Hey there. Just wondering who here is from Alberta, Canada? I think we have a very unique and different drug and health care system so I’d like to know who may answer some questions in the future (about meds and treatments offered if and when needed) . Even more specifically, who may be from the Edmonton area!?!?! (I live in Sherwood Park🥰) Bonus if you have lobular MBC. I’m just curious❤️🙏🏻❤️🙏🏻❤️
PS: this is my amazing husband who takes incredible care of me. We invested in an e-bike for me so now I can keep up with him when biking 🚴♀️ One day at a time……
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Staceyness
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Hi Stacey, A very charming photo of attractive you and your supportive husband!
I, too, am a Canadian (as are a few others on this site in Ontario). I live in Saskatchewan where I am thankful for the blessings of medicare (thanks to Tommy Douglas, et al). Some of the American women on this site mention having to co-pay thousands of dollars for medications their insurance companies don't completely cover. Even though my husband and I have an excellent income, I really would hate to pay that kind of money for treatment poorly tailored to my individual needs.
My cancer is ER+, HER2-, ductal, and, at 76, I am old enough to be your mother. From my reading of breast cancer research, it seems to me the older one is when mets appear, the more likely it is that one will die from some other result of aging. It is also important to note the number of years between early breast cancer and metastatic as this may mean your particular form of cancer may be slow-growing.
You will find the women who regularly comment on this site to be supportive and helpful. Best of luck to you!
Well I beat you all to it. I am 78 and in January I will be 79. I have been on Ibrance (Palcociclib) and Letrozole for just over two years and recently have had scans which were NED. I feel so blessed. I live in BC - a very lovely province and I have a very kind oncologist - a young woman. She was obviously very happy for me. However, I do have to remain on the above noted drugs but I won't have another scan for six months. I have used the mantra "I am healing" everyday during this journey. It may have helped me. Hugs to all you older gals who still love life and want healing to happen to them too. I believe we all stand a good chance to get completely well. Read everything you can - that is my advice - and try to incorporate as many things as possible to get the healing going. Dr. Joe Dispenza says we have tremendous powers of healing just in our body alone. I believe he is right. We can get well and we will get well. Marlene
Hi I am from Alberta. Also on Ibrance & lethrozole. diagnosed Feb 2020. I need to join the site formally & I will do so. I am doing well but sometimes it is scary. I am off to Cancun for a week this coming
Welcome! We Canadians probably are in a different situation than many others on this site so it is good that Stacey asked us to self-identify. Enjoy your trip to Cancun! Cindy
Hi Stacey: I am Canadian also, although from Ontario. Glad you have found this site. A great source for information and support. I see Sandra has already replied to you and that is great. She is a nurse and a very good source for accurate information. So important! Take all others with a "grain of salt".
You are fortunate to have a supportive husband and lovely that you have got an ebike. You will find there are a few here who have one and love it. It will be great to hear about your adventures on yours.
Welcome and all the best to you. By the way, I am 81 and diagnosed in 2013.
Hi Stacey and hubby. I'm from Newfoundland and also have lobular MBC. On ibrance and letrozole, scans in a couple of weeks. Just thought I'd say hi. Picture from 2021 Staycation. 🙂
Lobster pot and floats on wharf in Kings Point, Newfoundland. August 2021.
Hi Stacey Another fellow Canadian but from Ontario. I am 58 diagnosed in 2003 and returned 2015 MBC . I have been on a few lines of treatment over the past 5.5 years since reoccurrence. Finished 6 rounds of IV Paclitaxel in May this year & doing well .
Yes our medical system can be a little challenging to navigate here also .
Enjoy your bike rides ,supportive partners are great !
Hi, I am from USA but wanted to say hi. I am on Xeloda now. It’s my fifth line of treatment over two years. Some people are lucky to stay on one treatment while others have to change treatments to stop the progression. I have wide spread bone Mets and new liver one.
I hope Stacey will find this community very supportive as I do.
Dear Luann,
You mentioned that you finished six rounds of IV chemo in May and feel well. What treatment are you on now? Are you without meds? Where are your Mets?
I would like to inform you and other women (in case you do not know) to give you more hope that there is a very promising compound that is called ErSO that showed incredible results on mice and other animals. If proved to be effective on humans it may cure mbc or be a very effective treatment. The articles about this drug that was licensed by pharmaceutical company Bayer came around July and August and had very encouraging information. You can read my and others posts on ErSO here if you researched ErSO. We have a group on Facebook that is called ErSOactivism. You and other women from this forum may join. We have many Canadians there.
Hi Marina I am currently doing pertuzumab and trastuzumab every 3 weeks & daily Extremestane . I have Mets to lungs , bones & liver.
I have been doing well , I have some pain in my hip area and will be meeting with my radiation oncologist next week to discuss a treatment or two for pain management. Otherwise pretty good hair and eye lashes and brows have returned.
I definitely don’t have the energy that I once had but I still do have a good quality of life.
It will be interesting to see what Bayer ErSo treatment has moving forward 🤞🤞🤞🤞
👋 I too am from Alberta. I’m from the east central rural area treatments and doctoring is a challenge as not really close to any major centre. My onc happens to be in Calgary which is 3.5 hrs away but when you get a good one who’s supportive of what you want it’s worth the travel and also good about doing phone consults. I’m five years in with bc mets to my lungs and taking a complimentary approach and focused on listening to what my body needs and just living life. You look like you’re doing well and enjoying life. Good for you!
I live in the US but my mother's parents were both born in Toronto and I like to say I'm half Canadian! I appreciate hearing from other women who live in different countries and wish we all had inexpensive/free medical care. It really is crazy that drug companies can charge so much for meds. AT a bc conference (don't remember which one) one of the speakers mentioned that drug companies spend as much or more on advertising as on research. That seems so wrong to me....but too much is profit driven these days. I live in a rural area and have to drive for about 80 minutes to the cancer center that's closest to me. I hope you do well.
Nice photo of you and hubby. I don't live in Alberta but I think Canadians get the same mbc drugs as other countries. Our health care system might not be the same as USA and UK but I think all cancer centers have the same access to scientific discoveries. And our provinces pay for our medications. I feel so blessed by that system. It gives us all a fair chance of healing. Hugs M.
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Hi everyone, I'm new here
We did it sorry for the delay in posting 
Memory books; letters to family for after I pass on (which I hope is a long time)!
