Frankincense

[Brilly2501]

Hi Ladies!! I’m new on here and would like to interact with people in similar situations and maybe help each other along the journey. This is probably old news but is anyone taking Frankincense oil to fight cancer? I just started about a week ago…1 drop in a veggie capsule. It’s supposed to help with diarrhea that comes with Verzenio…but we will see about that. Hope everyone is having a great night (or day) wherever you may be… Glad to be here…Fighting along with you friends!

[Ycats277]

Hi this is Stacy , I have been taking Versenio for five years. I am now in remission . I started on 150 mg and I had the diarrhea all the time he lowered my dosage to 100 mg in a completely went away. I never have diarrhea ever it made that much of a difference and I still got into remission 100 mg was enough to do its job. I’m also on faslodex injections and Xgeva injection for the bones er/pr positive. I was grade 3 and still hit remission . I never believed that we could be in remission but he said so. Still in six months I go for my full body pet scan and see if I spread even though I’m in remission.

[Cureforever in reply to Ycats277]

Hi Stacy. It’s Marina. We have been communicating with you on ErSO group. I am so happy for you. I did not even know if remission is possible. Is it your first line of treatment? I am on my fifth line over 2.5 years. We’re are your Mets? Best

[Ycats277 in reply to Cureforever]

Hi Marina it’s Stacy . I not only communicate with you on ErSO, I have been communicating with you for the last three years here. This is my first line of therapy ,I started May 15,2017. 5.5 years first line . Verzenio, faslodex injections monthly and Zometa infusions monthly. 4 months ago he switched me to Xgeva injection instead of zometa. my last three pet scans full body with contrast showed no signs of the cancer. There was scarring that showed but apparently this last pet scan he told me I’m in remission. He doesn’t talk much so I was shocked, he walked out of the room and his nurse hugged me. I didn’t see him again. That happened two weeks ago. I see him again in two weeks and I’m gonna ask him a lot of questions. Right after I now somehow contracted shingles and I am very miserable. So he put me on medication for shingles in a line of blisters an inch thick by about 7 inches long going all along my back. Ouch OK have a good day if you have any other questions please feel free to ask me I will answer anything at any time. Good luck

[Cureforever in reply to Ycats277]

Thank you Stacy. You are right we have been communicating on this board as well. I just forgot. I am sorry for your shingles. I was thinking to do the vaccine but I am scared of it. Every time I do any vaccine I get problems. I got heart issues and was supposed to have a pacemaker after a Covid booster. Mbc I also got after two vaccines that I needed for my job. Hope you will feel better soon. My first line was ibrance and exemestane I am happy for your remission. Best

[Cureforever in reply to Ycats277]

What Mets did you have? We’re there improving over years until you got remission?

[Brilly2501 in reply to Ycats277]

Wow! That is awesome... I didn't know remission was possible either... My Dr said he feels they are within 5-10 years of creating a vaccine for BC... I sure hope so!

[Ycats277 in reply to Cureforever]

Also I am ER/PR positive it spread to ribs only so far but since has healed . I still feel soreness on the bad side yet he says remission. So of course I always wonder them what am I feeling that feels sore.

[Cureforever in reply to Ycats277]

Thanks for sharing. I have multiple bone Mets and at one point I got liver. I am very happy for you. Hope you will get better with shingles soon. Best,

Marina

[Gingerann1 in reply to Cureforever]

Hi Marina! Remission is possible! I reached NED (no evidence of disease) with my scans on Monday! 15 mos on Ibrance 125 and Fulvestrant. Had lung Mets (pleural effusion) now gone! Even though I know this nasty disease will pop up somewhere in the future I am basking in the moment when I read that report: “Findings: no evidence of metastatic disease”!!! My Onc shared in my joy yesterday…giving me a big hug, tears in his eyes saying “I’m so happy for you! This is as good as it gets”!!!! I’m still in shock but believe me, will treasure every extra moment I get and hope and pray for all of you that you have a time of feeling this way as well! Hubby and I are going to celebrate with a nice dinner this week.

