Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

6,600 members • 8,139 posts

All posts for October 2023

Bronchoscopy

Tomorrow I am having a bronchoscopy and it's obviously necessary since I have lung involvement with my breast cancer. I am having a little anxiety about this...

Tomorrow I am having a bronchoscopy and it's obviously necessary since I have lu...

monkeygirl62

•6 months ago

16 Replies

A month's vacation from Ibrance

Has anyone taken a month off and, if so, did your cancer antigens go right up or did everything maintain it's level? After a year, I feel like my body could...

Has anyone taken a month off and, if so, did your cancer antigens go right up or...

Godbeforme

•6 months ago

11 Replies

Molecular testing

Curious if anyone has had molecular testing (Caris or Tempus) on their tumors or tissue. And if so, did it result in a treatment that your cancer responded to?...

Curious if anyone has had molecular testing (Caris or Tempus) on their tumors or...

ndastrogal

•6 months ago

8 Replies

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Eribulin vs Xeloda

Hi Everyone! This is my first time posting and was hoping to get some feedback. My mom will be starting either Eribulin or Xeloda. I see lots of recent posts...

Hi Everyone! This is my first time posting and was hoping to get some feedback....

Loli19

•6 months ago

19 Replies

Intriguing new research discovery

Interesting news: Scientists a Pennsylvania State University have discovered a protein that allows metastatic cancer cells to move from one place to the next....

Interesting news: Scientists a Pennsylvania State University have discovered a p...

LDR1

•6 months ago

4 Replies

radiation for painful shoulder

My shoulder has been very painful for 2 months. My Onc suggested radiation to my shoulder. Has anyone had radiation because of painful Mets?

My shoulder has been very painful for 2 months. My Onc suggested radiation to my...

Shafight

•6 months ago

21 Replies

Orserdu

My second line of treatment, faslodex has stopped working - progression in the lungs. I might start taking orserdu if I have the mutation: ESR1. Does anyone...

My second line of treatment, faslodex has stopped working - progression in the l...

NPmary

•6 months ago

4 Replies

Anyone heard from them ?

Has anyone heard from girlsptz ( Sandra)or teddilottie. They were around when I first joined and I met them on zoom. I know girlsptz left the forum after some...

Has anyone heard from girlsptz ( Sandra)or teddilottie. They were around when I ...

Beryl71

•6 months ago

13 Replies

Good news

I said recently in my post that I'm pleased not to dwell on the numbers and keep everything in perspective. But I still appreciate good news when it comes....

I said recently in my post that I'm pleased not to dwell on the numbers and keep...

Beryl71

•6 months ago

30 Replies

what’s your thoughts are meaning

2: Left hilar lymph node: Current: N/A. No longer visualized. This node has apparently been sterilized. Prior: 10 x 9 mm. 3: Subcarinal lymph node: Current:...

2: Left hilar lymph node: Current: N/A. No longer visualized. This node has app...

Flower1513

•6 months ago

4 Replies

Good news? Maybe.

The investigational anti-body drug conjugate (ADC) datopotamab deruxtecan (Dato-DXd) was associated with both improved progression-free survival and better...

The investigational anti-body drug conjugate (ADC) datopotamab deruxtecan (Dato-...

Kerryd22

•6 months ago

21 Replies

Liver Mets

I have Mets to the liver only.

Frenchgirl68

•6 months ago

4 Replies

Routine Scan

Thanks to everyone for the kind words. This is just a routine scan. There are no new symptoms and the blood work has been good.

Thanks to everyone for the kind words. This is just a routine scan. There are no...

Frenchgirl68

•6 months ago

6 Replies

Anxious About Scan

I have a scan coming up next Wednesday, Unam feeling very anxious. Is this a common feeling. I am afraid of disease progression, and I am afraid my medication...

I have a scan coming up next Wednesday, Unam feeling very anxious. Is this a co...

Frenchgirl68

•6 months ago

20 Replies

one more tumor marker question?

As some of you read my moms 15-3 marker went up from 163 to 332. She’s been on her new combo for 7 weeks. Everolimus and Faslodex . She finished a five day...

As some of you read my moms 15-3 marker went up from 163 to 332. She’s been on...

Flower1513

•6 months ago

30 Replies

Radio clip about us

Brian Lehrer on NYC public radio did a brief piece for BC Awareness month. called "What's Hidden Behind the Pink Ribbon." He was asking this woman who has been...

Brian Lehrer on NYC public radio did a brief piece for BC Awareness month. calle...

TammyCross

•6 months ago

15 Replies

Working during treatment

Hi all - wanted to get others experience re work and having treatment. I’ve managed to work since 2020 with different oral meds & fulvestrant but now I’ve...

