Change of meds

[Soloray12]

Hi so had good response to Pablo and letzo for 24 months, shrinkage and stable. Last scan showed growth in bones and liver😞😞, I was so enemic I had to have two pints of blood ☺️ wow that made me feel better. So my question, I am moving onto Cape tablets and I am wondering how you guys find them , it took me about 6 months to tolerate the Pablo as I'm sensitive to meds it turns out .

Let's hope cape can put the monster back in the box , tips on what to expect welcome ❤️❤️

[Hidden]

Hi Soloray12,

I'm sorry to hear about the progression and change of treatment.....I know that can be so stressful....I'll confess that had to look up "Cape"...also called Xeloda...I think there are many people on that treatment here in this community, so I'm sure folks with experience will weigh in soon. From what I've gathered, it's not too bad...and does help put the monster back in the box (!! good description !!)....I'm hopeful this will be true for you!

I just need to add that your pic is lovely! You look beautiful and that throw blanket and background look glam/luxe and so well coordinated! A cozy, aesthetically pleasing bed, with a good book or movie thrown in, is just what we need sometimes! Any time I'm stressed or tired I announce that I'm going to "take to my bed!"...Always helps!

Take care,

Lynn

[Discocat]

Hello, Sorry you’ve had to change meds. I’m not on your new treatment but I’ve had a similar experience with my first treatment…being told that I’m sensitive to it. I reacted bad to Kisqali but was switched to Ibrance, which 4 months in, is much better. So there’s every reason to believe that your next med will be great!!!

You look fighting fit , not much consolation I know…but you seem to have a great positive attitude too.

Wishing you a great response and continued success with your treatment plan!

Best wishes Zoe xx

[Shellbelle124]

I have been on Cape for a year and have had a good response with it. The only side effect for me is hand/foot syndrome and it’s not that bad. Good news is that it has decreased my tumor markers significantly and my scans continue to be stable. 🙏

[Pbsoup]

I am on Cape (Xeloda) and have been since November. The hand feet thing is a bore, not gonna lie but I bought some lovely, locally made CBD cream (a brand called Sonoma Apothecary in case they sell online) that seems to help, and smells lovely.

I do find exercise helps, I bought a stationary bike (a Peloton) and it isn't too hard on my feet and they feel better afterwards. I also ride horses, but realize that's not everyone's cup of tea, I am an n=1 here, but perhaps the exercise helping has to do with blood flow?

I also get a bit of fatigue, but nothing insurmountable.

Oh, and hydrate hydrate hydrate.

There are a lot of women for whom Xeloda works for a long, long time, so ugly, sore feet seem a small-ish price to pay.

P

[Soloray12 in reply to Pbsoup]

Thankyou so much , I had a blood transfusion last week as I was so enemic, just done bloods to see if I can have the new Cape 🤞🤞must admit thought I'd feel better being nearly 4 weeks off Pablo? I'm a bit stiff to say the least , let's hope I can have them , Onc. Calling me tomorrow ♥️♥️♥️

[DDIL1]

I hope things are settling down for you and xeloda/cape will work for you long term with little side effects. I have several in my support group that do well on this, hoping the same for you.