the 4 most frequently used DMARDs, including recommended monitoring & conditions that may interfere with treatment:

1 • Methotrexate (MTX)

2 • Leflunomide (LEF)

3 • Sulphasalazine (SSP)

4 • Hydroxychloroquine (HCQ)

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"Symptoms of inflammatory arthritis are often controlled in the long term using DMARDs (disease modifying anti-rheumatic drugs).

These are usually initiated by rheumatologists, with patients commonly taking two or sometimes three DMARDs simultaneously.

This graphic shows information about four of the most frequently prescribed DMARDs, including recommended monitoring and other conditions that could interfere with treatment."

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📰 ARTICLE: bmj.com/content/358/bmj.j32...

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[Many thanks to Man_Oeuvre 'BMJ DMARD infographic': healthunlocked.com/nras/pos... 🙏 😌 ]

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🙏 🍀 🌺 ğŸŒž

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May be of interest:

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Dr. Ben Williams (professor of psychology) audio conversation with Dr. Drew Pinsky (MD), Dr. Bruce Heischober (MD): weeklyinfusion.libsyn.com/w...

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[CONCEPTS applicable to RA/ Autoimmuners & their physicians — not just cancer patients & their physicians]

• physicians medical care (stateside at least)

• physician-patient relationship

• throwing everything at the disease

• drawbacks of 'standard care'

• phase 3 clinical trials

• conservative physicians/ groups not wanting to be 'blamed'

• base rate of success

• "do no harm" (cardinal rule) vs risk-taking (by patients willingness to take chances)

• patients decisions (not physicians) vs physicians malpractice/ loss of license (physicians between a rock & a hard place)

• aside: Dr. BW's wife has RA

• statistical analysis, "null hypothesis" testing framework, scientific method, stats, effect size

• *meaningful* impact on patient population

• nature of statistical analysis of medical research

• population effects, epidemiological, median survival, 2-year survival parameter, "noise" in trial, yada yada yada

• null hypothesis testing is counterproductive

• "Perils of Evidence Based Medicine" paper

• problem of variance, statisticians . . .

• lobbying FDA, NIH to abandon null hypothesis testing framework

• effect size

• rigid adherence to a statistical system without paying attention to what the disease is, survival, variance, etc.

• use common sense, not abandoning traditional medicine

• vaccine analogy

• logical approach, not 'cultish' with approach to science

• plot distributions of outcomes

• look at overlap, tails, . . . 'common sense' vs. 'statistical analysis'

• blah blah blah

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Podcast episode description:

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Surviving Terminal Brain Cancer — Jun 12, 2017

In 1995, Dr. Ben Williams was diagnosed with a deadly brain tumor called glioblastoma multiforme, which is generally terminal. He added his own regimen to the standard treatment, and twenty-two years later, he's still alive. Tune in to learn about what he did to extend his life.

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[Guessing this confirms much of what we're learning . . . 😳 ]

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Dr. Ben Williams (professor of psychology): virtualtrials.com/williams.cfm

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"Perils of Evidence Based Medicine" 2010: virtualtrials.com/pdf/ebm.pdf

ABSTRACT Evidenced-based medicine views random-assignment clinical trials as the gold standard of evidence. Because patient populations are heterogeneous, large numbers of patients must be studied in order to achieve statistically significant results, but the means or medians of these large samples have weak predictive validity for individual patients. Further, the logic of random-assignment clinical trials allows only the inference that some subset of patients benefits from the treatment. Post-hoc analysis is therefore necessary to identify those patients. Otherwise, many patients may receive treatments that are useless and potentially harmful.

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🙏 🍀 🌺 ğŸŒž

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'Steel Magnolia' Lyn tells it like it is. 🌸

Nothing says it better than Ms. Lyn!! 👍

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Prick up your ears & listen to the genteel, lilting voice of a Virginia gal with a steel-punched message. 👊

"She knows whereof she speaks." 😌

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(Needn't spend a second reading a word of anything I've noted, kindly spend your time listening to Lyn. 🤗 )

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Reversing RA - Lyn Has Halved Her Methotrexate On The Paddison Program:

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[Gawd bless you, dear lady! 🙏

Love ❤️ what you have to say & the way you say it❣️ 😘 ]

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Yes, spot on with Turmeric & so many other tips 'n points! 👏 💐 👍

[H m m m . . . time to investigate purple carrots & alkaline water . . . 🤔 ]

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Bit more on Methotrexate & taking meds:

Can I Avoid RA Drugs or Should I Go On Drugs? 'Paddison Program' FAQ Opinion; Also: Methotrexate Explanation & References: healthunlocked.com/nras/pos...

