Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

6,687 members • 8,227 posts

All posts for October 2021

Did anyone go back on target and hormonal treatment after Xeloda?

Hi wonderful people, I am on me second round of Xeloda after the disease progressed to new bones and liver. It’s my fifth line of treatment over two years. I...

Hi wonderful people, I am on me second round of Xeloda after the disease progres...

Cureforever

•3 years ago

51 Replies

After Ibrance and letrozole stop

What other oral treatment is available ?

Eliactida1955

•3 years ago

28 Replies

ErSO link to Facebook

Link to the ErSO activism Facebook group, for those interested. https://www.facebook.com/groups/1003821677141066/?ref=share

Link to the ErSO activism Facebook group, for those interested. https://www.face...

Hidden

•3 years ago

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Never had radiation, finally agreed to it. Terrified!

Hi all, I wanted to ask for your input on radiation that you’ve had. I’ve always been against doing chemo or radiation for myself, I never ever thought I...

Hi all, I wanted to ask for your input on radiation that you’ve had. I’ve always...

Verbena1

•3 years ago

54 Replies

There is a new group on Facebook called “ErSO activism” You may want to join

Hi wonderful people, There is a new group Danny Goss invited me to. It’s called “ErSO activism “. We exchange ideas and plan actions to fast track ErSO into...

Hi wonderful people, There is a new group Danny Goss invited me to. It’s called...

Cureforever

•3 years ago

11 Replies

Has anyone heard about ARX788 drug trial sponsored by Ambrx pharmaceutical?

Hi wonderful people, Yesterday I was talking to the member of the newly organized group on Facebook that is called “ErSO activism”. She told me that she is on...

Hi wonderful people, Yesterday I was talking to the member of the newly organize...

Cureforever

•3 years ago

8 Replies

Two weeks on Xeloda liver enzymes are up

Hi ladies, I have been in Xeloda for two weeks and my liver function enzymes jumped up high. The doctor took me off for two weeks already and repeated the...

Hi ladies, I have been in Xeloda for two weeks and my liver function enzymes jum...

Cureforever

•3 years ago

9 Replies

Left abdominal pain

Hi all! I hope everyone is having one of their better days ☺️ I am wondering if anyone else has had left abdominal dull, but intense aching under their left...

Hi all! I hope everyone is having one of their better days ☺️ I am wondering if ...

Ommmmmmm

•3 years ago

5 Replies

Cancer markers going up sharply, but PET scans showing NED

Anyone with metastatic breast cancer have or had breast cancer tumor markers go up, with clean PET scans?

Anyone with metastatic breast cancer have or had breast cancer tumor markers go ...

Fiercefighter13

•3 years ago

25 Replies

Every day is a new journey

I'm hoping to find more information from other people who have been diagnosed with metastatic breast cancer. Any tips on diet, different medications after the...

I'm hoping to find more information from other people who have been diagnosed wi...

Fiercefighter13

•3 years ago

5 Replies

Unexpected developments after good PET

A little over a month ago, I shared that PET results came back without progression with some mild improvement. In the meantime, I experienced tingling and...

A little over a month ago, I shared that PET results came back without progressi...

Tolife_18

•3 years ago

6 Replies

Diet/nutrition while on Ibrance

Does anyone follow a specific diet while on Ibrance? I read on the Mayo Clinic's site that green tea interferes with Ibrance/Letrozole combo. I also read an...

Does anyone follow a specific diet while on Ibrance? I read on the Mayo Clinic'...

Fiercefighter13

•3 years ago

14 Replies

Not sure what to think!

Well I had my first face 2 face oncology appt today, since diagnosis 18 months ago. I saw a member of the team who needed to refer to the consultant. I'm...

Well I had my first face 2 face oncology appt today, since diagnosis 18 months a...

Beryl71

•3 years ago

8 Replies

Hypoechoic lesion measuring 1.7cm in Liver

1.My mother is initially diagnosed with Breast cancer on 2011, mastectomy was done and 6 chemos done and was doing well till 2017 2.In 2017 again few lesions...

1.My mother is initially diagnosed with Breast cancer on 2011, mastectomy was do...

Prasath_sas

•3 years ago

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Increased tumor marker after radiotherapy

Afternoon all, I am currently on ibrance 75mg and letrozole. I had a mastectomy in June and radiotherapy which ended 20th August. On 20/8 my tumor marker was...

Afternoon all, I am currently on ibrance 75mg and letrozole. I had a mastectomy ...

Archiedog

•3 years ago

6 Replies

Switching from Letrozole to Fulvestrant, markers going up fast, any advice?

I'm curious about anyone getting Fulvestrant with Ibrance. My markers started creeping up about a year ago, then took two huge leaps two months ago, then last...

I'm curious about anyone getting Fulvestrant with Ibrance. My markers started c...

Fiercefighter13

•3 years ago

22 Replies

Canadians?

Hey there. Just wondering who here is from Alberta, Canada? I think we have a very unique and different drug and health care system so I’d like to know who...

