Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

6,600 members • 8,139 posts

All posts for June 2023

VIKTORIA-1 CLINICAL TRIAL

Happy Friday, everyone!! It’s a beautiful day to be alive!!! Has anyone here been offered this trial? I’ve been on letrozole, Ibrance and Xgeva for a year...

Happy Friday, everyone!! It’s a beautiful day to be alive!!! Has anyone here b...

CTGirl1962

•10 months ago

35 Replies

In need of some wise words

hello everyone, as I’m sure most of you know my father has MBC diagnosed in June of 2022. Currently on Ibrance xjeva letrozole and monthly lupron. His 2...

hello everyone, as I’m sure most of you know my father has MBC diagnosed in Ju...

Jenniferp2122

•10 months ago

8 Replies

Peribronchial nodules- is ít attributed to Ibrance?

Good day my fellow warriors! I have been NED for almost 10 months taking Ibrance and Letrozole. Yesterday my latest Ctscan results came back still no...

Good day my fellow warriors! I have been NED for almost 10 months taking Ibranc...

Taurus28

•10 months ago

28 Replies

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Anyone on Trodelvy?

After my last post ( help with attitude🙄) I found out that my next course of action is Trodelvy. Going to start on Friday. Has anyone been on this?...

After my last post ( help with attitude🙄) I found out that my next course of ac...

Ticket123

•10 months ago

6 Replies

Afinitor/Everolimus - best time of day?

Hi everyone, I start this drug today. I wonder if anyone found an optimal time of day to take it? Thanks!

Hi everyone, I start this drug today. I wonder if anyone found an optimal time ...

13plus

•10 months ago

12 Replies

Bone Mets

today I was confirmed as stage IV. A recent CT scan had showed lumbar spine metastasis. Two weeks ago I was startled on Faslodex injections, while awaiting PET...

today I was confirmed as stage IV. A recent CT scan had showed lumbar spine meta...

Diana_Long

•10 months ago

11 Replies

I need help with my attitude

So I haven’t written in a bit because I have been waiting to find out what my next line of treatment is. ( Thank you to everyone who responded to my last...

So I haven’t written in a bit because I have been waiting to find out what my ne...

Ticket123

•10 months ago

40 Replies

Follow up Collagen Peptides Yes/No

Hi everyone, I hope all of you had a wonderful weekend of rest, self pampering and plain old good living. My oncologist got back to me on the Collagen...

Hi everyone, I hope all of you had a wonderful weekend of rest, self pamperin...

CalGal56

•10 months ago

9 Replies

Dr. Jorge Flechas on reversing osteoporosis with boron.

Really informative talk. His wife reversed her osteoporosis by going up to 150 mg/ day of boron. He’s been taking it for many years, he was 65 when this was...

Really informative talk. His wife reversed her osteoporosis by going up to 150 m...

Verbena1

•10 months ago

8 Replies

What's next after Xeloda?

Hi all, just got disappointing CT scan results showing strong progression after only 7 months on Xeloda. I've messaged my oncologist to find out what the next...

Hi all, just got disappointing CT scan results showing strong progression after ...

LDR1

•10 months ago

17 Replies

next treatment Doxil

hello everyone In July 1st 2022 I enrolled in a clinical trial with AZD (Faslodex in pills) and Capivasertib. Unfortunately last PET scan is showing...

hello everyone In July 1st 2022 I enrolled in a clinical trial with AZD (Faslo...

Lna21

•10 months ago

11 Replies

Shingrix vaccine

I am on Ibrance and letrozole, my primary has suggested I get the shingles (shingrix) vaccine. I will be speaking to my oncologist later this week. In the mean...

I am on Ibrance and letrozole, my primary has suggested I get the shingles (shin...

FloridaNYgirl

•10 months ago

25 Replies

Afinitor/Everolimus and Tamoxifen is next :(

Hi everyone - it's time for me to change treatment again. Well my time on the Hope trial was pretty short-lived (December to June with pretty much progression...

Hi everyone - it's time for me to change treatment again. Well my time on the H...

13plus

•10 months ago

10 Replies

Home from Switzerland!

Hi MBC friends, I am home from our recent visit to our son living in Switzerland. When I look at all the gorgeous pictures, I still have a big smile on my...

Hi MBC friends, I am home from our recent visit to our son living in Switzerla...

Bettybuckets

•10 months ago

73 Replies

Low level laser therapy

Has anyone had any experience with low level laser therapy for neuropathy?

mariootsi

•10 months ago

8 Replies

Progression to liver

I'd like to know what is standard practice. Progression to liver and.my oncologist wants me to do 6 rounds of IV chemo. Question : Did you contintue ex...

I'd like to know what is standard practice. Progression to liver and.my oncologi...

JMMK

•10 months ago

22 Replies

piercing update 😊

Well, I had my ears pierced today with my Oncologists okay and my friend who is a plastic Surgeons guidance and approval. I went to Nomad Piercing a reputable...