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🙏 🍀 🌺 ğŸŒž

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Couple more inspirational ladies showing us what's possible:

👩 Cecilia: How to Heal Arthritis and Osteoporosis Naturally at 73:

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👩 Annette Larkins: 74 Year Old who looks 40 Reveals Her Beauty Secrets that Make You Look & Feel Younger:

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Journalist Sumit Bose, Another* RA-er Who's Documenting His RA Journey

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"Eating Myself Healthy — Can a Diet Cure Rheumatoid Arthritis?":

m.youtube.com/channel/UC5W3...

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Sumit Bose's YouTube channel (with 7 Episodes to date) documents his RA journey via video blogging (vlogging 📹 ). 🤗 👍

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Video

Minutes

. . . . ⏱ . . . • . EPISODE # [See below for videos & notes.]

————————————————————————————

. 4:39 min. • EPISODE 1 — Intro to Sumit Bose, Clint Paddison, & the Paddison Program

. 4:36 min. • EPISODE 2 — 1st day of PP

. 1:54 min. • EPISODE 3 — 2nd day of PP

. 4:05 min. • EPISODE 4 — What is RA?

. 2:58 min. • EPISODE 5 — 3rd day of PP

. 5:52 min. • EPISODE 6 — End of Week 1 of PP & First 12 Days of PP

26:15 min. • EPISODE 7 — Unvarnished Truths from Dr. John McDougall

————————————————————————————

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Finding Sumit Bose's depiction of early phases of the PP process spot on!! ☺️ 👍

Refreshing to see accuracy/ preciseness with which he explains a dietary/ lifestyle (d/l) process (after reading so many misconceptions), as well as his generously showing his unvarnished personal experience, day by day. 🤗

[Many thanks to SB. 🙏 😌 His truthfulness/ honesty is sincerely appreciated by those of us who are also on a d/l journey & wish to learn from (& share with) each other. 👍 ]

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🙏 🍀 🌺 ğŸŒž

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[SB's videos & (my) jotted notes: Journalist Sumit Bose, Another RA-er Who's Documenting His RA Journey: healthunlocked.com/cure-art... ]

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* For reference:

'Healing Josefine' 👩 ( m.youtube.com/channel/UCEYu... ) &

Rick 'The RA Health Coach' 👱 ( m.youtube.com/channel/UC-24... ),

are 2 earlier vloggers who've documented their d/l journeys as well. 👍👍

Have also found both Josefine & Rick to be accurate, truthful, honest in their vlogging. 🙏 😌

They, too, convey the daily reality of d/l experiences & the uniqueness of each of our journeys.

They've been deeply personal inspirations for me ☺️ , wonderful sources of additional quality, sensible tips, & shared thoughts. 😌 🤗 (Much, much appreciated. 🙏 😌 )

Catching Up with 'Healing Josefine' -- Over 2 Years & 80+ Vlogs may be of interest to sincere seekers: healthunlocked.com/nras/pos...

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🙏 🍀 🌺 ğŸŒž

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Katy's own words best tell her JIA story (in 15 minutes):

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Katy's Inspirational Progress Against Lifelong Rheumatoid Arthritis:

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👶 Katy was diagnosed with JIA at 10 months old

👱‍♀️ She has battled with her condition for 26 years

↩️ After starting the Paddison Program she has turned her condition around

💊 She now needs only a fraction of the drugs she was taking

🌅 She wakes up with no morning stiffness

📆 Improvements began within 3 days of the Program

🔥 Bikram Yoga is restoring increased functionality to her affected joints

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This is the 📖 passage Katy reads (Jeremiah 29 biblegateway.com/passage/?s... ) that sent chills down her spine giving her hope & finally became her reality:'

" 12 Then you will call on me and come and pray to me, and I will listen to you.

13 You will seek me and find me when you seek me with all your heart.

11 For I know the plans I have for you,” declares the Lord, “plans to prosper you and not to harm you, plans to give you hope and a future . . . "

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🙏 🍀 🌺 ğŸŒž

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This darl'n young lady melts hearts ❣️

From 10 months old to 26 years old, Katy is a lifelong JIA-er who's feeling better & better. 😌

Katy's Inspirational Progress Against Lifelong RA:

Transcript: paddisonprogram.com/katys-i...

