Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

6,738 members • 8,322 posts

All posts for March 2022

Faslodex

Had a horrible reaction this past Monday after my injections. I’ve been having this treatment for 3 years and I had so much pain during the second injection....

Had a horrible reaction this past Monday after my injections. I’ve been having t...

Puppy_love

•2 years ago

30 Replies

Cancer charity

Dear ladies, Given the terminal diagnosis, I asked for the recommendations for the charity to be able to leave a legacy beyond the family and friends. Now...

Dear ladies, Given the terminal diagnosis, I asked for the recommendations for ...

Tolife_18

•2 years ago

7 Replies

Cruising with MBC and having Xeloda.

I am going to be on a new medication regime. My husband isn’t happy as we have a cruise booked for the Norwegian Fjords end of May and he feels I will be to...

I am going to be on a new medication regime. My husband isn’t happy as we have a...

Hidden

•2 years ago

38 Replies

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Use of alkaline water

I am a metastatic patient since 2021 .now I have bought water ioniser and drinking water with a pH of 7.5 .I heard this base water is good for cancer patients...

I am a metastatic patient since 2021 .now I have bought water ioniser and drinki...

Jaynikan

•2 years ago

17 Replies

Dry, thickened skin on fingertips, now a little numb

I know we've talked about severely dry skin before and shared recommendations for moisturizers. Since I started taking Verzenio 4 years ago, I've had very dry...

I know we've talked about severely dry skin before and shared recommendations fo...

luckysmom13

•2 years ago

7 Replies

Ibrance shortness of breath first dose of 21 days

Has anyone experienced shortness of breath on the first 21 days of Ibrance? I take 125 mg Ibrance, 2.5 mg Letrozole Mets to ribs, spine

Has anyone experienced shortness of breath on the first 21 days of Ibrance? I t...

Clmsgrl

•2 years ago

22 Replies

Piqray or IV chemo

I would really like to try Piqray instead of IV chemo. Any positive thoughts or experience would help. Thank you Trying to keep up the good fight. Lori 🙏🏻

I would really like to try Piqray instead of IV chemo. Any positive thoughts or ...

Jhshl512

•2 years ago

22 Replies

Port and flying

Has anyone had issues going through security with a portacath when flying? I have my wallet card saying what it is. We leave in a week and Onc is away. When I...

Has anyone had issues going through security with a portacath when flying? I hav...

Onedayatatime60

•2 years ago

7 Replies

Update

the rash was not shingles . It was just a bad reaction to preservatives in the faslodex injection which was generic. He’s going to go back and order the...

the rash was not shingles . It was just a bad reaction to preservatives in the f...

Ycats277

•2 years ago

25 Replies

Change of meds

Hi so had good response to Pablo and letzo for 24 months, shrinkage and stable. Last scan showed growth in bones and liver😞😞, I was so enemic I had to have...

Hi so had good response to Pablo and letzo for 24 months, shrinkage and stable. ...

Soloray12

•2 years ago

6 Replies

Faslodex/Fulvestrant update

For those being offered or starting this protocol - here’s an update. I know when I joined this group - it meant a lot to get information and experiences....

For those being offered or starting this protocol - here’s an update. I know whe...

Ntash01

•2 years ago

47 Replies

First dose of Taxol in the books

First dose down first IV chemo first port use and it was largely uneventful. My doc has a very elaborate pre-med strategy that may be why. Last night I had to...

First dose down first IV chemo first port use and it was largely uneventful. My ...

Iwasborntodothis

•2 years ago

37 Replies

So afraid I won’t be able to take the faslodex injections anymore. Bad rash ! What then 😢

Has anyone had to stop due to site rash , what do you go on instead . I’m so scared I’m just gonna die now from the cancer if I can’t take the Faslodex. Crying...

Has anyone had to stop due to site rash , what do you go on instead . I’m so sca...

Ycats277

•2 years ago

43 Replies

Membrasin?

Hi all! I hope you are having one of your better days 😘 i am wondering if anyone who has er+ pr+ mbc uses Membrasin for vaginal dryness. Has anyones...

Hi all! I hope you are having one of your better days 😘 i am wondering if anyo...

Ommmmmmm

•2 years ago

2 Replies

Soap recommendations

Does anyone have a really good moisturizing shower soap or gel? I use moisturizer after my shower, but my skin is still very dry and itchy.

Does anyone have a really good moisturizing shower soap or gel? I use moisturiz...

Nocillo

•2 years ago

18 Replies

Femra side effects

Have been on Tamxifin since 2017 my current Onaclogist has left the practice and my new Doctor want to switch me to Femra and the side effect scare me. My...

Have been on Tamxifin since 2017 my current Onaclogist has left the practice and...