[Cureforever in reply to Gingerann1]

Thanks for sharing. I am so happy for you.!! Enjoy your celebration! Best?

Marina

[Gingerann1 in reply to Cureforever]

Thanks Marina. Woke up this morning feeling briefly that it was a dream…

[Ycats277 in reply to Gingerann1]

Hi , this is Stacy , I’m curious, my oncologist for the last 1.5 years of pets always referred to my pet results as NED until this last one , he said looking at my scan , you have reached remission . I was speechless 😶 and he walked out smiling then the nurse hugged me. I wanna know what the differences between NED and remission and I will ask him in 2 weeks when I go back . I really believe that the best we could be is NED And that we could never be in remission, that was my understanding. But I was so shocked and speechless which is not like me. I’ll be sure to find this all out in two weeks. Xxoo

[Cureforever in reply to Ycats277]

I always thought like you about Ned. My goal is at least for Mets to shrink. What was your secret? What did you do? Yoga, walking, meditation? I am always in the state of anxiety and I know that it doesn’t help. Last pet ct showed some problems with my kidney and I just got a ct to find out what is this. I am a nervous rack. I lost a joy of life having these scans, bloodwork, etc. I had a such hope for ErSO when it was in Bayer’s hands but now it’s more and more time. I need the word remission to feel myself like I used to feel before mbc. Sorry for wining. Best,

Marina

[Ycats277 in reply to Cureforever]

Marina you can whine , hollar and cry because what we are fighting for is one of the few incurable cancers. I have shingles right now from how nervous I am all the time. Besides for taking care of myself I have my mother who lives with me with Alzheimer’s dementia and lung cancer stage four. I am her caretaker I have nobody. We both go to the same oncologist an hour on the same day for our treatment. She’s on immuno therapy with severe diarrhea and weakness. So when I’m not feeling good like right now with my shingles I still have to take care of her every single thing. She’s well enough to tell me that she doesn’t wanna nurse. Until she’s not well enough to say that I will not do that to her. Anyway you asked me what I did to get to where I am. Nothing. I eat the same, I never started with supplements, I eat bread butter steak pasta vegetables . But a lot of the times I feel sick and because of everything that I have to deal with that I can’t really eat much of anything. But when I do I eat whatever I can. In the last five years I’ve never changed anything. I smoke pot then I quit then I smoke pot again then I quit. That’s my life, I hang in my condo with my mother and the only time we leave is for treatment. Everything gets delivered. I don’t have any friends so it’s a very lonely world aren’t you glad you asked. That’s my story.

[Cureforever in reply to Ycats277]

Thank you Stacy for allowing me to whine. I do whine and cry very often. I am sorry again for you suffering with shingles. Hope you will recover soon. I understand that your life is very difficult. Sorry about your mom’s situation. I also eat everything. Every time I read about diets and supplements, I think that maybe I should follow it. But I was on some diet and ate whatever I did not like but my disease still progressed. Thus, I decided to eat everything and enjoy. I have a very strong belief that we will get a cure. I like another group where our ErSO members and others post the latest research. MBC trials and innovative treatments. Today Marcie posted a very promising article about Dr. Kang’s research that I am following for a long time. I communicate with him on Twitter

but he says that he needs more fundings for this study to go into clinics. Stage 4 sounds very scary but you gave me more hope that it may go into remission.

Best to you and your mom.

Marina

[Ycats277 in reply to Cureforever]

Hope really is a great thing to grasp onto other then despair . I pray so, hope , pray ,study , investigate and ask questions. Learn all I can from others who have been here and never give up until I can’t breathe anymore .

[Cureforever in reply to Ycats277]

You are amazingly strong Stacy. I admire you

[Brilly2501 in reply to Cureforever]

I understand your anxiety... I've never really experienced true anxiety until this year...every kind of test, any kind of test and there I go sweating, feeling like I can't breath, unsettled... It's a terrible feeling. Praying for you girl!!

