Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

6,809 members•8,426 posts

All posts for November 2023

Exemestane side effects?

With a great deal of effort, I managed to get my exemestane switched back to the original generic. I still have diarrhea, but not as extreme with the other...

With a great deal of effort, I managed to get my exemestane switched back to the...

TammyCross

•1 year ago

45 Replies

Newbie MBS in bones. Has anyone tried Reishi or Cordyceps?

Newbie MBS in bones and vertebra detected 2 months ago and masectomy and lymph nodes removed last April 2022. Have been put on letrozol 6 months ago and with...

Newbie MBS in bones and vertebra detected 2 months ago and masectomy and lymph n...

Tanyateresa

•1 year ago

7 Replies

Flying

Thankyou to all of you chat buddies

Liessie2014

•1 year ago

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Flying whilst having MBC in lungs

I would like to say a big Thankyou to everybody who responded to my query about flying , it was brilliant to hear so much positivity , it’s lovely to hear so...

I would like to say a big Thankyou to everybody who responded to my query about ...

Liessie2014

•1 year ago

7 Replies

Mastectomy after 7 years of MBC

I have had MBC for 7 years still on my first line of treatment (Ibrance/Letrozole) my PET scan in September showed the tumor in my breast has increased in size...

I have had MBC for 7 years still on my first line of treatment (Ibrance/Letrozol...

Gmaoftriplets

•1 year ago

12 Replies

Lynparza for bone/liver mets - success?

Hello! Unfortunately, my PET scan revealed bone progression and 4 new liver lesions. I will be switching from Enhertu (was on Enhertu for a year) to...

Hello! Unfortunately, my PET scan revealed bone progression and 4 new liver le...

miconrad

•1 year ago

1 Reply

Even More Catching Up!!!

I saw the rad onc today and he explained things more clearly and taking everything into account than any doc I can remember seeing! The brain met's location...

I saw the rad onc today and he explained things more clearly and taking everythi...

PJBinMI

•1 year ago

5 Replies

Flying

hello everyone, I have been asked to go to France for the New Year, I live in the UK, I have metastic breast cancer in both lungs , I was wondering if...

hello everyone, I have been asked to go to France for the New Year, I live in...

Liessie2014

•1 year ago

24 Replies

high calcium

has anyone dealt with high calcium. ? Does it mean cancer is growing. I have low vitd but it needs to be higher. Afraid with high calcium. I have bone Mets.

has anyone dealt with high calcium. ? Does it mean cancer is growing. I have low...

Praising

•1 year ago

11 Replies

Catching up

Warning, I won't be fixing typos right now! I got a call a bit ago--mnow schedualed with radiation onc first thing tomorrow! I am really happy, LOL! Hoping...

Warning, I won't be fixing typos right now! I got a call a bit ago--mnow schedu...

PJBinMI

•1 year ago

12 Replies

hip replacement advice

Thank you all for your extremely helpful responses to my question on hip replacement! I am just starting research on ortho surgeons and would like to proceed....

Thank you all for your extremely helpful responses to my question on hip replac...

ClarenceO

•1 year ago

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Afinitor +ESR1 mutation for the hive mind.

Hi I am starting Afinitor on Wednesday after a mixed scan a few weeks ago after 6 months on Orserdu. It suddenly dawned on me that Afinitor is combined with...

Hi I am starting Afinitor on Wednesday after a mixed scan a few weeks ago after...

Pbsoup

•1 year ago

15 Replies

Ct DNA tests

Do any of your oncologists use the ctDNA tests for help in deciding which treatment is more likely to have a positive effect when changing treatments?

Do any of your oncologists use the ctDNA tests for help in deciding which treatm...

Trissh

•1 year ago

3 Replies

November to remember...

I quietly join this forum, due to my mom's and sis. diagnosed of stg4MBC.this month, mom 's journey peacefully ended. Family and friends honor her, after her...

I quietly join this forum, due to my mom's and sis. diagnosed of stg4MBC.this mo...

wmaker

•1 year ago

12 Replies

new MBC drug for PIK3CA mutation in Hr+HER- breast cancer survivors

On Nov 16, 2023, the FDA approved another drug for those who have developed the PIK3CA. Mutation after first line treatment for the HR+HER- type. It’s another...

On Nov 16, 2023, the FDA approved another drug for those who have developed the ...

Dragonfly2

•1 year ago

8 Replies

Does anyone have CtDna blood test added In their monitoring routine?

Hi! Kim 43 MBC since 3/2021. I do alot of reading of clinical trials and medical journals. I found this CtDna blood test that SUPPOSEDLY detects cancer cells...

Hi! Kim 43 MBC since 3/2021. I do alot of reading of clinical trials and medical...

KimberlyB40

•1 year ago

13 Replies

Tumour marker

I have been in Ibrance, Letrozole and six monthly Denusomab shots for 3 years and 9 months with NEADs from the first Pet scan. C15.3 and CEA have fluctuated...

I have been in Ibrance, Letrozole and six monthly Denusomab shots for 3 years an...

