Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

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Pericardial Window

I had my 2cd thoracentesis. It was more painful and for a very long time. They did drain a little more 950 ml. I am waiting for a thoracic surgery appointment....

I had my 2cd thoracentesis. It was more painful and for a very long time. They d...

NPmary

•2 months ago

26 Replies

Pleural Effusion Treatment

I was diagnosed with MBC in 2017, my initial treatment worked very well - no progression for 5 years. Then progression: in bones (l already had multiple bone...

I was diagnosed with MBC in 2017, my initial treatment worked very well - no pro...

NPmary

•2 months ago

35 Replies

Hello

Hi everyone, I've been Stage IV mbc since December 2019, on Ibrance / Letrozole but now facing a change. Those drugs (with some off label drugs and...

Hi everyone, I've been Stage IV mbc since December 2019, on Ibrance / Letrozole...

Bella_mum

•3 months ago

35 Replies

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Fentanyl | Vellofent 133mg|

Hello girls,I am on vellofent for several years. I take maybe and 5 pills per day. Not every day, it depends from pain. During these years I have tried many...

Hello girls,I am on vellofent for several years. I take maybe and 5 pills per da...

CharaMasiakou

•10 months ago

7 Replies

About to start Orserdu (elacestrant)

Hi all, After 3.5 years of no evidence of disease on Ibrance/letrozole, my bone mets (and one breast tumor) progressed due to my cancer acquiring the ESR1...

Hi all, After 3.5 years of no evidence of disease on Ibrance/letrozole, my bone...

MJ_Michigan38

•11 months ago

22 Replies

Will Start Xeloda Soon

Hi. I have msb which is in my bones and small spots on my liver (PIK3CA mutation). I'm searching Xeloda and reading past stories from members here. When...

Hi. I have msb which is in my bones and small spots on my liver (PIK3CA mutation...

macspow

•11 months ago

28 Replies

Anyone tried Ibrance again after a vacay?

I tried to show my oncologist some research from Dana Farber that found that the reason CDK4/6 inhibitors develop resistance is NOT because of mutations but...

I tried to show my oncologist some research from Dana Farber that found that the...

TammyCross

•1 year ago

58 Replies

Question treatment

I have mpc stage 4 and am on Lupron and Xtandi. My OC wants to start me on prolia. Should I have a bone density test first? If bone density is good, should I...

I have mpc stage 4 and am on Lupron and Xtandi. My OC wants to start me on proli...

Carplake

•1 year ago

11 Replies

piqray

I was on Piqray and Fulvestrant for two years with MBC with the Piq mutation. A large percentage of us have it, but not all doctors test. I took it after...

I was on Piqray and Fulvestrant for two years with MBC with the Piq mutation. A...

Buffwright

•1 year ago

16 Replies

Might rising tumor markers be caused by infection rather than metastatic cancer?

I had a 2 cm ductal cancer, and one sentinel node, estrogen+, progesterone+, her2-, removed by stereotactic radiosurgery last summer (2021) and now (late 2022)...

I had a 2 cm ductal cancer, and one sentinel node, estrogen+, progesterone+, her...

Rte66

•1 year ago

4 Replies

Has Anyone Tried Hyperbaric Oxygen Therapy (HBOT) - for expedited healing from radiation induced bone fractures & unhealing wounds?

I understand that Hyperbaric Oxygen Therapy (HBOT) helps tremendously with jaw bone death caused by Xgeva type drugs & radiation induced bone problems. It is...

I understand that Hyperbaric Oxygen Therapy (HBOT) helps tremendously with jaw b...

hopenowandtomorrow

•1 year ago

14 Replies

low platelets and haemoglobin - treatment off

howdy! Quick question. I’m on gemcitabine - I/v chemo. My latest bloods show haemoglobin and platelets too low to treat. Again. So I’m back in the wings,...

howdy! Quick question. I’m on gemcitabine - I/v chemo. My latest bloods show ...

Gorgeousness

•1 year ago

2 Replies

Does anyone have experience with Enhertu? I was HER2 - low in 2019 and my last liver biopsy was HER2 - 0. Planning to start Enhertu next.

Hi Ladies, It’s been a long time since I posted. I feel like I have been zipping through all the lines of treatment. I started with mets in the brachial...

Hi Ladies, It’s been a long time since I posted. I feel like I have been zipp...

Sparky95

•2 years ago

19 Replies

Anybody on Fulvestrant alone w/ no progression for 2 years plus like me?

I'm not complaining, I've been on Fulvestrant alone for 26 months w/out cancer spreading. [MBC in 9/ 2016, 2nd line after Ibrance & Exemestane gave me a...

I'm not complaining, I've been on Fulvestrant alone for 26 months w/out cancer ...

cancerjustgotreal

•2 years ago

18 Replies

US FDA accepts and grants priority review status to Menarini Group’s Elacestrant for patients with ER+/HER2 MBC

Hello Fellow MBC’ers: Breaking News! Oral SERD, Elacestrant - On Expedited FDA Approval by 2/17/23!!! This is a replacement for the Faslodex shots....

Hello Fellow MBC’ers: Breaking News! Oral SERD, Elacestrant - On Expedited...

hopenowandtomorrow

•2 years ago

13 Replies

Denusimab

Does anyone have experience of injections of the above combined with letrozole please and how did you cope with them?

Does anyone have experience of injections of the above combined with letrozole p...

MarsiJay

•2 years ago

15 Replies

How often should I do PET scan?

Hello everyone, I have stage 4 metastatic breast cancer (ER,PR+, HER2-). I have been taking tamoxifen and kisqali since 02/2022. I did a baseline PET scan in...

