Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

6,598 members • 8,139 posts

All posts for March 2020

Has anyone been told that Ibrance will be going with tablets as soon as supply runs out. I just got mine filled -notice inside.?

Can anyone relate to this notice?

Eliactida1955

•4 years ago

12 Replies

NY's pride and joy, Central Park

I had been looking forward a month or so ago to being able to get to Central Park which is beautiful in the Spring. This is our reality now. This is Central...

I had been looking forward a month or so ago to being able to get to Central Par...

Hidden

•4 years ago

9 Replies

Letter came today

Had My Letter Today It reads that when my husband goes to work we must then sleep in separate rooms, use separate bathrooms and not be in same room unless...

Had My Letter Today It reads that when my husband goes to work we must then sle...

Nannymop

•4 years ago

29 Replies

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Today’s ‘phone consultation with Oncologist

Hi As advised, my Oncologist rang me this morning. My bloods were fine. I then had to pop to the hospital to collect my palbociclib. I was given the option...

Hi As advised, my Oncologist rang me this morning. My bloods were fine. I then...

Sunnydrinking

•4 years ago

9 Replies

Government letter

Letter has arrived from my Cancer Centre ladies and not GP. I realise 12 weeks is a long time especially in an apartment. We do have floor to ceiling wide...

Letter has arrived from my Cancer Centre ladies and not GP. I realise 12 weeks i...

Hidden

•4 years ago

20 Replies

Kids

If your shielding and your kids stay at their dads house just at weekends and stay the rest of time at you're house can they still go to both houses

If your shielding and your kids stay at their dads house just at weekends and st...

Kiera49

•4 years ago

6 Replies

Covid 19 letters and first time user of anastrazole.

Hi, I received a txt first 9 days ago, then a letter on the 26th march. I have been on taxol weekly chemo for over a yr now. Got a stable scan 3 weeks ago. So...

Hi, I received a txt first 9 days ago, then a letter on the 26th march. I have b...

Juliebythesea

•4 years ago

3 Replies

OMG.. Pain Specialist gone from cancer center

I finally had my onco get me into palliative care. I only had three appts. so far with her and was scheduled to go back on 4/7 for her to see me to write...

I finally had my onco get me into palliative care. I only had three appts. so f...

Hidden

•4 years ago

2 Replies

My appt has been changed to a ‘Phone consultation with Oncologist tomorrow

Hi Went for blood test today. I’ve just received a call not to go to my scheduled hospital appointment tomorrow. The oncologist will ring me around my...

Hi Went for blood test today. I’ve just received a call not to go to my schedul...

Sunnydrinking

•4 years ago

41 Replies

After radiation of one hip the other is swelling up

Hi all, First thank you to all who read this and give me feedback. We are all in this together and it has been so inspiring to see so many people who share...

Hi all, First thank you to all who read this and give me feedback. We are all in...

Gaily71

•4 years ago

5 Replies

No Government letters

UK ladies/gents, have you received your Government letters yet regarding guidelines for most vunerable people. My husband has diabetes and me with Stage 4...

UK ladies/gents, have you received your Government letters yet regarding guideli...

Hidden

•4 years ago

36 Replies

Anyone develop a rash with Ibrance/Letrozole?

Hi all! I’ve had a persistent, very itchy rash for about 10 days. My pcp and dermatologist could only see a photo I sent as I’m not allowed in clinic. They...

Hi all! I’ve had a persistent, very itchy rash for about 10 days. My pcp and der...

Red1246

•4 years ago

38 Replies

A Brooklyn Dad - This is how we do it! (Funny)

People in Brooklyn are just blunt and to the point like Michael Rappaport. (Graphic foul language for those who may be offended....

People in Brooklyn are just blunt and to the point like Michael Rappaport. (Gra...

Hidden

•4 years ago

6 Replies

Sharing your toilet paper with others (remember this) LOL

My favorite and how timely. https://youtu.be/Gysu0kgFwT0

Hidden

•4 years ago

2 Replies

CA 15-3

Hi ladies, my wife has MBC for 10 months now. She is on Ibrance 125mg, Faslodex and Xgeva. She has extensive bone mets, but PET-CTs are showing important...

Hi ladies, my wife has MBC for 10 months now. She is on Ibrance 125mg, Faslodex ...

Evbr

•4 years ago

17 Replies

Dexamethasone mouth rinse.

Has anyone taken this? It’s to prevent mouth sores/ulcers in mouth. I just started taking it. Dosage is 4 times each day. Wondering how long to wait between...

Has anyone taken this? It’s to prevent mouth sores/ulcers in mouth. I just start...

rpeacock

•4 years ago

8 Replies

Have you experienced heartburn on Afinitor and exemestane?

I have been taking Afinitor and exemestane for a few days and last night started getting what seems like heartburn after I ate what was for me a normal meal....

I have been taking Afinitor and exemestane for a few days and last night started...

