Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

6,601 members • 8,139 posts

All posts for March 2024

Good news bad news

Did very well 1st month on Truqap with excellent lab reports. I and my onc were ecstatic. Then side effects started kicking in. Bad diarrhea last 2 weeks...

Did very well 1st month on Truqap with excellent lab reports. I and my onc were...

Bonnie1942

•27 days ago

5 Replies

Great Resource Practice Update

When I first joined this site, a member kindly posted a link to PracticeUpdate.com. It is a great site which reports on all the latest trial results,...

When I first joined this site, a member kindly posted a link to PracticeUpdate.c...

Best521

•28 days ago

7 Replies

sneaky spread to urinary system

Has anyone else had sneaky lobular spread to urinary system causing problems and not being picked up by scans? Appreciate hearing your experiences. Jx

Has anyone else had sneaky lobular spread to urinary system causing problems and...

bikebabe

•28 days ago

5 Replies

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Help with diet please.

Any tips on what teat or avoid when you have liver Mets? I'm eating alot less and smaller portions. Having belly pain after eating, bloating, cramps . . .

Any tips on what teat or avoid when you have liver Mets? I'm eating alot less a...

NPmary

•28 days ago

17 Replies

Anyone else have Tendon Issues?

For 7.8 years, I have been taking Letrozole and Ibrance. Recently, an MRI showed that my right gluteus minimus tendon fully tore and retracted for no apparent...

For 7.8 years, I have been taking Letrozole and Ibrance. Recently, an MRI showed...

Light74

•30 days ago

20 Replies

I've Dodged the Big Bullet, Again!

One of my good friends came in to my hospital. room and said that I used another one of my many (nine) lives. I'm not in the hospital, now. I am in my very...

One of my good friends came in to my hospital. room and said that I used another...

jersey-jazz

•30 days ago

63 Replies

Eye probs

I am on Enhertu infusions and recently went for a routine checkup at my opthalmologist's appointment.I had permanent lenses put in while still on my 40's and...

I am on Enhertu infusions and recently went for a routine checkup at my opthalmo...

Figletf

•1 month ago

17 Replies

Silent urinary tract infection

hiya -advice/your experiences requested please. I was fortunate to be given open heart surgery mid feb to mend my heart (valve) and put it in good shape for...

hiya -advice/your experiences requested please. I was fortunate to be given open...

bikebabe

•1 month ago

2 Replies

Heart

Thank you to all who responded. I went to the cardiologist today and she put a heart monitor on me today. In a week I have to mail it and she will get the...

Thank you to all who responded. I went to the cardiologist today and she put a h...

Sharon0122

•1 month ago

6 Replies

Travel and Ibrance

I was diagnosed with MBC in June, 2023. I am on Ibrance and letrozole. My medical history is complicated by having had a donor stem cell transplant in...

I was diagnosed with MBC in June, 2023. I am on Ibrance and letrozole. My m...

Artesa

•1 month ago

71 Replies

Faslodex et ses effets secondaire

J'ai été opérée d'un cancer du sein en 2018 et traitée par chimio et radiothérapie ensuite, j'ai reçu de l'anastrozol pour 7 ans. Malheureusement, j'ai...

J'ai été opérée d'un cancer du sein en 2018 et traitée par chimio et radiothérap...

irisF

•1 month ago

5 Replies

Not existing QOL

Dear sisters, I try to read this forum as of often as I can, but rarely post. I’m still receiving Ibrance+Letrozole, but my cancer markers are slowly...

Dear sisters, I try to read this forum as of often as I can, but rarely post. ...

Tolife_18

•1 month ago

27 Replies

Heart block

Hope everyone is well this morning! How much more can one body take? Three years ago I wa diagnosed with MBC. I was always healthy. Guess 69 was not a good...

Hope everyone is well this morning! How much more can one body take? Three ye...

Sharon0122

•1 month ago

15 Replies

Numb and tingling toes and finger tips

Has anyone experienced numbness and tingling in toes or finger tips? Any suggestions?

Has anyone experienced numbness and tingling in toes or finger tips? Any suggest...

Salmon4

•1 month ago

17 Replies

Herceptin Perjeta and Faslodex advice?? And sadly bye bye Ibrance

Hi ladies , I’m reposting a briefer message from yesterday since it has 0 replies . Ibrance stopped working and I’m going on those 3 combinations - ty for all...

Hi ladies , I’m reposting a briefer message from yesterday since it has 0 replie...

Georgelila

•1 month ago

4 Replies

afinator and diarrhea

I started afinator (10mg) about a week and a half ago after my previous line of treatment stopped working. The intestinal side effects have been awful,...

I started afinator (10mg) about a week and a half ago after my previous line of ...

HoneyBadgerLady

•1 month ago

2 Replies

Acute Liver Failure Diagnosis

On Tuesday, I finally received the long awaited Truqap. I was told to hold off beginning treatment and to bring the medicine to the oncologist's off on...

