Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

6,590 members • 8,130 posts

All posts for July 2022

Death (Pls just scroll by and do not read if topic will upset you)

Because of new updates and not good ones, I have a very basic question. Unlike many, I have no family, no siblings, no husband, no children, etc. I have been...

Because of new updates and not good ones, I have a very basic question. Unlike ...

kearnan

•2 years ago

94 Replies

Today is a teary 🥲 day

I feel grateful for today living with MBC. But today I have the blues about it all! Going through wait and see regarding treatment for the liver met....

I feel grateful for today living with MBC. But today I have the blues about it a...

Hotlantaphatz

•2 years ago

42 Replies

liver biopsy

Howdy! Has anyone has a liver biopsy before? My onc has told me I need one to determine if status of tumour has changed. Any tips? Preparation advice?...

Howdy! Has anyone has a liver biopsy before? My onc has told me I need one...

Gorgeousness

•2 years ago

25 Replies

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Has anyone had hair loss from Ibrance 125 mg. I have lost alot and my hair especially on sides and top has become very thin. What to do I?

Has anyone had hair loss from Ibrance 125 mg. I have lost alot and my hair on sides and top has become very thin. What to do I hate it!!

Has anyone had hair loss from Ibrance 125 mg. I have lost alot and my hair on si...

Thriver49

•2 years ago

59 Replies

Ibrance and GI Issues

I've been on Ibrance/Letrozole since April 2021. I started on Verzenio/Letrozole November 2020-March 2021 and had to stop because I had HORRIBLE GI issues...

I've been on Ibrance/Letrozole since April 2021. I started on Verzenio/Letrozole...

1stgradeteach1

•2 years ago

8 Replies

Leg cramps at night

Does anyone have to deal with leg cramps at night? Someone suggested drinking tonic water. Another suggested dill pickle juice. Any other suggestions?

Does anyone have to deal with leg cramps at night? Someone suggested drinking t...

Bexly

•2 years ago

23 Replies

New primary Breast Cancer! Grade three lobular triple negative! Unrelated to my MBC. Time frame for surgery?

I was diagnosed with de novo MBC in November 2018 and no lump was found. So started on Ibrance and Letrozole as my first line of treatment. I recently felt a...

I was diagnosed with de novo MBC in November 2018 and no lump was found. So sta...

stardust1965

•2 years ago

25 Replies

surgery and Ibrance

Morning all, , I was wondering if anyone has had knee replacement and had to go off Ibrance. I had to stop taking it 4 weeks before, and 6 weeks after surgery....

Morning all, , I was wondering if anyone has had knee replacement and had to go ...

Mimiholl

•2 years ago

6 Replies

Quick goodbye, be kind.

Hi all, it's Leo here, some of you might remember a few of my posts, mainly asking for help and advice from this group. Unfortunately, Susie my...

Hi all, it's Leo here, some of you might remember a few of my posts, mainl...

Winner123

•2 years ago

79 Replies

Pet Scan results

My Pet Scan done Monday indicated NED again! I am praying Ibrance and Letrazole will continue to work for awhile longer. Been on them 2 years. I had written...

My Pet Scan done Monday indicated NED again! I am praying Ibrance and Letrazole ...

BlessedMimi

•2 years ago

15 Replies

capecitibine

hi can anyone advise. Bit of a weird question. My chemo had been changed to oral capecitibine 2300mg twice a day. I am I’m a 14day then 7day off cycle and...

hi can anyone advise. Bit of a weird question. My chemo had been changed to oral...

Hm50

•2 years ago

27 Replies

Suggestions for cold mitts/booties and ice transport

Hi everyone, I was wondering if anyone has experience with cold mitts/booties and transporting ice to keep them frozen for chemo IV infusions? I'm starting...

Hi everyone, I was wondering if anyone has experience with cold mitts/booties a...

life8888

•2 years ago

19 Replies

OK, another article warning about alcohol and cancer (Don't hate me!)

This is from today's NY Times. https://www.nytimes.com/2021/03/04/well/alcohol-cancer-risk.html It is pretty clear that alcohol is a key risk factor for...

This is from today's NY Times. https://www.nytimes.com/2021/03/04/well/alcohol-...

