Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

6,601 members • 8,139 posts

All posts for February 2023

They're talking 'bout my generation! Check it out! <3

UPDATE: Saw onc on 3/7 and my ibrance being reduced to 100 mg. starting next cycle due to crazy high blood pressure and cough. When I took it 2 years or so...

UPDATE: Saw onc on 3/7 and my ibrance being reduced to 100 mg. starting next cy...

Godbeforme

•1 year ago

16 Replies

Letrozole

Hi everyone, I just wondered about the side effects of Letrozole. I had 7mm bc removed via lumpectomy, due to have radiotherapy soon, no chemo required. I am...

Hi everyone, I just wondered about the side effects of Letrozole. I had 7mm bc r...

Discolove

•1 year ago

77 Replies

Asking for advice on the best brand of mediport

Hello sisters, I am planning to have a mediport implant because my veins are so thin and it usually takes 3 tries for the nurse to draw blood. What brand are...

Hello sisters, I am planning to have a mediport implant because my veins are so ...

MyMiracle13

•1 year ago

28 Replies

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Enhertu

Hello, I just started Enhertu a week ago and have had a really hard time with nausea, diarrhea, and just not feeling well. Does anyone have positive stories...

Hello, I just started Enhertu a week ago and have had a really hard time with ...

atoth17

•1 year ago

16 Replies

Kisqali

Kisqali is making me very dizzy. Any advice?

Shafight

•1 year ago

2 Replies

Change from HER2 negative to HER2 positive?

Has anyone had a change from HER2 negative to HER2 positive? Taking Ibrance 100mg\\monthly Faslodex injections for past 2 years. Tumor marker rise over past...

Has anyone had a change from HER2 negative to HER2 positive? Taking Ibrance 100...

MarshMom

•1 year ago

8 Replies

piqray

I was on Piqray and Fulvestrant for two years with MBC with the Piq mutation. A large percentage of us have it, but not all doctors test. I took it after...

I was on Piqray and Fulvestrant for two years with MBC with the Piq mutation. A...

Buffwright

•1 year ago

16 Replies

Going back on Ibrance

My onc and I made decision for me to try Ibrance 75. I can’t remember how to take dosage other than 21 on and 7 off. Can anyone help?

My onc and I made decision for me to try Ibrance 75. I can’t remember how to tak...

Granny333

•1 year ago

42 Replies

Wonderful service!

Two weeks ago, I left my home in West Sussex to stay temporarily in the Western isles if Scotland with my partner pending us finding a property on the...

Two weeks ago, I left my home in West Sussex to stay temporarily in the Western ...

Beryl71

•1 year ago

12 Replies

Read this on MedPage today

I receive emails every day from MedPage with information about new treatments for various cancers and other life-threatening illness as well as other medical...

I receive emails every day from MedPage with information about new treatments fo...

love2golfwell

•1 year ago

1 Reply

can anyone give me any idea in a ct result please ie meaning many thanks

hi I had a recent ct scan which showed good response to my chemo for my cancer and my bones are healing and liver is so small and subtle and remains unchanged...

hi I had a recent ct scan which showed good response to my chemo for my cancer a...

Sharonpat

•1 year ago

7 Replies

Well, so much for feeling normal....

Some of you may have read my long story on the Enhertu infusion. I have it in my lungs, spine and then it spread to my liver and the next treatment (Xeloda, I...

Some of you may have read my long story on the Enhertu infusion. I have it in m...

kearnan

•1 year ago

33 Replies

Great appt with oral surgeon re ONJ

Well. I do indeed have ONJ but caught it early and both my husband and I really liked the oral surgeon I saw yesterday. He spent alot of time with us, and...

Well. I do indeed have ONJ but caught it early and both my husband and I really...

PJBinMI

•1 year ago

12 Replies

A community of HOPE

I am new to this group . So many life changes in such a short period of time . 2 small kids , I had 3 opinions before starting treatment . started with...

I am new to this group . So many life changes in such a short period of time . 2...

Chewysmom

•1 year ago

16 Replies

Metastatic Breast Cancer Conference in April

Registration just opened for the Living Beyond Breast Cancer conference....

TammyCross

•1 year ago

9 Replies

Travelling

It has always been on our bucket list to visit my friend in Australia. I have er,pr positive breast cancer that metastized to my pleural lining. I am on...

It has always been on our bucket list to visit my friend in Australia. I have er...

Chef50

•1 year ago

31 Replies

possible ONJ-- seeing an oral surgeon for the first time tomorrow morning

My dentist referred me to an oral surgeon as I have a small area of exposed bone behind my right lower molar, and have been on meds for bone mets (Zometa...

My dentist referred me to an oral surgeon as I have a small area of exposed bone...

