Great news!!

[Misspositiveattitude]

I started Ibrance and fasolax injections in June of 2021. My MBC was in my lymph nodes, chest wall and lungs. I had a pet scan this past Monday and the results! No malignant lymph nodes, lungs clear and a 7cm mass in chest wall is now 2.5cm. I am 75 years old, did not change my diet, dont get much exercise because of emphysema, and for me it's a miracle that the results are so fantastic. I am on 100mg ibrance and will drop to 75 now. Obviously will stay on this treatment until it stops working but my oncologist told me his grandmother has been on ibrance at 75mg for 7 years !!!!! The sun is a little brighter today😉

[Ycats277]

That is awesome 👏🏼

[Thrifty51]

That is Great News!! I pray it last at least 7 years for you!Best, Audrey

[Gonnawin]

That is AWESOME!!! So happy for you!! Your news gives us all hope and courage!!

[Hidden]

Congratulations, Misspositiveattitude! That's great news and a wonderful reason to celebrate!

[PJBinMI]

I'm also 75 but diagnosed with metastatic bc, bone mets 18 years ago! I'm only on third line treatment. Meds like Ibrance not yet around when I was diagnosed. I got almost five years from Letrozol (Femara), then over 9 years from Faslodex and now have been on Exemestane for about 4 years. I was on Ibrance for a few cycles with Faslodex in 2016 but it damaged my lungs, something called Interstitial lung disease (seems permanent) . Being "old" gives us an advantage, lol, as our bodies, including cancer cells aren't as active as when we were younger. About 18 months ago, cancer cells were found in tissue blocking one of my ureters (tube between kidney and bladder), first place other than bones. Removing it involved an outpatient procedure that was easy to tolerate. Then about six months ago I was having balance issues and a brain scan showed two tiny mets on my right cerebellum--treated with stereotactic radiation, which find really interesting. Having brain MRI's every six months now, and they show a normal 75 year old brain. Then about 2-3 months after that, I was having trouble with strength (lack of) and coordination of my right hand, and cancer cells were found in a nerve cluster near my right arm pit---more radiation zapped those naughty cancer cells. I'm having occupational therapy. Also PT. I've known several women with E+ MBC who have gotten longer from Faslodex than they did from initial Letrozol. It's ironic that on a day to day basis I have more trouble from a 10 years ago ankle fracture, and eczema than from cancer! But I can still do alot of the things that give meaning to my life. I hope you'll do well for a long time too!

[Beryl71 in reply to PJBinMI]

That's amazing, you give us hope for more years..x

[Cureforever in reply to PJBinMI]

Hi. Thank you for sharing your journey. I am so happy for you. Reading this gives me strength. 18 years …My Last pet ct showed the hydroureteronephrosis. I had ct and now waiting for results. The doctor told me that something is blocking the canal and the urine goes back. I have no symptoms. They told me that 99 % it’s not cancer. But I just read what you had and in your case it was cancer. Was it a separate cancer or Mets from mbc? Who was doing the procedure, the urologist? I have Mets in bones and had one spot in liver but last pet ct showed bones only and this problem with kidney. I am on my fifth line of treatment over 2.5 years which is a chemo pill Xeloda. I am waiting for ct results and am very nervous. Can you tell me more about that problem you got 18 months ago and the procedure you had. I am hoping for new drugs that will cure us. There is so much research going around now. ErSo is one of them but on preclinical stage only. Thank you so much. Best,

Marina

[PJBinMI in reply to Cureforever]

I'm sorry you're having to consider this procedure! Yes, all the cancer cells I've had are bc cells. Urologist removed ureter blockage and inserted a stent. Now I have to have those replaced about every three months. Light sedation and ready to go home after about 3-4 hours. No pain. I had bladder leakage for several years before and now I am wearing "pee pads" all the time, often get thru the day without wetting. Have you ever gotten a second opinion from an onc who specializes in bc, treats only bc? IF you are in the US, best places to do that are at med school affiliated cancer centers, especially the "Comprehensive Cancer Centers" listed on the National Cancer Institute website. These are the oncs who do research, speak at cancer events, write major journal articles and are most up to date on meds, prptpcols, etc. Worth travel if you live somewhere remote. Oh, and my insurance has paid for the ureter procedures and second opinion evals.