Pbsoup

•2 years ago

10 Replies

Has anyone had sciatica-like pain that didn't turn out to be MBC related?

Today I suddenly had discomfort (mild but noticeable) that feels like sciatica--staring around my sacrum then it radiated down my leg... I was on a horse...

Today I suddenly had discomfort (mild but noticeable) that feels like sciatica--...

Pbsoup

•2 years ago

13 Replies

Covid and Ibrance

hello,I tested positive for Covid 2 days ago just now heard back from my oncologist. She said stop Ibrance for 2-3 weeks but to continue with letrozol. Has...

hello,I tested positive for Covid 2 days ago just now heard back from my oncolog...

Gmaoftriplets

•2 years ago

27 Replies

Piriformis syndrome

I know this isn’t directly related to MBC, but I have been having pain in this muscle- mainly when I lay down. Heating pad helps and I have been taking Mobic...

I know this isn’t directly related to MBC, but I have been having pain in this m...

BlessedMimi

•2 years ago

31 Replies

Those with liver mets (after in my case lungs and spine)

I do not really care for my onco but since it was determined that the breast cancer is in my liver as of Feb. 23 and then in June 23 it doubled in size. But...

I do not really care for my onco but since it was determined that the breast can...

kearnan

•2 years ago

42 Replies

Oncologists Visits , how often do you see your oncologist ?

I have been using the online appointments which I do like but I am thinking it maybe time to start seeing the oncologist in person . I am curious if most...

I have been using the online appointments which I do like but I am thinking it m...

Thatflowerlady

•2 years ago

21 Replies

Another beach photo.

just sending another summery beach photo out to all you lovely people. I noticed that an older one popped up again, so here's one from the other side of my...

just sending another summery beach photo out to all you lovely people. I noti...

Discocat

•2 years ago

6 Replies

not there yet but living with MBC

Imagine being 75 and you’re sat thinking about your life and how you never went swimming in the sea on a warm night because your thighs jiggled. Imagine...

Imagine being 75 and you’re sat thinking about your life and how you never went ...

Hidden

•2 years ago

22 Replies

Cancer Markers on First Diagnoses may be useful

https://www.clinical-breast-cancer.com/article/S1526-8209(22)00076-3/fulltext Published in Oncology Journal Scan / Research · July 25, 2022 Elevated CA...

https://www.clinical-breast-cancer.com/article/S1526-8209(22)00076-3/fulltext P...

Hazelgreen

•2 years ago

2 Replies

Can we get perms or not?

Hi Ladies, I was just wondering if any of you have had a perm while on Ibrance? I asked my onc and she wasn't sure, so I know someone here will have the...

Hi Ladies, I was just wondering if any of you have had a perm while on Ibranc...

AuntC

•2 years ago

19 Replies

SHOES

I need shoes/sneakers that are not hard on my feet but also pretty and also have support. Anybody have suggestions? I am stuck in a pair of sneakers even for...

I need shoes/sneakers that are not hard on my feet but also pretty and also have...

Kruza

•2 years ago

52 Replies

My 84 year old mom who has MBC (metastasized to lungs and liver) has Tested Positive for Covid

Hello! my mom who lives in India, has MBC - stage IV, Grade 3 Invasive Breast Carcinoma - which has metastasized to both her lungs and liver. She started...

Hello! my mom who lives in India, has MBC - stage IV, Grade 3 Invasive Breast C...

ANKN25

•2 years ago

24 Replies

Beautiful Thrivers

Today l feel like l am having a out of body experience It's like l am not here Feel light like a Feather it's not the heat or not enough water or...

Today l feel like l am having a out of body experience It's like l am not he...

Hidden

•2 years ago

5 Replies

Covid and Cancer

https://www.thelancet.com/journals/lanonc/article/PIIS1470-2045(22)00273-X/fulltext Published in Oncology Journal Scan / Research · July 23, 2022...

https://www.thelancet.com/journals/lanonc/article/PIIS1470-2045(22)00273-X/fullt...

Hazelgreen

•2 years ago

10 Replies

Evusheld anyone?

Has anyone tried Evusheld as prophylaxis for Covid? If so, what was your reaction and has it been effective. I’m currently on Ibrance and Faslodex with...

