Latest research for MBC: Hi my... - SHARE Metastatic ...

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Latest research for MBC

Cureforever profile image
9 Replies

Hi my wonderful MBC warriors and fighters,

It’s so difficult to leave with this disease. I wish we all got cured. I am following research every day and hope for cure. Many wonderful things are still on preclinical stage but knowing that many scientists work on it gives me strength. I have anxiety every day and it prevents me from living the life I had before mbc. I hope that looking on the photo I got on Twitter will give you strength as well.

Good luck to all of us!

Marina

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Cureforever profile image
Cureforever
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9 Replies
Pbsoup profile image
Pbsoup

Marina, thanks for keeping us informed about this. I hope your anxiety is starting to get a bit better... How were your scans the other day??

Cureforever profile image
Cureforever in reply to Pbsoup

Hi.You are very welcome.

Thank you for asking.

My liver and bones Mets decreased but they found some problems with the kidney that requires more tests. I was referred to the special ct scan. Now I am nervous and anxious again. It never ends. We need cure and break from this disease.

Best,

Marina

Figletf profile image
Figletf in reply to Cureforever

🙏🙏🙏

Justme153 profile image
Justme153

Thank you for the info! Please try not to worry so much! I have adopted the philosophy that worry just robs me of good living!!! It won't change what is to be!!!! Relax take a deep breath and live life don't let cancer take enjoyment from you!!!

Cureforever profile image
Cureforever in reply to Justme153

Thank you so much for your suggestions. It’s very smart but it’s difficult for me to follow. I have anxiety that it’s not easy to overcome. I am doing research of a cure every day and live in hope for it. Best,

Marina

PJBinMI profile image
PJBinMI

I want to echo Justme135 about worry! One of the things that has helped me is to focus on the long term instead of the immediate. I don't mean I ignore new symptoms or side effects, but I bring them to the attention of my onc, or other docs, but I don't look at them as an immediate threat to my long term survival. I believe I will still be here a year from now and will keep believing that until my onc and/or other docs tell me that's unlikely. If I have to postpone something I want to do, I view it as temporary and look for something else that I can do now and enjoy. Chocolate is on THAT list, lol, and so are music, watching some TV with a purring kitty on my lap, talking with people I love, on the phone if not face to face. It also helps that those closest to me share a sometimes dark sense of humor and can joke about aspects of cancer, like loss of some hair means I no longer need to shave my legs or armpits but get mustache hairs instead! (YUK!)

Cureforever profile image
Cureforever in reply to PJBinMI

Thanks for sharing your thoughts. I know people on different boards who live with this enemy for many years. It’s not easy. I hate this disease and want cure. I follow all research that is going around. There are many discoveries but they all are on preclinical level. FDA requires a lot of data. I wish we were able to get a magic drug like we got a Covid vaccine. Best,

Marina

Andersl profile image
Andersl

You're right... there are so many new drugs on the way...

It gives us hope

Cureforever profile image
Cureforever in reply to Andersl

🙏🙏🤞🤞

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