Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

6,809 members•8,426 posts

All posts for September 2023

Scan Results on Bone mets

Hello MBC ladies! Some of you have expressed interest in how my bone scan and CAT scan came out this past week. Despite the worsening pain in my Sacrum and...

Hello MBC ladies! Some of you have expressed interest in how my bone scan and C...

Dragonfly2

•1 year ago

24 Replies

How often should I be getting a nuclear medicine bone scan?

I was diagnosed stage four in June 2022 with primary mets in my L3 vertebrae. I had a whole body nuclear medicine bone scan at that time and haven’t had one...

I was diagnosed stage four in June 2022 with primary mets in my L3 vertebrae. I...

PlutosNose

•1 year ago

13 Replies

What is role of hormonal therapy drug when taken with targeted therapy, eg Piqray or Ibrance?

I’ve been curious about this and wondering if anyone can explain. I want to better understand the role of the hormone therapy eg Faslodex when taken with...

I’ve been curious about this and wondering if anyone can explain. I want to bett...

HelenWi

•1 year ago

20 Replies

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lactic lesion

I have bone Mets. Does anyone have enlarging lyric lesion right sacrum?

Praising

•1 year ago

8 Replies

Enhertu

I was to have my 2nd infusion of Enhertu this morning.Unfortunately, my white blood count was too low to proceed.Now I will take shots for 3 consecutive days...

I was to have my 2nd infusion of Enhertu this morning.Unfortunately, my white bl...

Figletf

•1 year ago

8 Replies

Update on PET scan

Hi everyone, I posted yesterday about my dad having a PET scan today. His last pet scan in July showed some progression to the right chest wall after being...

Hi everyone, I posted yesterday about my dad having a PET scan today. His las...

Jenniferp2122

•1 year ago

5 Replies

blood transfusion

anyone have such low counts from meds that they got a blood transfusion and felt better

anyone have such low counts from meds that they got a blood transfusion and felt...

pinkbody2

•1 year ago

5 Replies

xeloda and dhiarrea

Hi, I am on Xeloda sice 2.5 years. I have HFS, but my worst issue is dhiarrea. Anyone else experiencing this? S

Hi, I am on Xeloda sice 2.5 years. I have HFS, but my worst issue is dhiarrea. A...

Silviolina

•1 year ago

9 Replies

Catching up- Enhertu 1st round

I am having a second round on Monday Oct 2. When 👀 back over the first round the first week was my worst week filled with nausea 🤢, fatigue 😩and no...

I am having a second round on Monday Oct 2. When 👀 back over the first round th...

Hotlantaphatz

•1 year ago

14 Replies

No longer in NED.

I am freaking out right now. Right before I decide to celebrate with friends for my 5 year milestone, the cancer is active again and I feel defeated. I want...

I am freaking out right now. Right before I decide to celebrate with friends fo...

Casual

•1 year ago

13 Replies

Canadian medical advice different than United States

Hello hello!! So I went on to the Pfizer website to check out some possible medication interactions and the 1st thing it asks is if I'm a Canadian patient......

Hello hello!! So I went on to the Pfizer website to check out some possible medi...

KimberlyB40

•1 year ago

4 Replies

Liver and spine mets just started Gemzar and my hormone blocker tamoxifen stopped working so began letrazole. Is anyone taking this combo?

I just began Gemzar and Letrosole. My neutrophils are 0.4. Is anyone familiar with this combination and have advice on getting my immune system stronger so I...

I just began Gemzar and Letrosole. My neutrophils are 0.4. Is anyone familiar wi...

Buster2020

•1 year ago

1 Reply

Hard week so far

Monday was one of my worst days since diagnosis. Tuesday I has a colonoscopy/endoscopy. Today, Wednesday, my daughter was goiing to vist if I were up to it--I...

Monday was one of my worst days since diagnosis. Tuesday I has a colonoscopy/en...

PJBinMI

•1 year ago

17 Replies

Latest Video from LBCA for those with Lobular Breast Cancer

This video is about an hour long. Most of this is redundant to what many already know. I found more useful info from Dr Jeselshon....

This video is about an hour long. Most of this is redundant to what many alread...

ba5083

•1 year ago

1 Reply

supplements with ibrance?

What are the best supplements to take while taking ibrance? Turmeric? Green tea? Any specific vitamins?

What are the best supplements to take while taking ibrance? Turmeric? Green te...

Greatday2

•1 year ago

24 Replies

Starting Kisquali and Injections

Progression after being on Ibrance for two years…CT scans didn’t show any cancer progression. I had one small area that the Urologist found to be inflammation...

Progression after being on Ibrance for two years…CT scans didn’t show any cancer...

Paratroop1

•1 year ago

11 Replies

thoughts 🙏

hi everyone, my dad has had MBC since June of 2022. He has been on Ibrance, letrozole, lupron, and xjeva. His Mets were to bone and then he was NED for a...

hi everyone, my dad has had MBC since June of 2022. He has been on Ibrance, l...

