Well I had my first face 2 face oncology appt today, since diagnosis 18 months ago. I saw a member of the team who needed to refer to the consultant. I'm actually feeling very well, even better having had my two weeks in Scotland. And I really haven't had any nasty side effects from ibrance and letrozole.
Firstly there was mention of progression and an area of 4 cm the radiologist had seen on the scan behind the sternum. The doctor needed to discuss with the consultant re continuing same meds and starting the zoledronic acid treatment. I sat in the waiting room for 30 mins, thinking this is the beginning of the end and I'd best tell my new partner to go and find someone more healthy.
I was then called back, to say that having compared with my earlier scans and given my bloods showed continued decrease in tumour markers that the area may be from the initial metasteces and not a new area. My lungs and liver are clear and my bones are stable. So it's all systems go and I might even get three months meds.
So I came away feeling pleased but with reservations which won't be resolved until they redo my scans in three months. I wish they'd got their heads together before talking to me and scaring the hell out if me to start with.
I think others on here have been less than pleased with East Surrey hospital!
Scantastic Results!
To port or not to port
Scary - 3mm increase in tumour size
Once visits only every two months not monthly. 
A bit of a set back
