Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

6,688 members • 8,227 posts

All posts for March 2022

Sulforaphane - any thoughts on if it's good or bad?

Hi there brave warriors!! I have a question, after doing some digging and research on my own, and not coming up with any good answers. This is the perfect...

Hi there brave warriors!! I have a question, after doing some digging and resea...

Fiercefighter13

•2 years ago

19 Replies

Living with MBC

For dear Clare and Sandra. I was looking for the pot of gold at the end of the rainbow in Cumbria last week 😉❤️ Please enjoy every lovely lady/gent I know on...

For dear Clare and Sandra. I was looking for the pot of gold at the end of the r...

Hidden

•2 years ago

14 Replies

Hair loss - maybe from Piqray?

Hi Friends, I haven't been active for awhile - but I've been wondering if anyone else has experienced hair loss from taking Piqray. My hair was already...

Hi Friends, I haven't been active for awhile - but I've been wondering if anyone...

Lolli2020

•2 years ago

8 Replies

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Spring is here , hurrah

Planted these with my 2 year old grandson. Got up this morning and Spring has arrived to the North of England. I don’t know if anyone else feels the same but...

Planted these with my 2 year old grandson. Got up this morning and Spring has ar...

debbiedo2063

•2 years ago

13 Replies

Very kind new advice was given to me today for the leaky eyes , KRILL OIL,any body else?Has anyone tried or used this?comments appreciated🌹

This is Stacy , How interesting after all these years suffering with my eyes the first time I ever heard this one today. Krill oil!! I just ordered it and I’m...

This is Stacy , How interesting after all these years suffering with my eyes the...

Ycats277

•2 years ago

9 Replies

COVID POSITIVE And MBC

Morning everyone I have contacted COVID this Friday and unable to speak with my oncologist Medication - ibrance 125 mg and letrozole I rang out of hours...

Morning everyone I have contacted COVID this Friday and unable to speak with my...

Jenhood

•2 years ago

19 Replies

An appeal to Sandra - Further to latest question: what has happened to this site

Hello ladies I tried to stay out of this kerfuffle, but there seems to be a negative wave of hurt feelings, and I think to myself: what a waste. We are...

Hello ladies I tried to stay out of this kerfuffle, but there seems to be a n...

EZSZ

•2 years ago

3 Replies

ERSO follow up

Hi my wonderful mbc worriers and fighters, I decided to reach out to the Systems Oncology CEO. This is the company that works on development of ErSo Dfp. They...

Hi my wonderful mbc worriers and fighters, I decided to reach out to the Systems...

Cureforever

•2 years ago

17 Replies

Covid and Ibrance

I tested positive for Covid on Wednesday and my Oncology Team have asked me to stop Ibrance for a week in order to build up my neutrophils and then have bloods...

I tested positive for Covid on Wednesday and my Oncology Team have asked me to s...

Gramat

•2 years ago

14 Replies

Constant leaky eyes , please help! Suffering for 2 years . I’m on Verzenio, faslodex, and Xgeva. Daily vitamins, any one else ? Remedy plz🙏

My eyes constantly leak either they’re filled with water, or they leak down my face constantly. I am so uncomfortable I can’t figure out which drug is causing...

My eyes constantly leak either they’re filled with water, or they leak down my f...

Ycats277

•2 years ago

37 Replies

Fatigue

Hi there I have bone mets mainly in spine but also shoulders and small in thighs. I been on Ibrance highest dose and anastrozole for about 13 months. The...

Hi there I have bone mets mainly in spine but also shoulders and small in thighs...

Kiwikaz

•2 years ago

9 Replies

Latest research for MBC

Hi my wonderful MBC warriors and fighters, It’s so difficult to leave with this disease. I wish we all got cured. I am following research every day and hope...

Hi my wonderful MBC warriors and fighters, It’s so difficult to leave with this...

Cureforever

•2 years ago

9 Replies

Help with my nausea

I have been experiencing waves of nausea recently. Switched from letrozole to faslodex 9/2021. Seems to be a little worse in the past 30 days. I spoke with my...

I have been experiencing waves of nausea recently. Switched from letrozole to fa...

Fight2016

•2 years ago

7 Replies

Excellent video available for next 12 hours or so

I enjoyed watching the Youtube video of the panel discussion on cancer treatment, "More isn't always better" that Bestbird mentioned to us a couple of days...

I enjoyed watching the Youtube video of the panel discussion on cancer treatment...

Hazelgreen

•2 years ago

13 Replies

My trumpet is loud!

Hi, I've been on letrozole and ibrance for over 6 months. In the last couple of months I've created enough wind for a whole orchestra. The odd one does slip...

Hi, I've been on letrozole and ibrance for over 6 months. In the last couple of...

Claireperth

•2 years ago

21 Replies

Xeloda and HFS

For those on this treatment and experiencing hand foot syndrome, any advice on good/comfortable shoes to wear? My feet burn when walking and just hate to give...

For those on this treatment and experiencing hand foot syndrome, any advice on g...

ndastrogal

•2 years ago

7 Replies

How long have you been on Ibrance and Letrozole?

I am ER/PR+ Her- lobular with bone Mets and lymph. Just checking to see how long people have been on Ibrance and Letrozole before it stopped?

I am ER/PR+ Her- lobular with bone Mets and lymph. Just checking to see how long...

