Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

6,601 members • 8,139 posts

All posts for January 2024

Cardiac open heart surgery

Hi to all Has anyone with metastatic breast cancer had open heart cardiac surgery and might you share your experience with me please? I only saw my surgeon...

Hi to all Has anyone with metastatic breast cancer had open heart cardiac surg...

bikebabe

•3 months ago

8 Replies

Stop taking iBrance?

I just had an interesting meeting with my Onc. She asked me if I would consider going off ibranch because I have been stable ever since I started to take it...

I just had an interesting meeting with my Onc. She asked me if I would consider ...

mudakurag

•3 months ago

31 Replies

cross road

At a crossroad! My liver biopsy last November came back that my cancer mutated from HER2 low to HER2+. I have started THP because of it. I saw my MO...

At a crossroad! My liver biopsy last November came back that my cancer mutated ...

Kcap430

•3 months ago

1 Reply

Want to take advantage of all our features? Just log in!

Fuervesant shots

Hi everyone! I’m new to this stream. I have stage 4 medistatic breast cancer in the bones. I’m on Ibrance and Letrozole but will be getting Fuervsant on Friday...

Hi everyone! I’m new to this stream. I have stage 4 medistatic breast cancer in ...

Barreds

•3 months ago

12 Replies

Hip pain from faslodex?

I did post this on a reply to another post but I’m not sure if anyone will see it……..does anyone have hip pain after faslodex. . I have been on this for a...

I did post this on a reply to another post but I’m not sure if anyone will see i...

Fight2016

•3 months ago

10 Replies

Enhertu side effect: pneumonitis (lung inflammation)

Hi all, After 3 years on oral meds I had to switch to IV chemo in December and started with Enhertu. After my 2nd infusion I developed pneumonitis (lung...

Hi all, After 3 years on oral meds I had to switch to IV chemo in December and ...

LDR1

•3 months ago

12 Replies

Low Neutrophil

So upset because I have low neutrophil and need to postpone starting date of Kisqali, next Wednesday. Just had lab work for 2nd cyle of Ibrance and the Dr....

So upset because I have low neutrophil and need to postpone starting date of Ki...

jltorcz

•3 months ago

34 Replies

Good Morning

Hope you are doing well. I am on the same medication. The same thing happened to me. I was in total shock 😲 I was told I would not loose my hair. I had my...

Hope you are doing well. I am on the same medication. The same thing happened to...

BaileyJames

•3 months ago

1 Reply

the DARE trial....anyone familiar with it, been in it?

the trial is ongoing screening of your blood every 6 months, checking for ctDNA ( cancer tumor DNA)....if it is found you begin a treatment regimen...if not...

the trial is ongoing screening of your blood every 6 months, checking for ctDNA ...

Drrob81

•3 months ago

7 Replies

Ibrance and bruising

I have been on Ibrance and Letrozole for 6 years now with NED!!! I'm so grateful for that and counting on many more! I'm wondering if any others of you on...

I have been on Ibrance and Letrozole for 6 years now with NED!!! I'm so gratefu...

Mermaiden

•3 months ago

14 Replies

Best shampoos while on Kisqali

Has anyone found a shampoo that actually helps your hair be fuller and less dry looking?

Has anyone found a shampoo that actually helps your hair be fuller and less dry ...

jltorcz

•3 months ago

4 Replies

hair starting to fall out after 3rd Taxol infusion

How have you "shaved" your heads? My head started feeling tender a couple of days ago and yesterday I noticed more hair than usual stuck in my hairbrush. Do...

How have you "shaved" your heads? My head started feeling tender a couple of da...

PJBinMI

•3 months ago

26 Replies

Staying on Ibrance & Anastrozole after 2 recurrences

I’ve been on Ibrance and Anastrozole for the last 6 years for metastatic endometrial cancer. I started out on the Ibrance125 mg and after a couple of years,...

I’ve been on Ibrance and Anastrozole for the last 6 years for metastatic endomet...

Merma

•3 months ago

4 Replies

Intermittent Fasting follow-up

Thanks everyone for your responses. I researched all of your responses and tips and links and have decided to go for it. I am going to do 16 hours of fasting...

Thanks everyone for your responses. I researched all of your responses and tips...

CalGal56

•3 months ago

4 Replies

Appointments

Would you believe this! My onc wants me to see Urologist and I called and can’t get in until April. Same goes for heart doctor and digestive specialist. What...

Would you believe this! My onc wants me to see Urologist and I called and can’t...

Granny333

•3 months ago

17 Replies

I am switching to Kisqali next week after 2 months on Ibrance

I am 79 years old and my breast cancer is back in my lungs.After new research and studies, my doctor thought I should try the Kisqali and Femera.I agreed but...

I am 79 years old and my breast cancer is back in my lungs.After new research an...

jltorcz

•3 months ago

10 Replies

intermittent fasting yes/no?

Hello everyone! I am considering intermittent fasting for a month and continuing if it suits my lifestyle. Has anyone researched it as a nutritional model...

Hello everyone! I am considering intermittent fasting for a month and continuin...