Piper-Milo

•2 years ago

6 Replies

Severe leg cramps

About two week ago very very painful leg cramps woke me and have been for some nights. . I’m on Ibrance and letrozol for 4 Months. The beginning of cramps...

About two week ago very very painful leg cramps woke me and have been for some ...

sonycamera

•2 years ago

22 Replies

CBD cream for pain

mbogorad

•2 years ago

20 Replies

Need to tell you.

OK I have to admit it now. All messages have failed. Fazlodex. Letrozole. Aromasin. Chemo. And many more. I am now just waiting for my mobility to get worse....

OK I have to admit it now. All messages have failed. Fazlodex. Letrozole. Aroma...

Hidden

•2 years ago

14 Replies

Is my Faslodex injection site a rash or shingles ? Has anyone had to stop because of severe rash ? What then , what replaces ? Help plz 🌹

4 years I’m taking the injections for faslodex. The injection site is always sore and the injections are painful . Has anyone had to stop due to this ? What...

4 years I’m taking the injections for faslodex. The injection site is always sor...

Ycats277

•2 years ago

18 Replies

skin hardening

Hi - I'm on week 3 of ribociclib and letrazole. I was diagnosed de novo MBC just recently. Yesterday and today my hands changed ... the skin feels thick and...

Hi - I'm on week 3 of ribociclib and letrazole. I was diagnosed de novo MBC jus...

susiemarmite

•2 years ago

4 Replies

Great news!!

I started Ibrance and fasolax injections in June of 2021. My MBC was in my lymph nodes, chest wall and lungs. I had a pet scan this past Monday and the...

I started Ibrance and fasolax injections in June of 2021. My MBC was in my lymph...

Misspositiveattitude

•2 years ago

56 Replies

Ontario

Does anyone live near London Ontario ??

cancersucks2

•2 years ago

12 Replies

Taxol

After Taxol treatments what hormone pill did the oncologist recommend the most. Helena

After Taxol treatments what hormone pill did the oncologist recommend the most. ...

Iwouldlike2knowmore

•2 years ago

21 Replies

Taxol and Steroids

Hello, I had my Taxol treatment on Wednesday and it is 12:32 am and I have been getting up every two hours, Does anyone have any suggestions. This usually last...

Hello, I had my Taxol treatment on Wednesday and it is 12:32 am and I have been ...

Iwouldlike2knowmore

•2 years ago

3 Replies

Just wondering

Does anyone know if they still put a cement like substance in shattered bones still?

Does anyone know if they still put a cement like substance in shattered bones st...

cancersucks2

•2 years ago

26 Replies

The PALB2 gene mutation

I have just found out I have the PALB2 mutation? It can be inherited from either Dad or Mom. My daughter has it too. Anyone know something about this?

I have just found out I have the PALB2 mutation? It can be inherited from eithe...

Paradise43

•2 years ago

2 Replies

Joint & tendon pain on Aromatase inhibitors

EDIT: I found the article and posted the link in a reply to ladykaterina . Here’s the link as well: https://pubmed.ncbi.nlm.nih.gov/28259297/ Hello...

EDIT: I found the article and posted the link in a reply to ladykaterina . H...

Dragonfly2

•2 years ago

24 Replies

Stopping/Restarting Endocrine Therapy?

I’ve seen a few posts mentioning that some studies have shown that after endocrine therapy fails, if you stop it and then restart it (months/years later?) it...

I’ve seen a few posts mentioning that some studies have shown that after endocri...

Half-Full

•2 years ago

5 Replies

Frankincense

Hi Ladies!! I’m new on here and would like to interact with people in similar situations and maybe help each other along the journey. This is probably old...

Hi Ladies!! I’m new on here and would like to interact with people in similar si...

Brilly2501

•2 years ago

39 Replies

Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

All posts for March 2022

Faslodex

Cancer charity

Cruising with MBC and having Xeloda.

Use of alkaline water

Dry, thickened skin on fingertips, now a little numb

Ibrance shortness of breath first dose of 21 days

Piqray or IV chemo

Port and flying

Update

Change of meds

Faslodex/Fulvestrant update

First dose of Taxol in the books

So afraid I won’t be able to take the faslodex injections anymore. Bad rash ! What then 😢

Membrasin?

Soap recommendations

Femra side effects

Severe leg cramps

CBD cream for pain

Need to tell you.

Is my Faslodex injection site a rash or shingles ? Has anyone had to stop because of severe rash ? What then , what replaces ? Help plz 🌹

skin hardening

Great news!!

Ontario

Taxol

Taxol and Steroids

Just wondering

The PALB2 gene mutation

Joint & tendon pain on Aromatase inhibitors

Stopping/Restarting Endocrine Therapy?

Frankincense

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