Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

6,687 members • 8,226 posts

All posts for October 2021

Two weeks on Xeloda and high liver counts but low hemoglobin, calcium and platelets.

Hi wonderful people, I always share news about ErSO with you and give you hope Now I need your experience and help to get some comfort Please share and...

Hi wonderful people, I always share news about ErSO with you and give you hope ...

Cureforever

•3 years ago

51 Replies

Last day amongst the Fells

Sad to leave but have booked again for next March. Our souls are here in Cumbria. Have enjoyed every day. Back to reality tomorrow. This is the smallest church...

Sad to leave but have booked again for next March. Our souls are here in Cumbria...

Hidden

•3 years ago

21 Replies

Scanxiety Headaches

Hello everyone, long time I have not posted. My mom is a dyalisis patient (8 years now) and had a lung carcenoid which was removed in 2019. An unrelated tumor...

Hello everyone, long time I have not posted. My mom is a dyalisis patient (8 yea...

janeths466

•3 years ago

1 Reply

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The best news!!

I just got back from PET at M D Anderson in Houston. So relieved and happy that there is no progression and can continue with Ibrance. Over three years now...

I just got back from PET at M D Anderson in Houston. So relieved and happy that ...

Eliactida1955

•3 years ago

35 Replies

Encouraging research for those with brain mets

Interesting article published in The Guardian today https://www.theguardian.com/science/2021/oct/13/ultrasound-trial-offers-hope-brain-cancer-patients

Interesting article published in The Guardian today https://www.theguardian.com/...

Rubyjude

•3 years ago

1 Reply

My World and MBC

I am in a different world now. This has made it for me. We went to a lake called Wastwater. It is one of my favourite places and I have travelled some. I find...

I am in a different world now. This has made it for me. We went to a lake called...

Hidden

•3 years ago

25 Replies

Breast Cysts and swollen lymph nodes- not diagnosed as cancer (yet?) Thermogram for further insight?

Hello, my mother has stage 4 MBC and now my sister, who is 47 years old has a number of cysts in her breast and has had swollen lymph nodes in her armpits for...

Hello, my mother has stage 4 MBC and now my sister, who is 47 years old has a nu...

Shelley_Amber

•3 years ago

8 Replies

Natural alternatives to dexamethasone/steroids for anti-nausea prior to chemo?

Hi. I start my new treatment on Friday. It’s routine they give dexamethasone prior to I/v chemo for nausea. I don’t want steroids. Does anyone else have...

Hi. I start my new treatment on Friday. It’s routine they give dexamethasone pri...

Gorgeousness

•3 years ago

1 Reply

Second PET Scan Good and Mayve Bad

Hi. I read your wonderful, supportive posts daily, but seldom post myself. I was diagnosed with MBC in January 2021, mets to liver only. Have been taking...

Hi. I read your wonderful, supportive posts daily, but seldom post myself. I w...

1711JPD

•3 years ago

7 Replies

ESMO 2021 learning about breast cancer hosted by Bay Area Breast Cancer Forum next Wednesday on 10-20 6:30 pm PDT

Next week on Wednesday 20 from 6pm to 730pm, Dr. Hope Rugo and her colleagues will join together to share practice changing data from the European Society of...

Next week on Wednesday 20 from 6pm to 730pm, Dr. Hope Rugo and her colleagues wi...

Sparky95

•3 years ago

2 Replies

Brain mets in addition to lung, bone and liver

As I'm reading the posts on this site, I am amazed at the wisdom you all have. My original breast cancer was 18 years ago. One year ago my journey began...

As I'm reading the posts on this site, I am amazed at the wisdom you all have. ...

sparks4me

•3 years ago

12 Replies

Cancer Without Chemotherapy: ‘A Totally Different World’ - The New York Times

Hi fellow MBC’ers: Very interesting & hopeful article! https://www.nytimes.com/2021/09/27/health/breast-cancer-chemotherapy-lung.html Cancer Without...

Hi fellow MBC’ers: Very interesting & hopeful article! https://www.nytimes.com/...

hopenowandtomorrow

•3 years ago

8 Replies

MBC and today’s trip with a wonderful walk

Had a nice walk in Caldbeck Cumbria aided by my new walking poles. Thanks Clare and Sandra for the advice. They made me feel secure

Had a nice walk in Caldbeck Cumbria aided by my new walking poles. Thanks Clare ...

Hidden

•3 years ago

14 Replies

Finding a Similar Diagnosis

Does anyone have ER positive invasive ductal carcinoma in breast and lymph nodes but ER and HER2 positive in brain? I have 3 lesions. I was removed...

Does anyone have ER positive invasive ductal carcinoma in breast and lymph nodes...

Lorrybu

•3 years ago

Be the first to reply

Question about MBC

Does anyone have ER positive invasive ductal carcinoma MBC de novo and PR and HER2 negative with brain mets where when biopsied was mostly ER positive but also...

Does anyone have ER positive invasive ductal carcinoma MBC de novo and PR and HE...

Lorrybu

•3 years ago

Be the first to reply

ErSO Change.org petition

I hope this is OK to post, I know there are already a number of ErSO topics but I just wanted to bring to peoples attention a petition that has been created to...

I hope this is OK to post, I know there are already a number of ErSO topics but ...

gossy29

•3 years ago

4 Replies

Living with MBC

Tonight we can see Jupiter and Saturn in the sky with our Star Gazer app. It’s so beautiful. Like a guiding light. I’ve never felt so relaxed after the awful...