On Tuesday, I finally received the long awaited Truqap. I was told to hold o...

jersey-jazz

•1 month ago

29 Replies

xeloda

I take 3000 a day and I weigh 135 lbs. My regime is 7 days on and 7 days off. However I started with 3500 and that really affected my hands and they...

I take 3000 a day and I weigh 135 lbs. My regime is 7 days on and 7 days off....

Kofipuppy

•1 month ago

5 Replies

Advice? Anyone taking Herceptin Perjeta and Faslodex? And bye Ibrance

Hi everyone. My onc switched me off ibrance and Exemastane bc initial breast tumor is growing and has become resistant to these meds. I knew like all of us...

Hi everyone. My onc switched me off ibrance and Exemastane bc initial breast tu...

Georgelila

•1 month ago

2 Replies

IBRANCE (75 mg) Long Term (over 5 Years)

Hi! Anyone on here been on Ibrance for more than 5 years? My oncologist and I are considering playing around with the dosing. Currently, I'm on 75 mg (for...

Hi! Anyone on here been on Ibrance for more than 5 years? My oncologist and I a...

kparekh76

•1 month ago

17 Replies

Falsodex+Truqap

Good evening ladies. hope everyone is doing well. After a long period of wait I finally got a treatment plan. Diagnosed stage 4 bone only 1 year after my stage...

Good evening ladies. hope everyone is doing well. After a long period of wait I ...

life2990

•1 month ago

10 Replies

Mutations Pik3CAH1047R andFGFR1

These were some of the results from the indepth study sent of to a special company that analyzes your cancer sells. I am sure many of you have had this done....

These were some of the results from the indepth study sent of to a special compa...

jltorcz

•1 month ago

8 Replies

again with the swollen calves and ankles

today is 4th day of my Kisqali cycle and my calves and ankles are doing the same thing as last month. Unless I keep my feet elevated my calves and ankles...

today is 4th day of my Kisqali cycle and my calves and ankles are doing the same...

jltorcz

•1 month ago

3 Replies

Piqray and Truqap

Hello, I am wondering if anyone tried Truqap after having also been treated with Piqray? Prior to Piqray I was on Ibrance for 5 years. I switched to Piqray...

Hello, I am wondering if anyone tried Truqap after having also been treated wit...

mountainwoman1

•1 month ago

9 Replies

Thank you long-timers!

I just wanted to thank all of you long-timers that post on this board. You give the rest of us hope! Thank you for sharing!

I just wanted to thank all of you long-timers that post on this board. You give ...

Greatday2

•1 month ago

21 Replies

Advice

I have metastatic breast cancer. I am taking Ibrance and fulvestrant. After a gastroscopy, I was diagnosed with an esophageal ulcer. The gastroenterologist...

I have metastatic breast cancer. I am taking Ibrance and fulvestrant. After a ga...

yevgeniakoretskaya

•1 month ago

20 Replies

Finally, a shipment of Truqap! Thank you!

Thank you to those who alerted me to Trudap! The doctor prescribed it back in February. I think they forgot about me because I was in and out of the...

Thank you to those who alerted me to Trudap! The doctor prescribed it back in F...

jersey-jazz

•1 month ago

8 Replies

Update re: pleur x catheter

My daughter did the pleur x catheter drainage and dressing Saturday. She did a great job.She has been a 'caretaker' for quite awhile, scheduling my...

My daughter did the pleur x catheter drainage and dressing Saturday. She did a g...

NPmary

•1 month ago

13 Replies

reply to questions on post

I don’t see reply’s from my questions. Do I get a notification if someone replies in email?

I don’t see reply’s from my questions. Do I get a notification if someone replie...

Praising

•1 month ago

3 Replies

A prayer for all of you

My daughter's mother-in-law posted this on Facebook today and I wanted to share it with all of you. Sending you all hugs and prayers .

My daughter's mother-in-law posted this on Facebook today and I wanted to share ...

love2golfwell

•1 month ago

9 Replies

Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

All posts for March 2024

Good news bad news

Great Resource Practice Update

sneaky spread to urinary system

Help with diet please.

Anyone else have Tendon Issues?

I've Dodged the Big Bullet, Again!

Eye probs

Silent urinary tract infection

Heart

Travel and Ibrance

Faslodex et ses effets secondaire

Not existing QOL

Heart block

Numb and tingling toes and finger tips

Herceptin Perjeta and Faslodex advice?? And sadly bye bye Ibrance

afinator and diarrhea

Acute Liver Failure Diagnosis

xeloda

Advice? Anyone taking Herceptin Perjeta and Faslodex? And bye Ibrance

IBRANCE (75 mg) Long Term (over 5 Years)

Falsodex+Truqap

Mutations Pik3CAH1047R andFGFR1

again with the swollen calves and ankles

Piqray and Truqap

Thank you long-timers!

Advice

Finally, a shipment of Truqap! Thank you!

Update re: pleur x catheter

reply to questions on post

A prayer for all of you

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