[Cureforever in reply to PJBinMI]

Thank you for your explanation. I hope it’s not cancer cells. They told me that it might be a stone or something else. Is your bladder leakage not related to this? What do you mean has to be changed every three months? A stent? I have no symptoms at all an my urine is passing normal. Do they also tell you that it’s hydroureteronephrosis? They diagnosed it as moderate hydroureteronephrosis in the right kidney without obvious obstructing lesion along the course of the right ureter. How were you diagnosed, what pet ct showed? Thank you so much

Best,

Marina

[PJBinMI in reply to Cureforever]

the stent needs to be changed and every 3 months is what works for me and my ureter. I've not heard a medical sounding diagnosis like yours. My memory is not the best and I don't remember which scan I had.

[Cureforever in reply to PJBinMI]

I got it. Thank you so much for sharing. Good luck to you

[Discocat]

Congratulations! That’s great news, I’m very happy for you.Best wishes

Zoe xx

[TE53_67]

Amazing news - this is a real boost for all those on Ibrance x

[Nocillo]

Wonderful news! Celebrate! I hope you get many more years!

[RachH20]

Wonderful to hear! Congratulations on those amazing results!! Xx

[Beryl71]

Great news! I'm on 125 mg ibrance and letrozole and after 18 months my lungs are clear and bones stable. I just try to eat healthily and get regular exercise but don't follow any rigorous regime. I reckon I don't want to punish myself, having MBC is quite enough. So if I fancy a choc ice, or slice of cake I have it. I'm 72, and yes it's lovely to think you've got some future! Love Carolyn x

[Justme153]

WOO HOO Wonderful Wonderful Wonderful😊🎉🎉🎉

[birdibelle]

I have MBC. Congrats on your new update. Any advice on how to handle some who act like I am dead.

[DDIL1 in reply to birdibelle]

Hi Birdiebelle! I am laughing at your post! That is happening to me all the time. I’ve been trying to educate people. I get oh “you look good” like I should look different. Or oh my I’m so sorry how are you? People just have a vision of what they think when they hear MBC. They just don’t know.

[Sharon0122 in reply to DDIL1]

I had a not ‘anymore’ wealthy friend tell me I was too old to have surgery (70) and that pet scans are too expensive to check my progress. When I called her on it she became very defensive. We’ve been friends for almost 20 years and she recently inherited millions from her father which she contested the will as one of her brothers who was disengaged with the family receiving 1/2 a mill which she said he was not entitled to. She was never like this before her father died. I don’t need that negativity in my life.

[Misspositiveattitude in reply to Sharon0122]

That's sad after 20 years of friendship! Granted the Pet Scans are expensive, but if you want to be assured of new or disappearing tumors or any hot spots, the pet scan tells you. Mine sure changed my attitude!! To know the Ibrance and Fasolax are working. Negativity is not a great healer, so sadly I would not communicate with your friend.

[Sharon0122 in reply to Misspositiveattitude]

Yes I have to keep a positive attitude and if I see her name on a message or phone call it stresses me out. I surely don’t need that. She has another friend who has cancer and supposedly beat it, and first thing she asked when I told her about mine was ‘how long do you have?’ I told her I didn’t know they don’t tell you that anymore and she laughed, said I need to find a new dr.

[Misspositiveattitude in reply to Sharon0122]

OMG▪▪ that would be such a downer! I fired my 1st oncologist because he told me at our first meeting...You have 1 year with no treatment and maybe 2 with😡😡 and now after almost a year the ibrance and fasolax are destroying my cancer cells!!!!-

[PJBinMI in reply to birdibelle]

My sense of humor is very active, especially about this stupid cancer. I might ask someone doing that if they plan on coming to my funeral, partly to get death out on the table! Then I would try to educate, educate, educate. The worst thing anyone has said to me was an older man who asked "which one" while staring at my chest! No time to think and I just silently stared at him.....sometimes silence works very well! Maybe we should have a contest here about the worst thing some one has said to us during a given week! Gotta be able to laugh!