Tonight we can see Jupiter and Saturn in the sky with our Star Gazer app. It’s s...

Hidden

•3 years ago

21 Replies

Navelobine

Is anyone on Navelobine? I'm starting Tuesday 2 weeks on 1 week off.

library2019

•3 years ago

6 Replies

WBRT?

Hi all. My wife has TNBC, recently they found brain mets, about 5, one 5cm. They first of all said wait to see if Capecitabine worked then came back to say she...

Hi all. My wife has TNBC, recently they found brain mets, about 5, one 5cm. They...

Winner123

•3 years ago

5 Replies

Taxol

Hello, I will start taxol this Wednesday with 3 weeks on and 1 week off , Are there any women going through this course and how do you feel after the round....

Hello, I will start taxol this Wednesday with 3 weeks on and 1 week off , Are th...

Iwouldlike2knowmore

•3 years ago

9 Replies

Biggest MBC struggles

Hi! Im Kim 41 HR+ HER2- widespread mets to too many bones since 3/2021. I've been feeling so sorry for myself lately - I'm assuming this is just part of the...

Hi! Im Kim 41 HR+ HER2- widespread mets to too many bones since 3/2021. I've bee...

KimberlyB40

•3 years ago

24 Replies

Changing Meds to Xeloda/capecitabine

Good Morning Ladies, I have so appreciated the information everyone shares as it has helped me so much! Not to mention the positive thoughts and prayers. 🙏...

Good Morning Ladies, I have so appreciated the information everyone shares as it...

Sparky95

•3 years ago

26 Replies

Neck Stiffnes and tension headache

Hi i am 44 and have metastatic breast cancer to the bone and lymph node since Juli 2021. I am on Letrozole and Ibrance, denosumab and Zoladex every month....

Hi i am 44 and have metastatic breast cancer to the bone and lymph node since Ju...

Oltu

•3 years ago

22 Replies

Cumbria & Happy

After a week of hospitals Dentist was really happy with the healing from tooth extraction and Oncologist was ok today about keeping me on Everolimus and...

After a week of hospitals Dentist was really happy with the healing from tooth e...

Hidden

•3 years ago

18 Replies

Let’s inform our oncologists about ErSO

Hi wonderful people, I think maybe it would help to ask our oncologists if they heard about ErSO and possible human trials. If they did not hear about it (most...

Hi wonderful people, I think maybe it would help to ask our oncologists if they ...

Cureforever

•3 years ago

25 Replies

Liver Mets with High Bilirubin

I’ve just received my lab results and everything is okay except that my bilirubin is high at 2.20- Referance range is 0.2 -1.0. Does anyone here with liver...

I’ve just received my lab results and everything is okay except that my bilirubi...

MyMiracle13

•3 years ago

10 Replies

Thank you my friends 🌹❤️🥰

I have met so many nice , giving ,loving and strong woman on this site that I consider friends . I am so happy to have a place to go to cry , laugh , learn...

I have met so many nice , giving ,loving and strong woman on this site that I c...

Ycats277

•3 years ago

17 Replies

MD Anderson Visit Update for Interventional Radiology Consult for Bone Fractures

Hi Fellow MBC’ers: Here is my update from my IR consult with MD Anderson in Houston: 1. The IR Doctor trained & published with IR team in France where many...

Hi Fellow MBC’ers: Here is my update from my IR consult with MD Anderson in Hou...

hopenowandtomorrow

•3 years ago

11 Replies

MBC changing from oral chemo to drip

I have stage 4 metastatic breast cancer with Mets to bones and liver. I took Ibrance for 11 months before it quit working, then a short 10 days on Piqray which...

I have stage 4 metastatic breast cancer with Mets to bones and liver. I took Ibr...

Kellyonekanobe

•3 years ago

30 Replies

Some words to live by

Dear Ladies, I saw this quote on Facebook today and wanted to share with all of you. I know we are all at different places in our MBC journey, but I thought...

Dear Ladies, I saw this quote on Facebook today and wanted to share with all of ...

love2golfwell

•3 years ago

18 Replies

Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

All posts for October 2021

Two weeks on Xeloda and high liver counts but low hemoglobin, calcium and platelets.

Last day amongst the Fells

Scanxiety Headaches

The best news!!

Encouraging research for those with brain mets

My World and MBC

Breast Cysts and swollen lymph nodes- not diagnosed as cancer (yet?) Thermogram for further insight?

Natural alternatives to dexamethasone/steroids for anti-nausea prior to chemo?

Second PET Scan Good and Mayve Bad

ESMO 2021 learning about breast cancer hosted by Bay Area Breast Cancer Forum next Wednesday on 10-20 6:30 pm PDT

Brain mets in addition to lung, bone and liver

Cancer Without Chemotherapy: ‘A Totally Different World’ - The New York Times

MBC and today’s trip with a wonderful walk

Finding a Similar Diagnosis

Question about MBC

ErSO Change.org petition

Living with MBC

Navelobine

WBRT?

Taxol

Biggest MBC struggles

Changing Meds to Xeloda/capecitabine

Neck Stiffnes and tension headache

Cumbria & Happy

Let’s inform our oncologists about ErSO

Liver Mets with High Bilirubin

Thank you my friends 🌹❤️🥰

MD Anderson Visit Update for Interventional Radiology Consult for Bone Fractures

MBC changing from oral chemo to drip

Some words to live by

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