CalGal56

•3 months ago

12 Replies

starting fluevestrant and kisgali , any recs?

hello all, I’m starting my fluevestrant and kisgali any one on these?

Proudmetsmama

•3 months ago

8 Replies

Feedback on ORSERDU (elacestrant)

Feedback on ORSERDU (Elacestrant) Good afternoon! I just got my GUARDANT360 Test back and tested positive for the ESR1 gene mutation. I don’t meet with my...

Feedback on ORSERDU (Elacestrant) Good afternoon! I just got my GUARDANT360...

PlutosNose

•3 months ago

9 Replies

New Trial

I’m about to start on a new trial drug . It is called OP 1250. Has anybody heard anything about this drug? The trial is called the Olema study. Thanks

I’m about to start on a new trial drug . It is called OP 1250. Has anybody heard...

Salmon4

•3 months ago

10 Replies

Hello friends. It's me again. Bone Biopsy + Dr. nonsense.

Ok, so I have not posted my situation for awhile because I was/am still waiting for tests. Quick review-Luminal A Hr Es+ 90-100% Pr+80-90%,ki67<10% HER2...

Ok, so I have not posted my situation for awhile because I was/am still waiting ...

Hopeful4Cure

•3 months ago

39 Replies

Update – surgery tomorrow, then on to Xeloda

Hello all – hope that the new year is finding you all on a good journey to healing and wellness. I unfortunately have been in and out of the hospital for 21...

Hello all – hope that the new year is finding you all on a good journey to heal...

Saltandlight

•3 months ago

24 Replies

bumped up moms scans

So I had shared that her markers had went up last week. When she had the progression in July she also had a plural effusion. Which she’s had drained only...

So I had shared that her markers had went up last week. When she had the progre...

Flower1513

•3 months ago

11 Replies

new to anatrozole

trying to understand which are side effects and which might be left over from treatment-radiation, surgery (post mastectomies)...specifically lots of muscle,...

trying to understand which are side effects and which might be left over from tr...

Drrob81

•3 months ago

24 Replies

Ibrance and Letrizol

i was diagnosed with metastatic breast cancer in the spring of 2021. I was in extreme pain in my sternum ribs and back. I was anointed (prayed fir by many) and...

i was diagnosed with metastatic breast cancer in the spring of 2021. I was in ex...

Tinyboobs

•3 months ago

10 Replies

oserdu

Hi everyone , I’m on a trial in the Uk with Oserdu. Started off with nausea, loss of appetite, random vomiting. 2 months in Im getting abdominal pain and...

Hi everyone , I’m on a trial in the Uk with Oserdu. Started off with nausea, ...

Ppppopp

•3 months ago

22 Replies

insurance

Hi everyone, new year with hopeful expectations. I am 80 and have anthem Medicare advantage. The hospital co pays are enormous. Was wondering if I would be...

Hi everyone, new year with hopeful expectations. I am 80 and have anthem Medicar...

Granny333

•3 months ago

8 Replies

Verzenio Monotherapy

I'm wondering if anyone on here is on Verzenio monotherapy. That is just Verzenio,not in combo with anything. I take 200mg twice daily. I began this just over...

I'm wondering if anyone on here is on Verzenio monotherapy. That is just Verzen...

caw517

•3 months ago

8 Replies

2nd opinion

I just got an appointment with Dr Lin for 2nd opinion at Dana Farber Has anyone else seen her for care? I have listened to webinars with her and she seems...

I just got an appointment with Dr Lin for 2nd opinion at Dana Farber Has anyon...

worldtravel75

•3 months ago

19 Replies

how to get in for 2nd opinion?

We live about 2 hours from Duke. How would one go about getting in somewhere like that for a second opinion? Does insurance cover these appts? I’m sorry...

We live about 2 hours from Duke. How would one go about getting in somewhere li...

Flower1513

•3 months ago

9 Replies

Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

All posts for January 2024

Cardiac open heart surgery

Stop taking iBrance?

cross road

Fuervesant shots

Hip pain from faslodex?

Enhertu side effect: pneumonitis (lung inflammation)

Low Neutrophil

Good Morning

the DARE trial....anyone familiar with it, been in it?

Ibrance and bruising

Best shampoos while on Kisqali

hair starting to fall out after 3rd Taxol infusion

Staying on Ibrance & Anastrozole after 2 recurrences

Intermittent Fasting follow-up

Appointments

I am switching to Kisqali next week after 2 months on Ibrance

intermittent fasting yes/no?

starting fluevestrant and kisgali , any recs?

Feedback on ORSERDU (elacestrant)

New Trial

Hello friends. It's me again. Bone Biopsy + Dr. nonsense.

Update – surgery tomorrow, then on to Xeloda

bumped up moms scans

new to anatrozole

Ibrance and Letrizol

oserdu

insurance

Verzenio Monotherapy

2nd opinion

how to get in for 2nd opinion?

Search posts

Pinned Posts

Latest poll

Has this community positively impacted your breast cancer journey? If yes, please describe how in the replies below

Topics

Archive