[Another personal inspiration. Gawd bless you, Katy! We're cheering you on! 🙏 🍀 🌺 ğŸŒž ]

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[Also posted at: Juvenile Idiopathic Arthritis (JIA): Jenn, Cole, & Joseph Share Hope & Practical Experience: healthunlocked.com/nras/pos... ]

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Update on Katy Hoogendam:

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Part 1:

Part 2:

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"Katy Hoogendam" Google search results: google.com/search?as_q=%22K...

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[Gawd bless you, Katy! 👼 ✨

Thank you. 🙏 😌 💕 ]

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[Also tried adding to JIA page ( healthunlocked.com/jia/post... ), but can’t 🤯 🙃 , so can only add here.]

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A thoughtful, insightful 👁 👁 perspective from ‘Silentreader’ (🤫 📖) about questioning 🤔, researching 🕵️‍♀️ , & understanding 😌 (as best we can) our treatment options before blindly following (or rushing into) any "expert’s" or "specialist’s" 👩‍⚕️👨‍⚕️ advice (‘opinion’) when it comes to chronic, progressive illness: healthunlocked.com/asthmauk...

(Experts/ specialists are ‘human’ & just as susceptible to ‘human error’ 🙅‍♂️ — as we all are. 😳 )

Much appreciation to ‘🤫 📖’ for expressing such concepts soundly, logically, sensibly. 🙏😌

Responsibility utimately falls back onto our shoulders 🤷‍♀️ to do the best we can to inform 👩‍💻/ educate 👨‍🏫 ourselves to make the best treatment choice for ourselves (weighing ⚖️ our unique conditions & circumstances) — even though we’re at our most unwell 🤢, vulnerable 😩 , frightened 😧.

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[Also posted at: healthunlocked.com/nras/pos... (after ‘Gerbil Soufflé 🐹 👩‍🍳’ Reply towards bottom of page).]

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🙏 🍀 🌺 ğŸŒž

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Another ‘thought’ that seems to take on particular significance when we’re unwell: fear 😨

[From post healthunlocked.com/nras/pos... ]

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"Aside:

We all ‘hear’ horror stories 👻 💀 . . .

. . . people get hit by buses 🚌 because they left the house 🏡 . . .

. . . people die in plane crash because they flew ✈️ . . .

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Yet, we don’t seem(?) to hear much about people not looking both ways 👀 before crossing the road 🛣 . . .

or the infinitesimal probability 📉 of dying by plane crash? 🤔

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• Wondering how common ‘hospitalisation 🏥 by neti pot’ is for the immunocompromised 🤧 ? (What’s ‘statistical probability’ 📊 ?)

• Also wondering, how common is it for the immunocompromised to not (routinely, scrupulously?) practice proper hygiene/ safety precautions given known vulnerabilities? 🤔

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On a ‘contemplative’ note:

"Una vida con miedo es como la vida medias."

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("A life lived in fear is a life half-lived." 😳 🤔 )"

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😌 🙏 🍀 🌺 ğŸŒž

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13 bites was so helpful! I really really got a lot of information and support from it thanks for posting. Have a great day!

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Very happy to hear, Graceusha1! 🙏 ☺️

Please keep taking good care of yourself. 🙏 😌

(You cumulatively reap rewards further you go along. 👍👍 )

Wishing you the very best along the way, dear lady. 😌 🙏 🍀 🌺 ğŸŒž

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If still searching for answers/ ‘diagnosis’ while manifesting various symptoms, kindly consider content of post ( healthunlocked.com/nras/pos... ):

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Kindly get eyes checked ASAP, BlackNov, especially if experiencing Floaters as noted in ‘orange section’ of page: nhs.uk/conditions/floaters-...

The list of symptoms you’ve kindly noted overlap with a number of Inflammatory Arthritis/ Autoimmune illnesses as noted here: healthunlocked.com/nras/pos...

Continue working with your physicians/ rheumatologist 👩‍⚕️👨‍⚕️ to assess likely condition(s) & course of action going forward.

In meantime, additional food for thought ( healthunlocked.com/cure-art... ) if interested.

Wishing you the very best, BlackNov. 😌 🙏 🍀 🌺 ğŸŒž

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(Very welcome, BlackNov. 🙏 😌 )

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For supplemental research, just a few of the myriad possibilities/ ‘flavours’ of autoimmunity (& simultaneous life/ bodily changes) & its tendency to ‘travel in packs’ (like wolves):

🐺 Psoriatic Arthritis (PsA): healthunlocked.com/cure-art...’sheas-journal-journey , healthunlocked.com/search/p...

