Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

6,586 members • 8,124 posts

All posts for June 2022

I just love you all for all you contribute! You make my day!

All of you MBC Chics are awesome, strong beyond belief, smart, and fearless! I am so happy to have the opportunity to share my experiences with you all without...

All of you MBC Chics are awesome, strong beyond belief, smart, and fearless! I a...

Hotlantaphatz

•2 years ago

6 Replies

Halaven

I was diagnosed with MBC in March of 2021. I am currently on Halaven which is my fourth line of defense. Hopeful!

I was diagnosed with MBC in March of 2021. I am currently on Halaven which is m...

Waffles1

•2 years ago

13 Replies

Glad I've stayed positive!

Just to say ladies, that after two years on letrozole and ibrance, and feeling so much better, I've been on my first foreign holiday since early 2020. I've had...

Just to say ladies, that after two years on letrozole and ibrance, and feeling s...

Beryl71

•2 years ago

52 Replies

Want to take advantage of all our features? Just log in!

Zometa

Hello - I’d love to know your experience with Zometa or Prolia. My recent bone density shows what my oncologist says is “significant” loss of bone density in...

Hello - I’d love to know your experience with Zometa or Prolia. My recent bone ...

JustmeMary

•2 years ago

21 Replies

Is anyone on abraxane. Please share your experience

I had bad pet ct results. In addition to bones, It spread to the liver ( 6 lesions) and lymph nodes in pancreas, possibly pancreas spread. I was on Xeloda....

I had bad pet ct results. In addition to bones, It spread to the liver ( 6 lesi...

Cureforever

•2 years ago

59 Replies

Has anyone done hair extensions or a hair topper for thinning

Has anyone done hair extensions or a hair topper for thinning? I’m so frustrated with the top of my hair and I’m looking at some options. One of those hair...

Has anyone done hair extensions or a hair topper for thinning? I’m so frustrate...

Flavia100

•2 years ago

12 Replies

Hey MBC Chics! Who is taking Kisqali? (Spelling)

Might be changed from Ibrance to Kisqali. Looking forward to your experiences with this new treatment. Be strong!

Might be changed from Ibrance to Kisqali. Looking forward to your experiences wi...

Hotlantaphatz

•2 years ago

5 Replies

Advice on scans.

Hi everyone, I am just wondering if anyone knows for definite, does a full body MRI scan include the brain? The radiologist said it partly looks at the brain...

Hi everyone, I am just wondering if anyone knows for definite, does a full body...

RachH20

•2 years ago

10 Replies

Building up the immune system

I am very new to the metastatic breast cancer journey having been diagnosed last March. I am eighty-five and outside the age for chemo but prescribed...

I am very new to the metastatic breast cancer journey having been diagnosed last...

MarsiJay

•2 years ago

17 Replies

Proton Pump Inhibitors / Ibrance interaction

One of the key phrases we want to hear every three months is 'No progression'. The longer we can get out of a particular line of treatment the better. So I was...

One of the key phrases we want to hear every three months is 'No progression'. T...

Laskia

•2 years ago

13 Replies

Subtle peritoneal stranding

Hi ladies. Another scan and I can’t figure out what is subtle peritoneal standing and slight increase of trace ascities. Can anyone explain it to me. Thanks....

Hi ladies. Another scan and I can’t figure out what is subtle peritoneal standin...

marianne88

•2 years ago

14 Replies

Loving my new hobby

I was diagnosed with MBC in 2020, just after covid shut things down, and retired in 2021. The retirement was a coincidence and wasn't due to the MBC, but I...

I was diagnosed with MBC in 2020, just after covid shut things down, and retired...

valentinecalico

•2 years ago

82 Replies

MBC Chick with a spot on her liver now!!

When I learned of this recent diagnosis from a CT scan all I could say is “WTF”. Stay tuned.

When I learned of this recent diagnosis from a CT scan all I could say is “WTF”....

Hotlantaphatz

•2 years ago

17 Replies

Scans

Hi ladies. So this is weird. My tumor markers have been rising over the past year but my scans are stable? Any idea why is happens? Thanks Marianne

Hi ladies. So this is weird. My tumor markers have been rising over the past yea...

marianne88

•2 years ago

13 Replies

For Those of Us with MBC as a Late Recurrance

Perhaps, in the future, there will be effective monitoring of BC patients... Published in Oncology Journal Scan / Research · June 25, 2022 ctDNA and Late...

Perhaps, in the future, there will be effective monitoring of BC patients... Pu...

Hazelgreen

•2 years ago

3 Replies

CT Scan Results

Hi ladies, I have my coffee and read every morning all questions but barely ask questions. Today I have a question, I’m in Canada and get my basic 15 minutes...

Hi ladies, I have my coffee and read every morning all questions but barely ask ...

Griffie120

•2 years ago

19 Replies

Spread to colon

Hello, I am freaking out. I just read my scans and it appears that my MBC has spread to my colon. I am on fulvestron and Ibrance. ( 7 months). My...

Hello, I am freaking out. I just read my scans and it appears that my MBC has...