Gramat

•1 year ago

8 Replies

We have so much to be thankful for!

Seeing the TV news tonight about the prisoners released today in Israel and Palestine brought me to tears! Hard as MBC is to live with, so many people have it...

Seeing the TV news tonight about the prisoners released today in Israel and Pale...

PJBinMI

•1 year ago

8 Replies

hip replacement advice

Has anyone had joint replacement after being diagnosed with MBC? If so, do you have any advice? I was diagnosed with MBC to the bones and liver July 2020....

Has anyone had joint replacement after being diagnosed with MBC? If so, do you ...

ClarenceO

•1 year ago

11 Replies

Has anyone been on Ibrance for over 5 years?

Happy Thanksgiving! I'm 43, MBC to almost every bone in my body Hr Positive HER2 negative. I've been on Ibrance for 2 and a half years, an I've read the...

Happy Thanksgiving! I'm 43, MBC to almost every bone in my body Hr Positive HER2...

KimberlyB40

•1 year ago

39 Replies

Xeloda after IV Chemo

Just wondering about Oral Xeloda after 6 rounds of IV Chemo didnt have the exact desired results we wanted. Wondering if there are times Xeloda achieved clear...

Just wondering about Oral Xeloda after 6 rounds of IV Chemo didnt have the exact...

AutumnLove

•1 year ago

6 Replies

Great appointment and Happy American Thanksgiving from Canada!

My Mom had her monthly lab work with Faslodex injection today. Her labs are excellent and the liver met is stable. She’s in Saint John New Brunswick and I’m...

My Mom had her monthly lab work with Faslodex injection today. Her labs are exc...

Pups2Cute

•1 year ago

13 Replies

Positiv result of cooling cap dependence on "the chemo drug"?

My friend is on Enhertu and she took the last two cycles cooling caps, the version with freezer. The result wasn't so good. Now she heard, that the reason for...

My friend is on Enhertu and she took the last two cycles cooling caps, the versi...

deHans

•1 year ago

4 Replies

Another beautiful tribute to Anne Loeser (aka Bestbird).

https://www.curetoday.com/view/saying-goodbye-to-a-cancer-patient-advocate

awesome4ever

•1 year ago

3 Replies

Covid has just hit our Thanksgiving plans!

My daughter just called to tell me she was just diagnosed with covid and can't come to our family gathering😪! She's a teacher and during the school year I...

My daughter just called to tell me she was just diagnosed with covid and can't c...

PJBinMI

•1 year ago

17 Replies

Giving Thanks

Giving Thanks to all this week. I have not posted for quite sometime, but, I read your posts often and think of all of you everyday 💕. I am thankful for your...

Giving Thanks to all this week. I have not posted for quite sometime, but, I rea...

CalGal56

•1 year ago

2 Replies

Yes to trial.

And so it starts. I’ve made the decision,. Starting a new post here because the other one was getting too confusing for me. I’ve been asked to go in for an...

And so it starts. I’ve made the decision,. Starting a new post here because the...

Timtam56

•1 year ago

13 Replies

crazy phone issues with drug store!

2 or 3 days ago, I started getting weird results when I needed to order refills for some of my meds! I've been getting nearly all my meds at the pharmacy at a...

2 or 3 days ago, I started getting weird results when I needed to order refills ...

PJBinMI

•1 year ago

10 Replies

lines of treatment

may I ask women in the UK how many lines of treatment we get on the NHS? I read of people in US with 9 or 10 but think we have less options in uk? Thanks PS...

may I ask women in the UK how many lines of treatment we get on the NHS? I read...

Jessie55

•1 year ago

36 Replies

Change your bloodwork!

Hello beautiful ladies! For those of you that would like to improve your bloodwork! It can be done and you have NOTHING to lose! ;) Just 10 days of...

Hello beautiful ladies! For those of you that would like to improve your bloodw...

SunShineEveryDay

•1 year ago

8 Replies

Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

All posts for November 2023

Exemestane side effects?

Newbie MBS in bones. Has anyone tried Reishi or Cordyceps?

Flying

Flying whilst having MBC in lungs

Mastectomy after 7 years of MBC

Lynparza for bone/liver mets - success?

Even More Catching Up!!!

Flying

high calcium

Catching up

hip replacement advice

Afinitor +ESR1 mutation for the hive mind.

Ct DNA tests

November to remember...

new MBC drug for PIK3CA mutation in Hr+HER- breast cancer survivors

Does anyone have CtDna blood test added In their monitoring routine?

Tumour marker

We have so much to be thankful for!

hip replacement advice

Has anyone been on Ibrance for over 5 years?

Xeloda after IV Chemo

Great appointment and Happy American Thanksgiving from Canada!

Positiv result of cooling cap dependence on "the chemo drug"?

Another beautiful tribute to Anne Loeser (aka Bestbird).

Covid has just hit our Thanksgiving plans!

Giving Thanks

Yes to trial.

crazy phone issues with drug store!

lines of treatment

Change your bloodwork!

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