Buffwright

•4 years ago

8 Replies

Withdraw offer

Due to all the responses to my offer of Ibrance I am withdrawing it. Sorry if I offended anyone.

Due to all the responses to my offer of Ibrance I am withdrawing it. Sorry if I ...

Gwennie123

•4 years ago

11 Replies

Good news!

Hi everyone! Just wanted to share some good news for a change. I hope it encourages others who may be needing to start on Taxol or Abraxane. I started...

Hi everyone! Just wanted to share some good news for a change. I hope it encour...

MacroMom

•4 years ago

76 Replies

Depression from isolation

I know this is a forum board for the stage iv but since the virus started, things have changed for all of us so much. I live in Brooklyn, NY and this is...

I know this is a forum board for the stage iv but since the virus started, thing...

Hidden

•4 years ago

46 Replies

Hair regrowth

Ok so I complained when I knew I was going to lose my hair from Taxol chemotherapy. I went off that in June and my hair has been growing back. I am on Gemzar...

Ok so I complained when I knew I was going to lose my hair from Taxol chemothera...

Jerseygirl45

•4 years ago

22 Replies

New York getting worse

Mayor on TV. Now over 21,600 people in NY infected and thus far we have over 281 deaths. Social isolation, we are going to have to do this for quite some...

Mayor on TV. Now over 21,600 people in NY infected and thus far we have over 28...

Hidden

•4 years ago

12 Replies

Struggling to get a travel refund ...

Hi Ladies We were due to travel to the USA on 12 April and sadly this has been cancelled due to COVID -19. We are struggling to get a refund and they want to...

Hi Ladies We were due to travel to the USA on 12 April and sadly this has been c...

Sunnydrinking

•4 years ago

8 Replies

New masks available for social distancing

This would keep me six feet away for sure, especially in Brooklyn where we have an increasingly high number of weird and strange residents.

This would keep me six feet away for sure, especially in Brooklyn where we have ...

Hidden

•4 years ago

3 Replies

The Artist

How do you know when your Ibrance isn’t working anymore.

The-artist

•4 years ago

4 Replies

AMERICAN ASSOCIATION FOR CANCER RESEARCH (aacr) BEWARE OF EMAIL (LOOKS VALID)

Deceptive site ahead - (There is such an organization and the women's name is valid and does work at the American Association for Cancer Research but...

Deceptive site ahead - (There is such an organization and the women's name is ...

Hidden

•4 years ago

Be the first to reply

Nausea after pelvis and leg radiation

Has anyone experienced nausea after radiation of the hip and leg ? I am having high doses of radiation for these areas and I am very nauseous.

Has anyone experienced nausea after radiation of the hip and leg ? I am having h...

Gaily71

•4 years ago

3 Replies

VERZENIO SIDE EFFECTS

Verzenio Are any of you on Verzenio and have low white cells. If they keep going down after taking a week off, what happens. Do they stop the drug? Any...

Verzenio Are any of you on Verzenio and have low white cells. If they keep goi...

Klamato

•4 years ago

12 Replies

Scores went up a little over 100 points when off ibrance for 2 weeks

Hi guys I went off ibrance for almost 3 weeks because of the need for radiation treatment to my hip and femur. I was to the point that I could not walk...

Hi guys I went off ibrance for almost 3 weeks because of the need for radiation...

Gaily71

•4 years ago

1 Reply

Ct scan

40 months of ibrance and another stable scan. I will not let a virus take me out. Following all the guidelines. Trying not to go stir crazy. FaceTime with my...

40 months of ibrance and another stable scan. I will not let a virus take me out...

Lakelifenh

•4 years ago

17 Replies

Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

All posts for March 2020

Has anyone been told that Ibrance will be going with tablets as soon as supply runs out. I just got mine filled -notice inside.?

NY's pride and joy, Central Park

Letter came today

Today’s ‘phone consultation with Oncologist

Government letter

Kids

Covid 19 letters and first time user of anastrazole.

OMG.. Pain Specialist gone from cancer center

My appt has been changed to a ‘Phone consultation with Oncologist tomorrow

After radiation of one hip the other is swelling up

No Government letters

Anyone develop a rash with Ibrance/Letrozole?

A Brooklyn Dad - This is how we do it! (Funny)

Sharing your toilet paper with others (remember this) LOL

CA 15-3

Dexamethasone mouth rinse.

Have you experienced heartburn on Afinitor and exemestane?

Withdraw offer

Good news!

Depression from isolation

Hair regrowth

New York getting worse

Struggling to get a travel refund ...

New masks available for social distancing

The Artist

AMERICAN ASSOCIATION FOR CANCER RESEARCH (aacr) BEWARE OF EMAIL (LOOKS VALID)

Nausea after pelvis and leg radiation

VERZENIO SIDE EFFECTS

Scores went up a little over 100 points when off ibrance for 2 weeks

Ct scan

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