Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

6,597 members • 8,137 posts

All posts for October 2020

Metaplastic carcinoma breast cancer

Hi Ladies I am new on this site. Does anyone have an element of metaplastic carcinoma in their breast cancer. I am also strongly ER+. Would love to hear from...

Hi Ladies I am new on this site. Does anyone have an element of metaplastic carc...

Jazzy2019

•3 years ago

56 Replies

Hi! New to the forum

What time of day do you feel is best to take Ibrance?

Hesgotus4sure

•3 years ago

68 Replies

Info on clinical trial with "Oral Faslodex/Fulvestrant"?

Hi everyone, After 3.5 years of positive response on Ibrance/Letrozole, my wife has seen some progression--so yesterday, she began a new clinical trial...

Hi everyone, After 3.5 years of positive response on Ibrance/Letrozole, my wife ...

friesianfan

•3 years ago

12 Replies

Want to take advantage of all our features? Just log in!

No more NED for me!!!

My recent PET/CT scan revealed cancer growth in the peritoneal area. The doc says this is very unusual for MBC to show up there. Don't have a definite plan yet...

My recent PET/CT scan revealed cancer growth in the peritoneal area. The doc say...

Thrifty51

•3 years ago

28 Replies

Scans Came Back No Evidence of Disease (NED)!

Happy to report that my scan came back as NED, again. I am so happy & thankful. That makes it one year of NED scans. Praying it continues. Happy Friday...

Happy to report that my scan came back as NED, again. I am so happy & thankful....

hopenowandtomorrow

•3 years ago

39 Replies

Say goodbye to my hair (for the third time)

After three weeks of weekly doses of Abraxane my hair is falling out everywhere. So later today my daughter will shave it. I love my hair so thought I'd get my...

After three weeks of weekly doses of Abraxane my hair is falling out everywhere....

BangorBelle56

•3 years ago

33 Replies

Genomic Testing in Canada

A question for you ladies , How much have you had to pay for genomic testing ? My oncologist says it is not covered by insurance and can be an expensive test...

A question for you ladies , How much have you had to pay for genomic testing ? ...

Thatflowerlady

•3 years ago

21 Replies

Barbs visit to oncologist today

Hi ladies Several of you ladies on here queried why I wasn’t offered Xeloda as my first chemo treatment...after much thought I texted my oncologist and she’s...

Hi ladies Several of you ladies on here queried why I wasn’t offered Xeloda as ...

Barbteeth

•3 years ago

62 Replies

Ibrance

How long can you be off Ibrance for surgery

Sejj

•3 years ago

23 Replies

Liver Injury and tamoxifen

I recently checked on my understanding that tamoxifen use was not associated with liver dysfunction. It seems that I misremembered what I read. Although...

I recently checked on my understanding that tamoxifen use was not associated wit...

Hazelgreen

•3 years ago

8 Replies

Living with MBC.

Sometimes you just have to have fun and forget everything negative. Yesterday was that day, we will never grow old whilst my stepdaughter makes us look silly...

Sometimes you just have to have fun and forget everything negative. Yesterday wa...

Hidden

•3 years ago

29 Replies

New METS found in recent PET. Changing to Piqray

For 2 years my MBC has been isolated to lymph nodes in my right groin and a successfully radiated iliac tumor. Since May there has been some activity...

For 2 years my MBC has been isolated to lymph nodes in my right groin and a succ...

Lolli2020

•3 years ago

10 Replies

Medications for extensive breast cancer spread

Metastatic Breast cancer survivors Liver and Bone mets.

blms

•3 years ago

9 Replies

Forget MBC when it’s hubby’s retirement and birthday

Just want to show you all the cake my stepdaughter made for Hubby’s retirement and birthday today. She has a Tea Room come Vintage shop. It was Chocolate,...

Just want to show you all the cake my stepdaughter made for Hubby’s retirement a...

Hidden

•3 years ago

32 Replies

ESR1 L536H mutation - amplification 0.4%

Hi all - Just did guardant360 - and results as above. I do not understand the relevance of the amplification of 0.4% METS to bone and spine 2018 jan ER/PR...

Hi all - Just did guardant360 - and results as above. I do not understand the r...

Joey1965

•3 years ago

13 Replies

Ibrance and CFS

I'm on my second cycle of Ibrance with Letrozole. 125 mg the first cycle, now down to 100 mg because my neutrophils were at 0.9 at the end of the week off....

I'm on my second cycle of Ibrance with Letrozole. 125 mg the first cycle, now do...

SunsetSeeker

•3 years ago

5 Replies

Liver Lesion

I had Liver biospy 3 weeks ago and it came back benign on my lesion now i have to get another one because it is growing it was 4.8cc if it shows maligent ,...

I had Liver biospy 3 weeks ago and it came back benign on my lesion now i have ...