Jenniferp2122

•1 year ago

5 Replies

Ibrance and Letrozole

Has anyone had long term success with Ibrance and Letrozole for liver mets? I only have mets to my liver.

Has anyone had long term success with Ibrance and Letrozole for liver mets? I ...

Frenchgirl68

•1 year ago

3 Replies

Ibrance and your hair

It's taken nearly 5 years, that's how long I've been on Ibrance and letrazole, but now my hair is an absolute disaster . Any advice from anyone? Also I get...

It's taken nearly 5 years, that's how long I've been on Ibrance and letrazole, b...

Alnmouth

•1 year ago

32 Replies

Why do I feel so rundown on ibrance?

Hello, I am a breast cancer survivor, stage 4, her2- , estrogen and progesterone positive.I was on Ibrance and letrozole for around 2 yrs. I was told the...

Hello, I am a breast cancer survivor, stage 4, her2- , estrogen and progesterone...

Burtie1

•1 year ago

11 Replies

Need your opinion

I have had chronic UTIs and for the past year my GP has had me on a low dose antibiotic 2x a day. Never I. The year have I had a UTI. Last week I called her...

I have had chronic UTIs and for the past year my GP has had me on a low dose ant...

Sharon0122

•1 year ago

8 Replies

Great MBC Retreats

As a long timer with MBC, I've attended many MBC and BC conferences, in my quest to learn all I can about this lousy cancer, and sometime ago I heard about the...

As a long timer with MBC, I've attended many MBC and BC conferences, in my quest...

PJBinMI

•1 year ago

8 Replies

Novel technology to safely monitor changes in tumors

I saw this commercial over the weekend and wanted to share. https://youtu.be/npfJyQ33P3g?si=jLswunTIB3ZjHZce

I saw this commercial over the weekend and wanted to share. https://youtu.be/np...

ba5083

•1 year ago

5 Replies

Long term survivors taking ibrance

I just started Ibrance and letrozole. I would love to hear from people that have had success with this combo for 4+ years.

I just started Ibrance and letrozole. I would love to hear from people that have...

Greatday2

•1 year ago

31 Replies

Scary - 3mm increase in tumour size

HI I would appreciate any help, encouragement😀 or comments . Feeling v panic-ed by this new development . Hoping to get much longer from my first line of...

HI I would appreciate any help, encouragement😀 or comments . Feeling v pani...

Kahe

•1 year ago

14 Replies

Xeloda and Time!

Soon starting Xeloda. Wondering who has been on Xeloda for an extended period. Is it possible to be on it for a long period? I guess that's what I'm...

Soon starting Xeloda. Wondering who has been on Xeloda for an extended period. I...

AutumnLove

•1 year ago

20 Replies

Genomics

HI all, After a progression 2 years on Arimadex, Ibrance my dear partner has had a liver biopsy and we are doing genomics testing, around $3.3k. 500 gene...

HI all, After a progression 2 years on Arimadex, Ibrance my dear partner has ha...

muzzatron

•1 year ago

8 Replies

Capecitabine / Xeloda

Stage 4 Breast Cancer I just started have had three rounds I feel so much better I was in horrible pain with this one. My second time around in two years . I...

Stage 4 Breast Cancer I just started have had three rounds I feel so much better...

Lightwinds

•1 year ago

13 Replies

seeing a nephrologist 9/20

Hi just wanted to let everyone know I had my ear surgery.. my intestinal issues Hzve gotten alittle better no dairy. I pray that part is over on a probiotic....

Hi just wanted to let everyone know I had my ear surgery.. my intestinal issues ...

Dancing

•1 year ago

18 Replies

thank you

thank you everyone for your replies. It is so reassuring that this whole community is able to help each other and share their experiences. Will keep you...

thank you everyone for your replies. It is so reassuring that this whole communi...

LorryLou

•1 year ago

2 Replies

Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

All posts for September 2023

Scan Results on Bone mets

How often should I be getting a nuclear medicine bone scan?

What is role of hormonal therapy drug when taken with targeted therapy, eg Piqray or Ibrance?

lactic lesion

Enhertu

Update on PET scan

blood transfusion

xeloda and dhiarrea

Catching up- Enhertu 1st round

No longer in NED.

Canadian medical advice different than United States

Liver and spine mets just started Gemzar and my hormone blocker tamoxifen stopped working so began letrazole. Is anyone taking this combo?

Hard week so far

Latest Video from LBCA for those with Lobular Breast Cancer

supplements with ibrance?

Starting Kisquali and Injections

thoughts 🙏

Ibrance and Letrozole

Ibrance and your hair

Why do I feel so rundown on ibrance?

Need your opinion

Great MBC Retreats

Novel technology to safely monitor changes in tumors

Long term survivors taking ibrance

Scary - 3mm increase in tumour size

Xeloda and Time!

Genomics

Capecitabine / Xeloda

seeing a nephrologist 9/20

thank you

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