Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

6,607 members • 8,142 posts

All posts for January 2021

Help needed with Medicare

I live in the US and I’m looking into Medicare Part D for my Ibrance and I need help determining what coverage I need that will pay for it. I understand it’s...

I live in the US and I’m looking into Medicare Part D for my Ibrance and I need ...

Shar313

•3 years ago

24 Replies

Xeloda

Well Ibrance and Fasoldex didn't work for me. I had progression of my lung mets. I am starting on Xeloda with much trepidation. So worried about the side...

Well Ibrance and Fasoldex didn't work for me. I had progression of my lung mets....

8576

•3 years ago

32 Replies

Has anyone been told to avoid alcohol while on IBrance for bone metastasis?

Alcohol inhibits blood cell growth in marrow and contributes to low blood cell counts

Alcohol inhibits blood cell growth in marrow and contributes to low blood cell c...

Dragonfly2

•3 years ago

40 Replies

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Kyphoplasty - has anyone had it?

My mom recently had SBRT to 2 tumors on her spine. A neurosurgeon is recommending she do kyphoplasty on her lumbar spine where one of the tumors was to...

My mom recently had SBRT to 2 tumors on her spine. A neurosurgeon is recommendin...

Jac-genova

•3 years ago

15 Replies

First scan on Xeloda

Tomorrow morning I have my first scan after starting Xeloda in October. I've only had one good scan since being diagnosed in February '19 (my first scan on...

Tomorrow morning I have my first scan after starting Xeloda in October. I've on...

Arisgram

•3 years ago

23 Replies

I take letrozole and Ibrance together

After dinner. I am 3 weeks on both and 2 weeks just letrozole. This sounds crazy but I feel better when on both together. Letrozole itself causes me more body...

After dinner. I am 3 weeks on both and 2 weeks just letrozole. This sounds crazy...

Kdst777

•3 years ago

17 Replies

UBC lab found ?????

Hi All I watched on global news that a lab in British Columbia used the waste from the nuclear medicine isotope and found that there was patient in Germany...

Hi All I watched on global news that a lab in British Columbia used the waste f...

Shelby4now

•3 years ago

3 Replies

Something to help us smile

Marshmallow world in the winter

urthmothr

•3 years ago

4 Replies

Reimbursement Incentives and Oncology Practice

For those of you who have mentioned concerns about big Pharmacare, here is a reference to a brief article, dated January 3, 2019, in the Journal of the...

For those of you who have mentioned concerns about big Pharmacare, here is a ref...

Hazelgreen

•3 years ago

13 Replies

Ovary biopsy

Has anyone had an ovarian biopsy? What does it entail, please?

Morenow

•3 years ago

4 Replies

Pertuzumab , Herceptin Her2positive

Happy new year everyone. I’m asking for a friend. Is anyone on the above meds and suffering irritation all over the body and sleepless nights. She had Liver...

Happy new year everyone. I’m asking for a friend. Is anyone on the above meds a...

Hidden

•3 years ago

6 Replies

Feeling faint with ibrance

Hi to all, Hope you're good. I've been on anastrozole, ibrance, xgeva and zoladex since June 2020. First 3 months were fine - apart from all the anxiety...

Hi to all, Hope you're good. I've been on anastrozole, ibrance, xgeva and zolad...

Lulu4545

•3 years ago

24 Replies

Please share your experience with abemaciclib (Verzenio)

Hello ladies! This is my first post of the year, so, “Happy New Year” to each of you and your loved ones. It’s gotta’ be a better year, world wide. Went on the...

Hello ladies! This is my first post of the year, so, “Happy New Year” to each of...

USIrishcolleen

•3 years ago

6 Replies

Hair color roots???

What about getting my roots done? Foiled blonde all my life... can I still get my roots done? The root is now 4 inches!!!!

What about getting my roots done? Foiled blonde all my life... can I still get ...

Sugarbaker60

•3 years ago

14 Replies

CoC (Care Oncology Protocol) and your Oncologist

Hello Ladies ! I know there are a number of discussions about CoC Protocol. I'm meeting with one of the doctors/oncologists this Thursday via conference...

Hello Ladies ! I know there are a number of discussions about CoC Protocol. I'm...

Adele_Julia

•3 years ago

7 Replies

Capceitibine

My eyes are always watering and feels like something in them, Does anyone have a problem with this. Helena

My eyes are always watering and feels like something in them, Does anyone have a...

