Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

6,809 members•8,426 posts

All posts for May 2021

MRI Anxiety and Meniere’s Disease

I now also have Meniere’s Disease. Anyone out there have this? I have history of sinus for as long as I can remember. After my Moderna shot in February had...

I now also have Meniere’s Disease. Anyone out there have this? I have history ...

Tam-56

•3 years ago

12 Replies

I’m new here

Starting Ibrance Is anyone taking Ibrance with an Anastrozole

Building-strength

•3 years ago

36 Replies

Palliative radiotherapy

Does anyone know of you can have more than one treatment of palliative radiotherapy for bone cancer? I had one dose treatment about a year ago but the pain is...

Does anyone know of you can have more than one treatment of palliative radiother...

Hm50

•3 years ago

10 Replies

Want to take advantage of all our features? Just log in!

Waving back now

Been waving from the allotment Clare. It’s so hot right now and looks wonderful across the water. Hope all is ok with you and you are managing to get out and...

Been waving from the allotment Clare. It’s so hot right now and looks wonderful ...

Hidden

•3 years ago

8 Replies

No more Letrozole

Good morning everyone! Thank you all for your suggestions. A little background on myself. I was first diagnosed in 2004. I was put on tamoxifen right away....

Good morning everyone! Thank you all for your suggestions. A little background ...

Jhshl512

•3 years ago

9 Replies

Discontinuing Letrozole

Hello everyone. I’m very nervous and don’t know what the future holds now that I can’t take Letrozole. I have been suffering from interstitial cystitis for...

Hello everyone. I’m very nervous and don’t know what the future holds now that I...

Jhshl512

•3 years ago

30 Replies

Pet and bone scan results

Good morning pretty ladies. Today I received a bone scan result Says everything is stable and there is no evidence of new metastases combo ibrance - Letrozole...

Good morning pretty ladies. Today I received a bone scan result Says everything ...

Maludagui

•3 years ago

30 Replies

Saying no to more treatments

Has anyone just said no to more and harsher treatments? I am not interested in living longer and feeling miserable with the side effects.

Has anyone just said no to more and harsher treatments? I am not interested in ...

bannar

•3 years ago

16 Replies

exemesane

Are there any women out there that quit taking anti- estrogen medicine. Helena

Iwouldlike2knowmore

•3 years ago

2 Replies

Scanxiety

I met with my oncologist this afternoon after having CT, bone scans and blood tests yesterday. It was my first review after starting treatment and was very...

I met with my oncologist this afternoon after having CT, bone scans and blood te...

Karen2235

•3 years ago

16 Replies

Curious??

I'm just curious and wanted to ask for everyone's opinion. Do you think removing cancer can cause it to spread?? I know that's a wide open question but I was...

I'm just curious and wanted to ask for everyone's opinion. Do you think removin...

Itisfinished

•3 years ago

8 Replies

Be Careful with Exemestane

I do not mean to scare anyone, or pretend that I know everything, but for those starting exemestane I want to let you know what happened to me. I was put on...

I do not mean to scare anyone, or pretend that I know everything, but for those ...

bankusboysmom

•3 years ago

7 Replies

Ibrance, rhinitis and post nasal drip.

I must admit I’m desperate living with so much congestion. The drip in my throat is the worst. I am using a Netty pot several times a day, a spray of...

I must admit I’m desperate living with so much congestion. The drip in my throat...

Flavia100

•3 years ago

27 Replies

Just to introduce myself

Hello all! I'm reading posts and starting to comment so I thought I'd introduce myself. My name is Leo, my wife Susie was diagnosed with TNBC in Sept 18....

Hello all! I'm reading posts and starting to comment so I thought I'd introduce ...

Winner123

•3 years ago

18 Replies

Cape and Vinorelbine after ibrance

After nearly 2.5 years ibrance has stopped working and I’ve nodules on my bowel and a dodgy looking kidney. Had a future ct scan on my kidney to see what’s...

After nearly 2.5 years ibrance has stopped working and I’ve nodules on my bowel ...

Fighteragain18

•3 years ago

1 Reply

Finally!

I did it! I traveled outside the US to the Dominican Republic. It was fabulous! I was nervous at first but once there everything just seemed back to normal. I...

I did it! I traveled outside the US to the Dominican Republic. It was fabulous! ...

Staysha

•3 years ago

17 Replies

How do we know which Rx of the combo stops working?

It’s so confusing. I was on Ibrance and Faslodex for 8 months, and now I need to change the cocktail due to new Mets. Which one is it?!

It’s so confusing. I was on Ibrance and Faslodex for 8 months, and now I need to...

Oganesian

•3 years ago

6 Replies

2nd Scan and all good. Happy Days and great Summer 2021.

