Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

6,601 members • 8,139 posts

All posts for April 2023

ovarian surgery

Hi everyone Was just recommended to see a GYN/Oncologist to discuss having my ovaries removed.. I have the BRIP1 gene mutation. So was there for 2 hours...

Hi everyone Was just recommended to see a GYN/Oncologist to discuss having my ...

Dancing

•1 year ago

14 Replies

IBRANCE

Hiya Folks, Was diagnosed in February stage 4. Am wondering if anyone else is experiencing deep exhaustion from Ibrace? Omgosh, I'm just a zombie. Was on...

Hiya Folks, Was diagnosed in February stage 4. Am wondering if anyone else is e...

Colacancer

•1 year ago

45 Replies

Ibrance and Letrozole -= hair change/loss

I have been on the above for nearly 24 months and they appear to be doing what they' re meant to do - thank goodness. After being on them for 14 months I...

I have been on the above for nearly 24 months and they appear to be doing what ...

LorryLou

•1 year ago

39 Replies

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Newly diagnosed with BC. I am terrified but know I must remain strong to get through this long treatment.

I was diagnosed with BC six days ago and I am looking for a safe place to vent, gather information, and find support. I thought I was safe from any cancer...

I was diagnosed with BC six days ago and I am looking for a safe place to vent, ...

CarpeDiem2024

•1 year ago

19 Replies

Wondering about meds for high cholesterol

Hi fellow warriors, I have been on Letrozole and Ibrance for the last 2 years. I was diagnosed stage 4 de novo in late 2014. Mets were in liver only. I did...

Hi fellow warriors, I have been on Letrozole and Ibrance for the last 2 years....

SaraJukebox

•1 year ago

9 Replies

Starting Eribulin

So I've been unwell for a while due to progression in my liver. Starting Eribulin........think about me because my liver function is low and there's a chance...

So I've been unwell for a while due to progression in my liver. Starting Eribuli...

valentinecalico

•1 year ago

7 Replies

Zometa

I am scheduled for my first injection in the morning . I read somewhere on here my calcium should be 10 or higher. Mine has been running the past 9 months...

I am scheduled for my first injection in the morning . I read somewhere on here ...

Sharon0122

•1 year ago

19 Replies

radiation

well the process of mapping starts tomorrow. It will be on two areas of the spine and the breast. I’m pretty nervous. 15 sessions in total. The esophagus will...

well the process of mapping starts tomorrow. It will be on two areas of the spin...

HbbM

•1 year ago

36 Replies

scared

I have a PET scan on May 3rd and i'm super scared. I have triple negative metastatic bone cancer. My last scan was Feb and it was good. I am now having pain in...

I have a PET scan on May 3rd and i'm super scared. I have triple negative metast...

luxie69

•1 year ago

33 Replies

Missing dose

I have returned from travel with a cold- tested negative for COVID. I have Herceptin / perjeta in 2 days, I know I will not be better and I am worried they...

I have returned from travel with a cold- tested negative for COVID. I have Herc...

Onedayatatime60

•1 year ago

2 Replies

what is you ki67? Are you lobular or ductal? How are you doing? My ki67 is 15%

Just wondering what others have for a ki67 and how you’re doing? I’m ER/PR+ Her- Mets to bones now colon. Wondering how others are doing?

Just wondering what others have for a ki67 and how you’re doing? I’m ER/PR+ He...

DDIL1

•1 year ago

5 Replies

hormone cream for vaginal atropht

I am 77 and constantly suffer with pelvic flair, atrophy, and constant UTIs. At one point my urologist, who is excellent suggested I would benefit from...

I am 77 and constantly suffer with pelvic flair, atrophy, and constant UTIs. At...

Flavia100

•1 year ago

13 Replies

my first iv treatment

I’m starting Enhertu on Tuesday. I’m very anxious about this but was told this is my next line of treatment. I will have an infusion once every 3 weeks. I have...

I’m starting Enhertu on Tuesday. I’m very anxious about this but was told this i...

Jhshl512

•1 year ago

38 Replies

paclitaxel

hi is anyone on this line of treatment and finding they have extreme fatigue that floors them for days? I also have asities so not sure whether it’s that or...

hi is anyone on this line of treatment and finding they have extreme fatigue tha...

Hm50

•1 year ago

13 Replies

Anastrozole for one month but seeing progression

how long do I wait to see if Anastrozole is going to help? I started exactly one month ago and the first couple weeks there was a lot less swelling but the...

how long do I wait to see if Anastrozole is going to help? I started exactly one...

HbbM

•1 year ago

9 Replies

letrozole & Ibrance weight gain

Hi everyone, hope everyone is having a beautiful day. I have been on letrozole and Ibrance for the past year, and they have done wonders for my condition, as...

Hi everyone, hope everyone is having a beautiful day. I have been on letrozole a...

JenniJenni

•1 year ago

12 Replies

itchy at site of bone mets

I’m just wondering if any of you, with bone Mets to various parts, (mine are skull, spine, ribs & right sacroiliac ) get itchy? Deep inside, like scratching...