Hello everyone, I have stage 4 metastatic breast cancer (ER,PR+, HER2-). I have...

hopeoflife

•2 years ago

29 Replies

Anybody out there have mets mutate from hormone + to hormone-? Hormone + in bones, negative in liver. What is your treatment? Is it working?

Liver met

Pinkpanzie

•2 years ago

3 Replies

Anyone have lymph nodes in neck and what did you have done?

I’m so worried about my lymph node that is now really bulging and scaring me. Not a good feature I am sure but it always so tiny now sooo much bigger. I am...

I’m so worried about my lymph node that is now really bulging and scaring me. N...

Bettybuckets

•2 years ago

46 Replies

Blackness of teeth

Jaynikan Post chemotherapy ,which i took in 2019 Jan ,i have reversed hairloss and regained healthy nails but my teeth continue to be black ,both front and...

Jaynikan Post chemotherapy ,which i took in 2019 Jan ,i have reversed hairloss ...

Jaynikan

•2 years ago

1 Reply

Erolimus and Exemestane Treatment after Palbociclib stops working.

I am reaching out reference feedback on the Exemestane and Everolimus ( EE) treatment for SBC . I have lesions in spine, pelvis, occipital and just recently...

I am reaching out reference feedback on the Exemestane and Everolimus ( EE) trea...

POPS60

•2 years ago

12 Replies

Change of meds

Hi so had good response to Pablo and letzo for 24 months, shrinkage and stable. Last scan showed growth in bones and liver😞😞, I was so enemic I had to have...

Hi so had good response to Pablo and letzo for 24 months, shrinkage and stable. ...

Soloray12

•2 years ago

6 Replies

Zometa vs Xgeva

I just read a few posts on bone fractures caused by Xgeva. Thank you for posting. My doctor is making me choose before Xgeva and Zometa? My head is spinning …...

I just read a few posts on bone fractures caused by Xgeva. Thank you for posting...

Hidden

•2 years ago

27 Replies

Eribulin

Okay ladies, who is on eribulin and what can you share with me? Taxol has stopped working, cancer spread, feeling like this is it. Bonnie

Okay ladies, who is on eribulin and what can you share with me? Taxol has stoppe...

blms

•2 years ago

32 Replies

Can you continue medication if you get covid

I have Covid in the house but tested negative myself. Likely to be omicron. Have others who’ve had it come off medication? I’m on letrozole and...

I have Covid in the house but tested negative myself. Likely to be omicron. Ha...

Rosiero

•2 years ago

8 Replies

After three months is it normal to be switch from faslodex to xeloda I don’t understand why not try

After three months is it normal to be switched so soon from faslodex to xeloda

Rego-park

•2 years ago

3 Replies

I’ve recently completed my third round of IV chemo. I have Mets in my liver and bone. I’m going to start Faslodex / Piqray . Any suggestions

Faslodex or Piqray experiences

Rubyln15

•2 years ago

13 Replies

Has anyone had major pain after IV of zometa? My after effects were extremely painful for 3-4 days.

Breast Cancer History: 1st 1990 - breast cancer stage 3. Lumpectomy - chemo - radiation 2nd 2018 - breast cancer in both - double mastectomy 3rd 2021 -...

Breast Cancer History: 1st 1990 - breast cancer stage 3. Lumpectomy - chemo ...

sonycamera

•2 years ago

8 Replies

Results of Radiation to My Fractured Superior & Interior Pubic Ramus Bones

Hi Fellow MBC’ers: If you’ve followed my posts for the past 3 months you know I’ve been on a quest to research & learn then I embarked on journey to find the...

Hi Fellow MBC’ers: If you’ve followed my posts for the past 3 months you know I...

hopenowandtomorrow

•2 years ago

14 Replies

Tumor markers rising

My tumor marker has went up to 146 from 72 in July .the onc in Houston told me I have to start other meds because they saw progression and he says it’s not...

My tumor marker has went up to 146 from 72 in July .the onc in Houston told me ...

Eliactida1955

•2 years ago

54 Replies

Write a post or ask a question

Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

Treatment posts

Pericardial Window

Pleural Effusion Treatment

Hello

Fentanyl | Vellofent 133mg|

About to start Orserdu (elacestrant)

Will Start Xeloda Soon

Anyone tried Ibrance again after a vacay?

Question treatment

piqray

Might rising tumor markers be caused by infection rather than metastatic cancer?

Has Anyone Tried Hyperbaric Oxygen Therapy (HBOT) - for expedited healing from radiation induced bone fractures & unhealing wounds?

low platelets and haemoglobin - treatment off

Does anyone have experience with Enhertu? I was HER2 - low in 2019 and my last liver biopsy was HER2 - 0. Planning to start Enhertu next.

Anybody on Fulvestrant alone w/ no progression for 2 years plus like me?

US FDA accepts and grants priority review status to Menarini Group’s Elacestrant for patients with ER+/HER2 MBC

Denusimab

How often should I do PET scan?

Anybody out there have mets mutate from hormone + to hormone-? Hormone + in bones, negative in liver. What is your treatment? Is it working?

Anyone have lymph nodes in neck and what did you have done?

Blackness of teeth

Erolimus and Exemestane Treatment after Palbociclib stops working.

Change of meds

Zometa vs Xgeva

Eribulin

Can you continue medication if you get covid

After three months is it normal to be switch from faslodex to xeloda I don’t understand why not try

I’ve recently completed my third round of IV chemo. I have Mets in my liver and bone. I’m going to start Faslodex / Piqray . Any suggestions

Has anyone had major pain after IV of zometa? My after effects were extremely painful for 3-4 days.

Results of Radiation to My Fractured Superior & Interior Pubic Ramus Bones

Tumor markers rising

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