🐺 Sjögren's healthunlocked.com/nras/pos...😡 , healthunlocked.com/search/s...'s

🐺 Fibromyalgia: healthunlocked.com/search/f... , healthunlocked.com/fibromya...

🐺 Thyroid: healthunlocked.com/search/t... , healthunlocked.com/thyroiduk

🐺 Anemia: healthunlocked.com/search/a...

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For a bit of ‘good news’, kindly be aware there’s much that can be done to influence the course of disease progression:

😊 healthunlocked.com/nras/pos...

😊 healthunlocked.com/cure-art...

😊 healthunlocked.com/cure-art...

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It is indeed daunting, as we (& often our beloved medics 👩‍⚕️👨‍⚕️ ) don’t know what’s wrong with us nor can they clearly, unequivocally diagnose us promptly. [Disease(s) ebb ‘n flow & mutate 🧛🏻‍♀️ 🧛🏽‍♂️ 🧟‍♀️ over time — a ‘moving target’ { { ğŸŽ¯} } so can be extremely difficult/ impossible to ‘nail down’ 🕳🔨 definitively.]

Merely opinion: avoid getting ‘wrapped around the axel’ (obsessing) about precisely nailing an ‘exact’ diagnosis. Leave that to your physicians 👩‍⚕️👨‍⚕️ to ‘spin their wheels’ ((⚙️⚙️)) around ( healthunlocked.com/nras/pos... ). Your best efforts are spent: keeping focus — laser focus 👁 👁 — on optimal nutrient intake ( healthunlocked.com/nras/pos... ), de-stressing 🧖‍♀️ , deep body 🧘‍♀️ & mind relaxation 💆‍♀️ ( healthunlocked.com/nras/pos... ), & gentle movement 🚶‍♀️/ exercise 🏊‍♀️ ( healthunlocked.com/nras/pos... ) . . .

In other words, ‘take as good a care of yourself as you possibly can’. 😌 🙏 💗

The better conditions/ circumstances you can create of loving support 💑👨‍❤️‍👨 for your body 🚺 / mind 🧠, the better you can move forward toward improving/ healing — halting 🛑 disease progression.

Enlist the help of trusted loved ones 👨‍👩‍👧‍👦👨‍👩‍👦‍👦 if/when ‘the going gets tough’ 🚷 ♿️ . (Ask for help 🗣💬 when you need it.)

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Aside, have learned via experience 😖🔨 (‘school of hard knocks’) that once you start improving overall life situation, overall health, the multi-symptoms/ multi-illnesses gradually subside/ dissipate — over time ⏳⌛️. 👍👍

[No clear cut ‘dividing lines’ 🤒 | 🤢 | 🤮 | 😷 | 😵 amongst the various ailments — never mind the evolution of each disease itself 😳 🤯 . Too much overlap/ blurring of lines 🔀 amongst ‘n between them, so needn’t waste time obsessively ‘splitting hairs’ 💇‍♀️ .]

Merely opinion: Take overall, ‘big picture’ 🖼 , ‘bird’s eye’ 🐤 view (Wholistic view) — avoid zooming 🔭 in on (obsessing over, wasting time over) hair-splitting minutiae 🔬 (Reductionist view). Focus on doing ‘the big things’ right & notice improvements along the way. 👍👍

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Info merely readily available to be nibbled along the way in free time when away from work. Kindly be reassured there’s abundant realistic hope, BlackNov. 😌 🙏 🍀 🌺 ğŸŒž

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"Genes load the gun, lifestyle/ environment pull the trigger"

”Your genes are NOT your fate"

(Additional thoughts for RA-ers/ Autoimmuners of all ages.)

[Originally posted at: ‘Test to find out if my daughter may be pre disposed to RA?’ ( healthunlocked.com/nras/pos... )]

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5minutespeace & bpeal1 might you kindly consider Katy ( healthunlocked.com/jia/post... ), Cole, Jenn, & Joseph’s ( healthunlocked.com/nras/pos... ) experience? 🤔

Might you consider connecting with Cole’s mum, Christine 👩‍👦 ( naturalcurejia.org/ )? 🤔

My simple layman’s understanding is "genes load the gun, lifestyle/ environment pull the trigger".

