Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

6,817 members•8,440 posts

All posts for March 2022

Stunned, scared, sad, but grateful and happy to be here!

Hello everyone - I haven’t posted much, but wondering if I can get support, advice, experience. Me: 52yo. Mom of 21yo twins. I hit 10 years “clean” in Aug...

Hello everyone - I haven’t posted much, but wondering if I can get support, advi...

Fifilatour

•3 years ago

20 Replies

Oesophagal thickenning

Hi ladies Just wondered if anyone has experienced spread to their oesophagus? Mum has it in her lung and lymph node. Latest scan stable apart from this...

Hi ladies Just wondered if anyone has experienced spread to their oesophagus? Mu...

Millie666

•3 years ago

3 Replies

Are there any members of this group that currently have metastatic breast cancer that has spread to the abdomen/stomach area?"

I would like to get in touch with other survivors who are dealing with metastatic breast cancer that has spread to the stomach/abdomen area--mesentery, omentum...

I would like to get in touch with other survivors who are dealing with metastati...

PeabodyTerrace

•3 years ago

10 Replies

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Well sisters! Today is a bright orange day! What color is your day?

I went to a spa and got a primo mani pedi… shout out to my nailtek @St Regis also a breast cancer survivor. As the saying goes, we are not alone! Peace and...

I went to a spa and got a primo mani pedi… shout out to my nailtek @St Regis als...

Hotlantaphatz

•3 years ago

5 Replies

EF effect with Herceptin

Any of you ladies on Herceptin/ Perjeta have had your EF ( Ejection fraction) declined more than 10 points? If so, do you see a cardiologist and what's your...

Any of you ladies on Herceptin/ Perjeta have had your EF ( Ejection fraction) de...

EZSZ

•3 years ago

49 Replies

Off Ibrance for 1 week/ Advice and thoughts.

Hi everyone I have had a sore tooth , back molar and earache for a few days, feel ok tho and no temperature My dentist said infection and has given me...

Hi everyone I have had a sore tooth , back molar and earache for a few days, fe...

debbiedo2063

•3 years ago

24 Replies

Quick update

Hi Just to let you know I’m currently in hospital with Hypercalcemia (very high calcium levels) & Covid 19. I’m feeling okish & I’m in very safe hands. I will...

Hi Just to let you know I’m currently in hospital with Hypercalcemia (very high ...

Sunnydrinking

•3 years ago

52 Replies

Change of medication? HELP!

Palbo/ ibrance causing lung issues, (also lung changes seen on CT) I am in the UK and wonder what chemo might be offered. I cannot have more targeted therapy...

Palbo/ ibrance causing lung issues, (also lung changes seen on CT) I am in the U...

Rotagirl

•3 years ago

7 Replies

Verzenio

Hello, Are there many women who take 150mg of verzeino twice a day. Helena

Iwouldlike2knowmore

•3 years ago

19 Replies

Verzenio

Hello, I will be starting Verzenio are there many women who lose there hair. Helena

Hello, I will be starting Verzenio are there many women who lose there hair. Hel...

Iwouldlike2knowmore

•3 years ago

2 Replies

Dana Farber IBrance Holiday Study - Anyone Done This?

Hi fellow MBC’ers: If IBrance stops working the next line of treatment is typically not preferred but necessary. Plus, we know the longer you can stay on your...

Hi fellow MBC’ers: If IBrance stops working the next line of treatment is typica...

hopenowandtomorrow

•3 years ago

19 Replies

Evusheld & other Covid Prevention / Treatment for Immunocompromised People

Hi all, I’m in the US and wanted to share the below info on Covid prevention/treatment options for immunocompromised folks. Scientists are just starting to...

Hi all, I’m in the US and wanted to share the below info on Covid prevention/tre...

LDR1

•3 years ago

2 Replies

Any good therapists suggestions?

I live in the Atlanta Georgia area. Need a new counselor/therapist who works with cancer patients. Weekly; remote is ok. Any suggestions?

I live in the Atlanta Georgia area. Need a new counselor/therapist who works wit...

Hotlantaphatz

•3 years ago

2 Replies

MBC— Day by day, test by test, treatment by treatment. Today is a gray day!

CT scan looked very good and so did labs. I am so stressed I was not sure how to react to the news. Thinking wow how long is that going to last. Not easy...

CT scan looked very good and so did labs. I am so stressed I was not sure how to...

Hotlantaphatz

•3 years ago

20 Replies

neutrophil count

Hi - I'm at the end of the first cycle of ribociclib and letrozole and my neutrophil count is very low ... as are all my bloods. I'm on the week gap...

Hi - I'm at the end of the first cycle of ribociclib and letrozole and my neutro...

susiemarmite

•3 years ago

21 Replies

Piqray causing kidney failure

Has anyone been taken off Piqray because it caused kidney failure? If so, what drug did your Oncologist prescribe? Or did you do chemo? Thank you

Has anyone been taken off Piqray because it caused kidney failure? If so, what ...

Gailcav

•3 years ago

10 Replies

Erolimus and Exemestane Treatment after Palbociclib stops working.

I am reaching out reference feedback on the Exemestane and Everolimus ( EE) treatment for SBC . I have lesions in spine, pelvis, occipital and just recently...