[Cureforever in reply to Brilly2501]

Thank you for sharing your experience and nice words. It’s a such horrible disease. We need cure. Research takes very long. Good luck to you

Marina

[Gingerann1 in reply to Ycats277]

Hi Stacy! That would be confusing to me too! When I asked my Onc yesterday how best to explain this NED to family and friends he said “remission, deep remission, it’s as good as it gets”. So from that I can only conclude that they are interchangeable. I would definitely have an in-depth conversation w your Onc at your next visit. Enjoy this declaration either way!

[Ycats277 in reply to Gingerann1]

So NED is deep remission. Same thing . Ok makes sense . No evidence of disease and remission are one in the same . Thanks 🙏

[Gingerann1 in reply to Gingerann1]

BTW, his plan for me going forward when it rears its ugly head again is to zap and biopsy anything the pops up and make a change to Verzenio from Ibrance. Hopefully that will be a good long time from now but I will note that my Onc is definitely partial to Verzenio. When I switched to him in January last year I had already started on Ibrance so he didn’t change but did mention he would have started me on Verzenio. It is another CDK 4 & 6 ( proteins needed for cancer cells to divide) inhibitor like Ibrance so next visit I want to ask why the preference. I will post anything noteable.

[Ycats277 in reply to Gingerann1]

I have been in Verzenio 100 mg for 5 years now along with faslodex injections and now Xgeva injection, originally I was on Zometa infusion up until 4 months ago . He switched me and said this is better . He doesn’t talk very much at all. I have to ask him a specific question and he gives me a specific answer no other words nothing just one word answers and that’s how it’s been now since 2015. He told me when I first met him that he will tell me when I need to know something if I have any questions because I’m uncomfortable he will address those immediately. So at the beginning years ago are used to say am I allowed to ask you. And the nurse would say you’re allowed to ask me anything but he really does tell you when he needs to tell you. It’s been like that ever since . It’s weird Huh.

[Brilly2501 in reply to Gingerann1]

That is sooo great and I am praying each and every one of us gets that sort of news!! Enjoy your celebration dinner...so happy for you : )

[Staysha]

Hi… I’ve not used Frankincense but I know someone who has. He had stomach cancer that also went to his colon. He looked like walking death and the dr told him to get his stuff in order. He started taking frankincense and his cancer is gone. He has gained his weight back. I thought about it but I’m not sure which brand/kind to use. What exactly are you taking? I’m very interested. Thanks,

Stacy

[13plus in reply to Staysha]

Can you ask your friend exactly what type he took? That’s a wonderful story! I read that there are different types of Frankinsense and only one is supposed to be helpful for cancer

[Brilly2501 in reply to 13plus]

Taking the doterra brand...but I think as long as it is made in the USA and pure...that is wonderful news about your friend!! I hope we all can get good news!

[Brilly2501 in reply to Brilly2501]

I put 2 drops in a veggie capsule and I've been taking Curcumin once a day with black pepper...no I'm really not a freak just trying to do everything I can... also praying and I feeling like these things have been put in my path

[13plus in reply to Brilly2501]

I love turmeric, I really believe it has benefits but be mindful to check, if you haven't already, that it doesn't interfere with your particular medication. Some breast cancer meds cannot work so well if turmeric is also taken.

[Brilly2501 in reply to 13plus]

Oh thanks for that info Is l’ll double check with my dr but I’m pretty sure he said it was okay

[13plus in reply to Brilly2501]

That's meant to be a decent brand but I was more curious about the strain/variety of Franckinsense, that her friend took, as that's an important detail

[Brilly2501 in reply to 13plus]

Oh sorry, I will try to find out

[13plus in reply to Brilly2501]

It's ok. I really meant that question to go to Staysha because she was the one who mentioned her friend having a very positive outcome, possibly by taking the Frankinsense.