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bernese1225, there are multiple tests ( healthunlocked.com/nras/pos... ) interpreted by astute, skilled rheumatologist that may be able to reveal if autoimmune diseases are beginning to reveal themselves (emerge) in your daughter. (Flickers of autoimmune flame can begin to show signs of ‘activity’ years before disease starts manifesting outwardly via pain & other symptoms.)

Kindly, please 🙏 understand, ”your genes are NOT your fate" ( ted.com/talks/dean_ornish_s... ).

(Genes/ DNA are not destiny. 😌 )

There’s much you daughter can do to side step/ avoid "pulling the trigger", if her genetic gun is already pre-loaded with RA, diabetes, hypo/ hyper-thyroid, or whatever cluster of autoimmune diseases her genes may be holding.

Wishing you each, the very best for yourselves & your beloved girls. 👶 👧 🧒 👱‍♀️ 🧑

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😌 🙏 🍀 🌺 ğŸŒž

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Fatigue/ Exhaustion, Inflammation, “Spoon Theory" 🥄

(simple layman’s thoughts/ understanding)

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____________________________________________________________

[Originally posted at: healthunlocked.com/nras/pos... ]

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Exactly!

It’s ‘battling disease’, manwithnoname, precisely as Gnarli noted.

It’s a 24/7 battle that quietly ‘rages on’ that all our bodily energy expends ‘fighting’ ⚔️ 🤺 the war around the clock 🕐🕕🕚 , day 📅 after day 📆 after day 🗓 . . .

Your body is rightfully exhausted 😴 💤 from wrestling 🤼‍♀️ a never-ending battle each & every day.

[Maybe think of it as something like you’re body is running a marathon every day? 🏃‍♂️ . . .🏃‍♂️ . . .🏃‍♂️ Your body’s tired, exhausted, run-down from running it’s ‘daily marathon’. It needs a lot of sleep/ rest 🛌 to recuperate.]

Until disease/ inflammation 🔥 (the daily marathon) subsides — becomes ‘well managed’ — exhaustion will remain ‘the norm’.

Wishing you well working with your medics to find ways to improve disease management, manwithnoname. 😌 🙏 🍀 🌺 ğŸŒž

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Aside: If you’re interested in a bit more about deep, restorative sleep 🛌 , Gnarli & manwithnoname, sleep scientist 👨‍🔬 Matthew Walker’s work might be of interest ( healthunlocked.com/cure-art... ) — provided it doesn’t put you to sleep 😴 💤 . . . . ☺️

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____________________________________________________________

[Originally posted at: healthunlocked.com/nras/pos... ]

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Bingo, Dunk! 👍👍 Don’t know if you’ve already heard of Dr. Brooke Goldner 👩🏻‍⚕️ ( healthunlocked.com/cure-art... ), but her work with Lupus & Autoimmune illness might interest you? 🤔

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Ditto, YanniBaci/ ‘Deb from Australia’ 🇦🇺 . ☺️ 👍

If such things interest you, kindly pop over & have a look-see 👀 .

While disease is ‘active’, your body is busy at work — around the clock 🕐 🕕 🕙 (24/7) — "fighting" 😖🥊🥊 the disease.

In other words (in perhaps over simple terms), your body’s in ‘overdrive’ wrestling 🤼‍♀️ with inflammation 🔥, so you’re going to be thoroughly, utterly exhausted. 🤤

(It’s not ‘lack of willpower’ or ‘laziness’ or whatever ‘label’ uninformed onlookers may mistakenly slap on to the debilitating exhaustion. 😵 )

It’s your body relentlessly, tirelessly, heroically, fighting 👊👊 a mighty foe 🐉 — keeping you alive. 🤯

So, until that inflammation/ disease dissipates/ subdues, you’ll likely continue to be chronically exhausted/ fatigued. 😴 🤤 😵

Please 🙏 , kindly try to take as a good a care of yourself as you possibly can, YanniBaci/ Deb, to subdue ‘the beast’ 🐲🐉 .

Wishing you both, Dunk & Deb, the very best. 😌 🙏 🍀 🌺 ğŸŒž

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[Oh . . . if this helps at all in grasping the nature/ depth of the fatigue/ exhaustion, “The Spoon Theory" 🥄 ( healthunlocked.com/nras/pos... ) sometimes does the trick 🤹‍♀️ .]

