Vitamins on Ibrance and Letrozole

[DDIL1]

I’m taking Ibrance and Letrozole, any issues with Vitamin C? What vitamins do you take to keep your WBC high?

[Hidden]

High Dose Melatonin I've heard can be beneficial.. Worth researching to see what you think!😊

[DDIL1 in reply to Hidden]

I’ll look it up. Thank you for the help

[Hidden in reply to DDIL1]

Yw!😊❤

[Beryl71]

I have been prescribed vitamin D and calcium and I take omega 3 with glucosimine and a probiotic. I understand gut health has a lot to do with our overall health. I did start to take other vitamins but read that they may cause conflict. If your treatment is zapping cells and the vitamins are protecting them there's a conflict. I suppose lots of these things are promoted to protect you against cancer but once you're on treatment it's a different scenarrio. I'd ask the oncologist. Mine didn't particularly recommend anything but did check what I was already taking. X

[Justme153]

Be careful with the melatonin my aunt was taking two pills not sure of the grams or iu but anyway it shut down her kidneys! They said people don't realize melatonin can do this.

[Cowgirl1951]

I have a friend that is seeking alternative treatments with advice through a 2nd oncologist in Texas (with breast cancer). She has a primary oncologist where she lives in Chesapeake, VA that is not interested in alternative treatments but tells her to keep doing what she is doing. She has BC metastasis to ribs and reproductive organs and twice was given 2 months to live. After 1.5 years she is taking a high dose of Vitamin C intravenous. Besides Ibrance, letrozole and Xgeva she takes a multivitamin, Vit D3, turmeric, berberine, claritin, aspirin, and melatonin, prebiotic . . . Probably some others. She avoids processed sugar and is following Jane Melland book, How To Starve Cancer. She said after taking aspirin, berberine and melatonin that her cancer antigens have dropped to the lowest that the have ever been. Her Texas oncologist recommended to drop the Vit B.

I know you asked about Vit C and this is more than that. Do your research and read everyone's book on cancer. It's hard to get through those books. Best Wishes.

[Hidden in reply to Cowgirl1951]

Thanks for mentioning the IV vitamin C...I've read about real studies that show that Vitamin C is beneficial but it has to be in an IV dosage, not like a fistful of pills. I've had it on my "long list" of things to add, and your reminder might just get me over the finish line....I just hate to subject myself to another needles, but this is *longevity* we're talking about, so should probably dive in...

[Cowgirl1951 in reply to Hidden]

I wish you comfort and a long life!

[Hidden in reply to Hidden]

My wife gets a Vit C IV weekly even though its a 2.5hr drive one way for her..She is a trooper!💪🏼❤

[Mumberly]

I’m on kisqali, letrozole, calcium and vitamin d - all prescribed by my oncologist. The Vit D helps our bodies better absorb calcium. I’m also scheduled for zelodronic acid infusions every four months or so.

While we can eat and drink things that support our immunity, I’ve been told by my health care team that no particular food, drink or activity actually increases our WBC. It’s a matter of timing for our marrow to start rebuilding.

I had this issue all through chemo and now again with kisqali so I wish there was something I could do to improve it besides waiting.

I would have bloodwork 2 days before my treatment day and it would be too low and they would retest on treatment day and some times it had doubled and once, even tripled in those 2 days 🤷‍♀️

I don’t get it. I’ll keep checking this post to see if you hear differently from someone.

Take care,

Kim

[debbiedo2063]

On Ibrance 125 , danosumab and Fulvestrant 1 year. Never had a low WBC yet or side effects really. My daughter is a trained dietician in London area and when I embarked on the journey she advised me to eat a balanced purely Organic diet, no or very very minimum alcohol and no supplements and see how it goes. It’s gone great so far. She used to work for a while as development manager for the UK leading high street supplement shop too and she told me to be careful and never take a supplement without consulting oncology as the side effect’s of the supplements and vitamins could make me worse.She also worked on a cancer ward for a while as dietician so I respect all her advice as she has seen it from all sides.

