Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

6,598 members • 8,138 posts

All posts for January 2020

Pain

Hello everyone, I have a question that I think sounds stupid but I have to ask. I am on Ibrance 100mg and letrozole. Does anyone experience pain or ache in the...

Hello everyone, I have a question that I think sounds stupid but I have to ask. ...

Gmaoftriplets

•4 years ago

16 Replies

Emotions (Is this normal?)

Hi everyone! I read so many amazing responses to my previous post about me being scared, and honestly I am so grateful my heart was filled with warmth. Thank...

Hi everyone! I read so many amazing responses to my previous post about me being...

janeths466

•4 years ago

7 Replies

WOO HOO

So pleased was able to go out without my portable oxygen concentrator, felt so good, so not on oxygen at all, cant tell you how good it felt to look like...

So pleased was able to go out without my portable oxygen concentrator, felt so g...

Kiera49

•4 years ago

20 Replies

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My scan results are in!!

All clear 😊 Woo Hoo!!!!!!

Justme153

•4 years ago

35 Replies

Cat Scan results.

I have been on Ibrance (here we call it Palbo) for about 8 months. Had my first scan last week and get my results tomorrow. Little anxious. My touch says the...

I have been on Ibrance (here we call it Palbo) for about 8 months. Had my first...

Birdee

•4 years ago

13 Replies

My mum has passed away

Sad news ... My lovely mum passed away during the early hours of this morning, very peacefully with pneumonia. Mum was 91 and has enjoyed a good life. Mum...

Sad news ... My lovely mum passed away during the early hours of this morning, v...

Sunnydrinking

•4 years ago

53 Replies

Ibrance to Affinitor

Ibrance to Affinitor? I have been on Ibrance / Aromasin for a year (challenges with major mouthsores so only half dosage) however my markers are up 30 points....

Ibrance to Affinitor? I have been on Ibrance / Aromasin for a year (challenges w...

Thrivor

•4 years ago

4 Replies

Ibrance/ letrozole schedule change

My onc recently switched up my Ibrance/Letrozole regimen to two weeks on two weeks off. I was 3 weeks on 1 week off; but for the last 2 months had to take an...

My onc recently switched up my Ibrance/Letrozole regimen to two weeks on two wee...

Dgarrett

•4 years ago

10 Replies

Very hopeful site for those living with MBC

Hi ladies!! Stumbled upon this site and wanted to share. Very inspiring stories from women living with MBC 10+ years! http://mbcn.org/blog-3-columns-masonry/

Hi ladies!! Stumbled upon this site and wanted to share. Very inspiring stories ...

LeeannW710

•4 years ago

8 Replies

Scan results mixed 😢

Hi Girls, Feeling scared as after two months off chemo (Taxol) my livers mets have progressed to the same size as they had reduced to after nine weeks on...

Hi Girls, Feeling scared as after two months off chemo (Taxol) my livers mets ha...

BangorBelle56

•4 years ago

18 Replies

Goodbye Xeloda, Hello Taxol or Abraxane

Well, I got almost 7 months out of Xeloda, with blessedly few side effects. But my last CT scan showed that liver mets have increased, a lot, so it's time to...

Well, I got almost 7 months out of Xeloda, with blessedly few side effects. But...

MacroMom

•4 years ago

12 Replies

Check-in January 29, 2020

My dad's funeral was on Monday. Yesterday was his birthday. For anyone who has lost a parent, these things take time. I feel blessed in that his funeral was...

My dad's funeral was on Monday. Yesterday was his birthday. For anyone who has l...

SusieIM

•4 years ago

10 Replies

progression

just back from onc. Had all the scans have had eye problems for about a month optician diagnosed 6th cranial nerve palsy new in my heart something nasy back....

just back from onc. Had all the scans have had eye problems for about a month op...

lilybank

•4 years ago

9 Replies

Inbrance restart

Hi Ladies, I was wondering if anyone out there has restarted Ibrance after it has stopped working? I think that I read an article somewhere that it could be...

Hi Ladies, I was wondering if anyone out there has restarted Ibrance after it ha...

mbashura

•4 years ago

15 Replies

anyone using disulfiram (antabuse) anti alcohol abuse drug?

There is a pretty old clinical trial that is getting closer to completion using this with copper supplement (it works better with copper absorption into cancer...

There is a pretty old clinical trial that is getting closer to completion using ...

beaverstate

•4 years ago

3 Replies

Realistic Expectations

I seem to be one of the fortunate ones for whom tumor markers work. My CA 27-29 fluctuates very closely with my disease level. Early in December I had SBRT to...

I seem to be one of the fortunate ones for whom tumor markers work. My CA 27-29 ...

Arisgram

•4 years ago

23 Replies

Massage?

