For those being offered or starting this protocol - here’s an update. I know when I joined this group - it meant a lot to get information and experiences.
Faslodex is my second line treatment- after Ibrance, Femara & zoladex. I’ve been feeling well on Faslodex - still going about my daily routine and working. After second MRI, my onc called with good news that there has been good shrinkage in liver and clavicle, and my femur had healed… yay! I was so afraid and anti this treatment but I’m so happy to be on it, apart from the obvious ‘pain in the butt’ which actually isn’t that bad, more of a discomfort. I’ve been fortunate not to have any side effects worth mentioning. I have a good diet and drink lots of water.
However, even though MRI was excellent, something new showed up that still needs investigating under my armpit, but until I know what’s what… I’m not crying about it just yet (too busy!) even though I’ve convinced myself it’s bad news and I’m either going to have a mastectomy, change drugs and go straight to hardcore chemo and lose my hair… I’m just processing the possibilities whilst clinging onto positivity. What the hell is under my armpit? Bring on the CT scan and biopsy I say!
N x