Second Scan on Ibrance , fulvestrant and Denosumab. All Stable , happy days. Off to the Uk Lake District for weekend so a brilliant start to the weekend. I was...

Second Scan on Ibrance , fulvestrant and Denosumab. All Stable , happy days. Off...

debbiedo2063

•3 years ago

7 Replies

Exemestane

Daytime anxiety. Nighttime insomnia. A nightmare for cancer fighters. Hope to solve the cocktail today with my oncologist.

Daytime anxiety. Nighttime insomnia. A nightmare for cancer fighters. Hope to so...

Oganesian

•3 years ago

8 Replies

Why don't they design better meds?

I'm only asking for small details such as incapsulating pills to prevent mouth sores, or adding ingredients to protect organs, to protect our precious heart,...

I'm only asking for small details such as incapsulating pills to prevent mouth s...

Oganesian

•3 years ago

3 Replies

Ibrance and hair ideas

Hi ladies, Hope you're feeling fine with brighter longer days coming. I've read several post about hair loss and hair thinning with Ibrance. I must say I loose...

Hi ladies, Hope you're feeling fine with brighter longer days coming. I've read ...

Lulu4545

•3 years ago

1 Reply

NEAD!

I have had a number of scans in the last few weeks. The docs that write the scan reports can be frustrating in what they choose to say or not say. Oncology...

I have had a number of scans in the last few weeks. The docs that write the scan...

BluHydrangea

•3 years ago

40 Replies

Shrinking??

Hello mighty warriors!! Just wondering if anyone who has mets to spine has lost their height?? I had spinal surgery in August of 2020 due to a tumor that was...

Hello mighty warriors!! Just wondering if anyone who has mets to spine has lost ...

Itisfinished

•3 years ago

14 Replies

Y90?

So, after 7 months, Xeloda has failed me. The vague pain in my side was exactly what I was worried it would be. The lesions in my liver have tripled. Another...

So, after 7 months, Xeloda has failed me. The vague pain in my side was exactly ...

Arisgram

•3 years ago

67 Replies

Thanks for your help with Collagen question

Dear Ladies, thanks so much for all of the advice about collagen. Now I understand why my doctor did not recommend for me to take it. I have a hair...

Dear Ladies, thanks so much for all of the advice about collagen. Now I underst...

love2golfwell

•3 years ago

1 Reply

Sharing Diagnosis

I really cherish this website for all of good information and support. It would be so much more helpful if writers/participants gave their diagnoses....

I really cherish this website for all of good information and support. It would...

Kdiet

•3 years ago

9 Replies

Neuprogen shots and weekly taxol

neuprogen shots and taxol! Can an y of you give me info on whether you went on neuprogen because of low ANC while on weekly taxol and what experiences you have...

neuprogen shots and taxol! Can an y of you give me info on whether you went on n...

blms

•3 years ago

8 Replies

Afinitor

Hello, I was on xeloda for just a little while cause i got sick, Now i am on afinitor and exemestane and it looks like i have alopecia in some spots . What can...

Hello, I was on xeloda for just a little while cause i got sick, Now i am on afi...

Iwouldlike2knowmore

•3 years ago

1 Reply

Anyone go on Verzenio after Ibrance stopped working?

Hi ladies, I was recently taken off of Xeloda after 3 cycles due to progression. Still bone mets but there might be something in my lung that can't be...

Hi ladies, I was recently taken off of Xeloda after 3 cycles due to progression....

Jonesburger

•3 years ago

27 Replies

Collagen for hair

Collagen supplements - I have been on Ibrance and Letrozole for 7 months now. They appear to be working as my tumor marker has consistently gone down and I...

Collagen supplements - I have been on Ibrance and Letrozole for 7 months now. T...

love2golfwell

•3 years ago

45 Replies

Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

All posts for May 2021

MRI Anxiety and Meniere’s Disease

I’m new here

Palliative radiotherapy

Waving back now

No more Letrozole

Discontinuing Letrozole

Pet and bone scan results

Saying no to more treatments

exemesane

Scanxiety

Curious??

Be Careful with Exemestane

Ibrance, rhinitis and post nasal drip.

Just to introduce myself

Cape and Vinorelbine after ibrance

Finally!

How do we know which Rx of the combo stops working?

2nd Scan and all good. Happy Days and great Summer 2021.

Exemestane

Why don't they design better meds?

Ibrance and hair ideas

NEAD!

Shrinking??

Y90?

Thanks for your help with Collagen question

Sharing Diagnosis

Neuprogen shots and weekly taxol

Afinitor

Anyone go on Verzenio after Ibrance stopped working?

Collagen for hair

Search posts

Pinned Posts

Latest poll

Has this community positively impacted your breast cancer journey? If yes, please describe how in the replies below

Topics

Archive