Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

6,587 members • 8,127 posts

All posts for April 2022

SBRT FOR BONE METS

Anyone have any radiotherapy or any type of radiation to kill bone Mets? Also, any surgery or radiation for axillary lymph nodes.

Anyone have any radiotherapy or any type of radiation to kill bone Mets? Also, ...

DDIL1

•2 years ago

27 Replies

May 3 & 5 Workshop About Cancer Drug Dosing

If you’re concerned about the toxicity of anticancer drugs and interested in hearing more about this important topic, you may want to attend the May 3 & 5...

If you’re concerned about the toxicity of anticancer drugs and interested in hea...

Bestbird

•2 years ago

13 Replies

Thinning hair

I am on ibrance-hair is thinning quite a bit. Has anyone completely lost all hair? I have my daughters wedding in sept and want to know if I should look at...

I am on ibrance-hair is thinning quite a bit. Has anyone completely lost all hai...

Books48

•2 years ago

20 Replies

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WBC count

Does ibrance affect your white blood cell count in the same way that kisqali does? Kisqali (ribociclib) depletes your neutrophils and therefore impacts your...

Does ibrance affect your white blood cell count in the same way that kisqali doe...

susiemarmite

•2 years ago

19 Replies

Scan results

I saw my oncologist yesterday and got my results from my bone scan and ct scan and the results are that everything is stable. Great news.

I saw my oncologist yesterday and got my results from my bone scan and ct scan a...

Totheriver

•2 years ago

52 Replies

Serous endometrium carcinoma plus mbc

The latest pet ct revealed serous endometrium carcinoma which is a rare aggressive type of endometrium cancer. I am so so upset I am completely down. I have...

The latest pet ct revealed serous endometrium carcinoma which is a rare aggressi...

Cureforever

•2 years ago

17 Replies

Ivermectin Article/Link

https://www.nature.com/articles/s41523-021-00229-5 Thoughts? Has anyone tried it? Opinions and/ or other related information would be great! Ty

https://www.nature.com/articles/s41523-021-00229-5 Thoughts? Has anyone tried it...

AutumnLove

•2 years ago

11 Replies

Changing treatment, had 12 months out of Kadcyla

Hi all, Not posted for a while, since having covid over Christmas I've had unbearable back pain, taking pain relief daily. Recent CT doesn't show any change to...

Hi all, Not posted for a while, since having covid over Christmas I've had unbea...

Hidden

•2 years ago

15 Replies

ribociclib and turkey tail

Hi - is anyone taking ribociclib / letrazole and supplementing with turkey tail? I want to but my oncologist says no due to the lovastatin in the turkey tail...

Hi - is anyone taking ribociclib / letrazole and supplementing with turkey tail?...

susiemarmite

•2 years ago

12 Replies

Faslodex and Anastrozole

I have been taking Faslodex injections for 9 months now. I’m doing okay with these. My Oncologist added Anastrozole. I would love anyones input on this...

I have been taking Faslodex injections for 9 months now. I’m doing okay with the...

Rubyln15

•2 years ago

14 Replies

Unsatisfactory appointment

Yesterday's phone appointment left me confused so I had to phone up the breast care nurse. He questioned my next bone treatment not realising it was the 12...

Yesterday's phone appointment left me confused so I had to phone up the breast c...

Beryl71

•2 years ago

13 Replies

2nd opinion about treatment change?

Dear ladies, friends, I post only rarely on here but come today looking for advice. I was diagnosed 2 yrs ago de novo with 10cm breast tumour and various mets...

Dear ladies, friends, I post only rarely on here but come today looking for advi...

Here_now

•2 years ago

15 Replies

Inappropriate Private Messages??

Yesterday, I received the following message from someone with the username, "Lovingheart9": "Hello there! Do you think a man like me can possibly get a...

Yesterday, I received the following message from someone with the username, "Lov...

Hazelgreen

•2 years ago

28 Replies

CA 27.29 Markers - Beginning of treatment (Verzenio)

Hello - I am new here from Seattle. I have a question about tumor markers at the beginning of treatment for MBC. Is it true that your CA 27.29 marker can...

Hello - I am new here from Seattle. I have a question about tumor markers at th...

miconrad

•2 years ago

19 Replies

Dairy and breast cancer

I heard you should not have dairy if you have breast cancer. Is this true?

DDIL1

•2 years ago

17 Replies

MBC and primary endometrium cancer

Hi my wonderful fellow fighters, My latest pet Ct revealed the endometrium thickness I just got a biopsy back and am in shock It’s a primary endometrium...

Hi my wonderful fellow fighters, My latest pet Ct revealed the endometrium thick...