Well, I had my ears pierced today with my Oncologists okay and my friend who is ...

CalGal56

•10 months ago

13 Replies

Any experience with Exemestane or Everolimus?

Hi All, I recently had progression while I was on Trodelvy, so I am being switched to the above drugs. If anyone has experience with these, please share....

Hi All, I recently had progression while I was on Trodelvy, so I am being switc...

CincinnatiExperience

•10 months ago

24 Replies

BRCA2 Gene

hello everyone! Hope you are all doing well. I wanted to touch base and see the timeline of treatments for those with a BRCA2 gene. I read a scary article...

hello everyone! Hope you are all doing well. I wanted to touch base and see t...

Jenniferp2122

•10 months ago

2 Replies

KISQALI QUESTIONS

Hello, pink band of sisters! I started Kisqali 4 days ago. For those of you with experience taking this medication, would you mind sharing side effects and...

Hello, pink band of sisters! I started Kisqali 4 days ago. For those of you wit...

SeattleMom

•10 months ago

30 Replies

MBC lines of treatment- options

Hi! My name is Kim 43 lumpectony 5/2020 MBC bone only from neck to both knees 3/21. HR + HER2- on Ibrance and letrozole No metabolic activity after 3 months on...

Hi! My name is Kim 43 lumpectony 5/2020 MBC bone only from neck to both knees 3/...

KimberlyB40

•10 months ago

18 Replies

Interesting Articles!

Hi all, Hope this message finds you well (as well as we can be with MBC!) I came across these 2 very interesting articles you may find of interest also. I...

Hi all, Hope this message finds you well (as well as we can be with MBC!) I cam...

Smokeyd

•10 months ago

5 Replies

Lynparza after Enhertu?

Question about PET scan results. This is my 2nd PET on Enhertu for metastatic breast cancer with great results after the 1st scan. I just received my results...

Question about PET scan results. This is my 2nd PET on Enhertu for metastatic br...

miconrad

•10 months ago

17 Replies

Hand Foot Syndrome - New Treatment

This might be old news for some but I did a search and couldn’t find any posts discussing it. A recent study was just completed that showed that a common OTC...

This might be old news for some but I did a search and couldn’t find any posts ...

Half-Full

•10 months ago

8 Replies

The scientific proof that thinking positive really does help conquer chronic pain and illness.

Very interesting article on how scientists think they can develop revolutionary new ways to treat chronic pain and cancer Carmine Pariante, a professor of...

Very interesting article on how scientists think they can develop revolutionary ...

Best521

•10 months ago

6 Replies

ear piercing on ibrance

Hi there, Crazy question (maybe). Has anyone had their ears pierced while on ibrance? I will be asking my onc but thought maybe a few of you have, and can...

Hi there, Crazy question (maybe). Has anyone had their ears pierced while on i...

CalGal56

•10 months ago

11 Replies

Cough on Ibrance

Hi everyone- I just wanted to reach out and see if anyone has developed an active cough while taking Ibrance. If so- what is this usually attributed to with...

Hi everyone- I just wanted to reach out and see if anyone has developed an ac...

Jenniferp2122

•10 months ago

5 Replies

faslodex

Hello Ladies, I’m currently on Faslodex for MBC in right lung and I have Pain, IBS symptoms over and over again to include diverticulitis last month. Does...

Hello Ladies, I’m currently on Faslodex for MBC in right lung and I have Pain, ...

Likes

•10 months ago

8 Replies

MBC support group in Indiana

I'd like to start an MBC support group here in Indiana and I'm looking for people interested. I think virtual would be easiest to start with, considering...

I'd like to start an MBC support group here in Indiana and I'm looking for peopl...

luckysmom13

•10 months ago

8 Replies

lesions

Hello, I am going for a pet scan on Thursday because the cat scan found small and numerous lesions . Has anyone gone through this and showed benign.

Hello, I am going for a pet scan on Thursday because the cat scan found small an...

Iwouldlike2knowmore

•10 months ago

2 Replies

Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

All posts for June 2023

VIKTORIA-1 CLINICAL TRIAL

In need of some wise words

Peribronchial nodules- is ít attributed to Ibrance?

Anyone on Trodelvy?

Afinitor/Everolimus - best time of day?

Bone Mets

I need help with my attitude

Follow up Collagen Peptides Yes/No

Dr. Jorge Flechas on reversing osteoporosis with boron.

What's next after Xeloda?

next treatment Doxil

Shingrix vaccine

Afinitor/Everolimus and Tamoxifen is next :(

Home from Switzerland!

Low level laser therapy

Progression to liver

piercing update 😊

Any experience with Exemestane or Everolimus?

BRCA2 Gene

KISQALI QUESTIONS

MBC lines of treatment- options

Interesting Articles!

Lynparza after Enhertu?

Hand Foot Syndrome - New Treatment

The scientific proof that thinking positive really does help conquer chronic pain and illness.

ear piercing on ibrance

Cough on Ibrance

faslodex

MBC support group in Indiana

lesions

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