PJBinMI

•1 year ago

6 Replies

kisqali experience

I’m supposed to begin Kisqali this. I’m waiting for Medicare approval. Does anyone have experience with this drug

I’m supposed to begin Kisqali this. I’m waiting for Medicare approval. Does an...

Shafight

•1 year ago

14 Replies

NZ cyclone update and more pics-skip if not your thing

so many sad stories of orchards farms and vineyards being under newly formed lakes…houses filling up with mud. Still many without power and small towns with...

so many sad stories of orchards farms and vineyards being under newly formed lak...

Bettybuckets

•1 year ago

24 Replies

Question to my NJ sisters

I got to the point that I can’t stay with my oncologist any more for many reasons. One of them is that she doesn’t see me as a patient, but just as cancer. No...

I got to the point that I can’t stay with my oncologist any more for many reason...

Tolife_18

•1 year ago

31 Replies

While visiting Auckland nz, I visited and gained new perspective from my previous oncologist

It was lovely to see her! She had just had 2 weeks off- with 2 little kids but had all the storms and rains so not a great time I bet! I big hug hello...

It was lovely to see her! She had just had 2 weeks off- with 2 little kids but h...

Bettybuckets

•1 year ago

34 Replies

New Study released Re: five on/two off Ibrance dosing

I believe this is the completion of the 2nd trial for the alternative dosing (5 on/2 off) of ibrance, just released TODAY! Someone who knows how to read these...

I believe this is the completion of the 2nd trial for the alternative dosing (5 ...

Godbeforme

•1 year ago

4 Replies

got my user name back

I have finally got my user name back , I am now Liessie 2014

Liessie2014

•1 year ago

2 Replies

NZ cyclone was devastating! A rare National Emergency…

So much rain that we are calling it the Bummer Summer. I safely road out the storm at my BFF Ruth’s house while she skied in Japan… the waves crashed into the...

So much rain that we are calling it the Bummer Summer. I safely road out the sto...

Bettybuckets

•1 year ago

20 Replies

itchy from ibrance

hey ladies. Just wondering has anyone got itchy on their off week of ibrance. Been on it over 5 years and this just started. Thanks so much

hey ladies. Just wondering has anyone got itchy on their off week of ibrance. Be...

marianne88

•1 year ago

10 Replies

arimadex

anyone taking this. I start today. What should I expect

Shafight

•1 year ago

14 Replies

my eyes certainly have been a problem , I don’t know where Liessie has gone lol. l will have to get used to my new name , it feels strange

I feel so relieved today , now that I have had my eyes checked at the hospital I am still seeing dots and squiggles but I am not worried now , It somehow...

I feel so relieved today , now that I have had my eyes checked at the hospital ...

Liessie2014

•1 year ago

8 Replies

hi everyone. I put a user name in for something else and some how it has changed on here as well, I am now Olwenossie I was Liessie,

it is a bit confusing, I will get use to it 😆

Liessie2014

•1 year ago

2 Replies

FDA, new approved metastatic breast, cancer drug

My oncologist told me the new drug was finally approved by the FDA for metastatic breast cancer. I can't remember the name of the drug it just happened last...

My oncologist told me the new drug was finally approved by the FDA for metastat...

Mimigram

•1 year ago

8 Replies

Former art teacher with a passion for travel

Former art teacher. I started traveling in my fifties and it became my passion (I’ve visited 41 countries so far!) until Covid and then my stage 4 diagnosis...

Former art teacher. I started traveling in my fifties and it became my passion ...

Chamisa

•1 year ago

21 Replies

Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

All posts for February 2023

They're talking 'bout my generation! Check it out! <3

Letrozole

Asking for advice on the best brand of mediport

Enhertu

Kisqali

Change from HER2 negative to HER2 positive?

piqray

Going back on Ibrance

Wonderful service!

Read this on MedPage today

can anyone give me any idea in a ct result please ie meaning many thanks

Well, so much for feeling normal....

Great appt with oral surgeon re ONJ

A community of HOPE

Metastatic Breast Cancer Conference in April

Travelling

possible ONJ-- seeing an oral surgeon for the first time tomorrow morning

kisqali experience

NZ cyclone update and more pics-skip if not your thing

Question to my NJ sisters

While visiting Auckland nz, I visited and gained new perspective from my previous oncologist

New Study released Re: five on/two off Ibrance dosing

got my user name back

NZ cyclone was devastating! A rare National Emergency…

itchy from ibrance

arimadex

my eyes certainly have been a problem , I don’t know where Liessie has gone lol. l will have to get used to my new name , it feels strange

hi everyone. I put a user name in for something else and some how it has changed on here as well, I am now Olwenossie I was Liessie,

FDA, new approved metastatic breast, cancer drug

Former art teacher with a passion for travel

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