Iwouldlike2knowmore

•3 years ago

12 Replies

exloda

How do women feel if they have one week off from exloda

Iwouldlike2knowmore

•3 years ago

4 Replies

Faslodex

Has anyone noticed more pain in the hips for days after the new faslodex shots thanks

Has anyone noticed more pain in the hips for days after the new faslodex shots ...

marianne88

•3 years ago

6 Replies

Are repeated PET scans an overload of Radiation?

I am having PET scans about every three/four months. There is one scheduled for 2 February. I abhor them and I'm afraid of all that radiation. If anyone...

I am having PET scans about every three/four months. There is one scheduled for...

jersey-jazz

•3 years ago

60 Replies

Vent time

Hi Everyone, I try not to vent here too much, as I know we all are struggling with some thing or another and we all know what it is like to have MBC. Good...

Hi Everyone, I try not to vent here too much, as I know we all are struggling w...

SusieIM

•3 years ago

21 Replies

Has anyone been on Eribulin (Halaven)

Met with my onc a few days ago and she would like the next line of treatment to be Eribulin I would assume it is a later IV chemo drug to take. I have lost...

Met with my onc a few days ago and she would like the next line of treatment to ...

Shelby4now

•3 years ago

10 Replies

Afinator responses

Hello there, cat scan showed liver metz. Will be starting Afinator. I would like to know your experience

Hello there, cat scan showed liver metz. Will be starting Afinator. I would like...

Layla818

•3 years ago

3 Replies

Heat up areas in liver

Hi, well I got good news from onc that bone Mets decreasing and stable meanwhile scheduled for MRI for “liver heat up areas”I do not feel good about this...

Hi, well I got good news from onc that bone Mets decreasing and stable meanwhile...

ChrisVict

•3 years ago

9 Replies

Osteoporosis Made Worse by Piqray & fulvestrant?

Has anyone had spinal compression fractures from osteoporosis while on these meds?

Has anyone had spinal compression fractures from osteoporosis while on these med...

Remyan

•3 years ago

Be the first to reply

Loss of taste buds

Has anyone experienced total loss of taste while on Piqray and fulvestrant? Can you ever get your taste buds back?

Has anyone experienced total loss of taste while on Piqray and fulvestrant? Can ...

Remyan

•3 years ago

1 Reply

I have Covid! Ugh!

Hi, I've been on Ibrance and Letrozole for almost 4 years for MBC that was a reassurance from almost 20 years prior. At that time it was triple negative. This...

Hi, I've been on Ibrance and Letrozole for almost 4 years for MBC that was a rea...

Scampbell63

•3 years ago

55 Replies

Lymphedema

About a month ago I started having pain with lymphedema in my chest, upper arm, under my arm and upper back. I started physical therapy doing massages...

About a month ago I started having pain with lymphedema in my chest, upper arm, ...

JEY1

•3 years ago

4 Replies

Exloda

Has anyone got a rash on there face from Exloda.

Iwouldlike2knowmore

•3 years ago

Be the first to reply

Xeloda

The women out there how are you doing on Xeloda I will be finishing my first two weeks 1500 mg in the morning and 1500 mg at night. Helena

The women out there how are you doing on Xeloda I will be finishing my first two...

Iwouldlike2knowmore

•3 years ago

4 Replies

capecitibine

Hello, Is anyone on Capecitibine and how are you doing. Helena

Iwouldlike2knowmore

•3 years ago

21 Replies

Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

All posts for January 2021

Help needed with Medicare

Xeloda

Has anyone been told to avoid alcohol while on IBrance for bone metastasis?

Kyphoplasty - has anyone had it?

First scan on Xeloda

I take letrozole and Ibrance together

UBC lab found ?????

Something to help us smile

Reimbursement Incentives and Oncology Practice

Ovary biopsy

Pertuzumab , Herceptin Her2positive

Feeling faint with ibrance

Please share your experience with abemaciclib (Verzenio)

Hair color roots???

CoC (Care Oncology Protocol) and your Oncologist

Capceitibine

exloda

Faslodex

Are repeated PET scans an overload of Radiation?

Vent time

Has anyone been on Eribulin (Halaven)

Afinator responses

Heat up areas in liver

Osteoporosis Made Worse by Piqray & fulvestrant?

Loss of taste buds

I have Covid! Ugh!

Lymphedema

Exloda

Xeloda

capecitibine

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