Hi all - wanted to get others experience re work and having treatment. I’ve mana...

Ntash01

•6 months ago

13 Replies

Hello

just wanted to pop in and introduce myself. Iam currently dealing with Stage IV metastatic Breast Cancer - spread to the bone. I am always glad to hear...

just wanted to pop in and introduce myself. Iam currently dealing with Stage IV...

Vflebla

•6 months ago

18 Replies

How is everyone doing today?

Hello to all my sweet friends on here! :) It’s been a while since I’ve been on here and I have truly missed you guys! This website is very different from any...

Hello to all my sweet friends on here! :) It’s been a while since I’ve been on...

SunShineEveryDay

•6 months ago

23 Replies

Pik3Ca and ERRB2 mutations in metastatic BC

Does anyone have these mutations?I have the two and just discovered that my second line treatment (weekly Paxlitaxel)has failed after just 12 weeks. I am...

Does anyone have these mutations?I have the two and just discovered that my sec...

Tulipsweet

•6 months ago

21 Replies

PIQRAY???

Is there anyone out there who when they took PIQRAY didnt get side affects from it???? And what dosage did you start at?? If you did get some side affects how...

Is there anyone out there who when they took PIQRAY didnt get side affects from ...

Justme153

•6 months ago

11 Replies

cancer marker 15-3

My moms marker went up from 163 to 332 . She started her second line treatment about 7 weeks ago after being on Ibrance and Femara for around 2 and half...

My moms marker went up from 163 to 332 . She started her second line treatment ...

Flower1513

•6 months ago

15 Replies

Piqray mixed results after 3 months

Hi all, after a scan last week I was disappointed to see that 3 months of Piqray has had mixed results (3 spots grew, 1 shrank, 4 stayed the same). I want to...

Hi all, after a scan last week I was disappointed to see that 3 months of Piqray...

LDR1

•6 months ago

9 Replies

ESR1 mutation

Hello everyone, I have just had a guarant 360 test and seems I have an ESR1 mutation. Can anyone tell me if they have had this? Best wishes,

Hello everyone, I have just had a guarant 360 test and seems I have an ESR1 m...

Ppppopp

•6 months ago

14 Replies

Not where I expected to be

Hello to all, After my recent dx...shock...I decided to read other posts before I shared my story. I appreciate hearing about the travelling and CTGirl1962...

Hello to all, After my recent dx...shock...I decided to read other posts befor...

Hoehn

•6 months ago

11 Replies

Zometa

Hi all, been on Zometa every three month, but having concerns to how it is affecting my kidneys, since my kidneys function has been declining consistently and...

Hi all, been on Zometa every three month, but having concerns to how it is affe...

MyDogs2

•6 months ago

28 Replies

interesting Xeloda trial

Hi friends, I listened to a presentation summarizing reports from ASCO 2023 related to MBC, and what really interested me was that for Xeloda, a fixed dose...

Hi friends, I listened to a presentation summarizing reports from ASCO 2023 rel...

HelenWi

•6 months ago

14 Replies

Intense week!

The most upsetting thing so far this week has been the death of our cat, Trey! She died last night and my husband buried her this morning, next to where her...

The most upsetting thing so far this week has been the death of our cat, Trey! ...

PJBinMI

•6 months ago

16 Replies

Elecestrant muskelteletal pain

I’m on week 4 of Elecestrant and the body aches and pains are almost unbearable. Does anyone have any advice to manage this? I’m about to tell my onc I’m done....

I’m on week 4 of Elecestrant and the body aches and pains are almost unbearable....

pinkbody2

•6 months ago

8 Replies

May be doing IV chemo for the first time. Need tips - really freaked out!

Hi, so I’ve successfully avoided doing IV chemo since 2019. But due to bone mets I just had hip surgery and the pills I’ve been on are not working. I was told...

Hi, so I’ve successfully avoided doing IV chemo since 2019. But due to bone mets...

Verbena1

•6 months ago

55 Replies

Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

All posts for October 2023

Bronchoscopy

A month's vacation from Ibrance

Molecular testing

Eribulin vs Xeloda

Intriguing new research discovery

radiation for painful shoulder

Orserdu

Anyone heard from them ?

Good news

what’s your thoughts are meaning

Good news? Maybe.

Liver Mets

Routine Scan

Anxious About Scan

one more tumor marker question?

Radio clip about us

Working during treatment

Hello

How is everyone doing today?

Pik3Ca and ERRB2 mutations in metastatic BC

PIQRAY???

cancer marker 15-3

Piqray mixed results after 3 months

ESR1 mutation

Not where I expected to be

Zometa

interesting Xeloda trial

Intense week!

Elecestrant muskelteletal pain

May be doing IV chemo for the first time. Need tips - really freaked out!

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