Iwouldlike2knowmore

•3 years ago

3 Replies

Melbourne/ Victoria /Australia. Congratulations.

Since early July, Melbourne has been in lockdown. We had 700 odd cases in Victoria. And all the other states had very few. We were looked upon as the ones to...

Since early July, Melbourne has been in lockdown. We had 700 odd cases in Victor...

Timtam56

•3 years ago

13 Replies

Cake

Unfortunately the cake shop (that will be making my daughter's wedding cake) was shut on my birthday so there was no b'day cake. Look what i received today....

Unfortunately the cake shop (that will be making my daughter's wedding cake) was...

BangorBelle56

•3 years ago

21 Replies

My Winter Cheer - Australian Fuchsia -

On a cold grey day like today, when my aches and pains are worse I look around at my plants to make me smile. My Australian Fuchsia will flower all winter...

On a cold grey day like today, when my aches and pains are worse I look around a...

Hidden

•3 years ago

29 Replies

Surgery after Ibrance

Afternoon ladies, I have been building up courage to talk to you since I joined your wonderful forum and here I am !! I had a mammogram April 2019 which was...

Afternoon ladies, I have been building up courage to talk to you since I joined ...

Archiedog

•3 years ago

17 Replies

Verzenio issues

I was just wondering who all is on or had been on Verzenio? I have only been on it since July and this drug is kicking my butt. I am very fatigued, no...

I was just wondering who all is on or had been on Verzenio? I have only been o...

Wildcat1

•4 years ago

19 Replies

About the 'cooling system' for hair loss

Hola, I am filling out information to apply for assistance to use the slrap cooling system (hairtostay), that I guess is supposed to help with hair loss. I...

Hola, I am filling out information to apply for assistance to use the slrap coo...

SusieIM

•4 years ago

14 Replies

Having a Savy Scout implanted today

Good morning! I am about to have a Savy Scout implanted in preparation for my lumpectomy on 12/4. It is supposed to limit the amount of healthy tissue that is...

Good morning! I am about to have a Savy Scout implanted in preparation for my lu...

USIrishcolleen

•4 years ago

18 Replies

Multiple PET scans

Anybody out there who has had multiple PET scans? Like more than 3? Apparently the “dose” accumulates over a lifetime and am getting conflicting info re: how...

Anybody out there who has had multiple PET scans? Like more than 3? Apparently ...

pollymacchili

•4 years ago

14 Replies

Undereye bags

Hello everyone. I was just wondering if anyone out that has had problems with darks circles under eyes !! I am currently on Ibrance 75mg plus Exemestane 25mg...

Hello everyone. I was just wondering if anyone out that has had problems with d...

Grammy1960

•4 years ago

5 Replies

Any cases of MBC being successfully treated with Fenbendazole or Mebendazole (the dog deworming protocol?)

Hello, I am wondering if anyone has used this protocol specifically for MBC and had good results? I have found stories online about it helping for other types...

Hello, I am wondering if anyone has used this protocol specifically for MBC and ...

Shelley_Amber

•4 years ago

19 Replies

My dr appt today

Just letting you all know my dr not worried about the new lesion on my left femur -moderate fog activity and left breast mild fdg but scar tissue there. He...

Just letting you all know my dr not worried about the new lesion on my left femu...

Eliactida1955

•4 years ago

7 Replies

I'm Back!

I had to replace my email address and my phone and lost all access including this site about a year ago! My update: I was on oral chemotherapy with several...

I had to replace my email address and my phone and lost all access including thi...

Survivornow

•4 years ago

9 Replies

FEC chemo

Bad scan results today...my faslodex not working and I have more progression in my liver and new spots in pancreas and adrenal gland also in pleura...in fact...

Bad scan results today...my faslodex not working and I have more progression in ...

Barbteeth

•4 years ago

98 Replies

Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

All posts for October 2020

Metaplastic carcinoma breast cancer

Hi! New to the forum

Info on clinical trial with "Oral Faslodex/Fulvestrant"?

No more NED for me!!!

Scans Came Back No Evidence of Disease (NED)!

Say goodbye to my hair (for the third time)

Genomic Testing in Canada

Barbs visit to oncologist today

Ibrance

Liver Injury and tamoxifen

Living with MBC.

New METS found in recent PET. Changing to Piqray

Medications for extensive breast cancer spread

Forget MBC when it’s hubby’s retirement and birthday

ESR1 L536H mutation - amplification 0.4%

Ibrance and CFS

Liver Lesion

Melbourne/ Victoria /Australia. Congratulations.

Cake

My Winter Cheer - Australian Fuchsia -

Surgery after Ibrance

Verzenio issues

About the 'cooling system' for hair loss

Having a Savy Scout implanted today

Multiple PET scans

Undereye bags

Any cases of MBC being successfully treated with Fenbendazole or Mebendazole (the dog deworming protocol?)

My dr appt today

I'm Back!

FEC chemo

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