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____________________________________________________________

[Originally posted at: healthunlocked.com/nras/pos... ]

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If this ( healthunlocked.com/nras/pos... , healthunlocked.com/nras/pos... ) helps put anything into perspective/ context, Nettac? 🤔

(Merely my simple (simplistic?) understanding of exhaustion/ fatigue? 🤷‍♀️ )

Don’t think trying to do ‘more’ exercise is going to do anything towards increasing energy 🔋⚡️⚡️ — decreasing exhaustion 🤤 😴 . In fact, quite the opposite. 😳

Sounds like your body is already busily expending all its energy ⚡️⚡️ fighting/ battling inflammation around the clock (thus the fatigue/ exhaustion) & is desperately seeking respite — restorative rest, recuperation. (Merely my layman’s opinion. 🤷‍♂️ )

Maybe ‘disease activity’ is busy percolating (using up your precious energy ⚡️⚡️ ) & needs to be better managed/ controlled by whatever means works well for you? 🤔

Hoping you find the deep, restorative energy soon, Nettac. 😌 🙏 🍀 🌺 ğŸŒž

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__ . __ . __ . __ . __ . __ . __ . __ . __ . __ . __ . __ . __ . __ . __ . __ . __ . __

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Fully, understood. 😌 🙏 Snail-paced 🐌 walk where a turtle 🐢 could easily outrun us. 😯

[Similarly, had near bed-bound periods of utter, relentless exhaustion 🤤 😴 😵. Could barely manage ‘essentials’: toilet 🚽 , feeding 🥣 , ‘resting’ 🛌 . Forget bathing 🛀 ! 😳 (That had to be ‘worked up to’. 😳 Pee yew 🙊 . Could scrape ‘the stink’ 🧟‍♂️🧟‍♀️ off!) 🤯 😆 . ]

Vitamin D 💊 (physician testing/ prescribing high-loading dose followed by lower maintenance dose) & anaemia of chronic illness (which tie into chronic fatigue/ exhaustion noted above) may be a points of research 🕵️‍♀️ ğŸ”Ž, if interested , Nettac? 🤔

Yes indeed, gawd help those with children 👨‍👩‍👧‍👦👨‍👩‍👦‍👦👨‍👩‍👧‍👧 to raise, careers (ğŸ‘®â€â™€ï¸ğŸ‘·â€â™‚ï¸ğŸ’‚â€â™€ï¸ğŸ•µï¸â€â™‚ï¸ğŸ‘©â€âš•ï¸ğŸ‘¨â€ğŸŒ¾ğŸ‘©â€ğŸ³ğŸ‘¨â€ğŸŽ“ğŸ‘©â€ğŸ«ğŸ‘¨â€ğŸ­ğŸ‘©â€ğŸ’»ğŸ‘¨â€ğŸ’¼ğŸ‘©â€ğŸ”§ğŸ‘¨â€ğŸ”¬ğŸ‘©â€ğŸŽ¨ğŸ‘¨â€ğŸš’ğŸ‘©â€âœˆï¸ğŸ‘©â€ğŸš€ğŸ‘©â€âš–ï¸ğŸŽ… ) to maintain — demanding lives 🙍‍♀️🙍‍♂️ to ‘live’ while struggling 🤦‍♀️🤦‍♂️ with illness 🤕 🤢 😵 .

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As far as up-keeping house chores 🏠 , why remove 'protective layer of coating' (aka ‘dust’) from furnishings? Why 'hoover free-range wildlife grazings’ (‘crumbs’ for critters) from floors/ carpets? ☺️

Easing up on ‘unrealistic expectations’ of ourselves, ‘letting go’ of less important things, & ‘asking for help’ when we need it is sometimes a mind-easing way to go? 🤔

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😌 🙏 🍀 🌺 ğŸŒž

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Dr. Pam Popper on How to Become an Informed Patient

Links to full video & audio follow below.

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[Originally posted: healthunlocked.com/nras/pos... ]

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Msant1net, kindly consider viewing and/ or listening to the full interview:

Dr. Pam Popper on How to Become an Informed Patient:

• Video (full, uninterrupted 37 minutes): facebook.com/leangreenDAD/v... (click on video (thumbnail image) under caption "Dr. Pam Popper shares how to become an informed patient . . . "

• Audio (45 minutes): Dr. Pam Popper Can Help You Help Yourself! leangreendad.com/2018/03/05...