I am reaching out reference feedback on the Exemestane and Everolimus ( EE) trea...

POPS60

•3 years ago

12 Replies

Never gloating. Just so very grateful for each time this happens.

Got another lots of scans done last week. And apart from the terrible pain in both thumbs.... No spread. No growth to existing tumours. 4 years sin diagnosis...

Got another lots of scans done last week. And apart from the terrible pain in bo...

Timtam56

•3 years ago

34 Replies

North Uist

Living for the day, with my partner for a few weeks .

Beryl71

•3 years ago

14 Replies

Anxiety BC

Hello everyone , I am 23 years old, and I have posted about my mom's BC diagnosis before. She was diagnosed in 2020 at 46 and thankfully it had not expanded to...

Hello everyone , I am 23 years old, and I have posted about my mom's BC diagnosi...

janeths466

•3 years ago

12 Replies

Finally some sunshine.

Just a photo from my walk by the beach earlier today. Its been unusually cold here recently and this is the first warmer weekend in months. I managed to do...

Just a photo from my walk by the beach earlier today. Its been unusually cold he...

Discocat

•3 years ago

16 Replies

Dental work and Xgeva, I need lots of work done , so scared of dentists to begin with . What to do , so scared 😭. HELP

I’m crying in fear , A horrible experience at the dentist has had me to stop going 10 years ago. I need work done, I’m on Xgeva now for six months, before...

I’m crying in fear , A horrible experience at the dentist has had me to stop go...

Ycats277

•3 years ago

39 Replies

Pain under non tumor breast

I have been on Ibrance and Letrozole with Zometa infusion every three months for 5 years. This last month I started having a mild pain under my breast , when I...

I have been on Ibrance and Letrozole with Zometa infusion every three months for...

Gmaoftriplets

•3 years ago

10 Replies

Liver mets question 🙋‍♀️

Question over liver mets…. Having been bone only since 2018, on leterzol and palbociclib, my last Ct came back with subtle changes to the texture of the liver....

Question over liver mets…. Having been bone only since 2018, on leterzol and pal...

Glas0824

•3 years ago

6 Replies

Kisqali (ribociclib) update on Overall Survival improvement

March 21, 2022 Overall Survival With Ribociclib Plus Letrozole in Advanced Breast Cancer The New England Journal of Medicine TAKE-HOME MESSAGE "This report...

March 21, 2022 Overall Survival With Ribociclib Plus Letrozole in Advanced Brea...

Hazelgreen

•3 years ago

43 Replies

Liver Met Pain

Hi Fellow Thrivers if you have or had Liver Mets a question for you , what symptoms have you had from liver mets ? If there is pain is it constant ? Does it...

Hi Fellow Thrivers if you have or had Liver Mets a question for you , what sympt...

Hidden

•3 years ago

23 Replies

Pet Ct Findings

Hi everyone, I have been on Xeloda for 6 months and my PET CT showed improvement in liver and bones. But it showed the endometrium thickness 20mm and some...

Hi everyone, I have been on Xeloda for 6 months and my PET CT showed improvement...

Cureforever

•3 years ago

28 Replies

Budesonide…

Hi ladies,hope you all are doing fine:) So my mom has lots of nasal polyps,that’s why she’s been having congested nose for a long period of time and mucus,so...

Hi ladies,hope you all are doing fine:) So my mom has lots of nasal polyps,that...

SabaAK

•3 years ago

2 Replies

Lungs biopsy

Anybody had a lungs biopsy? What’s it like?

mbogorad

•3 years ago

21 Replies

Mouth Sores

I have been on Ibrance (125 mg) and Letrozole since November 2021 and have just started experiencing mouth/tongue sores. Can anyone recommend a mouthwash or...

I have been on Ibrance (125 mg) and Letrozole since November 2021 and have just ...

PeabodyTerrace

•3 years ago

24 Replies

Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

All posts for March 2022

Stunned, scared, sad, but grateful and happy to be here!

Oesophagal thickenning

Are there any members of this group that currently have metastatic breast cancer that has spread to the abdomen/stomach area?"

Well sisters! Today is a bright orange day! What color is your day?

EF effect with Herceptin

Off Ibrance for 1 week/ Advice and thoughts.

Quick update

Change of medication? HELP!

Verzenio

Verzenio

Dana Farber IBrance Holiday Study - Anyone Done This?

Evusheld & other Covid Prevention / Treatment for Immunocompromised People

Any good therapists suggestions?

MBC— Day by day, test by test, treatment by treatment. Today is a gray day!

neutrophil count

Piqray causing kidney failure

Erolimus and Exemestane Treatment after Palbociclib stops working.

Never gloating. Just so very grateful for each time this happens.

North Uist

Anxiety BC

Finally some sunshine.

Dental work and Xgeva, I need lots of work done , so scared of dentists to begin with . What to do , so scared 😭. HELP

Pain under non tumor breast

Liver mets question 🙋‍♀️

Kisqali (ribociclib) update on Overall Survival improvement

Liver Met Pain

Pet Ct Findings

Budesonide…

Lungs biopsy

Mouth Sores

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