Hey there everyone... I have mets to my liver and peritoneal lining. Am I safe to go for a massage? Just wondering. Hope you are all feeling well❤️

Hey there everyone... I have mets to my liver and peritoneal lining. Am I safe ...

Staceyness

•4 years ago

12 Replies

Cooling Cap during chemo

Good morning, has anyone had success using cooling caps during chemo to minimize hair loss? If so where did you purchase? Thank you.

Good morning, has anyone had success using cooling caps during chemo to minimize...

gbaby321

•4 years ago

2 Replies

Live today

Goodmorning to everyone, hope you all feeling good, feeling blessed that i woke up this morning, do as much as you can, do things you want to do. Be happy,...

Goodmorning to everyone, hope you all feeling good, feeling blessed that i woke...

Alive-today

•4 years ago

8 Replies

Feeling Scared

I think receiving the news of my mom has hit me. I have been crying, then I am stable, then I cry again. However tonight I feel so weak and scared. I love my...

I think receiving the news of my mom has hit me. I have been crying, then I am s...

janeths466

•4 years ago

10 Replies

Paw Paw capsules from Nature’s Sunshine

Good evening all, Question: Do any of you know anything about Paw Paw capsules? I’m just curious if any of you are taking this and your experience with it....

Good evening all, Question: Do any of you know anything about Paw Paw capsules?...

Staysha

•4 years ago

1 Reply

Allergic

Has anyone experienced any Allergies reaction on ibrance? I'm not sure it's the cause, because I have a lots of allergies, but lately when I take my...

Has anyone experienced any Allergies reaction on ibrance? I'm not sure it's the ...

Chico64

•4 years ago

6 Replies

Claritin for Bone Pain

I have had MBC since 2017. I just wanted to let everyone know about using Claritin for Bone Pain. A friend of mine that has MBC before I did told me about it...

I have had MBC since 2017. I just wanted to let everyone know about using Clarit...

Godismycomfort

•4 years ago

21 Replies

Staging Question

Hello everyone, my apoligies for another post. I have been thinking and I am better, my mom is too. We went out today and realized life goes on and it is all...

Hello everyone, my apoligies for another post. I have been thinking and I am bet...

janeths466

•4 years ago

11 Replies

Colds

Does anyone here get colds at the end of the Ibrance cycle? It’s quite annoying but then again people at work come in sick 😷 not easy to avoid.

Does anyone here get colds at the end of the Ibrance cycle? It’s quite annoying ...

Puppy_love

•4 years ago

11 Replies

The Other Breast

Good morning Ladies, I’m in a bit of a “tizzy”. I had a right mastectomy in Oct because the cancer there was Her2 - and it was growing again after I stopped...

Good morning Ladies, I’m in a bit of a “tizzy”. I had a right mastectomy in Oct...

Staysha

•4 years ago

8 Replies

New Here (Mammogram Results Positive)

Hello I am new to this! My name is Tania, I am 21. This past year has been so rough. My mom is 43 and has me and my 2 small siblings. She is a 7 year dyalisis...

Hello I am new to this! My name is Tania, I am 21. This past year has been so r...

janeths466

•4 years ago

14 Replies

Scan results/ibrance

Thank you so much for all you lovely ladies writing to me before my scams. Helped me so much. Results are back and my cancer is stable!!! So happy.😁😁😁

Thank you so much for all you lovely ladies writing to me before my scams. Helpe...

Ppppopp

•4 years ago

62 Replies

Neutrophils finally good

As some of you know I have struggled with Ibrance. After taking it for three weeks my neutrophils would drop as low as 0.3 and would take three weeks to get...

As some of you know I have struggled with Ibrance. After taking it for three we...

Hidden

•4 years ago

23 Replies

Zometa vs. Xgeva?

I will be starting zometa shortly...however I have heard Xgeva is better for bone mets? Any opinions or advice?

I will be starting zometa shortly...however I have heard Xgeva is better for bon...

JimmyStewartHarvey

•4 years ago

10 Replies

Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

All posts for January 2020

Pain

Emotions (Is this normal?)

WOO HOO

My scan results are in!!

Cat Scan results.

My mum has passed away

Ibrance to Affinitor

Ibrance/ letrozole schedule change

Very hopeful site for those living with MBC

Scan results mixed 😢

Goodbye Xeloda, Hello Taxol or Abraxane

Check-in January 29, 2020

progression

Inbrance restart

anyone using disulfiram (antabuse) anti alcohol abuse drug?

Realistic Expectations

Massage?

Cooling Cap during chemo

Live today

Feeling Scared

Paw Paw capsules from Nature’s Sunshine

Allergic

Claritin for Bone Pain

Staging Question

Colds

The Other Breast

New Here (Mammogram Results Positive)

Scan results/ibrance

Neutrophils finally good

Zometa vs. Xgeva?

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