Metastatic BC liver and bones diagnosed 11/20

[Kbrownac1]

Just looking for some support and others experiencing living with MBC ❤️😀

[Ardie1970]

Welcome and very sorry you have to join us...I was diagnosed de novo in January 2021. I too have bone and liver Mets. I know you will find lots of info here and tons of support!

[luckysmom13]

Welcome to the "worst club with the best people." Everyone on this board is kind and supportive. If you make a post to introduce yourself, talk about your concerns and ask questions, then folks can give you specific input. It helps to know others are going through this too.

I've had MBC sunce 2016 with bone mets. It does get a little easier with time. Please DM me if you want.

Amy

[Hidden]

You’ve definitely come to the right place for information and support. I was diagnosed with de novo MBC in Feb 2021 with extensive bone mets. I’ve found this group very helpful. You’ll get lots of responses if you post specific questions. Feel free to DM me if that helps. I agree with Amy, it does get easier to adjust to your “new normal “ over time. Stay strong!

[mariootsi]

Welcome and so glad you found us. This is an amazing, caring, thoughtful, supportive and helpful group of women.I couldn't have made it through many things without them!

[Gwennie123]

I’ve had MBC for 3 years. I know women who’ve had it fo 12 years. I look at it as chronic not terminal. I had plain old bone cancer for 10 years before. Eat well, lots of water, exercise and rest. Ask lots of questions - of your oncologist and this group. And hang on for the ride of your life.

[Mamacass67]

Hi there, In 2008 I was dx with bc & mets in lymph nodes, skull, liver & abdominal lining & was given 18mths! I've been on FEC, Tamoxifen, Letrozole, Capecetabine & now Ibrance & Faslodex. I've had a lumpectomy & RFA 3 times. I was on Tamoxifen for 5yrs with no progression & another 5yrs on Letrozole. I currently have a couple of mets in my pelvis & have a scan next wk. It is difficult at times living with cancer but try not to dwell on it too much or it can be overwhelming!

[Lillysue]

I was diagnosed last month with MBC Mets on my liver and pelvis. Just wanted to say hello.

[8576]

As you can see you have come to the right place for information and support. I was diagnosed in 2013 and am now on Verzenio and Tamoxifen. There are so many drugs available to combat MBC. Mostly, you can manage to live a good life with this disease. Even with side effects. Don't be afraid to ask questions here and of your oncology team. I found that a lowered dose of a medication works well and if you need to, get a second opinion. Not every oncologist knows everything. Wishing you the best,

Cheers, June S.

[Jenhood]

Hi I was diagnosed with MBC liver and sternum June 2021,

On 3 rd round of Ibrance , other than having mouth ulcers for a week , I am doing ok. Don’t know yet if they are working (Ibrance), will have to wait for next CT scan but I’m positive that I’m heading in the right direction.

[Aquadog]

Hi. Sorry you have to be a member of this club, but there's a lot of great support here. I was diagnosed with MBC in December 2016 with bone mets and have been on Ibrance and letrozole since February 2017. Feel free to ask questions, rant, or just connect when you feel lonely.

Susan

[atoth17]

Welcome! I was also diagnosed 11/20 with Mets to bones and liver. I’m on cycle 11 of Ibrance and also take Exemestane (Aromasin). So far things have been stable in terms of the cancer, anxiety and worry not so much. 🥴 I really like this forum, it has been very helpful. I hope you can find some comfort here. 🌸

[Have-faith]

Hello. It looks like you are coming up to your one year of living with mbc. Hopefully it has become a little easier for you to adjust to all the necessary changes when living with this and any chronic disease. From my experience and reading what other lovely ladies have written we may now find ourselves living with many up and down days. Hopefully more up days than down, but waiting for test results or an odd feeling can lead us to that darker place. I was dx denovo on Halloween 2017 at the age of 52. I was shocked as I was always healthy! This month will be four years since I was dx. Of course it is a lot to process. I am doing fine despite now being on IV chemo (Abraxane). I managed on oral hormone inhibitors for the first three years. Of course I was bummed going on Abraxane, but I have been managing it well. What I have learned is that we are all different and our bodies will react differently to meds. I walk a few miles everyday and try to keep active in order to keep my bones strong. I feel better when I drink alot of water and I mean alot! Everyday I wake up and feel ok I am grateful. Sometimes I remind myself that I am in my fifties so of course I may feel more fatigued then I used too! I also know that meds may stop working after awhile and meds will need to be changed. Every day new meds are being worked on and I believe miracles do happen so I stay hopeful and believe anything can happen! This blog is a great one. I find the women to be very supportive. I did join a closed Facebook site for MBC and I must say it can be rather depressing on a regular basis. Infact, I have silenced that group so I don't see the posts everyday. I don't think it is good mentally to read sad stories everyday and again, we are all different. I was dx with liver and bone Mets from the get go. Best wishes for you! Welcome to the group. Great group, but like someone else said, "I wish none of us had to be here!"

[Corrina97]

Sorry you have had this devastating news. I have liver bone lung and lymph node mets. I do find it hard sometimes as but I mostly just try to live the best I can and make the most of what I've got. Im on Ribociclib, Fulverstrant and Denosumab. Hoping your treatment works well for you🥰 x

[Contrarielle]

Hi, how scarey for you. This group is nice because you don't feel like the only person you know with the problem. Hope your treatment goes super smooth. ♡

[Laskia]

I'm fairly new to MBC, although have lived under the shadow of BC for 27 years. I never wanted to join this club, but here I am, like you, looking for hope, support and inspiration. It has been so encouraging reading other people's posts as they all seem supportive and helpful. like 'Have-Faith' above, I joined another group but it left me anxious and literally terrified. Everyone there seemed to be competing to see who could have the worst side effects and generally seemed to take a very dim view of the medications that were prescribed to help us which didn't give me much confidence.

Consequently, I began Letrazole and Ibrance imagining pain, suffering and a horrific, lingering death awaiting me in the not too distant future!

In fact, I've found both the drugs and the Zometa treatment to be very well tolerated by my body. A little nausea occasionally is dealt with by the anti-nausea tablets and my fears of a swift demise have been allayed by reading some of the positive posts about how long people have been on the drugs! It's really helped me reading the positive posts and practical solutions.

I've watched some of the Youtube videos from 'Living Beyond Breast Cancer' which has helped me too. Listening to positive stories helps me believe I can also have a positive outcome. There's some good videos for meditation and relaxation which help me sleep.

[Missmaddie615]

Hello and welcome! I was diagnosed with MBC shortly before you, in 6/2020. I have mets in some lymph nodes, sternum and liver. This group of lovely ladies is wonderful! So much support and so much knowledge here! It’s comforting to come to a place that everybody knows what you’re going through, because they’re going through it too. Here you can be yourself and talk freely. It’s a roller coaster ride for sure! I am thankful that there are so many lines of treatment available to us and more in the pipeline -there is hope! Wishing you much success with the treatment you are currently on! Blessings 🙏