Cureforever

•2 years ago

26 Replies

Helpful hints starting Xeloda

After 5 1/2 years success with Ibrance, only 9 months of success with Faslodex. Starting on Xeloda on a few days, any helpful hints and what to expect would...

After 5 1/2 years success with Ibrance, only 9 months of success with Faslodex. ...

Boogitymom

•2 years ago

20 Replies

Liver mets - help!

Liver mets- I’ve just found out my mets have spread from bones to liver. I’m gutted. Please share some good news stories to keep me going! ❤️🙏

Liver mets- I’ve just found out my mets have spread from bones to liver. I’m gut...

Glas0824

•2 years ago

30 Replies

Best foods for those with Estrogen+ breast cancer

Hi everyone, I was just looking into a Plant-based food course (for people learning to become Instructors). I thought some of you might be interested to read...

Hi everyone, I was just looking into a Plant-based food course (for people learn...

13plus

•2 years ago

3 Replies

MBC is so frustrating

My liver is still growing, quickly, which isn't the norm for invasive ductal carcinoma. I am now off fulvestrant and will be going on xeloda try to get these...

My liver is still growing, quickly, which isn't the norm for invasive ductal car...

Debbigbang

•2 years ago

9 Replies

Bone pain

Has anyone taking Letrozole had a lot of bone pain?

Normalee1965

•2 years ago

10 Replies

Swallowing problems

Has anyone taking Ibrance had any problems swallowing? Especially breads.

Normalee1965

•2 years ago

3 Replies

First Progression - Terrified

So I've just found out (an hour ago via phone call) that I have my first progression...several liver mets after good success on Ibrance and Letrozole for bone...

So I've just found out (an hour ago via phone call) that I have my first progres...

valentinecalico

•2 years ago

67 Replies

Ribociclib and liver markers

Liver not enjoying ribociclib. Ticked up. Now reducing dose from 600mg to 400mg. Anyone had same experience?

Liver not enjoying ribociclib. Ticked up. Now reducing dose from 600mg to 400mg....

susiemarmite

•2 years ago

13 Replies

Smile

We have cancer yes This site is the most positive one l have been Thank Ladies

Hidden

•2 years ago

16 Replies

Cancer myths and facts

Great link to Website from the Harvard T.H. School of Public Health addressing facts and myths about what causes cancer. Easy to read information on diet,...

Great link to Website from the Harvard T.H. School of Public Health addressing f...

Best521

•2 years ago

3 Replies

Wedding Bells

After a week of Covid and feeling rotten I managed to drive down to London and be at my daughters wedding.We all had a fantastic day and so relieved I got...

After a week of Covid and feeling rotten I managed to drive down to London and b...

debbiedo2063

•2 years ago

28 Replies

Treatment side effects..

Hi ladies. Hope you all doing fine. I do have a question regarding Ibrance and letrozole combo. My mom has been on that treatment for 13 months now and it’s...

Hi ladies. Hope you all doing fine. I do have a question regarding Ibrance and l...

SabaAK

•2 years ago

16 Replies

New ultrasonic treatment for Liver mets

We came across this the other day, I thought I'd share it with you all. Always hope. X ♥️...

We came across this the other day, I thought I'd share it with you all. Always ...

Winner123

•2 years ago

6 Replies

Signed up for Living beyond Breast Cancer symposium, sharing info.

Saw this clinical trial for TNBC https://www.gileadclinicaltrials.com/study/?id=GS-US-586-6144 IF I come across any interesting info. I will share. Hope that...

Saw this clinical trial for TNBC https://www.gileadclinicaltrials.com/study/?id=...

DDIL1

•2 years ago

6 Replies

Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

All posts for April 2022

SBRT FOR BONE METS

May 3 & 5 Workshop About Cancer Drug Dosing

Thinning hair

WBC count

Scan results

Serous endometrium carcinoma plus mbc

Ivermectin Article/Link

Changing treatment, had 12 months out of Kadcyla

ribociclib and turkey tail

Faslodex and Anastrozole

Unsatisfactory appointment

2nd opinion about treatment change?

Inappropriate Private Messages??

CA 27.29 Markers - Beginning of treatment (Verzenio)

Dairy and breast cancer

MBC and primary endometrium cancer

Helpful hints starting Xeloda

Liver mets - help!

Best foods for those with Estrogen+ breast cancer

MBC is so frustrating

Bone pain

Swallowing problems

First Progression - Terrified

Ribociclib and liver markers

Smile

Cancer myths and facts

Wedding Bells

Treatment side effects..

New ultrasonic treatment for Liver mets

Signed up for Living beyond Breast Cancer symposium, sharing info.

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