[Sharon0122 in reply to PJBinMI]

My husband’s sister who never liked me has already bought an advanced round trip ticket to my funeral, lol I’m going to beat her at her own game. She hasn’t been welcome at my house for 20 years, since she told me she didn’t like me as I wasn’t from Minnesota! My passport says ‘American’ I think hers says ‘Idiot’ !

[Cureforever in reply to birdibelle]

I feel for you. I have mbc for2.5 years and am on my fifth line of treatment. I have lots of anxiety and fear. Reading posts from people who live 18 and more years with this gives mr strength. I can’t read stuff that gives statistics and also stuff that says that this disease is terminal. Our whole life is terminal. No one knows what’s going to be tomorrow. I understand this in my head but I lost a joy of life. I hope for new curative drugs. I advocate for ErSo that is on preclinical trial with the systems oncology. There is a lot of research going around for new drugs. Hope we will get a breakthrough soon. Best,Marina

[Gibby21]

Congratulations doing a happy dance for you!!

[DDIL1]

Wow congratulations!! You give us so much hope and I am grateful for your diagnosis. Dance like nobody’s looking and enjoy life! Thank you for sharing.

[love2golfwell]

That is wonderful news for you! I have been on Ibrance and Letrozole for about a year and a half and scans have been good. Hope this protocol works for you for many years! Curious why the oncologist is dropping your dose to 75 mg?

[AvidBooklover]

Congratulations...just wonderful newa!

[Kruza]

Oh wow such good news, thank you for sharing, my spirits are lifted.

[Kcap430]

Woohoo!! What fantastic news!! Thanks for sharing ❤️

[Hidden]

What amazing news.I am sure your positive attitude helps

Clare

[Totheriver]

Great news!!

[Gingerann1]

Congrats! We can celebrate together! I am on the same treatment since Dec of 2020 and got the news on Mon from my scans that I have “no evidence of metastatic disease”! Had pleural effusion in left lung. Always happy when results are “no further progression” so this was quite a happy surprise. Even brought my Onc to tears, telling me “this is as good as it gets”!! I hope you get to NED (no evidence of disease) with your next scans and I pray a lot of others get to have this feeling during their journey. I know it will rear its ugly head at some point but we can bask in the moments like this when we get them!😎

[debbiedo2063]

Wow amazing news. So pleased for you. Celebrations are needed.Debra 😍xxx

[BOBLUE]

That is wonderful news!!

[Adele_Julia]

Fabulous !!!!!

[Suzie-Wong24]

Praise God! It is a miracle..So happy for you. Enjoy each day to the fullest!!

[Hidden]

Wonderful to know that people can be on Ibrance that long! I have been on it 2 years and it is still working! Praying for many more years! So glad you are doing well!

[BluHydrangea]

Fantastic news!!!! Celebrate!!!

[Shafight]

That’s great an uplifting news. I’m so happy for you

[Phillipians4and6]

Yes Indeed!!! Thank you Lord. You are a miracle worker!!! Im so happy for you. Continue to spread positivity, hope and encouragement.

[Hidden]

Great news! So happy treatment is working!

[WhippetX2]

Congratulations! It is wonderful to hear good news. Enjoy and thanks for sharing.

[8576]

So happy for you and glad Ibrance is working. I am on the sister drug, Verzenio plus Tamoxfen.

[8576]

Forgot to sign off.

Cheer, June S.

[Hotlantaphatz]

That is fantastic news.

[Hidden]

Great new ! Enjoy !

[mariootsi]

Enjoy the sunshine!

[Timtam56]

How amazing. Always good to hear good news.

[JoyBe]

I Love It!! Clearly your POSITIVE Attitude is Healing! Thank you for sharing and keep bringing that wonderful sunshine into your life, it's the Best Medicine!

[RLN-overcomer]

Greetings: Sister/Warrior I am sooo happy to hear the great news😇

[hurricaneheather]

celebrate you! original bc mets to right pleura dx July 2015. treatment Aug 2015: Ibrance, Anastrozole, Zoladex; still on same line of treatment. Ibrance was dropped to 75 mg at the end of 2015 or beginning of 2016. NEAD March 2016.

[elle3054]

Wonderful!!

[Tam-56]

Wow!