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Please, please take as good a care of yourself as you possibly can, Msant1net, & consider sharing & discussing Dr. Popper’s thoughts with trusted loved ones. 😌 🙏

Kindly take comfort in knowing there’s abundant realistic hope to improve. 😌

You’re absolutely not alone, & many many of us can & do improve. 👍👍

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Kindly, please 🙏 understand, ”your genes are NOT your fate" ( ted.com/talks/dean_ornish_s... ).

"Genes load the gun, lifestyle/ environment pull the trigger" ( healthunlocked.com/cure-art... ).

Genes/ DNA are not destiny.

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Mums, Monica Aggarwal & Maya ( healthunlocked.com/nras/pos... ) & Jenn ( healthunlocked.com/nras/pos... ) are doing well & able to resume caring for their beloveds. 👨‍👩‍👧‍👦

In meantime, allow yourself gentle, loving 💗 time to improve/ heal with the care & support of family & friends around you. 👩 🧑 👱‍♂️ 👵 🧓 👴

Please take gentle care, Msant1net. Best wishes to you & your beloveds. 😌 🙏 🍀 🌺 ğŸŒž

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Dr. Pam Popper resources:

• YouTube (Pamela Popper): m.youtube.com/user/drpamsne...

• Facebook (Wellness Forum Health): facebook.com/Wellness-Forum...

• Website (Wellness Forum Health): wellnessforumhealth.com/

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Hormones & RA

Hormones and Rheumatoid Arthritis Dr Richard Matthews:

Transcript: paddisonprogram.com/hormone...

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Dr. Pam Popper on How to Become an Informed Patient:

Links to full video & audio follow below.

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[Originally posted at ‘Hormonal RA flare-ups’: healthunlocked.com/nras/pos... .]

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Supplemental ‘hormonal’ information, Beautifulmovement:

• "Dr. Pam Popper on How to Become an Informed Patient" touches on hormones & disease ‘activity’.

. . . Video (full, uninterrupted 37 minutes): facebook.com/leangreenDAD/v... (click on video (thumbnail image) under caption "Dr. Pam Popper shares how to become an informed patient . . . "

. . . Audio (45 minutes): Dr. Pam Popper Can Help You Help Yourself! leangreendad.com/2018/03/05...

[Originally posted: healthunlocked.com/nras/pos... ]

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• Richard Matthews discusses "Hormones and Rheumatoid Arthritis": paddisonprogram.com/hormone...

• "Hormones" search ğŸ”Ž results in NRAS ( healthunlocked.com/search/h... ) & HU ( healthunlocked.com/search/h... ) forums.

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Wishing you the very best, Beautifulmovement. 😌 🙏 🍀 🌺 ğŸŒž

_____________________________________________________

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[Also posted at: healthunlocked.com/ra-warri... , healthunlocked.com/nras/pos... , healthunlocked.com/nras/pos... , healthunlocked.com/nras/pos... ]

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Reply

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Hormones & RA

Hormones and Rheumatoid Arthritis Dr Richard Matthews:

Transcript: paddisonprogram.com/hormone...

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Dr. Pam Popper on How to Become an Informed Patient:

Links to full video & audio follow below.

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_____________________________________________________

[Originally posted at ‘Hormonal RA flare-ups’: healthunlocked.com/nras/pos... .]

.

Supplemental ‘hormonal’ information, Beautifulmovement:

• "Dr. Pam Popper on How to Become an Informed Patient" touches on hormones & disease ‘activity’.

. . . Video (full, uninterrupted 37 minutes): facebook.com/leangreenDAD/v... (click on video (thumbnail image) under caption "Dr. Pam Popper shares how to become an informed patient . . . "

. . . Audio (45 minutes): Dr. Pam Popper Can Help You Help Yourself! leangreendad.com/2018/03/05...

[Originally posted: healthunlocked.com/nras/pos... ]

.

• Richard Matthews discusses "Hormones and Rheumatoid Arthritis": paddisonprogram.com/hormone...

• "Hormones" search ğŸ”Ž results in NRAS ( healthunlocked.com/search/h... ) & HU ( healthunlocked.com/search/h... ) forums.

.

Wishing you the very best, Beautifulmovement. 😌 🙏 🍀 🌺 ğŸŒž

_____________________________________________________

.

.

[Also posted at: healthunlocked.com/ra-warri... , healthunlocked.com/nras/pos... , healthunlocked.com/nras/pos... , healthunlocked.com/nras/pos... ]

.

Reply