Ticket123

•2 years ago

9 Replies

Progression in brain 6 months after WBRT 😔

Hi, This is not the post I wanted to be writing but I'm learning that we don't control the narrative on this disease. So, brain mri I had in May which was a...

Hi, This is not the post I wanted to be writing but I'm learning that we don't c...

Hidden

•2 years ago

17 Replies

Xeloda: here’s some hand foot advice and I’m looking for fatigue management help!

Hello - some Xeloda hand foot news to share, which I hope can be helpful to someone! I’m also looking for advice on Xeloda fatigue - and I’ll say I’m not sure...

Hello - some Xeloda hand foot news to share, which I hope can be helpful to some...

Fifilatour

•2 years ago

10 Replies

MBC App on IPhone?

I thought I saw a link to an App called My MBC but failed to find it in the App Store on my iPhone. Anyone have this please post again. Thank you!

I thought I saw a link to an App called My MBC but failed to find it in the App ...

dainla

•2 years ago

6 Replies

Erx41 New drug similar to ErSO will go to trial in January of 2023

https://medicalxpress.com/news/2022-06-compound-range-hard-to-treat-cancers-previously.html?fs=e&s=cl...

https://medicalxpress.com/news/2022-06-compound-range-hard-to-treat-cancers-prev...

Cureforever

•2 years ago

17 Replies

Enjoy the day!

I hope my roses will make all of you smile and forget for a moment all the struggles you going through. I have many more pictures of different roses, but could...

I hope my roses will make all of you smile and forget for a moment all the strug...

Tolife_18

•2 years ago

36 Replies

Faslodex

Hi ladies. So I have been on ibrance and faslodex for almost 5 years with small issues with fatigue. But this month the shots did me in 4 days after taking...

Hi ladies. So I have been on ibrance and faslodex for almost 5 years with small ...

marianne88

•2 years ago

8 Replies

Anyone on Troldevy?

Hello all! My wife is about to start Troldevy, assuming she's approved, it's quite new for triple negative in the UK. We are keen to hear anyone's experience...

Hello all! My wife is about to start Troldevy, assuming she's approved, it's qu...

Winner123

•2 years ago

2 Replies

New to the group

Hi, KIATEAL here. Just learned of local recurrence. Pet and bone scan to follow. Not sure whether I’m in the right forum. Followed a link while checking out...

Hi, KIATEAL here. Just learned of local recurrence. Pet and bone scan to follow....

Tealkia

•2 years ago

22 Replies

Good scan result!

Thank you everyone for your support! My Onc phoned for nearly an hour! Such good care! . he discussed my symptoms snd reviewed the PET and charted a course-...

Thank you everyone for your support! My Onc phoned for nearly an hour! Such good...

Bettybuckets

•2 years ago

15 Replies

Thirvers of Beauty

I had my 6 month CT scan on June 22 My cancer on chest lungs have shrunk Doctor Said..The bone has become thicker in side...They believe it's because the...

I had my 6 month CT scan on June 22 My cancer on chest lungs have shrunk Doctor...

Hidden

•2 years ago

12 Replies

Anyone with widespread bone Mets doing well?

Anyone with widespread bone Mets doing well? I’m ER/ PR+ HER- Lobular 4 affected armpit lymph. What I thought was several bone Mets on my scans I sent it to...

Anyone with widespread bone Mets doing well? I’m ER/ PR+ HER- Lobular 4 affected...

DDIL1

•2 years ago

23 Replies

Off topic, but WOW!

A lot of you maybe have already seen this, but I thought it was uplifting. Lord knows I needed something today. Just had an unscheduled follow up with my...

A lot of you maybe have already seen this, but I thought it was uplifting. Lord ...

OneLump22

•2 years ago

6 Replies

New Drug to treat ‘hard to treat’ cancers like MBC

I haven’t researched this one yet but thought I’d share the article if anyone is interested...

I haven’t researched this one yet but thought I’d share the article if anyone is...

Verbena1

•2 years ago

23 Replies

Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

All posts for June 2022

I just love you all for all you contribute! You make my day!

Halaven

Glad I've stayed positive!

Zometa

Is anyone on abraxane. Please share your experience

Has anyone done hair extensions or a hair topper for thinning

Hey MBC Chics! Who is taking Kisqali? (Spelling)

Advice on scans.

Building up the immune system

Proton Pump Inhibitors / Ibrance interaction

Subtle peritoneal stranding

Loving my new hobby

MBC Chick with a spot on her liver now!!

Scans

For Those of Us with MBC as a Late Recurrance

CT Scan Results

Spread to colon

Progression in brain 6 months after WBRT 😔

Xeloda: here’s some hand foot advice and I’m looking for fatigue management help!

MBC App on IPhone?

Erx41 New drug similar to ErSO will go to trial in January of 2023

Enjoy the day!

Faslodex

Anyone on Troldevy?

New to the group

Good scan result!

Thirvers of Beauty

Anyone with widespread bone Mets doing well?

Off topic, but WOW!

New Drug to treat ‘hard to treat’ cancers like MBC

Search posts

Pinned Posts

Latest poll

Has this community positively impacted your breast cancer journey? If yes, please describe how in the replies below

Topics

Archive