DDIL1

•2 years ago

33 Replies

Meningeal Brain Mets

Hi Ladies, I have just been diagnosed with meningeal mets to my brain and also a met in the muscle behind my eye all from ER+/PR+ HER2- breast cancer which...

Hi Ladies, I have just been diagnosed with meningeal mets to my brain and also ...

BoneMetsAussie

•2 years ago

12 Replies

Verzenio 150 mg

Hi ladies, can anyone help me on a treatment called Verzenio , it’s in the family of Ibrance which I am currently on but having issues with low WBC monthly, to...

Hi ladies, can anyone help me on a treatment called Verzenio , it’s in the famil...

Djd60

•2 years ago

16 Replies

So upsetting

I'm old enough to know myself pretty well. I'm opinionated and can be quite harsh in an attempt to be direct. Knowing this, I try to take some time before...

I'm old enough to know myself pretty well. I'm opinionated and can be quite hars...

Arisgram

•2 years ago

67 Replies

Mammogram during Stage 4 metastatic ER+ HER2- cancer?

In 2018, I was diagnosed with metastatic breast cancer, and had surgery, radiation, and have since been on Faslodex and Ibrance, which work. I have CTs or...

In 2018, I was diagnosed with metastatic breast cancer, and had surgery, radiati...

Melpub

•2 years ago

19 Replies

Ibrance vs. Kisquali - what’s your experience

I’m on Ibrance and experienced a reaction. My onc said I can wait it out or switch to Kisquali which I heard had a longer time before it starts to fail but...

I’m on Ibrance and experienced a reaction. My onc said I can wait it out or swit...

DDIL1

•2 years ago

10 Replies

Happy Happy International Woman's Day

Greeeeetings: Sisters/Warriors/Thrivers/ Overcomer's :) Happy International Women's Day. :) This entire month in the USA is also a time to celebrate all of...

Greeeeetings: Sisters/Warriors/Thrivers/ Overcomer's :) Happy International Wo...

RLN-overcomer

•2 years ago

1 Reply

First MRI😬

My CT shows an 8mm possible met in the liver so MRI ordered. Anyone have an MRI that showed lots of surprises not seen with CT? I am an MRI virgin and I am...

My CT shows an 8mm possible met in the liver so MRI ordered. Anyone have an MRI ...

Pinkpanzie

•2 years ago

24 Replies

Insurance

After MBC diagnosis can one get term or whole life insurance? If so which ones are best? Just wondering as we face our life issues?

After MBC diagnosis can one get term or whole life insurance? If so which ones ...

Kruza

•2 years ago

9 Replies

Vitamins on Ibrance and Letrozole

I’m taking Ibrance and Letrozole, any issues with Vitamin C? What vitamins do you take to keep your WBC high?

I’m taking Ibrance and Letrozole, any issues with Vitamin C? What vitamins do y...

DDIL1

•2 years ago

27 Replies

Osteonecrosis of jaw after tooth extraction while on Zometa

Has anyone had a tooth extraction while on Zometa? I know tooth extraction should be avoided due to risk of osteonecrosis of jaw, but I have had a filling and...

Has anyone had a tooth extraction while on Zometa? I know tooth extraction shou...

Onedayatatime60

•2 years ago

11 Replies

Moving onto Taxol

Well I am grateful to have had an entire year on Xeloda, longest success so far. All of my mets - lungs, bones...are clear. It's just my stupid liver which is...

Well I am grateful to have had an entire year on Xeloda, longest success so far....

Iwasborntodothis

•2 years ago

15 Replies

Starting treatment

Started treatment today. Kisqali (ribociclib) and letrozole. Feel sick and got diarrhoea. Will this settle down once I get used to it?

Started treatment today. Kisqali (ribociclib) and letrozole. Feel sick and got d...

susiemarmite

•2 years ago

11 Replies

Radiation pain

Has anybody had pain after radiation? I am having right humerus and 4/5th rib on back radiated and the back pain is unbearable-took oxy which I hate-to...

Has anybody had pain after radiation? I am having right humerus and 4/5th rib on...

Books48

•2 years ago

13 Replies

Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

All posts for March 2022

Sulforaphane - any thoughts on if it's good or bad?

Living with MBC

Hair loss - maybe from Piqray?

Spring is here , hurrah

Very kind new advice was given to me today for the leaky eyes , KRILL OIL,any body else?Has anyone tried or used this?comments appreciated🌹

COVID POSITIVE And MBC

An appeal to Sandra - Further to latest question: what has happened to this site

ERSO follow up

Covid and Ibrance

Constant leaky eyes , please help! Suffering for 2 years . I’m on Verzenio, faslodex, and Xgeva. Daily vitamins, any one else ? Remedy plz🙏

Fatigue

Latest research for MBC

Help with my nausea

Excellent video available for next 12 hours or so

My trumpet is loud!

Xeloda and HFS

How long have you been on Ibrance and Letrozole?

Meningeal Brain Mets

Verzenio 150 mg

So upsetting

Mammogram during Stage 4 metastatic ER+ HER2- cancer?

Ibrance vs. Kisquali - what’s your experience

Happy Happy International Woman's Day

First MRI😬

Insurance

Vitamins on Ibrance and Letrozole

Osteonecrosis of jaw after tooth extraction while on Zometa

Moving onto Taxol

Starting treatment

Radiation pain

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