I’m just wondering if any of you, with bone Mets to various parts, (mine are sku...

Timtam56

•1 year ago

8 Replies

Adding Ibrance to Letrozol after it stops working on its own..

Hi! I have been on Letrozole only for 6 years and was NED for past 5 years. I’m getting a scan soon and was told that if there is progression one option is to...

Hi! I have been on Letrozole only for 6 years and was NED for past 5 years. I’m ...

TwithBC

•1 year ago

27 Replies

Trying to Manage Mets BC plus CC is a very hard thing to do...

Hi, I am here to seek support for my serious Metastacized Breast and Colon Cancers and also to be of any help and compassionate support to other people too. I...

Hi, I am here to seek support for my serious Metastacized Breast and Colon Cance...

Hidden

•1 year ago

26 Replies

Just started Everolimus

Hi, anyone on Everolimus and how is it? Side effects and if it is working? Thanks.

Hi, anyone on Everolimus and how is it? Side effects and if it is working? Thank...

Suzie-Wong24

•1 year ago

31 Replies

LBBC Metastatic Conference in Philadelphia

Is anyone from this group planning to attend the LBBC Metastatic Conference in Philadelphia next weekend 4/28-4/30? I am for the first time!

Is anyone from this group planning to attend the LBBC Metastatic Conference in P...

fancydog

•1 year ago

10 Replies

Zometa

Has anyone it had side effects on zometa

Shafight

•1 year ago

10 Replies

zometa

I’ve been on xgeva for 2 years with no side effects. In a month I change to zometa. What can I expect. Has anyone else changed to zometa?

I’ve been on xgeva for 2 years with no side effects. In a month I change to zome...

Shafight

•1 year ago

11 Replies

Medicare

I finally can retire in June this year and after diligent research with a part D plan I was very disappointed to see that Ibrance has a 600 copay a month. How...

I finally can retire in June this year and after diligent research with a part D...

Puppy_love

•1 year ago

18 Replies

xeloda and appetite

I'm on round 4 of Xeloda and my appetite is very poor. I'm losing weight which isn't good. Most foods just sound "gross" to me. Rice, pasta, cereals and...

I'm on round 4 of Xeloda and my appetite is very poor. I'm losing weight which i...

Marla61

•1 year ago

7 Replies

Have you been on Gemcitabine (Gemzar)?

Hello, I am starting Gemcitabine tomorrow and am wondering if anyone has advice on this chemo? Is it well tolerated? A nurse told me today I should get a...

Hello, I am starting Gemcitabine tomorrow and am wondering if anyone has advic...

atoth17

•1 year ago

1 Reply

Cosmetic procedures while receiving treatment

Hello ladies, does anyone know if cosmetic procedures like lasers, peels, fillers, etc. that aging women enjoy are safe for us with compromised immune systems?...

Hello ladies, does anyone know if cosmetic procedures like lasers, peels, filler...

CLC-52

•1 year ago

5 Replies

MBC Journey so far

I was diagnosed with Primary and MBC the same time in 2017 they started me on Letrozole which worked well for about 3 years since then tried a number if other...

I was diagnosed with Primary and MBC the same time in 2017 they started me on Le...

Matthew2004

•1 year ago

10 Replies

Are Watery Eyes A Side Effect??

Hi all - I've been on fulvestrant for + 1.5 years and Verzenio for 9 months. About 4 months ago my eyes became very watery. The slightest wind or cold...

Hi all - I've been on fulvestrant for + 1.5 years and Verzenio for 9 months. Ab...

Nuff

•1 year ago

16 Replies

Bone Marrow

Can you tell me what you’ve experienced with bone marrow involvement? How do they know it’s reached bone marrow? What tests? Does it change the medication...

Can you tell me what you’ve experienced with bone marrow involvement? How do th...

HbbM

•1 year ago

1 Reply

Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

All posts for April 2023

ovarian surgery

IBRANCE

Ibrance and Letrozole -= hair change/loss

Newly diagnosed with BC. I am terrified but know I must remain strong to get through this long treatment.

Wondering about meds for high cholesterol

Starting Eribulin

Zometa

radiation

scared

Missing dose

what is you ki67? Are you lobular or ductal? How are you doing? My ki67 is 15%

hormone cream for vaginal atropht

my first iv treatment

paclitaxel

Anastrozole for one month but seeing progression

letrozole & Ibrance weight gain

itchy at site of bone mets

Adding Ibrance to Letrozol after it stops working on its own..

Trying to Manage Mets BC plus CC is a very hard thing to do...

Just started Everolimus

LBBC Metastatic Conference in Philadelphia

Zometa

zometa

Medicare

xeloda and appetite

Have you been on Gemcitabine (Gemzar)?

Cosmetic procedures while receiving treatment

MBC Journey so far

Are Watery Eyes A Side Effect??

Bone Marrow

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