Has anyone tried Evusheld as prophylaxis for Covid? If so, what was your reacti...

Beattheodds

•2 years ago

8 Replies

Tamoxifen for a second time .

hi Ladies I was wondering if anyone has been prescribed Tamoxifen for a second time . I was on it it for 5 years after initial diagnosis . Fast forward 15...

hi Ladies I was wondering if anyone has been prescribed Tamoxifen for a second t...

Thatflowerlady

•2 years ago

17 Replies

Holiday at Home this weekend after Radiotherapy Session.

Had a 1 session radiotherapy Friday.Vomiting Friday and pain surges but out and about this am.coffee at the cruise ship port and watching my grandson run...

Had a 1 session radiotherapy Friday.Vomiting Friday and pain surges but out an...

debbiedo2063

•2 years ago

8 Replies

Piqray and its side effects

Hi all!! My doctor was mentioning possibly changing my protocol and went through a list of things to try. Her first one on the list of Piqray. I have heard...

Hi all!! My doctor was mentioning possibly changing my protocol and went throug...

Fiercefighter13

•2 years ago

51 Replies

Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

All posts for July 2022

Death (Pls just scroll by and do not read if topic will upset you)

Today is a teary 🥲 day

liver biopsy

Has anyone had hair loss from Ibrance 125 mg. I have lost alot and my hair especially on sides and top has become very thin. What to do I?

Ibrance and GI Issues

Leg cramps at night

New primary Breast Cancer! Grade three lobular triple negative! Unrelated to my MBC. Time frame for surgery?

surgery and Ibrance

Quick goodbye, be kind.

Pet Scan results

capecitibine

Suggestions for cold mitts/booties and ice transport

OK, another article warning about alcohol and cancer (Don't hate me!)

Has anyone had sciatica-like pain that didn't turn out to be MBC related?

Covid and Ibrance

Piriformis syndrome

Those with liver mets (after in my case lungs and spine)

Oncologists Visits , how often do you see your oncologist ?

Another beach photo.

not there yet but living with MBC

Cancer Markers on First Diagnoses may be useful

Can we get perms or not?

SHOES

My 84 year old mom who has MBC (metastasized to lungs and liver) has Tested Positive for Covid

Beautiful Thrivers

Covid and Cancer

Evusheld anyone?

Tamoxifen for a second time .

Holiday at Home this weekend after Radiotherapy Session.

Piqray and its side effects

Search posts

Pinned Posts

Latest poll

Has this community positively impacted your breast cancer journey? If yes, please describe how in the replies below

Topics

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Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

All posts for July 2022

Death (Pls just scroll by and do not read if topic will upset you)

Today is a teary 🥲 day

liver biopsy

Has anyone had hair loss from Ibrance 125 mg. I have lost alot and my hair especially on sides and top has become very thin. What to do I?

Ibrance and GI Issues

Leg cramps at night

New primary Breast Cancer! Grade three lobular triple negative! Unrelated to my MBC. Time frame for surgery?

surgery and Ibrance

﻿Quick goodbye, be kind.

Pet Scan results

capecitibine

Suggestions for cold mitts/booties and ice transport

OK, another article warning about alcohol and cancer (Don't hate me!)

Has anyone had sciatica-like pain that didn't turn out to be MBC related?

Covid and Ibrance

Piriformis syndrome

Those with liver mets (after in my case lungs and spine)

Oncologists Visits , how often do you see your oncologist ?

﻿Another beach photo.

not there yet but living with MBC

Cancer Markers on First Diagnoses may be useful

﻿Can we get perms or not?

SHOES

My 84 year old mom who has MBC (metastasized to lungs and liver) has Tested Positive for Covid

﻿Beautiful Thrivers

Covid and Cancer

Evusheld anyone?

Tamoxifen for a second time .

﻿Holiday at Home this weekend after Radiotherapy Session.

Piqray and its side effects

Search posts

Pinned Posts

Latest poll

Has this community positively impacted your breast cancer journey? If yes, please describe how in the replies below

Topics

Archive

Quick goodbye, be kind.

Another beach photo.

Can we get perms or not?

Beautiful Thrivers

Holiday at Home this weekend after Radiotherapy Session.