Change of meds : Hi so had good... - SHARE Metastatic ...

SHARE Metastatic Breast Cancer

6,792 membersā€¢8,415 posts

Change of meds

Soloray12 profile image
Soloray12
ā€¢6 Replies

Hi so had good response to Pablo and letzo for 24 months, shrinkage and stable. Last scan showed growth in bones and liveršŸ˜žšŸ˜ž, I was so enemic I had to have two pints of blood ā˜ŗļø wow that made me feel better. So my question, I am moving onto Cape tablets and I am wondering how you guys find them , it took me about 6 months to tolerate the Pablo as I'm sensitive to meds it turns out .

Let's hope cape can put the monster back in the box , tips on what to expect welcome ā¤ļøā¤ļø

Written by
Soloray12 profile image
Soloray12
To view profiles and participate in discussions please or .
6 Replies
ā€¢

Hi Soloray12,

I'm sorry to hear about the progression and change of treatment.....I know that can be so stressful....I'll confess that had to look up "Cape"...also called Xeloda...I think there are many people on that treatment here in this community, so I'm sure folks with experience will weigh in soon. From what I've gathered, it's not too bad...and does help put the monster back in the box (!! good description !!)....I'm hopeful this will be true for you!

I just need to add that your pic is lovely! :) You look beautiful and that throw blanket and background look glam/luxe and so well coordinated! A cozy, aesthetically pleasing bed, with a good book or movie thrown in, is just what we need sometimes! :) Any time I'm stressed or tired I announce that I'm going to "take to my bed!"...Always helps! :)

Take care,

Lynn

Discocat profile image
Discocat

Hello, Sorry youā€™ve had to change meds. Iā€™m not on your new treatment but Iā€™ve had a similar experience with my first treatmentā€¦being told that Iā€™m sensitive to it. I reacted bad to Kisqali but was switched to Ibrance, which 4 months in, is much better. So thereā€™s every reason to believe that your next med will be great!!!

You look fighting fit , not much consolation I knowā€¦but you seem to have a great positive attitude too.

Wishing you a great response and continued success with your treatment plan!

Best wishes Zoe xx

Shellbelle124 profile image
Shellbelle124

I have been on Cape for a year and have had a good response with it. The only side effect for me is hand/foot syndrome and itā€™s not that bad. Good news is that it has decreased my tumor markers significantly and my scans continue to be stable. šŸ™

Pbsoup profile image
Pbsoup

I am on Cape (Xeloda) and have been since November. The hand feet thing is a bore, not gonna lie but I bought some lovely, locally made CBD cream (a brand called Sonoma Apothecary in case they sell online) that seems to help, and smells lovely.

I do find exercise helps, I bought a stationary bike (a Peloton) and it isn't too hard on my feet and they feel better afterwards. I also ride horses, but realize that's not everyone's cup of tea, I am an n=1 here, but perhaps the exercise helping has to do with blood flow?

I also get a bit of fatigue, but nothing insurmountable.

Oh, and hydrate hydrate hydrate.

There are a lot of women for whom Xeloda works for a long, long time, so ugly, sore feet seem a small-ish price to pay.

P

Soloray12 profile image
Soloray12ā€¢ in reply toPbsoup

Thankyou so much , I had a blood transfusion last week as I was so enemic, just done bloods to see if I can have the new Cape šŸ¤žšŸ¤žmust admit thought I'd feel better being nearly 4 weeks off Pablo? I'm a bit stiff to say the least , let's hope I can have them , Onc. Calling me tomorrow ā™„ļøā™„ļøā™„ļø

DDIL1 profile image
DDIL1

I hope things are settling down for you and xeloda/cape will work for you long term with little side effects. I have several in my support group that do well on this, hoping the same for you.

Not what you're looking for?

You may also like...

Please help with adjusting dose of cape and questions I should ask?

Thank you everyone who helped during my first week on and off Cape with so many suggestions. My...
Bettybuckets profile image
ā€¢

Metronomic Dosing of Xeloda (capecitabine) (cape) is working for now

My first line of treatment for bone only MBC was Kisqali and Letrozole for almost two years. I was...
Thrifty51 profile image
ā€¢

Goodbye to Ibrance . Gutted but not surprised.

After my recent plural effusion and IPC catheter op I asked for an urgent scan and review as they...
debbiedo2063 profile image
ā€¢

change in meds to afinitor & exemestance

Hi again, I was on ibrance & faslodex but the past 3 months my ca 27 29 markers have been climbing...
LisaT23 profile image
ā€¢

Change of plans

Hello Friends I had a very confusing phone call from my Breast surgeon last night . Plan was to do...
Anitafazz profile image
ā€¢

Moderation team

See all
Jslanovich profile image
JslanovichAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.