[love2golfwell]

Welcome to this wonderful site. I have read so many articles on the benefits of frankincense but have not felt comfortable taking it internally with the Ibrance and Letrozole. However, I have a frankincense oil blend in a roll on bottle from DoTerra that I use almost every day over my thyroid gland as it is supposed to be very good for that as well as for cancer. I went off my thyroid meds about 6 months ago and was applying the frankincense oil even before that. I need to go back for bloodwork to check my levels but have not noticed any kinds of problems with not taking the meds. Also, I have had clear scans since using it. Maybe that is just a coincidence. Keep us posted on how you are doing. Sending hugs.

[RedAzalea]

Hey there, I am also new and on Verzenio since February. I also had spread to my lung. Is it in both your lungs or just one? Did they Surgically remove the tumors? In my case, I had lung surgery in December. I also take Letrozole and Lupron injections to shut down my ovaries. I am wondering why they made you get a hysterectomy ?

[Brilly2501 in reply to RedAzalea]

There were 3 small spots, 1 in 3 different lobes 🙄, I was on Lupron shots once a month but he suggested a hysterectomy because there could be some side effects from Lupron (but I had been taking them for about 6 months with no problem) and I'm taking Letrozole too...Boy, it sounds like we are walking in almost the same shoes. Verzenio has been great except for diarrhea (which I can live with) but would love to come up with a pattern that would help with that so far I haven't.

[RedAzalea]

Good morning!I know they often do hysterectomies in younger women as more than a decade of Lupron isn’t probably a good idea! I have met some of these young women. Also, all the “Braca”women get them.

I am at the end of my 40’s so they said no hysterectomy (that the lung surgery was enough trauma to the body) and that I would eventually go into menopause.

I am treated at MSK in New York.

They did a wedge section surgery on my lung, took 2 tumors out.

I am assuming you didn’t have the tumors taken out because they were all in different lobes? Wow. 3 different lobes . My goodness…. This bloody cancer….the surprises never stop.

Did they tell you that you have “oligometastsis”?

I just want you to know I am so happy for you that the Verzenio is going so well!!!

You are one of only a few I have talked to (I heard of 2 others) who don’t have problems. It’s really quite nice to hear and hopeful to me.

I have a low white blood cell count and nausea often. Digestion is all screwed up. I am constipated for days and then have diarrhea. Food has lost a lot (not all) of its taste and I seem to crave white carbs exclusively. When The cramping starts (do you get these stabbing cramps before the diarrhea??) I start ASAP the BRAT diet and pop one anti diarrhea pill (the ones that came with the Verzenio). I try as much as possible not to take them. But eating the BrAT diet is for sure not the best diet for cancer. Sigh…. No winning…

I am really happy you do not have fatigue. I get quite sleepy a lot, at very inopportune moments. I have some hair loss too. Thank God, I still have hair (I was very thick to start with) but let’s just say I need to tie the pony tail holder 2x more around the pony tail 😻 The hair is the least of the problems and I feel embarrassed complaining.

Do you have any mouth sores?

I am sorry for all the questions. I only know 2 other women taking Verzenio and you are the only LUNG person I have actually communicated with.

Have a lovely day wherever you are!!!!!

Tara

[Brilly2501 in reply to RedAzalea]

Hey! I’m in the United States (South Carolina), I don’t have mouth sores but I do have some cramping. I think it’s not as often the longer I take verzenio. Sometimes I take Coq10 which helps with energy levels and sometimes adipex (diet drug) but as with anything there are side effects so check with your dr. I just started noticing some hair thinning which I’m very disappointed in (my hair is thick too but soon it might not be) …. I did read putting drops of rosemary oil in your shampoo will encourage hair growth but I need to check and make sure it safe is I use with all the meds I keep Imodium or something similar with me at ALL times …. Bananas help and someone said eating oatmeal tooo…. I tried that yesterday and didn’t seem to have issues 🤷‍♀️

Live we’ve made contact!!

Paula

[hurricaneheather]

bc mets to right pleura and malignant pleural effusion dx, July 2015; pleurodesis end of July. treatment: Ibrance, Anastrozole (Letrozole), and Zoladex (Lupron); (switched from). NEAD March 2016i have diffused Frankincense, along with Myrrh. diffuse copaiba, also.