Debra 😍xxx

[debbiedo2063]

Just to add I do shop at my local farm shop for fresh organic produce but the supermarkets Sainsbury and Morrisons are getting so much better with their organic ranges. Bit more expensive but what you save on not buying rubbish and unhealthy sweet items it works out the same for me. Hard sometimes-if you have smaller children tho I respect that but just me hubbie and organic 19 year old Uni student so it suits us. Hubbie has lost 2 stones so he’s not complaining lol Debra xxx😍

[Nygal22 in reply to debbiedo2063]

In most states now you can order misfits market organic shipped right to your door. although the shipping price just went up, it has been a godsend esp during the pandemic.

[Nygal22 in reply to Nygal22]

oh never mind, it looks like you are in england

[Debbigbang]

Hi

I take over 1000 vitamin C, over the day though, not all at once. I take vitamin D, tums for calcium (my onocologys recommended) Omega 3. I take flax seed oil for constipation, but all of those oils are good for you.. Yes, be careful with melatonin. I take 10 mg a few times a week for liver and rest. Sometimes to much of a good thing is not a good thing. Too much will hurt other parts of your body.

Deb

[Hidden]

Here is what my nutritionist at Marin Cancer Care gave me. She also said a multivitamin would also be good. However, she said not to overload my system. healthline.com/health-news/...

[Nygal22 in reply to Hidden]

Interesting. my onco says no to vitamins and also almost anything untraditional (i have fatigue from another condition) i ask about since they have not been studied WITH ibrance. Has anyone taken any herbs etc? thanks

[Teddielottie]

Regarding monthly blood testing ...just be careful ladies if your bloods need to be transported to a lab for testing , as the transportation/handling can affect the quality of your bloods (WBC/neutrophils etc)During the pandemic I was offered the alternative of having my monthly bloods done locally at my GP practice (instead of going into a hospital) , bloods were then transported a couple of hours later to the hospital laboratory for testing . On six occasions my wbc/neutrophils were deemed too low to restart my Ibrance at the end of my 28 day cycle , so I went into the hospital the next day to repeat the bloods test , and each time they had improved significantly, and I restarted my Ibrance cycle . Four months ago I switched to having my monthly bloods done at the phlebotomy dept in my local hospital, (they now operate on an appointment only basis , so it feels much safer!) and I have not had this problem since and I have remained on Ibrance 125 mg . (4 years 3 months now ).❤️

[Tam-56 in reply to Teddielottie]

Great information! Thank you

[Jubilee1874]

I have been getting 70 gm. IV-C weekly for 18 months and my cancer is stable. Only on Letrozole. Tried Ibrance for 21 days and almost had kidney failure. Other than that, I am a pescatarian and eat loads of organic veggies. No fatigue and high Q of L. Walk about 8,000 steps daily. Very, very thankful to the Lord.

[DDIL1]

Yikes! Glad you went off Ibrance .. that’s scary.

[MaryCos]

Here's what I take... and my labs have been really good since starting this regime:

Vitamin D – 5,000 units per day

Calcium – 600mg twice a day (1,000 total)

B-12 – 1,000 per day

Folate 400 – 400mcg per day

B-6 – 100mg per day

Vitamin C – 1,000mg per day

DHA/Omega-3 – 500mg twice a day (1,000 total)

B-9/Biotin – 2500mcg per day for hair/eyebrow loss (except 1 week prior to labs)

Potassium Gluconate – 595mg per day

I also do medical cannabis, and am about to start taking it "as medicine" for a number of things, but also anti-tumor properties. Researching (studies) to find out the best products for my MBC and other needs.

[DDIL1]

MaryCos, That’s helpful thank you

[DDIL1]

I heard magnesium is good for cancer anyone hear that?

[Discocat in reply to DDIL1]

I’m not sure if there’s any cancer fighting benefits to taking magnesium orally, but I know that it’s good for relieving muscle and joint pain. I sometimes use a spray form on achy bits and soak in a warm tub of magnesium salts (Epsom salts) that you can pick up at pharmacies in tubs.

[Discocat in reply to Discocat]

In general concerning vitamins and supplements I’m personally very cautious. Before diagnoses I had taken a good multi vitamin, vitamin D soft capsules, red clover, and a grape extract antioxidant with extra B vitamins daily. On the first meeting my oncologist told me to stop taking them all.

[Nygal22 in reply to Discocat]

s/he's right but i would get a second opinion on the vitamin D if yours is low.