Hey there. Just wondering who here is from Alberta, Canada? I think we have a v...

Staceyness

•3 years ago

17 Replies

Options for brain mets? Help please!

Hello all, I could really do with some advice please? Quick history, my wife is 38, TNBC, mets to lungs and brain. We went to see a surgeon who said he can...

Hello all, I could really do with some advice please? Quick history, my wife is...

Winner123

•3 years ago

26 Replies

Shaved hair?

I am on Ibrance and Fasolax and have short hair that is REALLY thinning and looking like a punk rocker at 75😉 has anyone gone ahead and shaved thier hair ,...

I am on Ibrance and Fasolax and have short hair that is REALLY thinning and look...

Misspositiveattitude

•3 years ago

23 Replies

Covid Safe and a much awaited hug

I haven’t seen my Brother for two years because of Covid and where we live. He is on a cruise that docked in Liverpool for a few hours. He has been with me all...

I haven’t seen my Brother for two years because of Covid and where we live. He i...

Hidden

•3 years ago

41 Replies

Ibrance with a feeding tube

I would like to hear replies from people who have started Ibrance and on Faslodex and are on a feeding tube. I finally have it figured out how to take the...

I would like to hear replies from people who have started Ibrance and on Faslod...

Angelmaker

•3 years ago

1 Reply

Metastatic Newbie…Not Where I Want to Be🙂

Looking for any helpful advice or suggestions. I had early stage breast cancer in 2002 and was cancer free until 3 months ago. It has metastasized and is now...

Looking for any helpful advice or suggestions. I had early stage breast cancer i...

Leefromct

•3 years ago

13 Replies

Fenbendazole

Good morning. Looking for some advice. I have estrogen positive stage 4 metastatic breast cancer with Mets to bones and liver diagnosed 6/2/20. I’m sure I...

Good morning. Looking for some advice. I have estrogen positive stage 4 metast...

Kellyonekanobe

•3 years ago

43 Replies

fillers on treatment

Okay ladies, anyone have their MO tell them it was okay to have either botox or fillers or both while on taxol. Crazy question I know and stupid but starting...

Okay ladies, anyone have their MO tell them it was okay to have either botox or ...

blms

•3 years ago

15 Replies

Starting Ibrance today!

Hi, I am beginning my Ibrance treatment tonight and am very nervous about side effects...nausea and hair thinning! I have been prescribed an anti-nausea med to...

Hi, I am beginning my Ibrance treatment tonight and am very nervous about side e...

Paratroop1

•3 years ago

36 Replies

Changing US Health Insurance with MBC

Friends in the USA - does anyone have experience with changing health insurance plans while in treatment for MBC? I currently have excellent insurance through...

Friends in the USA - does anyone have experience with changing health insurance ...

LDR1

•3 years ago

14 Replies

Barbtech

Hi Has anyone heard from or been in contact with Barbara? I hope she is okay.

Scandia68

•3 years ago

4 Replies

Faslodex refrigerated versus non refrigerated

First I was switched from the Refrigerated. Faslodex injections for 3 years with no problems , awesome pet scans to non refrigerated. The side effected were...

First I was switched from the Refrigerated. Faslodex injections for 3 years with...

Ycats277

•3 years ago

7 Replies

Metastatic BC liver and bones diagnosed 11/20

Just looking for some support and others experiencing living with MBC ❤️😀

Kbrownac1

•3 years ago

16 Replies

God is Good!

Stage 4 since Dec/2019 and still loving life! Went to Grand Canyon for my “63rd” birthday and enjoyed every minute! Saw Donny Osmond in Las Vegas and just...

Stage 4 since Dec/2019 and still loving life! Went to Grand Canyon for my “63r...

Samsontheodore

•3 years ago

29 Replies

Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

All posts for October 2021

Did anyone go back on target and hormonal treatment after Xeloda?

After Ibrance and letrozole stop

ErSO link to Facebook

Never had radiation, finally agreed to it. Terrified!

There is a new group on Facebook called “ErSO activism” You may want to join

Has anyone heard about ARX788 drug trial sponsored by Ambrx pharmaceutical?

Two weeks on Xeloda liver enzymes are up

Left abdominal pain

Cancer markers going up sharply, but PET scans showing NED

Every day is a new journey

Unexpected developments after good PET

Diet/nutrition while on Ibrance

Not sure what to think!

Hypoechoic lesion measuring 1.7cm in Liver

Increased tumor marker after radiotherapy

Switching from Letrozole to Fulvestrant, markers going up fast, any advice?

Canadians?

Options for brain mets? Help please!

Shaved hair?

Covid Safe and a much awaited hug

Ibrance with a feeding tube

Metastatic Newbie…Not Where I Want to Be🙂

Fenbendazole

fillers on treatment

Starting Ibrance today!

Changing US Health Insurance with MBC

Barbtech

Faslodex refrigerated versus non refrigerated

Metastatic BC liver and bones diagnosed 11/20

God is Good!

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